A Rare Collection - Up At Night
ONCE UPON A GENE - EPISODE 135
A Rare Collection - Up at Night
There's power in storytelling- for the listener and the storyteller. A Rare Collection is a monthly series featuring people from the rare disease community, sharing a story with a common theme.
EPISODE HIGHLIGHTS
Mike Gralia, Dad to Tony and Founder of the Syngap Research Fund
Mike recalls the nights insomnia kept him awake, looking at Tony as he rested, and wondering what his life would hold. In the darkness of night, his fears had the freedom to emerge. Tony wouldn't sleep without hours of walking the hall, singing and rocking…
The skinny
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