Latest / Martin Animations / I taught my daughter to paint sunsets every evening for 3 years before learning she was colorblind
Transcript
- 0:00Speaker 1: I taught my daughter to paint sunsets every evening for
- 0:02Speaker 1: three years before learning she was completely colorblind. The art
- 0:05Speaker 1: teacher's email arrived on a Wednesday afternoon with a subject
- 0:09Speaker 1: line that made my stomach drop. Concerns about Iris. Please
- 0:12Speaker 1: call ASAP. My daughter was seven years old and had
- 0:15Speaker 1: been painting with me every single evening since she was four,
- 0:18Speaker 1: creating sunset after sunset with a skill that amazed everyone
- 0:21Speaker 1: who saw her work. I called Mrs. Kellerman immediately from
- 0:24Speaker 1: my office, already defensive before she even answered. Mr. Cross,
- 0:28Speaker 1: thank you for calling back so quickly. she said, her
- 0:30Speaker 1: voice carefully neutral in that way teachers use when they're
- 0:33Speaker 1: about to deliver bad news. I wanted to discuss something
- 0:35Speaker 1: I noticed during today's art class. Iris completed a color
- 0:38Speaker 1: wheel assignment, and I'm concerned she might be having some
- 0:40Speaker 1: vision issues. She paused, and I heard papers rustling. She
- 0:44Speaker 1: labeled every single color incorrectly, not just mixing up similar
- 0:47Speaker 1: shades but completely wrong identifications. She called red gray, orange brown,
- 0:52Speaker 1: yellow light gray, green medium gray. Every color on the
- 0:55Speaker 1: wheel was mislabeled as some shade of gray. My first
- 0:57Speaker 1: reaction was to defend Iris. to say the teacher must
- 1:00Speaker 1: have misunderstood, or that Iris had been joking around, but
- 1:03Speaker 1: something about the systematic nature of the errors stopped me.
- 1:05Speaker 1: I asked Mrs. Kellerman to email me photos of the assignment,
- 1:08Speaker 1: and when they arrived five minutes later, I stared at
- 1:11Speaker 1: my computer screen feeling like the floor was dissolving beneath
- 1:13Speaker 1: my chair. The color wheel was technically perfect, each section
- 1:16Speaker 1: painted with smooth gradients and precise boundaries, but every label
- 1:19Speaker 1: was wrong in exactly the way the teacher had described.
- 1:22Speaker 1: Red labeled as dark gray, orange as medium dark gray,
- 1:27Speaker 1: yellow as light gray, and on through the spectrum with
- 1:30Speaker 1: Iris confidently identifying colors she clearly couldn't perceive. I immediately
- 1:34Speaker 1: thought about our painting sessions, the three years of evening
- 1:37Speaker 1: rituals where we'd painted hundreds of sunsets together, and suddenly,
- 1:41Speaker 1: I was seeing them differently. How many times had I said,
- 1:43Speaker 1: mix orange and pink for those clouds, and watched Iris
- 1:46Speaker 1: confidently select paints while I praised her color choices? How
- 1:49Speaker 1: many times had I told her, that's the perfect shade
- 1:52Speaker 1: of purple, without actually checking what color she was using?
- 1:55Speaker 1: I left work early and drove home in a daze,
- 1:57Speaker 1: calling Iris' pediatrician from the car to explain what the
- 1:59Speaker 1: art teacher had noticed. Dr. Scepter Patel squeezed us in
- 2:02Speaker 1: for an appointment the next morning and referred us to
- 2:04Speaker 1: a pediatric ophthalmologist named Dr. Vivian Leeds, who specialized in
- 2:08Speaker 1: color vision deficiencies. That evening, I watched Iris during our
- 2:12Speaker 1: painting session with new attention, really looking at what she
- 2:14Speaker 1: was doing instead of just enjoying our time together. We
- 2:17Speaker 1: were painting the sunset visible through our dining room window,
- 2:20Speaker 1: and I described it out loud the way I always did.
- 2:22Speaker 1: Look at those beautiful orange and pink clouds. I said,
- 2:25Speaker 1: pointing at the sky. Try mixing some cadmium orange with
- 2:28Speaker 1: a touch of titanium white and maybe a hint of
- 2:30Speaker 1: quinacridone magenta. Iris nodded seriously and reached for paints, confidently
- 2:34Speaker 1: squeezing colors onto her palette. But when I looked closely
- 2:37Speaker 1: at what she'd selected, my chest tightened with recognition of
- 2:40Speaker 1: what I'd been missing. The orange she'd chosen was actually
- 2:43Speaker 1: a brown. The pink was a gray. She was mixing
- 2:46Speaker 1: them together with complete confidence, creating a muddy brownish-gray mixture
- 2:50Speaker 1: that she then applied to her canvas in smooth, technically
- 2:53Speaker 1: perfect brushstrokes. I watched her paint for 20 minutes, describing
- 2:56Speaker 1: colors she couldn't see and selecting paints based on some
- 2:59Speaker 1: system I didn't understand, and the painting that emerged was
- 3:02Speaker 1: compositionally beautiful but chromatically wrong in ways I'd somehow never
- 3:05Speaker 1: noticed before. The sky was brown where it should have
- 3:07Speaker 1: been orange, gray where it should have been pink, muddy
- 3:10Speaker 1: green where it should have been purple. Everything was off.
