Latest / The Dr Louise Newson Podcast / 61 – Living with untreated urinary symptoms
Transcript
- 0:02So Penny, you're here in London, I've seen you in Amsterdam where
- 0:07you live. But I met you in London
- 0:09actually, didn't I? Because I was on my theatre
- 0:12tour, my last theatre tour, and you came up at the end and said
- 0:16I want you to come and talk in Amsterdam.
- 0:18One minute, yeah. I had one minute at the book
- 0:21signing, yeah. And I saw my chance, Yeah.
- 0:24It was a little bit over a year ago.
- 0:26And yes, I feel like we've done a lot, So much.
- 0:29Yeah. So we brought you over to
- 0:30Amsterdam for the Connected Health Weekend.
- 0:33Then I interviewed you for the article about long COVID and
- 0:37hormones, and you were so kind to review it and we were in
- 0:41touch. And yeah, it's great to be here.
- 0:45I mean, you know, I, I called you already back in Amsterdam.
- 0:48I work in sports advertising. So I, I think now you know this
- 0:52term goat. Yeah.
- 0:53Which doesn't mean the animal, but it's the greatest of all
- 0:56time. Oh, you're so kind.
- 0:58So and I think you are the GOAT of menopause.
- 1:02Oh so owner. You know, I was in Amsterdam.
- 1:05We had a great weekend. I gave a lot of presentations to
- 1:09women, men, healthcare professionals, and the
- 1:11healthcare professional section was really busy.
- 1:14I gave my presentation and then you gave yours, and I thought I
- 1:18knew you really well. I knew you'd had a story and I
- 1:20knew that your health had improved on hormones, but I
- 1:23didn't know how much you'd suffered.
- 1:26And you have kindly agreed to talk about your suffering
- 1:30because lots of women get symptoms.
- 1:32And when I read articles, it will say the majority of women
- 1:36have symptoms related to genital urinary syndrome of menopause,
- 1:40like 70%. And probably only about 810% of
- 1:44those women have treatment. When you read it on black and
- 1:47white, you think, oh that's bad and you keep reading the
- 1:50article. But when you talk to women who
- 1:53have symptoms, it's not just words on a page.
- 1:57And when I first learned about genital urine syndrome, the
- 2:01menopause, it wasn't called that.
- 2:02It was called VVA, which was Volvo vagina atrophy.
- 2:07The word atrophy, if you look it up in the dictionary, is
- 2:11withering and wasting away thinning.
- 2:13Like. And actually, I don't want to
- 2:14think of my anatomy withering and wasting away.
- 2:18And then some people, even then VVA was a bit of a mouthful, so
- 2:21they'd just say any vaginal dryness.
- 2:24But as yours talking a bit, it's not just always dryness.
- 2:29We're trying to change the terminology actually with a
- 2:31group of people I know in US, in America to just genital urinary
- 2:36syndrome because it's not just menopause.
- 2:39My 23 year old Jess was on the podcast recently talking about
- 2:44her use of vaginal hormones and she has PMDD.
- 2:48She's not menopausal. If I wasn't her mum and she
- 2:51didn't have access to a good menopause specialist, she would
- 2:54be having lots of symptoms. I think back in the past as AGPI
- 2:59had lots of patients with, I thought, recurrent thrush, a lot
- 3:03of vaginal soreness, irritation, urinary tract symptoms.
- 3:08Never once did I think about hormones in them.
- 3:11So I don't think it should be called GSMI.
- 3:15Think the M is wrong and for you?
- 3:17It certainly wasn't menopause where you started to experience
- 3:20symptoms, was it? Yeah, in hindsight, it was
- 3:23perimenopause, Yeah. So it started definitely from my
- 3:28fortieths because I I have letters from the gynecologist
- 3:32and I can see the the the year. But I think actually it probably
- 3:37started already late 30s and it started just with first
- 3:44irritation after sex. And then it, it, it was a few
- 3:48days, then it turned into irritation just out of no
- 3:52reason. And then I, I noticed a pattern
- 3:55myself where I would have irritation just before I had my
- 3:59period because at the time I, I was, I still had my period every
- 4:04four weeks. So, yeah, now I know it was
- 4:10perimenopause and I went to the GP, then I went to after, I
- 4:17think it took two years. Then I I went to see a
- 4:21gynecologist. And again, I mean, this was,
- 4:25we're talking 2012, 13. So I'd like to think now that
- 4:31people know more about it, but it's quite sad.
