Latest / Giving Pain Purpose with Lyndsay Soprano / Exploring Alternative Methods for Pain Management
Transcript
- 0:00Hey, guys and dolls. Before we jump into this episode, a note
- 0:03about our content today. This is created for adult audiences only. We advise
- 0:08listener discretion, so if you need a breather, take a break and come
- 0:12back later. This is Your Pain Game podcast where we talk about the game
- 0:20of living in and with chronic pain and trauma, getting to the heart of
- 0:24how to heal. I am your host, Lindsay Soprano. On the show,
- 0:31I plan on discussing with doctors, chronic pain patients, holistic practitioners,
- 0:36loved ones, and anybody that is interested in having their voice heard in the
- 0:40chronic pain and trauma world that we live in. Sometimes I wish that I
- 0:54lived with an anesthesiologist because I really feel like I need a hot dose at
- 1:00night to help me sleep and get through the pain that seems to just rise
- 1:04slowly and uncontrollably at about seven thirty to eight pm every single night of my
- 1:08life, and it doesn't allow me to sleep. And as a busy body
- 1:12that I am, even in the pain that I am, because everybody knows
- 1:15that I'm just a wild child, and even still, you would never guess
- 1:18that I feel the way that I do, because that's who I am,
- 1:22right, I'm a bite on a stick chick when it comes to my pain,
- 1:26and you know it's getting old. And I have avoided opiates and pain
- 1:32pills entirely for the past decade of this, right with my CRPS and now
- 1:36of course all the other wine disease and all the other bs that's going on
- 1:40with my bod, because I just will not go down that road. I
- 1:44know myself too well. I have an addictive personality, I have addicts in
- 1:48my family. I've struggled with addiction myself, and the last thing I would
- 1:52want to do is add opiates into my world because I would l v e
- 1:57them and I don't want to end up being a statistic that my sweetie has
- 2:02to report on because he's in broadcast journalism, right, I probably would make
- 2:06the news because of him. So what other roads can we go down to
- 2:12help better manage our pain and improve our overall health? Because you know,
- 2:15almost every road I've been down with our healthcare system and pain doctors has not
- 2:21been ideal. I've been cut open and sliced open, emergency surgeries and pills
- 2:25that don't work. I mean, how many times have I been on GABA
- 2:28penton, give me a break. It's insane. So what can we do
- 2:31here? What can we do better? To communicate with our doctors, to
- 2:36communicate with our health care practitioners, and also to communicate with our family members
- 2:39and our friends, because they're part of this too, our pain journey,
- 2:43right, journey that it is. So today, we'd like to talk about
- 2:47making some small practical changes in our daily lives that can empower us in our
- 2:53pain community. And that is a community, guys, that's what we're here
- 2:57for. It's not just me going through pain. It's not just you going
- 3:00through pain. It's our loved ones. It is the people we work with.
- 3:04It's our best friends. It's our nieces, our nephews, our children,
- 3:07our dogs for crying out loud, you know, certainly one of mine.
- 3:10He's my pain puppy. We affect everybody, right, So here we
- 3:15are. We're here to empower you, of course, but empower me a
- 3:19little bit too. But I like to introduce you to our guests today,
- 3:23doctor Sarah Merritt, Hello, darling, Hello, thanks for having me.
- 3:28Oh my gosh, it's so wonderful to have you here. Doctor Merritt is
- 3:30a bored that's certified anesthesiology, pain medicine, and addiction medicine practitioner. ALA's
- 3:37why I wanted announced thesiologists to put me to sleep. Her private practice is
- 3:43right outside of the Washington DC metro area in Baltimore and Bowie, and she's
- 3:46a huge advocate for patients advocation and empowers that word that we talk about so
- 3:53often on this show, to empower us and her patients to get the most
- 3:57from their relationship with their pain physicians as well as other doctors, healthcare providers,
- 4:00and family. I like she has extensive experience in management of acute and
- 4:05chronic pain as well as a diagnosis and treatment of opioid use disorder. All
- 4:10right, so I'm rolling out the red carpet for you, babe. I'd
- 4:13like to get started by talking about how you got started in pain management,
- 4:17what brought you to it, and then let's take it from there. Yeah.
- 4:20Well, I think I started with just being wanting to be a doctor,
- 4:26and as a kid, I really you know, just having a good
- 4:30relationship with my own practitioner. And so it really wasn't until I got into
- 4:34medical school that I thought like, oh no, I have to decide which
- 4:38type of doctor that I want to be. I did not know that I
- 4:41wanted to be a pain doctor when I started and getting to work with patients
- 4:47who have a serious pain problem. On the one hand, that can be
- 4:53kind of heavy, and it can be a turnoff and not honestly, you
- 4:56know, not everybody wants to do it. No, we're a group.
