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HSE Decision Could Save Lives | Cork News
Hundreds gathered in Dublin for a final push to get a life-saving drug for Friedreich’s Ataxia publicly funded—just as the HSE prepares to decide whether to cover its steep cost. This rare disease devastates nerves and hearts, affecting just 200 people in Ireland, with no treatment until 2023. Skyclarys, the only available therapy, may slow progression—but campaigners insist it’s not just medicine; it’s a lifeline worth more than any price tag. Families plead that their loved ones can’t be valued in dollars, urging decision-makers to see the human cost behind the numbers. Tuesday’s vote could…
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