Latest / All Bodies. All Foods. / 18. And the Fire Burns: A Passionate Interview with Monika Ostroff, Executive Director of MEDA
Transcript
- 0:01Hey,
- 0:01I'm Sam.
- 0:02Hi,
- 0:02I'm Ashley.
- 0:04And you're listening to All Bodies All Foods presented by the Renfrew Center for Eating Disorders.
- 0:09We want to create a space for all bodies to come together authentically and purposefully to discuss various areas that impact us on a cultural and relational level.
- 0:19We believe that all bodies and all foods are welcome.
- 0:23We would love for you to join us on this journey.
- 0:26Let's learn together.
- 0:29All right.
- 0:29Hello everyone.
- 0:31Ashley and Sam here.
- 0:33Thank you all again for joining us for another episode of All Bodies All Foods hosted by the Renfrew Center.
- 0:40We have an incredible guest with us today and I wanna start off by sharing a little bit about her with you all.
- 0:47So,
- 0:47Monica Ostroff,
- 0:48MS W M I CS W ce Ds S.
- 0:53Monica is currently the executive director of Meta,
- 0:57the Multiservice Eating Disorders Association,
- 1:00nationally recognized for her 25 plus years of experience and contributions to the field of eating disorders.
- 1:07She has directed several successful residential partial hospital and intensive outpatient eating disorder programs.
- 1:15In addition to having owned a thriving private practice,
- 1:19Monica is the co-author of anorexia nervosa,
- 1:23a guide to recovery and a contributing author to self-harm behavior and eating disorders.
- 1:29She has presented at many national conferences taught at the university level and appeared on several radio and television broadcasts.
- 1:38Monica's passion for treating eating disorders and mentoring other professionals was born out of her own struggle and full recovery from what today is known as severe and enduring anorexia,
- 1:50nervosa.
- 1:52She strongly believes in providing compassionate care that combines alternative healing with evidence-based modalities.
- 2:00In addition to using meditation,
- 2:02yoga and essential oils,
- 2:04she is certified in several alternative healing modalities.
- 2:08So,
- 2:08Monica,
- 2:09thank you so much for being with us today.
- 2:12Thank you so much for having me.
- 2:14I realize the older I get,
- 2:16the longer my bio is,
- 2:19I'm I,
- 2:20I'm reading it and I,
- 2:21you know,
- 2:22I think I told you this before we connected on here.
- 2:24I was reading about you online earlier.
- 2:27You there are you have done so much and,
- 2:31and we're so excited to have you on.
- 2:34I'm here to kind of talk about everything and,
- 2:37and I would love to just kick it off.
- 2:39Like I can tell,
- 2:40you know,
- 2:41with the work that you've done,
- 2:42you're,
- 2:42you're passionate about this field and we're so appreciative to have you in it.
- 2:47And I'm just curious if you could talk to us,
- 2:50talk to our listeners,
- 2:51let us know how you got into this field and this work,
- 2:55oh,
- 2:56by accident in some ways,
- 2:58I um like,
- 3:00like a lot of people.
- 3:00I think that are in the field.
- 3:01Right.
- 3:02I clearly have my own personal history with an eating disorder that we maybe took a little longer than the usual to get through when I hit a place of,
- 3:14kind of figuring it out and doing better.
- 3:16I actually didn't want anything to do with talking about food or bodies ever for the rest of my life.
- 3:23I was done.
- 3:23And,
- 3:24um,
- 3:25that didn't last very long at all.
- 3:28I,
- 3:29you know,
- 3:29when I looked back and it was kind of reflecting on my struggle,
- 3:34I had um it was complicated,
- 3:36right?
- 3:37Like I'm somebody like many people in the field,
- 3:39I have a very long and complex of trauma and that my eating disorder makes a lot of sense in that context and probably has genetic basis as well.
- 3:51My experience in treatment was back in the nineties.
- 3:53Things were very different than,
- 3:55than they are now.
- 3:56And I had a lot of difficulty and treatment with just how uh care was delivered.
- 4:03It felt very pathologize,
- 4:05very shaming,
- 4:06very disempowering.
- 4:08It's very different today than it was then.