- 5:00Yeah. But on the other hand, if you help someone with a serious
- 5:06pain problem and you really help them, then you've helped them with their worst
- 5:11thing, it's a big deal, you know, and it feels good and
- 5:15you know, for me, building those relationships has been a really gratifying part
- 5:19of being a pain doctor. And so some of those patients that I've worked
- 5:24with, you know, over years and we've been able to either either make
- 5:28progress or help them hold steady or help them maybe not lose hope might be
- 5:31you know, even just enough to feel like you're accomplishing something. Yeah,
- 5:36and hope is a huge thing. We every episode on the show with a
- 5:40message of hope. So when we get there, yeah, that's our homework
- 5:43running with a message of hope. But I mean, because it is a
- 5:46it is a very scary and lonely place when you live in pain and over
- 5:50the past couple of weeks, my pain has like skyrocketed to the point that
- 5:55my sweetie is like lifting me in an out of the shower and helping me,
- 5:59which which is new, which I don't care for. But you know,
- 6:03here we go, we wake up, and we keep on trucking.
- 6:06Is it easy? No, it is not. But I am hopeful,
- 6:09and I'm hopeful because I meet people like you. So let's talk about what
- 6:14you do in your practice for people that live in pain. What do you
- 6:16guys do? Yeah, so my practice in many ways is similar to other
- 6:24pain doctors. You know, as a medical doctor, I can prescribe medications.
- 6:28I can also do things like injections or you know, we talked about
- 6:31like the implant type of treatments. You know, we offer those type things
- 6:34in the practice. And then one of the other things we do in the
- 6:38practice that's been really impactful for some of our people with significant cry pain is
- 6:42ketamine infusions also, So really, in a nutshell, you know, medications
- 6:46and injections are the unique things that maybe only a physician or medical provider can
- 6:51do. But then those are not the only things that work for pain or
- 6:56for chronic pain, and so obviously, we make a lot of to other
- 7:00types of providers, so things like physical therapy, occupational therapy, and working
- 7:06with patients to incorporate lifestyle changes possibly into their world also, and I know
- 7:13within pain with myself specifically, I can speak to myself and as well as
- 7:16some other people in my pain community is nutrition is a huge component of it
- 7:20too. I mean for me, I mean my problem is actually eating because
- 7:26I'm so nauseous all the time from pain. Right, And we've talked about
- 7:29this at infinitum on the show about the importance of nutrition not just an elimination
- 7:33diet. Yes, because I've eliminated everything. I like, everything you've asked
- 7:39me to eliminate is gone. Yeah. Yeah, So now I'm like,
- 7:44great, I don't do any of that shit in my body. But now
- 7:46what am I supposed to put in it? And we get I mean with
- 7:49all of the diets that it's like paleo and keto and this and that,
- 7:53and I mean it's like it is so complicated, and I feel like there's
- 7:57ways that we can possibly simplify that. But in your practice when it talks
- 8:01to I think you do a lot about education on the best things for you
- 8:05and that is something that I have lacked with pain doctors that I've worked with.
- 8:09But I have been to so many pain doctors and they spent about seventeen
- 8:15seconds with me, and I'm like, here's my list of the things I've
- 8:20tried, I've done, I've done this, I've done that, here's my
- 8:22thing, here's my synopsis. Do you think it can help me? And
- 8:26instantaneously with I would say five, six, seven pain doctors, every single
- 8:31one of them was opioids or spinal cord stimulator. For me, I was
- 8:37not at a candidate for injections. I don't necessarily believe that that may have
- 8:41been true. So I think the educational part of what you do is really
- 8:43cool. Can you speak to that a little bit? Yeah, yeah,
- 8:46I think. And sometimes it's even helping the patient help themselves, right,
- 8:52And that's see empowerment, right, Like I can't do your elimination diet for
- 8:56you. I can put you in some directions or sometimes with patients like if
- 9:03you know, maybe this is a different situation, but I think there are
- 9:05parallels and it comes up a lot if there are patients who need to say,
- 9:09lose weight, you know, right, Like we can talk about weight
- 9:13may be a factor in your pain, it's probably not the only factor.
- 9:16But if we can optimize you, maybe we can optimize some of that pain
- 9:22signaling in the body. If you have enough fact that there's excess inflammation,
- 9:26maybe we can help improve that. And a lot of times that's such a
- 9:33process. So in terms of like weight loss, right, there's no one
- 9:35magical weight loss diet that works, right, if that's the person's challenge.
- 9:41We don't have like one diet that works for everything. Right, everybody is
- 9:45every body. We have our own little system here, we're our own personal
- 9:50universe. Yes, your own personal universe. I love that, And so
- 9:54I think it's the same for the pain patient who might be exploring just from
- 9:58a standpoint of are there dietary things I can do to improve my pain level?