- 4:34And I actually at some point I, I even, and I have the letter
- 4:39still at home back from 2013 where the gynecologist actually
- 4:42writes in her report saying patient thinks it's also linked
- 4:46with hormones. You're crazy.
- 4:50No, not crazy, but she just put it there as a fact because I'd
- 4:54mentioned it and I, I thought it was linked to my periods, which
- 4:58in a way it was, but it was hormones paramenopause and I, I
- 5:04basically it went on like that. So were you given any hormones
- 5:08at that time? No, no, and they never really
- 5:12figured out what it was in the letter.
- 5:15Literally that went back to the GP.
- 5:18It says it could be listen sclerosis.
- 5:20Maybe it's, it's too like they listed basically everything.
- 5:23So I never really got worried, but it was just super annoying.
- 5:27And it was like, and I see a lot of I'm in a international sport
- 5:31group. I see a lot of women using the
- 5:33word flare up. So, and it started with a few
- 5:36days of flare ups, then over the years it went into weeks and
- 5:42eventually even months and of this and again, like I never had
- 5:47any bladder infection or UTI. And that that's the thing,
- 5:51right? The janitorial synonyms can be
- 5:53many things. So my main problem was just like
- 5:57this crazy irritation. I described it, I think in the
- 6:01presentation, it was like this constant feeling of having like
- 6:05a fire and a whole colony of ants going 24/7 through your
- 6:12your underwear. And you still have to to
- 6:17function, right? And it's not something you're
- 6:20going to moan about at work. You know, you can say, oh, I
- 6:23have a headache or I pulled my back, but you're not going to
- 6:26say like I had this horrible problem with my private parts.
- 6:30You probably would get reported to HR, right?
- 6:33You would say these? Things and was it affecting your
- 6:35sleep? Yeah, sometimes it was difficult
- 6:38to fall asleep. Yeah.
- 6:39But I think mainly throughout the day, you know, at at night
- 6:43you can also like not wear underwear, but throughout the
- 6:47day and with cycling and there were whole periods where I could
- 6:50only wear leggings and even sitting like towards the end.
- 6:56So I basically struggled through like I think eight years and in
- 7:01the beginning it was just the thing where I thought I need to
- 7:05solve this because this is going to, it's interfering with my sex
- 7:09life. So as you know, I work as a
- 7:13producer, so I'm used as a producer.
- 7:16You're responsible for like organizing, managing everything.
- 7:20So a good producer will always be a hat 2 steps of everybody
- 7:25else and have like a plan. So if this happens, we have plan
- 7:29BC so and I feel like this is how I manage everything in my
- 7:34life. So I was thinking like, OK, this
- 7:36is a problem now I need to get this fixed because this is not
- 7:41good for the for the future. And so that's how it started.
- 7:46But I mean, eventually over years, it got so bad and the
- 7:50flare ups got longer and longer. I mean, I, I, it was more like,
- 7:56how can I get through the day? How can I actually cycle?
- 7:59How can I sit down? So it, it was really, yeah, if I
- 8:03think about it, so sad. And then because I couldn't
- 8:08accept it, I, I, I kept searching.
- 8:10And again, this is quite a long time ago now, nearly 15 years.
- 8:14So luckily now there's a lot of information and you know, we're
- 8:18doing the podcast. And so eventually I, I think in
- 8:252023 is your, you did the first podcast with Rachel Rubin.
- 8:31And that's when I really realized it was janitor cinema
- 8:35of menopause. I had already kind of figured
- 8:38out before a few years before that, that it was probably this
- 8:41vaginal atrophy. But again, like that, that term,
- 8:46as you were just saying, is it's wrong.
- 8:49And, and the interesting thing was what you guys were saying on
- 8:53the podcast. And that's when I was really
- 8:55like, Oh my God, I think it was Rachel saying that very often
- 9:01she would see those symptoms starting even before any other
- 9:06perimenopause symptoms started. And that's when I I realized
- 9:11that's me. That's amazing.