- 4:10So when I was kind of reflecting of my five years in and out of the hospital,
- 4:15which were a combination of my eating disorder and,
- 4:17you know,
- 4:17sort of the symptomatology that's associated with trauma,
- 4:20really,
- 4:21I looked back and I got really angry when I looked at how I was treated and what happened,
- 4:28things that were said to me things that were done to me.
- 4:32And I thought,
- 4:33you know,
- 4:34I can do one of two things I can marinate in my anger and become a bitter resentful person and probably be pretty negative or anger is a pretty energetic emotion.
- 4:49I can take that energy and I can wrap it into something and maybe do some good.
- 4:54And I felt really compelled and passionate about lending my voice at the time to other voices.
- 5:02I think that were,
- 5:03were kind of emerging to begin to challenge people to treat folks who have eating disorders differently,
- 5:10to move away from this kind of medicalized pathological model.
- 5:14That is inherently,
- 5:15I think,
- 5:16shame based and patient blaming to one that maybe recognizes the inherent strengths and wisdom in the person who's struggling.
- 5:26And I started out um literally speaking and writing,
- 5:29learned a lot from different people that I was talking with.
- 5:34And interestingly enough in the early nineties,
- 5:38I was still sick with my eating disorder but was volunteering for an organization called ABC Incorporated,
- 5:45which is no longer in existence.
- 5:47That's where I met Rebecca Manley,
- 5:48who is that as founder?
- 5:50OK.
- 5:51Yeah.
- 5:51So,
- 5:51uh Rebecca actually Becky that many of us know her by founded that in 1994.
- 5:57So I did have some really early on experiences with meta where I was doing some presentations going into schools for meta um doing some prevention work.
- 6:08Um I was leading one of their peer led groups at the time.
- 6:13And then the nineties got really complicated for me um with various in slay hospitalizations.
- 6:19So I was looking at what Becky was doing before I went to graduate school and,
- 6:25and honestly was pretty interested in,
- 6:27in either partnering with her or doing something in my home state,
- 6:30which is New Hampshire.
- 6:32And quickly figured out that I should really go to graduate school because my personal experience wasn't quite enough to have an,
- 6:39have the kind of impact I think I was hoping to have in the field.
- 6:42So social work was a really great match for me because I love policy and advocacy and clinical work.
- 6:48And it allowed me to create a package where I could do all of those things.
- 6:53What I wasn't anticipating was this kind of like right hand turn that I took when I got out of graduate school,
- 6:59which was I'm going to build programs,
- 7:01open treatment centers and run them and have a private practice for a number of years.
- 7:06And that was,
- 7:08that was helpful up on a personal level.
- 7:11But I think also I worked really hard to try to have a presence and a voice and the eating disorder field to really help move treatment into one that was really much more strength based,
- 7:23that really challenged people to recognize everybody that comes in front of us as having they're,
- 7:30they're the experts on themselves,
- 7:32right?
- 7:32Like we cannot trust an expert on anybody except ourselves.
- 7:36And yes,
- 7:37it's true.
- 7:38Right.
- 7:38For there are different mechanisms that are protective or sometimes dissociative depending on what's happening in our lives that might get in the way of us knowing everything we need to know about ourselves.
- 7:49And professionals can be really helpful in that regard.
- 7:52But professionals are not ever an expert on another human,
- 7:55only,
- 7:56that person can be that expert.
- 7:58So it was really a lot of fun to be going to national conferences and presenting some of the work that I was doing um weaving together different modalities and also having a direct impact.
- 8:12Um I it was really soothing to my soul sometimes to be leading treatment centers where I knew that every individual coming to that center was not having an experience like the one that I had had years before,
- 8:23right?
- 8:25But then in,
- 8:27you know,
- 8:272019,
- 8:28um Becky who's our founder and then our board chair,
- 8:32Leslie Bernstein had um I had met with me and we kind of like,
- 8:36so how do you like your current job?
- 8:39I know the really long story short is,
- 8:41was the invitation to um need meta which honestly feels like being home.
- 8:48So meta has been this organization,
- 8:50I've always known it to be this kind of um I'm gonna quote Carolyn who's sitting next to me.
