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System Failure for Huntington's Families | Cork News
A High Court judge has issued a stark warning: Ireland urgently needs a national plan for Huntington’s disease, as systemic failures are devastating families across generations. A woman in her sixties won a $142,000 settlement after being misdiagnosed for years — her daughter revealed 26 relatives across three generations are now affected, with some losing precious time or dying without answers. The judge condemned the nation’s single dedicated Huntington’s nurse and slammed the HSE for ignoring a 2022 care pathway proposal. The core problem? A broken system that can’t link genetic results to…
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