- 9:13So if you hadn't have listened to the podcast with Rachel
- 9:16Rubin, things might have been very different.
- 9:18Yeah, and I probably would have struggled even longer.
- 9:23So eventually I found another gynecologist and she actually
- 9:31she diagnosed, she said, yes, this janitor cinema menopause.
- 9:36I still have that letter at home as well.
- 9:39And for me to actually read that and like a specialist finally
- 9:42saying that already helped. But then it it took a year to
- 9:48actually heal properly. And also because I, I'd read
- 9:53this in the, the international online support group where
- 9:57someone had said they actually need a much more of the
- 10:02traditional doses, which is 2 weeks every day, right?
- 10:05And then you're supposed to do it twice a week.
- 10:09And I I read about someone saying that she actually needed
- 10:12it. Every day.
- 10:13Every day for a long period. So I discussed that with my
- 10:17gynecologist and I'm so glad that she was actually, she said,
- 10:21that's fine here you have a long standing prescription and, you
- 10:25know, just experiment yourself. Because I also see a lot of
- 10:29women in that support group in, in different countries where
- 10:33their doctors just refuse to prescribe more or they're
- 10:38saying, oh, it's not helping, but it's probably because they,
- 10:41they don't, you know, they need more.
- 10:44So I, it took me a year, I needed at least five times a
- 10:47week. And now it's all under control
- 10:51and I was able to reverse, but it's so I've basically, so that
- 10:56was 2023 when I got properly diagnosed and then it took
- 11:00another year. So now that was 14 years of
- 11:04yeah, wasted a little bit. Yeah, it's, it's so sad because
- 11:10it is one of those symptoms that just progresses without
- 11:13treatment. You know, some people find that
- 11:16their flushes or sweats don't last, that, you know, they might
- 11:19last months, they might last a few years, but generally they
- 11:22tend to improve with time. But this is one of the symptoms
- 11:26that doesn't. And it's like I say, so common,
- 11:30but people don't always know what to look out for.
- 11:33And I think if anyone has any irritation at all or any sort of
- 11:38awareness, like, I know, you know, as we're sitting talking,
- 11:41we shouldn't be aware of our vulva and our vagina.
- 11:44You know, we're not aware of other parts of our body in the
- 11:46same way. Whereas if you are aware, then
- 11:48there's probably something that's not quite right.
- 11:51And just the I say universal commas, irritation, burning
- 11:55symptoms that you say you're at work, you're in a meeting,
- 11:58you're trying to sit down. And I wasn't really taught about
- 12:01it as a as a medical student or a postgraduate.
- 12:04And I remember the first time I saw someone with, with symptoms,
- 12:07similar tools in my clinic. And she she said, oh, do you
- 12:09mind if I don't sit down for the whole consultation?
- 12:12And I thought, what, the chairs are quite comfortable.
- 12:14And then she said, I've just driven in my car to come here.
- 12:18I really need to stand up. And she was wearing this long,
- 12:20floaty skirt. And I said, oh, can I examine
- 12:22you? And she said, yeah, but she
- 12:24wasn't wearing underclothes. And I'd never seen anyone that
- 12:27extreme because as a GPI would always get on and treat people.
- 12:30She, like you had seen lots of doctors, tried to get help.
- 12:33She'd had biopsies, she'd had steroid creams, nothing had
- 12:36helped at all. But the doses of the vaginal
- 12:39hormonal preparations are very, very low, incredibly low.
- 12:43And so using them every day really isn't a problem.
- 12:47And some people need to use a pessary.
- 12:49And then I often give a cream or a gel to use externally as well.
- 12:54And quite often people use prasterone, which is DHEA, so it
- 12:57converts to estradiol and testosterone.
- 13:00And using systemic hormones can make quite a difference as well.
- 13:04Yeah, I have the whole whole picture now.
- 13:07Yeah, including testosterone, which has been like that the the
- 13:11last thing to really help it. And has that made a difference?
- 13:16Yeah. Yeah.
- 13:16Yeah. And now I can really do it 2-2
- 13:20nights a week. Yeah, with the vaginal hormones.
- 13:24Yeah, yeah, yeah. But I'm, I'm never coming off
- 13:28them. No.