- 8:55Yeah,
- 8:55perfect a place where we recognize that we don't do everything right at all.
- 9:02We are very human,
- 9:03very loving,
- 9:04very kind.
- 9:05And it's the place where you can literally come as you are put up your feet and know that you are loved,
- 9:11accepted and we will help you figure it out.
- 9:13We want you to thrive in your life.
- 9:15And we all feel really passionate about that.
- 9:18So I feel like I'm Home Meadow was the first national conference that I had ever really presented at as a licensed professional,
- 9:24which is really fun.
- 9:25And so today,
- 9:28and I literally feel like my career just went and there's so many fun things happening here that I just feel really lucky to be.
- 9:38Let me put it this way.
- 9:39I get up in the morning and I think I get to go to work today,
- 9:42which is really different than like I have to go to work today.
- 9:45Right.
- 9:45Right.
- 9:47That's an amazing team,
- 9:48a phenomenal community.
- 9:49And I mean,
- 9:50you guys are part of our community.
- 9:51It's like,
- 9:52it's really fun.
- 9:53And I have noticed working within this industry,
- 9:56working within this field,
- 9:57like we,
- 9:58there are,
- 9:58we are so connected.
- 10:00Um And I love that I love going to the conferences.
- 10:03I love meeting the people that,
- 10:05you know,
- 10:06that I share uh a passion with and,
- 10:09and I just wanted to say to that to Monica as Sam and I created this podcast and just really,
- 10:15we really wanted to provide a space for everyone to come and learn,
- 10:20right.
- 10:21Um And we also very much are aware that we don't know everything and we probably never will.
- 10:29And so,
- 10:30um,
- 10:31you know,
- 10:31one of our taglines is let's learn together,
- 10:34you know.
- 10:35Um,
- 10:35and,
- 10:36and so we love having people like you on here so that you can share your experience,
- 10:41share your story with us and,
- 10:43and even share,
- 10:44you know,
- 10:45I would love to even hear more about meta,
- 10:47I guess and,
- 10:48and their mission and their passion and what they're doing in the community if you could share a little bit about that too.
- 10:55Oh,
- 10:55I would love to.
- 10:56It's one of my favorite topics of conversation,
- 10:58actually.
- 10:58Awesome.
- 10:59I know it's probably shocking,
- 11:00right?
- 11:02Um So I'm,
- 11:04I am literally in love with this organization mostly because of it's got such an incredibly strong heartbeat and so much love and passion to help people who are struggling and their families move into a life that feels like one that is satisfying and one they can thrive in.
- 11:20So we are very focused on access to equitable care and we're working really hard on that.
- 11:26Do we have it down?
- 11:27No.
- 11:28Um But we are working very hard on it.
- 11:30We've done a lot to um remove barriers to access to care for people and we're constantly learning about how we can make care more equitable,
- 11:40more diverse and more meaningfully inclusive.
- 11:43So we do a couple of different things we have if you think about us as kind of um having different arms,
- 11:50almost.
- 11:51We have a clinical um arm where we literally do individual group and family therapy,
- 11:57treating folks who are currently struggling with eating disorders from a haze aligned and powered lens.
- 12:03OK.
- 12:04And that's really important to us.
- 12:07We also have an online community called the meta recovery community.
- 12:13It's at um recover with meta dot org and that has two sections to it.
- 12:17One is a lot of different tools webinars.
- 12:20Actually,
- 12:21there's a really great webinar that you folks donated to us control the scroll.
- 12:25That that was when I did um I was gonna ask cameras so good.
- 12:30Oh,
- 12:30good.
- 12:30I said you liked it.
- 12:31Yeah,
- 12:33it's in the webinar section and that also comes with a number of uh forums that are live and they're moderated by peer recovery.
- 12:40Um People that are in recovery or various stages of recovery really just making sure that it is a really safe place where people can come and talk about what they're going through,
- 12:49can share resources,
- 12:51can share motivation or can get motivation when they need it.
- 12:56And it's something that is free.
- 12:58There are some other levels where you know,
- 13:00if you wanted the group coaching,
- 13:02that is a a minimal sum,
- 13:03but we have a lot of scholarships.