- 3:13Speaker 1: And yet I'd been praising these paintings for three years,
- 3:15Speaker 1: hanging them all over our house, posting photos online where
- 3:18Speaker 1: friends commented about her incredible talent. How had I never
- 3:21Speaker 1: seen this? How had I looked at hundreds of sunset
- 3:23Speaker 1: paintings and never noticed they were the wrong colors? I
- 3:26Speaker 1: felt sick with guilt and confusion, but I forced myself
- 3:29Speaker 1: to smile at Iris and tell her how beautiful her
- 3:32Speaker 1: painting looked, not wanting to upset her before we knew
- 3:34Speaker 1: what was actually wrong. After she went to bed, I
- 3:37Speaker 1: pulled out every painting she'd ever created and examined them
- 3:40Speaker 1: under different lights throughout the house. In our dining room
- 3:42Speaker 1: with its warm evening lighting, they looked almost right. In
- 3:45Speaker 1: the kitchen under fluorescent bulbs, they looked wrong. In the
- 3:48Speaker 1: bathroom under LED lights, they looked completely wrong. Browns and
- 3:52Speaker 1: grays instead of oranges and pinks. Muddy greens instead of purples.
- 3:56Speaker 1: Three years of evidence that something was wrong, and I'd
- 3:58Speaker 1: been too blind myself to see it. The appointment with Dr. R.
- 4:01Speaker 1: Leeds was scheduled for Friday morning, and I spent Thursday
- 4:04Speaker 1: night researching colorblindness instead of sleeping. I learned that most
- 4:08Speaker 1: colorblindness was partial. People unable to distinguish between certain colors,
- 4:12Speaker 1: but still seeing others normally. Red-green colorblindness was the most common,
- 4:16Speaker 1: affecting about 8% of men, but less than 1% of women.
- 4:19Speaker 1: But there was another condition called acromatopsia, Complete color blindness,
- 4:23Speaker 1: where people saw the world entirely in grayscale. It was rare,
- 4:26Speaker 1: affecting only one in 30,000 people, but it matched what
- 4:29Speaker 1: I was seeing in Iris's work. People with acromatopsia learned
- 4:33Speaker 1: to associate brightness levels with color names, creating elaborate translation
- 4:36Speaker 1: systems that let them function in a color-centric world despite
- 4:39Speaker 1: seeing no hue at all. Reading about it felt like
- 4:42Speaker 1: someone was describing my daughter, explaining how she could confidently
- 4:45Speaker 1: call things by color names while clearly not perceiving what
- 4:48Speaker 1: those colors actually looked like. I found forums where colorblind
- 4:51Speaker 1: adults discussed their experiences, and one comment stuck with me.
- 4:55Speaker 1: I didn't know I was colorblind until I was 12
- 4:57Speaker 1: because I'd learned to fake it so well. I knew
- 4:59Speaker 1: grass was called green and sky was called blue, and
- 5:02Speaker 1: I could identify those things by context, even though I
- 5:04Speaker 1: was just seeing different shades of gray. It wasn't until
- 5:06Speaker 1: I failed a color vision test that anyone realized I'd
- 5:09Speaker 1: been translating the whole time. Dr. Leeds' office was designed
- 5:12Speaker 1: for children, with bright murals on the walls that now
- 5:15Speaker 1: seemed cruelly ironic. She was patient and kind with Iris.
- 5:18Speaker 1: explaining each test in simple terms before performing it. The
- 5:21Speaker 1: Ishihara plates came first, circles filled with colored dots that
- 5:25Speaker 1: formed numbers. People with normal color vision could see the
- 5:28Speaker 1: numbers clearly, but people with various types of color blindness
- 5:31Speaker 1: saw different numbers or no pattern at all. Iris couldn't
- 5:33Speaker 1: identify a single number correctly, seeing only random dots where
- 5:37Speaker 1: clear patterns existed. Dr. Leeds' expression grew more serious as
- 5:40Speaker 1: the testing continued. She showed Iris a box of colored
- 5:43Speaker 1: chips and asked her to arrange them in order from
- 5:45Speaker 1: light to dark. Iris organized them in a way that
- 5:47Speaker 1: would make perfect sense if they were all shades of gray,
- 5:50Speaker 1: but made no sense based on their actual hues and saturations.
- 5:53Speaker 1: She put a dark blue next to a dark red
- 5:55Speaker 1: next to a dark green, grouping them by brightness while
- 5:58Speaker 1: completely ignoring the color differences. Dr. Leeds pulled out a
- 6:01Speaker 1: device called an anomaloscope that tested color matching ability, but
- 6:05Speaker 1: Iris couldn't complete the task because she couldn't perceive the
- 6:08Speaker 1: color differences the test required. Every assessment pointed toward the
- 6:11Speaker 1: same conclusion, but Dr. Leeds wanted to be absolutely certain
- 6:14Speaker 1: before making a diagnosis. The final test was an electro-retinogram
- 6:18Speaker 1: that measured electrical activity in Iris' retina when exposed to
- 6:21Speaker 1: different wavelengths of light. They put electrode stickers around Iris'
- 6:24Speaker 1: eyes and had her look at flashing lights while a
- 6:26Speaker 1: computer recorded her retinal responses. I held her hand during
- 6:29Speaker 1: the test because the equipment looked scary even though it
- 6:32Speaker 1: didn't hurt, and I could feel her small fingers squeezing
- 6:34Speaker 1: mine tighter with each flash. After about 30 minutes, Dr.
- 6:37Speaker 1: Leeds removed the electrodes and asked us to wait in
- 6:40Speaker 1: her office while she analyzed the results. The 15 minutes
- 6:43Speaker 1: we sat there were among the longest of my life.
- 6:45Speaker 1: Iris swinging her legs from the big office chair and
- 6:48Speaker 1: asking if she'd done well on the tests. Me trying
- 6:50Speaker 1: to smile and say she'd done great, while my mind
- 6:52Speaker 1: spun through implications I didn't want to face. When Dr.
- 6:55Speaker 1: Leeds finally came in, she had printouts of test results
- 6:58Speaker 1: that meant nothing to me, but clearly meant everything to her.