- 10:03Right? And so there are people for whom going gluten free will be
- 10:07really impactful, or that low food map diet might be really impactful, But
- 10:13it's not going to be the same answer for everybody. So for me,
- 10:16you know, really in that meeting with the patient, very often I'm just
- 10:20trying to maybe acquaint them with those ideas, and also you know, walk
- 10:24that line of like I'm not exactly saying that you know, the ideal diet
- 10:28will fix every problem, but that it may be worthwhile because like if we
- 10:33get to where, hey, I've tried a bunch of medicines, I've tried
- 10:35a bunch of injections, and I'm feeling kind of stuck, you know,
- 10:39it may be that that's kind of what there is is digging deeper and diving
- 10:43deeper on dietary factors, lifestyle factors, et cetera. Yeah, I mean
- 10:48what you put in your body is a huge component to how we feel.
- 10:52I mean, think about Thanksgiving. Everybody eats so much food on Thanksgiving and
- 10:56we all fall asleep and feel like crap. Yeah, because we're so full.
- 11:01That is what our body's response to what we just put into our bods.
- 11:05Right, And I experience that there are days that I am not perfect
- 11:09with my nutrition there far. I'm actually far less good about nutrition only because
- 11:15I don't give myself enough. And that's for a different show. But it
- 11:20is definitely a challenge because when you're dealing with pain and you're dealing with the
- 11:24nausea that comes from pain, and you're dealing with well, everybody's told me
- 11:26to do this and none of that works. That hopelessness, that that loneliness
- 11:31that comes with pain, especially when you're alone at night with it. So
- 11:35within your practice, when you've got people that come to see you, do
- 11:39you have a lot of patients that come to you that have used opioids,
- 11:45that are dealing with opioid addiction issues that you work with. It does happen
- 11:50sometimes. I mean, so we have kind of a branch of the practice
- 11:52where we see patients for addiction specifically, and you know, the patient might
- 11:58acknowledge, you know, hey, I've been using or over using medication or
- 12:01street drugs even and that might be totally separate from a pain issue, right,
- 12:07because you can have both, Right, you can have pain absolutely and
- 12:09also a separate kind of addiction issue. Yeah, and pain also can be
- 12:16a mental pain as well as physical pain. And I think where there's a
- 12:18blurred line is between a lot of opioid addiction comes from a lot of mental
- 12:22health issues, and then it may have come from an injury that got started
- 12:26and then the injury has already resolved itself and now they're addicted to this and
- 12:31now they've got this other problem. I mean, I read about it all
- 12:33the time, it's such a slippery slope. And in fact, the thing
- 12:37I would share is a little statistical info. So twenty percent of Americans would
- 12:43tell you they have some amount of chronic pain. That's a lot, you
- 12:48know, that's a lot. A lot of people have some amount of chrimeic
- 12:50pain. And there's eight percent of Americans have high impact chronic pain. And
- 12:56so that eight percent is people who you know are maybe disabled or need significant
- 13:01daily medication. And then I think the number is maybe more around three percent
- 13:05who maybe take a daily opioid. If you ask people who are in treatment
- 13:09for opioid use disorder if they have chroduct pain and or did they have it
- 13:13before they started using opioids, that number is like forty or sixty percent of
- 13:18those people will say they had pre existing pain and that it had to do
- 13:22with them starting to use opioids. Yeah, I mean absolutely. I remember
- 13:26there's a girlfriend of mine who just had like just this incredible chronic back pain.
- 13:31It was just debilitating, and she ended up after getting on opioids,
- 13:35she ended up getting the pain resolved in her back and then ended up like
- 13:39skid row style, just didn't the pain was gone. But now she entered
- 13:45into a whole different kind of pain. Yeah, it's a tragedy and it
- 13:48is. It's very sad. And we hear about, of course in the
- 13:50news, our opioids, our opios, our opios, especially here in the
- 13:52United States. You know, it's a scary place when you live in pain,
- 13:56because you get so desperate, and that desperation is something that you know,
- 14:01coupled with CBT and coupled with other strategies and nutrition and having a good
- 14:07support system. I am so fortunate that I have an incredible support system.
- 14:11And I don't think that I am in the majority. Yes, I mean
- 14:16I think, and I am grateful so to everybody that loves me and supports
- 14:18me. Thank you. But it is just like one of those things where
- 14:24I have girlfriends and friends and all of these people. A lot of this
- 14:26happens with women more than men, at least in my experience. We take
- 14:30on the world, getting down to the root of why we feel the way
- 14:33that we feel, and the reason why we were alone in all of this.
- 14:37I mean, there's so many things that I can talk about with them.
- 14:41I don't want to go on my own slippery slope on that too.