- 13:06So it's literally accessible to everybody and you can reach that 24 7,
- 13:11which was the goal right in the middle of the woods.
- 13:14As long as you have a cell signal you can get some help there and connect with people.
- 13:19And we also have a really big effort to train uh professionals.
- 13:24So we have a pretty popular national conference every year that we have been working really hard to ensure that the voices of people who are living in marginalized communities are really centered.
- 13:36So our keynotes and many of our workshops are given by members of the BIPOC LGBT Q or folks who are um living in larger bodies to make sure that their voices are really heard and that we can all learn from them.
- 13:52I think we recognize that,
- 13:54you know,
- 13:55the voices of like the white middle class,
- 13:58straight bodied person has been exhausted in many ways and it's really time to learn so that we can provide better care.
- 14:07So we can ensure that there is true equity and access.
- 14:11And we do a lot of training of uh clinicians and other um sometimes other treatment centers,
- 14:17but very often like community mental health centers,
- 14:19group practices to help them universities,
- 14:22for example,
- 14:23to help their clinical staff be able to treat eating disorders with some authority and some like a sense of confidence.
- 14:31Yeah,
- 14:32that is wonderful.
- 14:33And we can tag um the organization's website in our um you know,
- 14:38post when we put this up.
- 14:40But um you all are located in the northeast.
- 14:43Correct?
- 14:44Yes,
- 14:44we are just outside of Boston and OK.
- 14:48And who all has access to you is it nationwide who all can utilize these resources that you have.
- 14:56We actually have people from all over the world.
- 14:58We have people from different countries that also come in,
- 15:01especially for our um we do a number of Instagram lives that are supportive for people who are struggling in recovery in addition to our online community and some of our group as well.
- 15:10And we have people from all over the country that access our services.
- 15:13I would say that we are help really New England,
- 15:16we were to kind of do up the demographics.
- 15:18We are still really wanting to make sure the New England States have what they need coming from New Hampshire.
- 15:24We didn't have any treatment centers there until I opened,
- 15:28you know,
- 15:29still struggling to get their treatment,
- 15:31a treatment center.
- 15:33But,
- 15:33you know,
- 15:34the New England States are have a high need.
- 15:37But absolutely,
- 15:37when we do our free drop in groups on Tuesday evenings and Thursdays,
- 15:41when people say where they're from,
- 15:43we hear people from Florida,
- 15:44California,
- 15:45Oklahoma,
- 15:46Brazil,
- 15:48England,
- 15:48like all over.
- 15:49It's really,
- 15:50really fun.
- 15:51That's awesome.
- 15:52Yes,
- 15:53we'll have to include the Instagram handle too.
- 15:55These are great resources for the audience to have.
- 15:59Thank you.
- 16:00Um One thing,
- 16:01uh well,
- 16:02two things actually stood out to me.
- 16:04Um You know,
- 16:05one of the things I just wanted to point out in the story you told at the beginning of this episode about your anger and what a beautiful example of allowing your anger to fuel you in,
- 16:18in this direction.
- 16:20And I think that's so important.
- 16:21You know,
- 16:21we teach with the U T about the function of emotions and what a beautiful example of that.
- 16:27It's like,
- 16:28what are my choices here?
- 16:29Can I,
- 16:30will I sit in my anger or actually use it to do something so that just really touched me.
- 16:35Um really such a wonderful example.
- 16:38And in your bio,
- 16:39I think earlier,
- 16:40Ashley and I were,
- 16:41were talking about all of your amazing accomplishments,
- 16:44one of which uh you wrote a book on self-harm.
- 16:48I was one of the contributing authors of anthology.
- 16:51So there was a number of us that came together to create that sort of almost like a textbook.
- 16:56Yes.
- 16:57Oh,
- 16:57wonderful.
- 16:58And we,
- 16:59I was talking to Ashley about,
- 17:01we haven't really even scratched the surface with self-harm on this podcast yet.
- 17:05And it's so misunderstood,
- 17:08especially the relationship between self-harm and eating disorders.
- 17:12And I think oftentimes especially with parents when they find out their kid is self harming,
- 17:16it's they sort of panic understandably.
- 17:19So I was curious,
- 17:20what could you share about self-harm specifically?
