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Friedreich's Ataxia Drug Approved | Cork News
A major breakthrough for Friedreich’s Ataxia patients: the HSE has approved funding for Skyclarys after a two-year fight led by families and campaigners. Emily Felix, a trainee solicitor who’s battled the disease since age 12, now sees hope after losing mobility and speech — even taking legal action to force change. But not everyone celebrates — Niamh Ní Hoireabhaird warns this victory could be rare, as the reimbursement system remains broken. Craig Coady, grieving his son Rory who died from the disease, fought for treatment for his other son Paudie — and was personally called by the Health…
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