- 14:45There's a lot. There is a lot. There's a lot. And I
- 14:48think for people with the high level of pain, right, and say,
- 14:52for instance, in your situation, Okay, I have a high level of
- 14:54daily pain, I'm not necessarily taking an opioid medication. And I do find,
- 15:01you know, in the healthcare world that I work in, you know,
- 15:05if I hear the experiences of patients like yourself, you know, going
- 15:09to a doctor or going to the er with these big complaints of pain,
- 15:13you know, healthcare providers, you know, start to conflate that with like
- 15:18you're asking for an opioid, right, Oh, absolutely, And as a
- 15:22patient, you know, it's important and helpful for you to be as clear
- 15:26as you are about Hey, here's what I'm experiencing, and here's what I
- 15:30also maybe don't want. You know, if you're in a situation where you're
- 15:33like, I'm not asking for an opioid, and getting really clear on that
- 15:35I think can be helpful for the team. Yeah, that's a good tip
- 15:39because one of the things that I have made absolutely abundantly clear whenever I have
- 15:45met with any doctor, any general prep to anybody, anybody that's working with
- 15:48me in my health and my bod, I always am like, I will
- 15:52not take a pain till I am completely I am not a pain pill seeker.
- 15:56I will not do that. That's not my jam. But if I
- 16:00need to, under an emergency situation, need something, what do we do?
- 16:06Because for example, oh, this is a good example because like like
- 16:10I mentioned earlier in the episode, I could not physically put my feet on
- 16:14the ground, like there was absolutely no way. So I'm rolling like a
- 16:18corn dog in my bed onto an automan, into my wheelchair and then getting
- 16:23on the floor of my bathroom. And then my sweetie is lifting me and
- 16:26putting me in the shower. And he's a big farmer guy. He loves
- 16:30it. He thinks it's great. I am. He's like, Lindy,
- 16:34you seriously need to consider at least having something here on these kind of days.
- 16:41Right, what are your what are you? What are your thoughts on
- 16:45that? Because it's it's it's such a scary thing for me, and I
- 16:48don't want to ask. I don't want to. I don't even know the
- 16:51right questions to ask without doctors thinking that I'm seeking. It's tough. I
- 16:55mean, I think I would maybe share a little story almost like you know.
- 17:00So here's what's not exactly true is like what doctors or what the oxyconton
- 17:06folks were saying in the nineties of like, well, as long as you're
- 17:08taking it according to your doctor's direction, it's no problem and there's no way
- 17:11to develop an issue, right, Okay, we all know now that's not
- 17:15true. Yeah, you know. Oh, or if you take the long
- 17:18acting medicine, well, those aren't really have it for me. Well,
- 17:19that's probably not really true either. I also say ambient doesn't habit for me.
- 17:25Yeah, your body can get very used to that. Yeah. You
- 17:30know, what I would say is, you know, I treat patients and
- 17:33there are people who are able to use an opioid medicine on a sometimes basis,
- 17:38And but I would also respect, you know that the patient who really
- 17:42knows themselves, who's like, you know, I just don't think that's good
- 17:45for me. Okay, Well it's worth a discussion. You know that that
- 17:49is one of the options. That doesn't mean it's the option for you.
- 17:52You know, I do have patients that will sometimes have you know, a
- 17:56small amount of medication that's for you know, emergencies, and it might be
- 18:02something they might need to refill on once a year, you know, almost
- 18:03like you know, there are certain certain headache medications that you know, maybe
- 18:08some neurologists or some pain doctors will give you know, a small amount of
- 18:12once a year just for those emergencies, as long as the patient can manage
- 18:18that, you know, I think that can be a reasonable option. But
- 18:21it also doesn't have to be an opioid medication. You know, I have
- 18:22a perchance who can use you know, certain muscle relaxers like that, or
- 18:29even like a high potency anti inflammatory like catorial ac or tour itt all two
- 18:34medicines I've never heard of, Okay with all of my years, right,
- 18:38and so this is exactly my fricking point. You giving us tips on questions
- 18:44that we need to ask. And also it's expectations that we have for these
- 18:49doctors that are like, well, do all of this and this is what
- 18:52you're supposed to do. Well, you're the doctor, so you know everything.
- 18:53I'm like, wait a second, I know me better than you will
- 18:56ever know me, and that is not something that I want to do.
- 18:59That's not the paths. Can you talk to us about alternatives to opiates because
- 19:03that is like ding ding I'm in. Yeah, So I think you know
- 19:07with patients, you know, talking through you know, if I'm seeing a
- 19:10patient and you say, hey, I've never heard of either of those things.
- 19:12Okay, well, catorilac or a tourtole those are the tourtal is a
- 19:18intramuscular injection a lot of times, and people will give it in the er
- 19:22and it has pretty good data. Sometimes doctors will quote that like tourd all
- 19:26is equivalent to ten milligrams of morphine, like in its potency like in there,
- 19:30oh, trying to compare like is it effective. Yes, it's quite
- 19:33effective. It's super effective, but it's also kind of rough on the kidneys,
- 19:38and so it's not a daily medication. And then to your point about
- 19:42like I'm having a horrific day, I'm not able to get out of bed.