- 13:28And you don't need to. And I think that again is really
- 13:30important because some women sadly are taken off them after a
- 13:34certain length of time. But there is no risk with these
- 13:37hormones because they are such a low dose.
- 13:40So they don't get absorbed into the system.
- 13:43And once you stop using them, the symptoms are likely to come
- 13:46back and you do not want them coming back at all.
- 13:49Other some friends in, in my circle of women, I've, I've told
- 13:55them one who had recurring bladder infections, I said, you,
- 14:00you, you need to go and get a prescription for this.
- 14:04And she started another friend who had some issues, who had
- 14:08some doubts about starting hormones, but she was really
- 14:12happy. And it's it's like everybody
- 14:14needs to know about this. You know, if this was a a male
- 14:18problem, I always try to like explain.
- 14:21So let let's see how this was if this was an issue, Mana, right.
- 14:25So let's try and explain this to man.
- 14:26So you have this constant burning penis.
- 14:30Your foreskin is, is really hurting.
- 14:33You have small cuts appearing out of nowhere.
- 14:36You know, you don't even want to have sex.
- 14:38So how would this be like no man would accept this, right?
- 14:43Like the whole world would be. I think it's one of your
- 14:48colleagues saying there would be a vaccine or maybe Rachel Rubin
- 14:51is saying this. There would already be a vaccine
- 14:53for many years. And I think also janitorial
- 14:56synonym of of menopause or hormones.
- 14:58It's probably the last taboo of menopause.
- 15:04This year I'm taking a new show around the UK called Breaking
- 15:08the Cycle, The Power of Hormones.
- 15:11I'll be visiting theatres across the country to talk about
- 15:14something that affects every part of our lives.
- 15:17It is still widely misunderstood.
- 15:19And of course, that's our hormones.
- 15:22They shape how we feel, how we sleep, how our bodies function
- 15:26and how our health changes over time.
- 15:29And yet so many women are left confused, misinformed, or simply
- 15:33not listened to. So in this show, I'm going to be
- 15:37unpacking how hormones really work, where medicine has gone
- 15:40wrong, and why Women's Health has so often been overlooked.
- 15:45I'll be sharing the science, some of the history, and also
- 15:49real stories behind decades of misinformation alongside
- 15:53practical insights that can help you understand your own body
- 15:57better. There will be moments that
- 15:59challenge what you think and know, and space to ask questions
- 16:02you may never have been given answers to before.
- 16:05If you want to learn, reflect, and leave feeling more confident
- 16:09about your own health, I'd love you to join me.
- 16:12Tickets are on sale now. There's a link in the show
- 16:15notes. I think.
- 16:18It's trivialized as well. I think a lot of people don't
- 16:23understand the association with the urinary symptoms and the
- 16:26localised symptoms. A lot of people think, oh, it's
- 16:30not that bad and they don't understand or they don't want to
- 16:33understand. The treatment is so easy
- 16:36actually, but it can take so long and I think also a lot of
- 16:41clinicians still are embarrassed talking about sex or they're
- 16:46talking about these localised symptoms, which is.
- 16:49Crazy. I think, you know, in the
- 16:50Netherlands, I think we're quite, I think your sister was
- 16:53saying after my presentation, oh, it's so good.
- 16:56Dutch people are so open. And normally I must say I'm a
- 17:00very private person. But I think after my struggle
- 17:04for, you know, like I said, it took me 14 years, I feel like
- 17:10every woman on the earth needs to know.
- 17:13And also because symptoms can start in your 30s, but also if
- 17:19if you don't get this around your menopause, I know a woman
- 17:23who's in her 70s who just recently started getting these
- 17:27symptoms. So I've been helping her with
- 17:28like, you know, getting the right treatment.
- 17:31So, and I was reading another article where they sat between,
- 17:38it's like some really random numbers between 27 and 78% of
- 17:44women get these symptoms. That's a wide range.
- 17:48It's probably because a lot of women don't talk.
- 17:50About it but let's. Say so basically almost
- 17:54everyone, right? That's nearly 80% of women who
- 17:57can get this at somewhere between, well, you're saying
- 18:01your, your daughter has it. So let's say between your and
- 18:04your hundreds because a lot of women in the care homes or older
- 18:11women get all these Utis, right? My sister works in a care home.