- 7:01Speaker 1: She sat down across from us and took a breath
- 7:02Speaker 1: before speaking, and I knew from her expression that my
- 7:05Speaker 1: worst fear was about to be confirmed. I'm very sorry
- 7:07Speaker 1: to tell you this, Dr. Leeds began, looking at me
- 7:10Speaker 1: rather than Iris. The test results show that Iris has achromatopsia,
- 7:13Speaker 1: which is complete congenital color blindness. She has no functioning
- 7:16Speaker 1: cone cells in her retinas, which means she cannot perceive
- 7:19Speaker 1: color at all. She sees the world entirely in shades
- 7:22Speaker 1: of gray, black, and white. The words felt surreal, even
- 7:25Speaker 1: though I'd suspected them for two days. Dr. Leeds continued
- 7:28Speaker 1: explaining the genetic causes and the lack of treatment options,
- 7:31Speaker 1: but I was barely hearing her because I was thinking
- 7:33Speaker 1: about three years of painting sessions, hundreds of evenings where
- 7:36Speaker 1: I'd been teaching Iris about colors she couldn't see. Every
- 7:39Speaker 1: time I'd said, mix orange and pink, she'd been hearing
- 7:42Speaker 1: words that meant nothing to her actual perception. Every time
- 7:45Speaker 1: I'd praised her color choices, I'd been praising her ability
- 7:48Speaker 1: to fake something she couldn't experience. The paintings covering our walls,
- 7:51Speaker 1: the art I'd been so proud of, all of it
- 7:53Speaker 1: was based on a fundamental misunderstanding between us. Dr. Leeds
- 7:57Speaker 1: was saying something about how impressive it was that Iris
- 7:59Speaker 1: had learned to navigate a colorful world so successfully, but
- 8:02Speaker 1: I couldn't focus on anything except the crushing guilt of
- 8:05Speaker 1: not noticing sooner. I looked at Iris, who was processing
- 8:08Speaker 1: the doctor's words with a confused expression. that told me
- 8:11Speaker 1: she didn't fully understand what was being said. Dr. Leeds
- 8:14Speaker 1: pulled out visual aids, showing comparison images of how the
- 8:16Speaker 1: world looked with normal color vision, versus with a chromatopsia.
- 8:20Speaker 1: The difference was stark. One image filled with vibrant colors,
- 8:23Speaker 1: and the other showing the exact same scene in grayscale.
- 8:26Speaker 1: This is what most people see, Dr. Leeds said, pointing
- 8:29Speaker 1: at the colorful image. And this is what you see, Iris.
- 8:32Speaker 1: Everything in shades of gray. Iris stared at both images,
- 8:35Speaker 1: and I watched her face change as understanding slowly dawned.
- 8:38Speaker 1: You mean everyone else sees it like that? she asked,
- 8:40Speaker 1: pointing at the colorful version. All the time? Dr. Leeds
- 8:44Speaker 1: nodded gently. Yes, honey. Most people see colors the way
- 8:46Speaker 1: they're shown in that first picture. You see them the
- 8:49Speaker 1: way they're shown in the second picture, in grayscale. You've
- 8:51Speaker 1: been seeing that way your whole life, but you learn
- 8:54Speaker 1: to use color names by listening to what people told
- 8:56Speaker 1: you and remembering which gray tones were called which colors.
- 8:59Speaker 1: Iris turned to look at me with an expression of
- 9:01Speaker 1: betrayal that cut deeper than anything I'd ever felt. So,
- 9:04Speaker 1: when we paint sunsets? She said slowly. And you say
- 9:07Speaker 1: they're orange and pink? I'm not actually seeing orange and pink,
- 9:10Speaker 1: I tried to explain, but my throat was too tight,
- 9:12Speaker 1: so I just shook my head while Iris' eyes filled
- 9:14Speaker 1: with tears. All the paintings I made, she whispered. Are
- 9:18Speaker 1: they wrong? Are the colors wrong? I wanted to say no,
- 9:21Speaker 1: wanted to tell her they were beautiful regardless, but Dr.
- 9:23Speaker 1: Leeds spoke first with clinical honesty. The colors in your
- 9:26Speaker 1: paintings probably don't match what your dad sees when he
- 9:29Speaker 1: looks at real sunsets, she said carefully, because you're selecting
- 9:32Speaker 1: colors based on their brightness, not their hue, but that
- 9:35Speaker 1: doesn't mean your paintings are bad or wrong. They're just
- 9:37Speaker 1: different from what someone with typical color vision would create.
- 9:40Speaker 1: Iris wasn't listening anymore. She pulled her hand away from
- 9:43Speaker 1: mine and stared at the floor, and I could see
- 9:45Speaker 1: her mentally reviewing three years of painting sessions and realizing
- 9:48Speaker 1: that everything she'd thought she was good at was actually
- 9:51Speaker 1: just the elaborate system of memorization and guessing. The drive
- 9:54Speaker 1: home was silent except for occasional sniffles from the back
- 9:57Speaker 1: seat where Iris had curled up as small as possible.
- 10:00Speaker 1: When we got to the house, she ran straight to
- 10:02Speaker 1: her room and slammed the door, and I stood in
- 10:04Speaker 1: the hallway surrounded by her sunset paintings that I could
- 10:06Speaker 1: now see were all wrong, browns and grays and muddy
- 10:09Speaker 1: greens instead of the vibrant colors real sunsets contained. That
- 10:13Speaker 1: evening at 6.30 when we normally would have started painting,
- 10:16Speaker 1: I knocked on Iris' door and asked if she wanted
- 10:18Speaker 1: to do our sunset. She didn't answer for a long time,
- 10:21Speaker 1: and when she finally spoke, her voice was flat and defeated.
- 10:24Speaker 1: I don't want to paint anymore. There's no point if
- 10:26Speaker 1: I can't see what I'm doing. All those paintings I
- 10:28Speaker 1: made are wrong and stupid and I hate them. I
- 10:30Speaker 1: tried to tell her they weren't stupid, that they were
- 10:32Speaker 1: beautiful in their own way, but she cut me off.