- 19:47Okay, this is looking like a tourt all day. Let me see
- 19:49how this goes and try, uh, you know, maybe a dose of
- 19:53something like that and see if it could be a difference maker in terms of
- 19:56moving things in a better direction. Is that is that something that's prescribed,
- 20:02like I give myself a shot. I know, I'm sorry we're getting a
- 20:03little bit myopic here, but I'm just curious because because I've never heard I
- 20:07mean, this is insane. Yeah, not every doctor. It drives me
- 20:11nuts. Yeah, I am like I I this is where we get so
- 20:15lost in this because it's like, you're going to do this, do this
- 20:18to this because this is what I'm used to doing, and not exploring me
- 20:22as a woman and my body and where I am in paramentopause and all this
- 20:26other stuff that's going on and how that all works together holistically. Yeah,
- 20:30And I think this that's the frustration that many of us have with the healthcare
- 20:33system obviously, is that you know, we're really not reimbursed very well for
- 20:37the time that we spend with patients. You know, you guys are doing
- 20:41a bunch of paperwork. Yeah, it's it's tough. It's really tough.
- 20:45And I actually, you know, enjoy spending time with patients, but it's
- 20:48tough because you can't. It's hard to balance the needs of like, Okay,
- 20:51well I need to see enough patients that you know that we can support
- 20:55my staff and support what we do. But then I also want to like
- 20:56spend enough time and be impactful in those conversations that we have. So it's
- 21:02a balancing act for sure. And you know, we try to just try
- 21:06to find our way. But I think it's true, you know, so
- 21:08it's it's easy to you know, on the doctor's part, on the provider's
- 21:12part, to like write a prescription send the patient on their way. The
- 21:15prescription is the intervention, right, and it's it's standardized, and so we
- 21:19can know like, oh, well, scientifically we know that this works.
- 21:22But again, I think there's just more to it than that. And the
- 21:26clinical judgment of picking a good medication for the patient, matching a treatment with
- 21:32hey, here's somebody that mostly wants to not take a med but just needs
- 21:36something for certain days, and the clinical thinking that goes into that, you
- 21:40know, are we really are we really in healthcare like teaching that and transferring
- 21:45that the way that we need to be, you know, I'm I'm starting
- 21:47to question maybe not. And frankly, the length of time that we have,
- 21:52you know, in any one patient interaction is also a limitter in terms
- 21:56of how well we you know, communicate and think sure. And one of
- 22:00the things that's frustrating, I like to say fuckstrating, but one of the
- 22:03things that's fuckstrating is I go in with like a detailed like print out of
- 22:10all the things that I've been through with my diagnosis, timeline, things,
- 22:12I've tried, things that have worked, things that haven't, so on and
- 22:15so forth, and I'm like, please, don't come into the room until
- 22:18you've at least like looked at this one page that I'm giving you. It's
- 22:21almost like my own personal healthcare media kit, by my own pr for my
- 22:26health. And I'm like, can you back? Here's Lindy And I'm like,
- 22:32okay, did you look at this? And he's like, oh,
- 22:34well, my my whatever, you know whoever didn't give it to me.
- 22:37And I'm like, oh my god, just can you read this without asking
- 22:40me seventy two thousand questions over and over again when I've just answered all of
- 22:44them. So now we've taken fifteen minutes answering questions. I've already provided you
- 22:48answers for when you could have spent some time actually getting to know me a
- 22:52little bit. And I know I'm a lot, but I'm a fun pain
- 22:56patient. I'm not gonna lie. I am fun and I would be stoked
- 23:00to be my doctor because I look at things in a different way than a
- 23:07lot of pain patients do. Where I've just got this optimism that's in me.
- 23:11I have my days where I'm like, fuck it, I'm out,
- 23:15I'm out, I can't do this anymore. I do and I reach out
- 23:18to my personal board of directors when I have those days, and I say,
- 23:22hey, this is where I'm feeling. I'm hopeless, I'm lonely,
- 23:25I'm this, I'm that I don't want to be here anymore because I can't
- 23:27put up with this kind of pain. And then they immediately shift me back
- 23:32in a year and then you know, five hours later, I'm good to
- 23:34go. Yeah. Yeah. Do you deal with a lot of issues with
- 23:40your patients in regards to like suicidal ideation? What do you do in regards
- 23:44to that with your with your practice? Yeah, it's challenging, Yeah,
- 23:49it's not. It might be less often that a patient also divulges that,
- 23:56frankly, right, because you know, and I think there's you know,
- 24:00there's something called like passive suicidal ideation when when you're like, well if I
- 24:04was dead, that might be better, you know, but you're not really
- 24:07planning to me everything about it, that's right, and don't I just go
- 24:11away? Let I just go away. It would be so much easier.