- 18:16I've once asked her, I said, is this actually true?
- 18:19And she says, yes, a lot of them.
- 18:21And the doctors give them a lot of antibiotics.
- 18:24And it's so sad. It is, yeah.
- 18:27And I, I remember going, visiting a lot of nursing homes
- 18:30as AGP and they'd often smell of urine.
- 18:33Yeah. You know.
- 18:33The glowing. Incontinent and but again, I
- 18:37didn't think about hormones, you know, I feel really embarrassed
- 18:41and I didn't. But actually now we've got this
- 18:43knowledge, everybody should know about it and like the forums
- 18:47that the people that you're giving advice to, it's so
- 18:49important because then they know there's an option for them so
- 18:52they don't have to suffer. Also, the doctors in the care
- 18:55homes, when you came over to the Netherlands, I, I was trying to
- 19:00get in touch with the Doctor Who was at the care home where my
- 19:04mother lived because I wanted her to see.
- 19:08Also, your presentation about the risk of not taking hormones,
- 19:11because I think the people that are the cariatric doctors that
- 19:15are treating elderly, I don't think they are aware, right, of
- 19:20this link where? And yes, it might be too late to
- 19:23start a 80 year old woman maybe on hormones.
- 19:26Not at all. Yeah, that's the whole
- 19:27discussion too, right? But at least I think it's good
- 19:31if those doctors understand. But there seems to be a gap.
- 19:36Yeah, there is, I mean, there, there is a big gap with
- 19:39education for the doctors and education for women.
- 19:42And I think actually that gap is getting wider because women are
- 19:46understanding it's a lot more. But there's still this
- 19:49resistance by doctors and I'm not quite sure why.
- 19:52Some of it is due to lack of education, some of it is due to
- 19:56the misunderstanding. So for example, you wouldn't
- 19:58start an older woman on synthetic hormones.
- 20:01So women in their 70s or 80s, I wouldn't start the older types
- 20:05of estrogen. And the pregnant horses urine,
- 20:08estrogen, all the synthetic progesterone because there are
- 20:10risks with them. But the natural hormone
- 20:12estradiol, the natural progesterone, the natural
- 20:15testosterone, there's no reason. And in fact, one of my doctors
- 20:18who works with me yesterday was saying that she had a lady in
- 20:21her late 70s who came to see her with her daughter three months
- 20:25ago and she was barely climbing the stairs to go to the
- 20:28consulting room. Every step was a real ethics was
- 20:31so painful. And she came back for a review
- 20:34this week and she just walked upstairs and she didn't really
- 20:37realize it was the same person. And she said that's just three
- 20:40months of being on hormones. And so I do worry when you look
- 20:44at the older generation who have missed out, you know, we're both
- 20:48similar age, in our mid 50s, and we're lucky we've chosen to take
- 20:51hormones. But there are women in the
- 20:54generation above us really, who are struggling and you see them
- 20:59in the nursing homes and I often wondered what would their lives
- 21:03have been if they had had hormones available to them.
- 21:06Yeah, yeah. So my mother passed away about a
- 21:09little bit over a year and a half ago.
- 21:11And the last nine months of her life, she was living in a care
- 21:14home. And when I was each time when I,
- 21:18when the more I, I was there, I looked around and I thought must
- 21:22be 70% of the people living here that are women and they all had
- 21:27similar things. And, and you know, you never,
- 21:29you got, you don't get into these care homes anymore.
- 21:32Just went one thing. And my mother, she had
- 21:36rheumatoid arthritis. She had a severe heart disease.
- 21:41She had a pacemaker. She had macular degeneration,
- 21:46which I think is linked to oestrogen, lack of oestrogen.
- 21:49And then about a year before she she died, she was also diagnosed
- 21:53with Alzheimer, which is also linked to that.
- 21:56Yeah, I always said the only thing she didn't have was
- 21:59osteoporosis, but I think the the rheumatoid arthritis was
- 22:02quite bad. But looking around, like a a lot
- 22:07of women had Alzheimer's, they had osteoporosis, you know, they
- 22:10were all yeah, this. My sister was saying a lot.