- 17:24I think it's helpful to not panic and,
- 17:26but you know,
- 17:27like everything,
- 17:27right?
- 17:28There's,
- 17:28there's a spectrum of self-harm,
- 17:30right?
- 17:30There's,
- 17:31there are,
- 17:32there are times when,
- 17:32when panic is necessary and people need to get emergent medical care.
- 17:36So I don't wanna say don't panic in that situation of course,
- 17:39it's important that people get what they need.
- 17:41But when it comes to what it is and what it does,
- 17:45you know what I find is even today,
- 17:47there are people in places that do I think a really great job with it and there are people in places that really struggle to understand it.
- 17:54And when you think about,
- 17:56um,
- 17:57self injurious behavior as having a function,
- 18:00very similar to how we think about eating disorder behaviors as having a function.
- 18:05What function is it serving for that individual?
- 18:08Right?
- 18:09There are a number of things that it might be and for one person,
- 18:12it may be several things working in conflict with each other.
- 18:15It may be,
- 18:17it may be that person's voice,
- 18:20they might not be able to express what they need,
- 18:23what they think.
- 18:24And so they're getting a need met through the language of their self injurious behavior.
- 18:30It's hard to understand similar to the eating disorder language,
- 18:33right?
- 18:34They're communicating something 100% and it,
- 18:37it may also be a way of self regulating that doesn't make sense to some people.
- 18:42However,
- 18:43if you are in such emotional pain,
- 18:45you can translate that emotional pain into a time limited physical manifestation of that emotional pain and it becomes manageable.
- 18:54It can also become a very protective mechanism for somebody,
- 19:00especially who has complex trauma if there is an eating disorder,
- 19:05right?
- 19:05And there is self injury going on.
- 19:08What I see is a lot of treatment,
- 19:10teams running around in circles trying to get those behaviors under control,
- 19:15which is important.
- 19:16I'm not saying it's not important,
- 19:18but what tends to happen is we are not addressing the fact that there is a very scared part of that person who's trying to be very protective of their trauma that needs healing.
- 19:29Right?
- 19:30And that person really needs to know that healing is possible and that hopefully right here right now,
- 19:37everything is ok and they're safe and nothing bad is happening.
- 19:40If that's not true,
- 19:41we need to get them safe uh in their environment.
- 19:44But that that tends to get neglected by these kind of um worrisome behaviors.
- 19:52So when people can take,
- 19:54I think a step back and sit with a person and help them reflect to identify what is this doing for you and sometimes they don't know,
- 20:03right?
- 20:03That it's hard for them to put into words that this is translating a really intense emotional pain that I can't even put words on yet.
- 20:11Or you know,
- 20:13I am trying to be seen in this world.
- 20:15My needs are never met.
- 20:16I'm trampled all the time.
- 20:18This is a way of me taking up some space and having people see me or at least part of me,
- 20:24I'm sitting here listening to you and I'm just thinking how lovely these words sound coming from you,
- 20:32how compassionate they sound,
- 20:34you know,
- 20:35helping us understand that we can really view self harm as,
- 20:39and it feels mind blowing,
- 20:41but as a protector as the thing that is protecting that innermost hurt,
- 20:46right?
- 20:47And so when we can even as providers,
- 20:50even as family members view it as that,
- 20:54I think it might shift some of our language with our loved one.
- 21:00I think there's something that,
- 21:01you know,
- 21:02happened in the field a number of years ago,
- 21:04like 20 or so,
- 21:06but it is still sometimes slow to catch on.
- 21:09And that is really moving away from this kind of patient blaming disempowering.
- 21:15The person's just trying to,
- 21:16it was like attention seeking.
- 21:18I literally had this conversation with somebody earlier today.
- 21:21It drives me crazy when people say that a client is attention seeking,
- 21:24I'm like attention seeking is wearing a flashy sweater.
- 21:27It's not harming yourself and you know,
- 21:28almost dying from an eating disorder.
- 21:30There's other ways to get attention,
- 21:32that's not it.
- 21:33But when we can really recognize that everybody,
- 21:39I'm gonna rephrase it.
- 21:40I because I say this a lot in terms of eating the so and I think it's true of self injury as well.