- 10:35Speaker 1: You've been lying to me for three years, telling me
- 10:38Speaker 1: I was doing a good job when I was using
- 10:39Speaker 1: all the wrong colors. Everyone who sees my paintings probably
- 10:42Speaker 1: thinks I'm weird or bad at art, and you just
- 10:44Speaker 1: never told me. Her accusation hurt because there was truth
- 10:47Speaker 1: in it. I had been lying in a sense, praising
- 10:50Speaker 1: work without really seeing what she was creating, too caught
- 10:53Speaker 1: up in the ritual and the emotional meaning to notice
- 10:55Speaker 1: the technical problems. I sat outside her door trying to
- 10:57Speaker 1: find words that would help, but everything I thought to
- 11:00Speaker 1: say seemed inadequate. Finally, I just told her I loved her,
- 11:03Speaker 1: and that we'd figure this out together, even though I
- 11:05Speaker 1: had no idea how. For the next week, Iris refused
- 11:08Speaker 1: to paint. Our evening routine was broken for the first
- 11:11Speaker 1: time in three years, and the empty canvases in the
- 11:13Speaker 1: dining room felt like an accusation every time I walked
- 11:16Speaker 1: past them. I watched Iris withdraw into herself the same
- 11:19Speaker 1: way she had after her mother died, becoming quiet and isolated,
- 11:23Speaker 1: and I felt helpless to stop it. Her art teacher Mrs.
- 11:25Speaker 1: Kellerman called to ask how the doctor's appointment had gone,
- 11:28Speaker 1: and when I explained the diagnosis, she was sympathetic, but
- 11:31Speaker 1: also curious. I've been researching achromatopsia since I sent you
- 11:34Speaker 1: that email, she said. There are actually quite a few
- 11:37Speaker 1: successful artists who have the condition. They've developed techniques for
- 11:40Speaker 1: working with color despite not being able to perceive it directly.
- 11:43Speaker 1: Maybe knowing that would help Iris understand she doesn't have
- 11:45Speaker 1: to give up art completely. She sent me links to
- 11:47Speaker 1: articles about colorblind artists, and I spent that evening reading
- 11:50Speaker 1: about painters and designers who'd created stunning colorful work despite
- 11:54Speaker 1: seeing only in grayscale. One artist named Gregory Fisher had
- 11:58Speaker 1: become famous specifically for his landscape paintings that somehow captured
- 12:01Speaker 1: the emotional essence of color through careful understanding of value
- 12:04Speaker 1: relationships and color theory. I tried showing Iris the articles
- 12:08Speaker 1: about colorblind artists, but she wasn't ready to hear it.
- 12:11Speaker 1: She was stuck in the grief of realizing she'd been
- 12:13Speaker 1: perceiving the world differently without knowing it. that three years
- 12:16Speaker 1: of what she'd thought was shared experience with me had
- 12:19Speaker 1: actually been two people doing completely different things while using
- 12:22Speaker 1: the same words. I understood that grief, because I was
- 12:24Speaker 1: feeling it too, mourning the loss of what I'd thought
- 12:27Speaker 1: our painting sessions meant. But I also knew we couldn't
- 12:29Speaker 1: stay stuck there forever, so I started forming a plan.
- 12:32Speaker 1: If Iris couldn't see colors but had still managed to
- 12:35Speaker 1: create reasonably accurate paintings for three years, that meant she'd
- 12:38Speaker 1: developed some kind of system for translating her grayscale vision
- 12:41Speaker 1: into color vocabulary. If I could understand that system, Maybe
- 12:44Speaker 1: I could help her refine it into something more reliable.
- 12:47Speaker 1: I spent hours studying color theory, learning about how every
- 12:50Speaker 1: color had a corresponding gray tone at different brightness levels,
- 12:53Speaker 1: how value relationships were actually more important than hue in
- 12:56Speaker 1: creating depth and dimension. I bought books about painting for
- 12:58Speaker 1: the colorblind and tools that photographers used to check gray values,
- 13:02Speaker 1: and slowly a new approach to teaching Iris started forming
- 13:05Speaker 1: in my mind. Two weeks after the diagnosis, I knocked
- 13:07Speaker 1: on Iris' door with a proposition. I want to try
- 13:10Speaker 1: something different with our painting, I said. Not the same
- 13:12Speaker 1: way we used to do it. but a new way
- 13:14Speaker 1: that works better for how you actually see. Iris was
- 13:17Speaker 1: skeptical but curious enough to follow me to the dining
- 13:19Speaker 1: room where I'd set up a new kind of lesson.
- 13:21Speaker 1: Instead of just describing colors and expecting her to know
- 13:23Speaker 1: what paints to use, I'd created a reference chart showing
- 13:26Speaker 1: common sunset colors with their corresponding gray values. Orange was
- 13:29Speaker 1: a medium light gray, pink was a light gray, purple
- 13:32Speaker 1: was a medium dark gray, and so on. I'd also
- 13:34Speaker 1: bought a set of gray value cards that photographers used,
- 13:37Speaker 1: numbered from 1 to 10 representing different levels of brightness.