- 24:14A lot of people have some kind of low level of that, yeah,
- 24:17that we probably don't talk about a lot, And frankly, I would say
- 24:19I probably don't ask because you know, it's it's kind of more in that
- 24:25mental health realm where where I'm going to start referring you to to those folks,
- 24:30you know, So I think we don't necessarily draw that out, if
- 24:34I'm honest, But I know that patients sometimes are feeling that way, you
- 24:37know, when they're really challenged and when things are bad. I did have
- 24:42a patient lately who had gotten to that point and really actually had voice with
- 24:47as a young person in her twenty early twenties that lived with her parents and
- 24:51had voiced some of that to her mom. And I ended up speaking with
- 24:55her doctor who referred her to me, and you know, we kind of
- 24:57work together to get her in some other treatment it right away. So that's
- 25:00been you know, I think that the things we do it just is just
- 25:06taking those next steps, so communicating with other doctors, you know, suggesting
- 25:10treatment. I have another patient who's voiced some some of that passive suicidal ideation
- 25:17that's it'll work up for ECT actually and going to maybe go down that road
- 25:21of you know, just more in depth mental health treatment with a strong mental
- 25:26health provider in our area. Yeah, and I think that, you know,
- 25:30with with chronic pain, our brain changes, you know, I mean
- 25:33we change. I know that I am a very different person than I was
- 25:36a decade ago. And they're like imaging not just because I'm older. There's
- 25:40like imaging evidence for that too, that like patients and chronic pain have loss
- 25:44of of some of the you know, cortical matter of the brain. Frankly,
- 25:48that it's it's very taxing on the brain that that brains of patients with
- 25:52chronic pain do change over time. Yeah, especially when you're kind of like
- 25:56a brain like me that still thinks that I I am a downhill ski racer
- 26:02and I'm a yoga instructor, and I'm hiking and biking and walking my dogs
- 26:04and doing all these things. That part of me is all here. I
- 26:08can't do any of it, not yet. Not yet. We're working on
- 26:14it, baby. That's why I'm here. I mean, I'm here for
- 26:18everybody that's listening, and I'm here for you too. But the reason I
- 26:21started this was because I'm going to get out of a wheelchair and I'm going
- 26:22to do all the things that I want to do again, right, And
- 26:26so those low days that are very very sad and very scary places, those
- 26:32thoughts have come up. And it's something that's fairly new. But I know
- 26:36that a lot of medications can cause those thoughts as well. And I experienced
- 26:41that early on in my in my pain treatment with the pain doctor in Los
- 26:45Angeles who put me on like every trip to Lene Family Medicine that they possibly
- 26:51could. It was like touch and go, and I'm like, I don't
- 26:55I don't want to kill myself. Why do I feel like killing myself?
- 26:59Like I am way too awesome to die right now? This is ridiculous.
- 27:03And so that scary part is part of living in pain too, because you
- 27:08go in these dark and twisty places that you never would have thought was even
- 27:11available within you. Yes, are there within the cdcmsor I'm going to take
- 27:18a swift change really quick. When it comes to like the CDC and prescribing
- 27:23in all of these medications, what are they doing as far as guidelines in
- 27:29regards to you guys prescribing for us? Are they good for the patient or
- 27:33are they good for the pharma? M I don't even know who they're good
- 27:40for gosh, I mean, good answer. Who is it good for?
- 27:44Maybe nobody? Yeah, you know, I think the CDC Guidelines of twenty
- 27:48sixteen were very well intentioned, and they were really trying to say, like,
- 27:52hey, you know, let's move prescribing. You know, most patients
- 27:56should be not in a high dose opioid situation. Let's start with low doses.
- 28:03Let's refer people to treatment if they have a problem. Like a lot
- 28:06of the basics are like pretty reasonable, but then they got like interpreted in
- 28:11such a way that like, these are absolute rules. And the CDC Guidelines
- 28:17of twenty sixteen were then put out in a revised form in twenty two where
- 28:22they literally had to say, these guidelines are meant to be for the physician
- 28:26and the patient, and it's not for insurances, and it's not for state
- 28:30boards of medicine. And they really had to kind of come out and say
- 28:33that because it suddenly was a very easy crutch, you know, for you
- 28:38know, a regulatory body or for an insurance to just be like, oh
- 28:41great, we don't need to pay for any opioids over you know, ninety
- 28:45milligram morphine equivalents anymore. Because these guidelines, So why don't we just do
- 28:49that and save ourselves some money? You know, it seems to me like
- 28:53that was like an easy thing for you know, for profit and to incorporate,
- 29:02to save a little money. And so in the guidelines weren't meant that
- 29:04way, but in some cases that's how they were interpreted or tried to be
- 29:08used. Well, it's like we can interpret the Bible as many ways as
- 29:11we want to. I mean, any story and the fable, anything we
- 29:15can put in anything we want to in between the lines. Well, you
- 29:19know, I would say, you know, for doctors who didn't want to
- 29:23write any opioids anyway, you know, right there are doctors who are out
- 29:26there that just want to do the procedures or just want to do the infusion
- 29:30or do the implan or whatever. And look that's fine, but just you
- 29:34know, for those doctors that are like, hey, I don't write opioids
- 29:37in my practice, at least hopefully if they're upfront about it, right,
- 29:38because because there are doctors that say that. But I think where it gets
- 29:42challenging is there are all these doctors that do it, but maybe they hold
- 29:45their nose or they don't want to, or they don't want to engage with
- 29:48it, or they don't believe that it works, you know, and then
- 29:52for some of those people, those types of guidelines could could be used,
- 29:56you know, also as like an excuse, you know, like hey,
- 29:59well we're only doing X Y Z in the practice because this is what the
- 30:02CDC guidelines say. Well, okay, you know, and ultimately, you
- 30:07know, one of the challenges that I have, you know is you know,
- 30:11as a as a prescriber, you know, we should you know,
- 30:15I should you know, prescribe in accordance with you know, what I think
- 30:18is beneficial to the patient. And it's not necessarily just what the patient thinks
- 30:22it's beneficial to the patient, right, and so if and there are times
- 30:25we might or might not be able to find common ground. You know,
- 30:27if the patient thinks something is beneficial that I don't truly think is beneficial for
- 30:32them, there there are going to be times we might not not agree.
