A Rare Collection - From Financial Strain to Supportive Gain - A Call For Action
ONCE UPON A GENE - EPISODE 220
A Rare Collection - From Financial Strain to Supportive Gain - A Call For Action
There's power in storytelling- for the listener and the storyteller. A Rare Collection is a monthly series featuring people from the rare disease community, sharing a story with a common theme.
EPISODE HIGHLIGHTS
Katie Scheid
The beginning of my care-giving journey was filled with trauma, disbelief and a complete re-shaping of the life I knew. My daughter Millie is three and a half years old and I am her full-time, unpaid caregiver. She suffered a severe stroke just before she was…
The skinny
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