- 13:40Speaker 1: Here's what we're going to do, I explained. Instead of
- 13:42Speaker 1: me saying, use orange and pink, I'm going to help
- 13:45Speaker 1: you identify the actual brightness levels you're seeing. Then we'll
- 13:48Speaker 1: use this chart to figure out which colors match those
- 13:50Speaker 1: brightness levels. You're not guessing anymore. You're being systematic. Iris
- 13:54Speaker 1: looked at the materials skeptically, but picked up one of
- 13:57Speaker 1: the gray value cards and held it up next to
- 13:59Speaker 1: the real sunset visible through the window. The sky is
- 14:01Speaker 1: about a level three gray, she said, comparing the card
- 14:04Speaker 1: to what she saw. I checked the reference chart and
- 14:07Speaker 1: confirmed that level three gray in a sky context corresponded
- 14:09Speaker 1: to orange. So you'd use cadmium orange or a similar
- 14:12Speaker 1: warm light color, I explained. Not because you're seeing orange,
- 14:15Speaker 1: but because you understand that level 3 gray in the
- 14:18Speaker 1: sky at sunset translates to orange in color vocabulary. We
- 14:21Speaker 1: worked through the entire sunset that way, Iris identifying gray
- 14:25Speaker 1: values and me helping her translate them into color choices
- 14:28Speaker 1: using the chart. The process was slower and more analytical
- 14:31Speaker 1: than our previous intuitive approach, but the painting she created
- 14:34Speaker 1: was actually more accurate than anything she'd done before. When
- 14:37Speaker 1: we finished and compared it to the real sunset, The
- 14:39Speaker 1: colors matched in a way they never had previously. Iris
- 14:42Speaker 1: stared at both paintings, hers and mine, side by side,
- 14:45Speaker 1: and for the first time since the diagnosis, I saw
- 14:48Speaker 1: something like hope in her expression. So I can still paint,
- 14:51Speaker 1: she said slowly, just differently than I thought I was
- 14:53Speaker 1: doing it before. I nodded and explained that she'd actually
- 14:57Speaker 1: been doing something even more impressive than typical painting. Most
- 15:00Speaker 1: people paint by copying what they see. You're painting by
- 15:03Speaker 1: understanding a system of relationships between values and colors. That
- 15:06Speaker 1: takes more thinking and knowledge than just matching what's in
- 15:08Speaker 1: front of you. Iris considered this and picked up the
- 15:11Speaker 1: gray value cards again, studying them with new interest. Can
- 15:14Speaker 1: we try again tomorrow? She asked, and I felt relief
- 15:17Speaker 1: wash over me. Our painting routine was back, but transformed
- 15:20Speaker 1: into something more honest about what we were each actually perceiving.
- 15:23Speaker 1: Over the next few months, Iris threw herself into learning
- 15:26Speaker 1: color theory with an intensity that surprised me. She checked
- 15:29Speaker 1: out library books about color systems and light wavelengths, learning
- 15:32Speaker 1: the science behind why different colors appeared as different gray tones.
- 15:35Speaker 1: She practiced using the gray value cards constantly, holding them
- 15:38Speaker 1: up to everything she encountered and identifying the exact brightness level.
- 15:42Speaker 1: She memorized the reference chart so thoroughly that she could
- 15:45Speaker 1: translate values to colors automatically without needing to look anything up.
- 15:49Speaker 1: Her paintings evolved to reflect this new systematic approach, becoming
- 15:52Speaker 1: more technically accurate even as they maintained the emotional quality
- 15:56Speaker 1: that had always made her work special. The art teacher, Mrs. Kellerman,
- 15:59Speaker 1: noticed the improvement and asked what had changed, and Iris
- 16:02Speaker 1: proudly explained her new method of working with gray values
- 16:05Speaker 1: instead of trying to perceive colors directly. Mrs. A Kellerman
- 16:08Speaker 1: was fascinated and asked if Iris would be willing to
- 16:11Speaker 1: demonstrate her technique for the class, and I watched my
- 16:13Speaker 1: daughter teach her color-sighted peers about value relationships and why
- 16:17Speaker 1: they mattered more than hue for creating depth and dimension.
- 16:20Speaker 1: The other students were confused at first, not understanding why
- 16:23Speaker 1: anyone would work with gray values when they could see
- 16:25Speaker 1: colors directly, but Iris patiently explained that understanding values was
- 16:29Speaker 1: what made good painting possible. Color is just decoration, she
- 16:32Speaker 1: said with confidence. That surprised me. Value is structure. If
- 16:36Speaker 1: you get the values right, the colors almost don't matter.
- 16:38Speaker 1: It was something I'd read in one of the color
- 16:40Speaker 1: theory books, but hearing Iris articulate it showed how deeply
- 16:43Speaker 1: she'd internalized this new way of thinking about art. When
- 16:46Speaker 1: Iris turned eight, she asked if we could enter some
- 16:48Speaker 1: of her paintings in a regional student art competition. I
- 16:51Speaker 1: was nervous because I didn't know how judges would respond
- 16:53Speaker 1: to work created by someone with achromatopsia, but Iris insisted
- 16:56Speaker 1: she wanted to try. We selected three of her recent sunsets,
- 16:59Speaker 1: painted using the value-based method, and submitted them with an
- 17:02Speaker 1: artist's statement where Iris explained her condition and her technique.
- 17:06Speaker 1: The judging was blind, meaning judges didn't know anything about
- 17:09Speaker 1: the artists beyond what was in the statements, and I
- 17:11Speaker 1: tried to prepare Iris for possible rejection. But when the
- 17:14Speaker 1: results were announced, Iris had won second place in her
- 17:16Speaker 1: age category, and the judges' comments praised her exceptional understanding
- 17:20Speaker 1: of value relationships and sophisticated use of color harmony. At
- 17:24Speaker 1: the awards ceremony, one of the judges approached us and
- 17:27Speaker 1: said she'd been skeptical reading Iris' statement about being completely colorblind,
- 17:31Speaker 1: but the paintings themselves were so technically sound that she
- 17:34Speaker 1: had to accept the truth of it. Your daughter has
- 17:36Speaker 1: taught herself something that art students in college struggle with,
- 17:39Speaker 1: the judge said. She understands that successful painting is about
- 17:42Speaker 1: structure and relationships, not just copying local color. That's a
- 17:45Speaker 1: remarkably mature approach for someone so young. The recognition gave
- 17:48Speaker 1: Iris confidence to continue pushing her skills further. She started
- 17:51Speaker 1: experimenting with subjects beyond sunsets, painting portraits where she captured
- 17:55Speaker 1: emotional depth through value contrasts, landscapes where she conveyed atmosphere
- 18:00Speaker 1: through careful gradations of light and dark. The fact that
- 18:03Speaker 1: she couldn't see color became almost irrelevant to the quality
- 18:05Speaker 1: of her work because she'd mastered the underlying principles that
- 18:08Speaker 1: made visual art successful. By age nine, her paintings were
- 18:12Speaker 1: winning competitions regularly, and galleries started expressing interest in showing
- 18:15Speaker 1: her work. One curator from a contemporary art space downtown
- 18:19Speaker 1: contacted me after seeing Iris's paintings in a group show,
- 18:22Speaker 1: saying she wanted to feature Iris in a solo exhibition.