- 30:37So you're ethical weird, weird, it's like super weird. So you're saying
- 30:47that when I go into a doctor's office, I'm not necessarily always right.
- 30:51Yeah, Yeah, that's how we can find common ground and you know,
- 30:55understand each other or or even you know, maybe we agree to disagree on
- 30:57one or two things. You know, I think I think it's challenging sometimes
- 31:03though, right patients and doctors to find that common ground. And yeah,
- 31:07really, my point I think is really just that I think the CDC guidelines
- 31:10have been kind of scapegoaded, as you know, hey, this is the
- 31:14whole problem. You know, we've got to obey these guidelines and it's not
- 31:17exactly that. And you know, doctors are supposed to use their own clinical
- 31:21judgment when treating patients. Yeah, and I think that again to support the
- 31:25whole idea of like, we know our own bodies far better than our doctors
- 31:29do, but we also don't know what we don't know. And you know,
- 31:32I've I've learned. I'm a huge researcher. I mean I have to
- 31:34be in order to even just do this show. But I also should have
- 31:37like medical degrees on my wall because of how much information I come to a
- 31:41doctor with. And I'm like, so I want to know about low dose
- 31:45nel trucks and why have I not known about this for eight years with CRPS?
- 31:49Just found out about it? What, Like it drives me bonkers,
- 31:55And I'm like, it's such a. It's such a tumultuous road that you
- 32:00have to walk on, and I really want to make sure that everybody does
- 32:04have hope here because people like you that love and are here to really educate
- 32:12us and give us tips on how to communicate, because I think that's the
- 32:14biggest thing. I'm like, can maybe I've been doing this all wrong on
- 32:16how I communicate with doctors. I just gave up. I stopped. I'm
- 32:20like, I'm not going to a doctor. I don't even know the last
- 32:22time I went to doctor outside of like labs and emergency urgent care kind of
- 32:25thing. Because I moved into functional and it's expensive as hell, yeah,
- 32:30because our healthcare system won't pay for it. But that's the only place that
- 32:35I've started to see benefits in my life and some of that functional medicine concept
- 32:39to maybe do specific testing on how your body works and optimizing nutrition yeah,
- 32:45I'm a fan, yeah, and how it responds to things, because with
- 32:49you, I mean, there's got to be sensitivities and reactions that come with
- 32:52pain medication and anesthesia, right, and that's different for people. How do
- 32:55you broach that, you know, we're not there yet for the science of
- 33:01like the genetic testing to be entirely useful in the field, right, because
- 33:07so imagine this you've got like you know, you they were talking about a
- 33:10medication and how does your body process it? And how do you feel when
- 33:14you take it? And how does your pain respond to it. The trouble
- 33:17is like our output with pain, it's not an objective number like a blood
- 33:21pressure, right where just like we can then take your blood pressure after that
- 33:24pill and that bigger dose, and we know, like here's what it did,
- 33:28and there's so much that goes into how you feel and you know,
- 33:30okay, there's the pain score number and yeah, we ask people about it.