- 22:13A lot of them have the Utis. And I think it was about four
- 22:19months after she died when I saw your show in London in October
- 22:2324. And in the first half of the
- 22:26show, you had this picture of like what happens when your
- 22:31hormones kind of basically get lower and lower?
- 22:35And you showed this picture of this old woman being hunched.
- 22:38And I just sat there and it's like, you're just describing my
- 22:44mother. And I realized actually more and
- 22:48more I realized after she died, like I think everything that she
- 22:53she was suffering was probably the lack of hormones and looking
- 22:58at all the other other women. And I recently saw a Dutch
- 23:05doctor on LinkedIn who apparently has she's now working
- 23:09with menopausal women. But she apparently has had been
- 23:12a doctor working in a care home. And she was actually putting on
- 23:16a post saying exactly my thoughts thinking.
- 23:21But isn't that if all these women would have had hormones
- 23:26earlier, maybe they they they would be in better health?
- 23:30Yeah, it's so interesting. Just before I left my GP
- 23:32practice, I the penny dropped and I realized that a lot of the
- 23:36women I visited went on hormones.
- 23:38They weren't using vaginal hormones or systemic hormones.
- 23:40So I did a search just in the record.
- 23:43It was quite a big practice. So I wanted to see how many
- 23:47people who were in nursing homes, residential homes, care
- 23:51homes, warden control flats, had carers visiting them.
- 23:55How many of those women were using either HRT or vaginal
- 23:59hormones? You could probably guess the
- 24:02number. Yes, 0, nothing.
- 24:05And Rebecca Lewis, the Doctor Who set up the clinic with me,
- 24:08did the same in her practice. It was in a different region, so
- 24:11different women. Again, she couldn't find any
- 24:14patients. And we were both really, we was
- 24:17not really surprised, but we just thought how disappointing.
- 24:20I mean, that was eight years ago, so.
- 24:22But I don't think it's any better.
- 24:25But you do wonder when people are going to suddenly realise
- 24:29and I don't know what it's going to take for people to realise.
- 24:32I think it's, yeah, our generation who's probably now
- 24:35kind of saying this, this is it because it's quite.
- 24:39Again, I'm not a doctor, I don't have any statistics, but if I
- 24:43look back at my mother around mid her mid 70s, her problems
- 24:48started, her heart problems, her rheumatoid arthritis and
- 24:53basically the last 12 years of her life she was living in in
- 24:57really bad health. It was like constant going see
- 25:00having to see different specialists.
- 25:02One of her friends who is a lot younger than than my mother
- 25:05who's in her mid 70s now. So in the last then 12 months
- 25:09she started to have similar issues.
- 25:12She has osteoporosis, she has some Romat issue where she had
- 25:16to take Prednisone. And I'm thinking, you know how
- 25:20it is when you have your car and the, the, the petrol is nearly
- 25:24empty and the little light will come on and you can probably
- 25:26still drive, I don't know, 10 miles, 20 miles.
- 25:29And the way I see it is so your, your period stops, your, your
- 25:35menopause. So the, the red light comes on
- 25:40and maybe you can still, you know, have another 10-15 years
- 25:45in, in reasonable good health. But then it's like the car's
- 25:48stopping. And.
- 25:50I, I think it looks like that the light going off, finally
- 25:55going off the, the, the, the, the petrol tank being empty is
- 25:59around maybe your mid 70s. And the other gap is, and I've
- 26:04seen this with my mother is because of medication and
- 26:08treatments and the protocol for the doctors that you probably
- 26:12know better, but also in the homes is they will try and keep
- 26:16you alive as long as possible. But I've also thought about to
- 26:20to what extent, you know, looking at my again, at my
- 26:24mother, the amount of medications she was taking for
- 26:28all these different diseases and and, and symptoms.
- 26:33And then she was prescribed medication for the side effects
- 26:36of other, you know, Yeah, it's. Layers and layers.
- 26:39And you're absolutely right, because we know that as women
- 26:42we're getting less healthy as we age.
- 26:45The last 10 years of a woman's life is often in poor health.
- 26:50And that's really sad because the number of conditions they
- 26:54are diagnosed with, the number of medications they're on that
- 26:58You say a lot of medications have side effects, so they have
- 27:00more medication. And it's losing independence is
- 27:03something that we don't want as well.