- 18:25Speaker 1: I was hesitant about putting that kind of pressure on
- 18:26Speaker 1: a nine-year-old, but the curator assured me it would be
- 18:29Speaker 1: low-pressure and educational. a chance to teach people about how
- 18:32Speaker 1: colorblind artists work. Iris was excited by the opportunity, so
- 18:35Speaker 1: we accepted. The exhibition was titled Value and Vision, Paintings
- 18:39Speaker 1: by Iris Cross, and it opened on a Saturday afternoon
- 18:42Speaker 1: when Iris was nine and a half. We displayed 15
- 18:45Speaker 1: of her paintings, including some from before the diagnosis alongside
- 18:48Speaker 1: recent work, letting viewers see the evolution of her technique.
- 18:51Speaker 1: Iris also created an interactive display where people could try
- 18:54Speaker 1: using gray value cards to identify colors, experiencing a simplified
- 18:58Speaker 1: version of what she did every time she painted. At
- 19:01Speaker 1: the opening reception, Iris gave a short talk about her
- 19:03Speaker 1: experience learning she was colorblind and developing a new approach
- 19:06Speaker 1: to art. She spoke clearly and confidently, explaining that her
- 19:09Speaker 1: achromatopsia wasn't a disability, but a different way of perceiving
- 19:12Speaker 1: that required different techniques. I see the world in gray,
- 19:15Speaker 1: she said, but I understand colors as a system of relationships.
- 19:19Speaker 1: I know that orange is brighter than purple, that yellow
- 19:21Speaker 1: is the lightest color, and dark blue is one of
- 19:24Speaker 1: the darkest. I know which colors go together to make
- 19:26Speaker 1: new colors, and I know which combinations create harmony or contrast.
- 19:30Speaker 1: I can't see the colors themselves, but I don't need to,
- 19:33Speaker 1: because I understand how they work. The audience was captivated,
- 19:36Speaker 1: and several people came up after to ask detailed questions
- 19:38Speaker 1: about her process. One woman introduced herself as Dr. Sophie
- 19:41Speaker 1: Hammond from the university's vision research department, saying she'd been
- 19:45Speaker 1: studying colorblind artists for years, but had never encountered a
- 19:48Speaker 1: child who'd developed such sophisticated strategies at such a young age.
- 19:51Speaker 1: She asked if she could interview Iris for a research paper,
- 19:54Speaker 1: and after discussing it with me, Iris agreed. The interviews
- 19:57Speaker 1: happened over several weeks, with Dr. Hammond asking detailed questions
- 20:00Speaker 1: about how Iris had learned to translate gray values into colors,
- 20:04Speaker 1: how she identified colors in contexts where she couldn't use
- 20:07Speaker 1: her reference charts, how she knew whether her color choices
- 20:09Speaker 1: were successful. Iris explained her entire mental framework, and Dr.
- 20:13Speaker 1: Hammond recorded everything with obvious excitement. The resulting research paper
- 20:16Speaker 1: was published in a journal about visual perception and art,
- 20:19Speaker 1: with Iris's paintings included as examples. The paper's argument was
- 20:22Speaker 1: that color perception wasn't necessary for color creation, that understanding
- 20:26Speaker 1: systematic relationships between colors was more important than subjectively experiencing
- 20:30Speaker 1: their qualities. The attention was overwhelming at first, with media
- 20:34Speaker 1: outlets wanting to interview Iris about being a colorblind artist.
- 20:37Speaker 1: We did a few local news segments where Iris demonstrated
- 20:40Speaker 1: her painting technique and talked about seeing in grayscale, but
- 20:43Speaker 1: I was careful not to let it become exploitative. Iris
- 20:45Speaker 1: was still a kid who needed normal childhood experiences, not
- 20:48Speaker 1: just a novelty act for people curious about disability. Her
- 20:51Speaker 1: school was supportive, with teachers incorporating discussions about different types
- 20:55Speaker 1: of perception into their lessons, helping classmates understand that people
- 20:58Speaker 1: could experience the same reality in fundamentally different ways. Iris
- 21:01Speaker 1: made friends with other kids who had various disabilities, forming
- 21:04Speaker 1: a group that advocated for accessibility and understanding. She started
- 21:07Speaker 1: speaking at schools about her experience, teaching younger kids that
- 21:10Speaker 1: differences in how people perceived or processed the world didn't
- 21:13Speaker 1: make anyone less capable, just required different approaches to the
- 21:16Speaker 1: same tasks. Our evening painting sessions continued through Iris's elementary
- 21:20Speaker 1: and middle school years, evolving as she grew more skilled
- 21:23Speaker 1: and independent. By age 11, she didn't need my guidance anymore.
- 21:26Speaker 1: She could analyze a scene, identify the value relationships, and
- 21:30Speaker 1: translate them into appropriate colors all on her own. But
- 21:33Speaker 1: we still painted together most evenings, because the ritual had
- 21:35Speaker 1: never really been about technique. It had been about connection.