- 33:35Are you a frown face or are you a flat face or a happy
- 33:37face? Super scientific? Yeah yeah, And like you know, what science
- 33:44will tell you might be more impactful and what patients might tell you to be
- 33:46more impactful is like, well what can you do? You know, how's
- 33:49your functional status? Like well, you know, I was I was doing
- 33:52okay, like walking to the mailbox, and then the last two weeks my
- 33:54hip's been really bad and I can't do that. And so the part from
- 34:00the the processing of the pill by the body to like what it does to
- 34:04your brain part and how you feel. We don't the measures on that end
- 34:08are so non existent that we can do those, right. We can do
- 34:14those genetic tests and get some information, and I think they are useful sometimes
- 34:19in psychiatry and for titrading certain antidepressants. You know, I think they can
- 34:22be informative for those providers, but you know, for me, it's just
- 34:27not ready for prime time and pain management. Sometimes patients will come to me
- 34:30with those results, but it doesn't necessarily mean we, you know, will
- 34:35or won't prescribe you a certain thing before we wrap up in everything. I
- 34:39one of the takeaways that I had with you in our meet and greet was
- 34:43you leaning towards this whole idea of focusing on the yeses in our lives when
- 34:49it comes to pain management. So can you speak to us a little bit
- 34:52about your philosophy on that, because I think it was pretty cool. Thank
- 34:54you. Yeah. I think you know, sometimes there's like you said,
- 34:59well, this medication and doesn't work for me, or this this thing doesn't
- 35:01work for me, and finding shifting shifting to where we can find things that
- 35:08do work, things that are helpful for how we feel, and that may
- 35:13be things in our in our lifestyle. Very often. I think that,
- 35:19you know, in terms of helping patients with their lifestyle management, it's really
- 35:22those like like five factors of well being, just briefly to mention those like
- 35:28sleep, diet, movement, community, and stress and helping patients manage those
- 35:36items can be so impactful for chroduct pain. Yeah, and that's a lot
- 35:40to throw on just a pain doctor. It is. So that's why we
- 35:45do need that community. We do need that support network. I am here
- 35:47right now as a support network for you. I am here for anybody that
- 35:52listens to the show that just wants to. I mean, I get more
- 35:54like Instagram messages and emails and stuff, and it's getting more and more.
- 35:59So I'm so grateful for because it means I'm touching at least one person every
- 36:01day. Yes, oh man, I want to talk to you forever.
- 36:05Yeah, so much unpack. But we can't thank you of course. It
- 36:10has been so wonderful to be here with you today. So we can find
- 36:14doctor Merritt all over the place. She's on Instagram at live stream HC.
- 36:19She's on Facebook at live Stream Health Center. I'll put this all in show
- 36:21notes, of course, and on social media. She's on YouTube, she's
- 36:23on Twitter, akax, whatever, LinkedIn, and but her website you can
- 36:30go to first and foremost where you can get all this information about her practice
- 36:34is lifestreamhealth dot com. And as you've noticed, she's incredibly wonderful. And
- 36:38one of the things I love about your your speaking voice is you make me
- 36:44feel calm, and as somebody that never feels calm, clearly, it is
- 36:50nice to have a conversation with you because I feel safe with you. I
- 36:53know a lot of people that live in pain, deal with a lot of
- 36:55fear of unknowns, and you don't make me feel scared, So that's good
- 37:00to hear. Yeah, No, I think I would just share this candidly.
- 37:04I mean, I think there again, there are these folks in pay
- 37:07medicine that don't love it. And I've come to start trying to communicate this
- 37:13to patients and relate to doctors like you've got to have your own head on
- 37:16straight to like do this type of practice. And so for me, like
- 37:20my own journey of just getting my head in the right position, I think
- 37:23can really help patients coregulate and you know, get to a better spot.
- 37:31Well. Yeah, and trusting interesting. Yeah, yeah, yeah, it's
- 37:37a big part is trusting. And when you've gone through doctor after doctor after
- 37:40doctor, and surgery after surgery and pill after pill, you start to lose
- 37:44hope and you start to lose faith and the people that are supposed to be
- 37:47helping you along the way, you know, right, that's why we're here
- 37:51to say that we've got people that are out there that can help you.
- 37:52Guys. All right, so don't ever give up on you, don't ever
- 37:55give up on your life, don't ever give up on your pain management journey,
- 37:59whatever that pain might be. This was a physical conversation more so than
- 38:02a mental and emotional all of that. But guys, it all kind of
- 38:06falls together. You know. Pain is pain is pain. Love is love
- 38:09is love, and that is all we are here to do today. So
- 38:13thank you so much for being with us today. I appreciate you. It's
- 38:15been wonderful to meet you, and I can't wait to see what you're coming
- 38:20up with next. You're amazing. Thank you for what you're doing for the
- 38:22community. Oh, thank you so much. You are exclusively invited to share
- 38:27this falling in Love again with Pain Management v IP pain journey together. Let's
- 38:31get to the heart of how to heal with you by my side. Is
- 38:36there anybody today in your life that needs to hear this conversation? Or did
- 38:39you need to hear this conversation? Are you feeling lonely? Are you feeling
- 38:43hopeless? Are you feeling sad? Are you feeling like you there's absolutely no
- 38:47way you're gonna get through it. Please reach out to us. Welcome to
- 38:51the Pain Game Podcast. That's what we're here for. So let's connect.
- 38:53Let's hear your stories of strength and grit and merit. See what I did
- 38:59there. I am here to help provide a safe place for you of vulnerable
- 39:02and raw and open honest to share your most incredibly powerful stories. So follow
- 39:08us the Paying Game Podcast. Wherever you digest your podcast content, we will
- 39:13be there. Visit us at the Pain gamepodcast dot com and follow us on
- 39:17all the socials. Thanks for listening, my little VIPs. Catch you on
- 39:21the other side.