- 27:05So anything we can do to improve future health, not just our
- 27:10lifespan, but our health span is really important.
- 27:14And if you look at humans, they tick so many boxes to improve,
- 27:19But I still think there's this sort of willful blindness by a
- 27:22lot of clinicians that they're not thinking ahead.
- 27:25They're not thinking about how can we keep Penny as healthy as
- 27:28possible. It's more let's wait till
- 27:30Pennies ill and then we'll give their treatment.
- 27:32And you've got to change that that.
- 27:34Whole what I was saying earlier like this whole project manager
- 27:39minds that that I think is anyway lacking in in.
- 27:43A lot of industries to project manage medicine in a different
- 27:46way really. But also so I I was a caretaker
- 27:50for my mother in. The last few years.
- 27:51Of her life and her palliative phase.
- 27:55And I've also gotten a lot of experience and insights and
- 27:59besides hormones, I'm also trying to raise a little bit
- 28:03awareness about that. And I'm again, I'm seeing, I
- 28:07don't know how it is here in, in, in Great Britain, but in the
- 28:10Netherlands, they're saying about 5 million people are
- 28:14caretakers and a lot of people have to take care also and work
- 28:20their job. And I bet and I think I've, I
- 28:25don't have statistics, but the majority is women.
- 28:28But let's say even it is equal. Even in the.
- 28:32I think it's more, but let's say that's still two and a half
- 28:35million. You want to to make sure women
- 28:38are healthy and also you want to make sure, because the other
- 28:42discussion, which I think is the same here, everybody's saying
- 28:46the healthcare system is collapsing.
- 28:51Too many people are aging and it's a blind spot.
- 28:55So we need people to stay healthy.
- 28:59Also, we need people to work for the economy.
- 29:02We need people to take care. And we have a healthcare system
- 29:07that's collapsing. But why isn't more people like
- 29:11yourself? Of course, thinking about Let's
- 29:14look. It's so obvious, yeah.
- 29:16Like start earlier and and half the population can potentially
- 29:22have a lot of prevention. Yeah, yeah, we, it's a total
- 29:26mind shift that needs to happen. And I, I don't know,
- 29:30conversations like this will, will enable people to think
- 29:32differently. And somewhere somehow things
- 29:35have got to change for future generations who can't keep this
- 29:39because it's just not fair on the women that are being harmed
- 29:42by them being refusing hormones. So I'm really so thrilled that
- 29:46you've come over, Penny and I haven't spoken in so much detail
- 29:50about genital urine syndrome for a long time.
- 29:53So I'm hoping this will really resonate with people.
- 29:55And those of you listening, please share it with as many
- 29:58people as possible. So before we end, three take
- 30:01home tips. So three things that you think
- 30:04people should do if they're experiencing any symptoms which
- 30:08may be related to Genito urinary syndrome.
- 30:11What are the three things that you would recommend them to do
- 30:13so they don't suffer for years that you did?
- 30:16Yeah, read up. Yeah, I've also, besides the
- 30:20long COVID article, even before last year when the official
- 30:24genitalism of menopause guidelines came out, I've
- 30:27written another article. It's in Dutch.
- 30:30Maybe I need to do a translation.
- 30:31But yeah, read up. I think you have a lot of
- 30:34information because you might find that maybe not all your
- 30:39doctors have the right information.
- 30:41And also be aware that janitorial synonym menopause is
- 30:45basically like an umbrella term, right?
- 30:48It can be anything from bladder infection to irritation to
- 30:52clitoral atrophy. Yeah, lots of things.
- 30:59So yeah, I think with anything menopause, educate yourself.
- 31:05Yeah, so important. Yeah.
- 31:07And share your knowledge with others.
- 31:09I think is is even really so, so important because a lot of
- 31:13people are trivialising their symptoms and we need to be
- 31:15enabling them to have treatment as promptly as possible to
- 31:19reduce suffering. So.
- 31:20Well, thank you again so much for sharing today.
- 31:23It's been great. Thanks for having me.
- 31:27Thanks so much for listening. It would be amazing if you could
- 31:30follow me or subscribe because it will really make a difference
- 31:33to grow numbers enable this to reach even more people.
- 31:37Thanks so much.