- 21:38Speaker 1: Those hours were when we talked about school drama and
- 21:41Speaker 1: friend issues and her dreams for the future, when we
- 21:43Speaker 1: processed the normal challenges of growing up through the meditative
- 21:46Speaker 1: rhythm of brush on canvas. Sometimes we'd work on independent
- 21:49Speaker 1: projects in comfortable silence, just enjoying each other's presence. Other
- 21:53Speaker 1: times we'd collaborate on large pieces, combining our different ways
- 21:56Speaker 1: of seeing into single paintings that somehow incorporated both color,
- 22:00Speaker 1: and value-based approaches. Those collaborative works were my favorites because
- 22:03Speaker 1: they represented our relationship honestly, two people experiencing the world differently,
- 22:08Speaker 1: but creating something beautiful together. When Iris turned 13, she
- 22:11Speaker 1: made a decision that surprised me. She wanted to create
- 22:14Speaker 1: an exhibition specifically exploring her experience of colorblindness, not hiding
- 22:17Speaker 1: it or overcoming it, but examining what it meant to
- 22:20Speaker 1: navigate a colorful world in grayscale. She'd been painting for
- 22:23Speaker 1: nine years at that point and felt ready to do
- 22:25Speaker 1: something more conceptually ambitious. She started creating diptychs, where one
- 22:29Speaker 1: painting showed a scene in accurate colors and the other
- 22:31Speaker 1: showed the same scene in the grayscale values she actually perceived.
- 22:35Speaker 1: The paired images were striking, forcing viewers to see how
- 22:38Speaker 1: much visual information could be conveyed through value alone, while
- 22:41Speaker 1: also highlighting what was lost without hue perception. She also
- 22:44Speaker 1: created a series of abstract paintings based entirely on value patterns,
- 22:48Speaker 1: demonstrating that color wasn't necessary for visual interest or emotional impact.
- 22:52Speaker 1: In her artist's statement for the exhibition, Iris wrote that
- 22:54Speaker 1: she wanted people to understand that her vision wasn't broken
- 22:57Speaker 1: or inferior, just different. and that difference had taught her
- 23:00Speaker 1: to understand art in ways that might actually be more
- 23:02Speaker 1: fundamental than typical color sight. The exhibition was titled Seeing Gray,
- 23:06Speaker 1: and it opened at the same contemporary art space that
- 23:09Speaker 1: had shown her first solo show four years earlier. Critics
- 23:12Speaker 1: praised it as surprisingly sophisticated work from such a young artist,
- 23:15Speaker 1: and several pieces were acquired by museums interested in art
- 23:18Speaker 1: about disability and perception. One reviewer wrote that Iris had
- 23:22Speaker 1: transformed a supposed limitation into a rigorous artistic inquiry that
- 23:26Speaker 1: challenges viewers to reconsider their assumptions about vision and value.
- 23:30Speaker 1: Reading that review made me emotional because it validated everything
- 23:33Speaker 1: Iris had worked toward, acknowledging that her approach to art
- 23:36Speaker 1: wasn't just compensating for a disability, but exploring legitimate questions
- 23:40Speaker 1: about perception and representation. The exhibition traveled to two other cities,
- 23:44Speaker 1: and Iris gave artist talks at each venue, becoming more
- 23:46Speaker 1: confident and articulate with each presentation. She'd found her voice
- 23:50Speaker 1: not just as an artist, but as an advocate for
- 23:52Speaker 1: understanding different types of perception, as equally valid ways of
- 23:56Speaker 1: experiencing reality. Now Iris is 15, and we still paint
- 23:59Speaker 1: together several times a week, though our sessions have evolved
- 24:02Speaker 1: considerably from those early days of copying sunsets through the
- 24:05Speaker 1: dining room window. Sometimes we work on independent pieces, Iris
- 24:09Speaker 1: pursuing increasingly ambitious projects, while I dabble with techniques I'm
- 24:13Speaker 1: learning from online tutorials. Other times we collaborate on commissions,
- 24:16Speaker 1: because Iris's work has become sought after by collectors interested
- 24:19Speaker 1: in art, created through unusual perceptual frameworks. She's thinking about
- 24:23Speaker 1: art school for college, considering programs that would let her
- 24:26Speaker 1: continue developing her systematic approach to color while also exploring
- 24:29Speaker 1: other media. Whatever path she chooses, I know she'll approach
- 24:33Speaker 1: it with the same analytical rigor and creative courage she's
- 24:35Speaker 1: brought to everything since that devastating diagnosis, seven years ago.
- 24:39Speaker 1: That day in Dr. Leeds' office felt like the end
- 24:41Speaker 1: of our painting relationship, the revelation that destroyed three years
- 24:45Speaker 1: of what I'd thought we were sharing. But it turned
- 24:47Speaker 1: out to be a beginning instead, the start of a
- 24:49Speaker 1: more honest and ultimately richer way of creating art together.
- 24:52Speaker 1: Looking back at those first three years before we knew
- 24:54Speaker 1: about Iris' achromatopsia, I don't see them as wasted time
- 24:57Speaker 1: or misguided teaching anymore. Those years of painting sunsets together
- 25:01Speaker 1: gave Iris the foundation she needed to develop her sophisticated
- 25:04Speaker 1: understanding of color relationships. If I'd known from the start
- 25:07Speaker 1: that she couldn't see colors, I might have approached teaching
- 25:10Speaker 1: her differently in ways that would have been less effective. Instead,
- 25:13Speaker 1: by treating her as a typical color-sighted student, I accidentally
- 25:16Speaker 1: helped her build an intuitive understanding of color that she
- 25:19Speaker 1: could later translate into her own systematic framework. She'd learned
- 25:22Speaker 1: that sunsets involved certain combinations of colors, that clouds needed
- 25:26Speaker 1: highlights and shadows to look three-dimensional, that atmospheric perspective required
- 25:30Speaker 1: subtle value shifts. When she discovered she'd been working in
- 25:32Speaker 1: grayscale all along, she had years of painting experience to
- 25:35Speaker 1: draw on, making the transition to value-based methodology much easier
- 25:39Speaker 1: than starting from scratch would have been. The paintings from
- 25:42Speaker 1: those early years still hang in our house, browns and
- 25:45Speaker 1: grays that I once thought were oranges and pinks, muddy
- 25:48Speaker 1: greens that I'd believed were purples. They're reminders of how
- 25:51Speaker 1: two people can experience the same moment completely differently while
- 25:54Speaker 1: still creating something meaningful together. When Iris looks at those
- 25:58Speaker 1: old paintings now, she sees them the same way she
- 26:00Speaker 1: always has, as accurate representations of the sunsets she was perceiving.
- 26:04Speaker 1: When I look at them, I see evidence of how
- 26:06Speaker 1: wrong color can be and how right value can be simultaneously.
- 26:09Speaker 1: They're not failed attempts at typical sunset paintings. They're successful
- 26:13Speaker 1: representations of how Iris sees the world, and understanding that
- 26:16Speaker 1: difference has taught me more about art and perception than
- 26:19Speaker 1: any class could have. Our painting sessions were never really
- 26:22Speaker 1: about the colors anyway. They were about showing up for
- 26:24Speaker 1: each other every evening, about creating space for connection and creativity,
- 26:28Speaker 1: about building a ritual that could hold us both through
- 26:30Speaker 1: grief and discovery and growth. Last week, Iris came home
- 26:34Speaker 1: from school excited about an assignment her art teacher had given.
- 26:37Speaker 1: Students were supposed to create a painting that represented their
- 26:39Speaker 1: personal relationship with color, and Iris had decided to paint
- 26:42Speaker 1: our dining room during one of our evening sessions. She
- 26:45Speaker 1: set up her canvas and worked for three hours, occasionally
- 26:47Speaker 1: asking me to check specific value relationships, but mostly working independently.
- 26:51Speaker 1: When she finally showed me the finished piece, I was
- 26:53Speaker 1: moved nearly to tears. She'd painted me at the table
- 26:56Speaker 1: mixing paints on a palette, the colors vibrant and accurate,
- 26:59Speaker 1: oranges and pinks and purples. And she'd painted herself sitting
- 27:02Speaker 1: across from me, her canvas and palette rendered entirely in grayscale,
- 27:06Speaker 1: even though the rest of the painting was colorful. Between
- 27:09Speaker 1: us on the table, she'd painted her gray value cards
- 27:11Speaker 1: and color reference charts, the tools that bridged our different
- 27:14Speaker 1: ways of seeing. The painting was titled Translations, and her
- 27:18Speaker 1: artist's statement explained that this was what our painting sessions
- 27:21Speaker 1: actually looked like, two people experiencing the same moment in
- 27:24Speaker 1: completely different visual realities but using systematic translation to create
- 27:27Speaker 1: shared meaning. I asked Iris if she ever wished she
- 27:29Speaker 1: could see colors the way I do, and she thought
- 27:31Speaker 1: about it carefully before answering. Sometimes I'm curious what it's like,
- 27:35Speaker 1: she said slowly, but I think if I suddenly could
- 27:37Speaker 1: see colors, I'd lose something important about how I understand art.
- 27:41Speaker 1: Working around my achromatopsia forced me to really learn color
- 27:44Speaker 1: theory and value relationships, to understand painting at a deeper
- 27:48Speaker 1: level than just copying what I see. If that changed,
- 27:51Speaker 1: I might not paint the same way anymore. Her answer
- 27:53Speaker 1: showed remarkable self-acceptance for a 15-year-old. An understanding that her
- 27:57Speaker 1: difference wasn't a deficit, but a unique perspective that shaped
- 28:00Speaker 1: her work in valuable ways. I told her that learning
- 28:03Speaker 1: about her achromatopsia had changed how I understood art, too.
- 28:06Speaker 1: That she'd taught me to see beyond surface color to
- 28:08Speaker 1: the underlying structure that made images actually work. We'd both
- 28:12Speaker 1: grown through the process of adapting our painting practice to
- 28:14Speaker 1: accommodate her vision, and the art we created together now
- 28:18Speaker 1: was richer for that growth. Three years ago, getting that
- 28:20Speaker 1: email from Mrs. Kellerman felt like discovering a terrible truth
- 28:23Speaker 1: that would destroy something precious. But the truth didn't destroy
- 28:26Speaker 1: our painting ritual. It transformed it into something more honest
- 28:29Speaker 1: and ultimately more meaningful. Iris didn't stop being talented when
- 28:33Speaker 1: we learned she was colorblind. She just developed new techniques
- 28:35Speaker 1: for expressing that talent in ways that worked with her
- 28:38Speaker 1: perception rather than against it. And I didn't stop being
- 28:40Speaker 1: her teacher. I just learned to teach in a language
- 28:42Speaker 1: we could both understand. Our evening painting sessions are still
- 28:45Speaker 1: sacred time, still the hour each day when the world
- 28:48Speaker 1: narrows to just us and our canvases and the quiet
- 28:51Speaker 1: satisfaction of making something together. The colors Iris uses are
- 28:54Speaker 1: more accurate now, but what matters most hasn't changed. We're
- 28:58Speaker 1: still showing up for each other, still creating beauty out
- 29:00Speaker 1: of grief and challenge, still building connection through shared creative practice.
- 29:04Speaker 1: I taught my daughter to paint sunsets for three years
- 29:07Speaker 1: before learning she was completely colorblind and discovering that truth
- 29:10Speaker 1: was the best thing that ever happened to both of us.
- 29:12Speaker 1: Appreciate you watching this far. If you enjoyed it, drop
- 29:15Speaker 1: a like, leave a comment, and subscribe so you won't
- 29:18Speaker 1: miss the next story.