- 21:45People are doing the best they can with what they have.
- 21:49It is a strength that somebody found a way of surviving their life.
- 21:55Our job is to be an ally to them and work with them to find another way in which they can completely thrive and not be harming other parts of themselves.
- 22:06Those protective parts that self injure or engage in eating disorder behaviors are really doing the best they can to protect the person.
- 22:13They don't know that what they're doing is harmful.
- 22:17If you think about like,
- 22:18si F s work.
- 22:19Right?
- 22:20Like no bad parts.
- 22:21There really are no bad parts.
- 22:23Well,
- 22:23I think also it just,
- 22:25it takes away so much of the shame that folks might be carrying around with them that it's like something's wrong with me that I keep doing this and it's like,
- 22:35actually nothing's wrong with you.
- 22:37This has been a survival strategy and let's just figure out different ways you can survive.
- 22:43Yeah.
- 22:43And good for you for surviving the alternative.
- 22:47Right.
- 22:47Right.
- 22:47Exactly.
- 22:50I think we forget that or people can forget it if the struggle goes on for a period of time.
- 22:57You know,
- 22:57I think that's where a lot of the shame starts coming up is if somebody is not getting better fast enough,
- 23:02I'm not sure who's determining the speed of recovery and like,
- 23:05what's ok and what's not,
- 23:07but I'm sure the two of you hear it all the time too that there are people that come in and they have so much shame because they're not better yet.
- 23:16And that's when I think,
- 23:19you know,
- 23:19we as providers and even as a community,
- 23:21we need to take a step back and think about with those folks.
- 23:26What haven't we done yet?
- 23:28What are we missing?
- 23:29A lot of times,
- 23:31I'm sure you've seen it too.
- 23:33There can be people that get,
- 23:35I think,
- 23:35frustrated or maybe they're questioning their own skill set as a provider.
- 23:39And so it's easy to say that person doesn't want to get better,
- 23:44but that's not the truth.
- 23:45Right.
- 23:46Like there isn't anybody that doesn't want to get better.
- 23:49It's a struggle sometimes to get better and sometimes people don't have the right information or support or skill set.
- 23:55There's a number of things that keep missing where there's an area of their life that needs healing that we haven't walked into yet.
- 24:03And we have to figure out what that is and maybe they don't know what it is.
- 24:08Right.
- 24:08At that point,
- 24:09I was um giving a presentation yesterday,
- 24:12Monica and just kind of talking about,
- 24:15um,
- 24:15really the intersection of trauma and eating disorders and just how much it shows up.
- 24:19And I had done a,
- 24:21um an expressive arts activity with someone and,
- 24:25um,
- 24:26she truly like,
- 24:29I don't think had put the two together,
- 24:31but she had drawn something and it was one of the first places where she had experienced.
- 24:36Yuck.
- 24:37And when that happened,
- 24:39I mean,
- 24:39it just,
- 24:40you know,
- 24:40she had,
- 24:41she had gone through treatment,
- 24:43her insurance,
- 24:44she was kind of on her way out,
- 24:45you know,
- 24:46and,
- 24:47um,
- 24:47when that brought up got brought up,
- 24:49um she actually ended up staying with us at Renfrew for a lot longer because we were able to finally kind of work on that piece that she truly did.
- 25:00She did not have words for it prior to that,
- 25:02she had not made that connection prior to that.
- 25:04She didn't know why the eating disorder was protecting her.
- 25:09Right?
- 25:09So,
- 25:10just to speak to what you were saying,
- 25:12it's,
- 25:12that is such an important point too because I think sometimes like we get,
- 25:16we'll get adults in and we expect them to be able to explain and describe everything and a lot of their wounds happened before they were able to actually put words on them.
- 25:26And so doing some of the using the modality is that you just described as such an amazing way of giving them access to that part of themselves.
- 25:35It really needs healing.
- 25:36Yeah.
- 25:37Yeah,
- 25:38I'm thinking about.
- 25:39So you mentioned,
- 25:40um that you experienced what is now known as severe and enduring anorexia nervosa.
- 25:46Um I'm curious how you have seen us shift and how you have seen us change in regards to working with that modality and,
- 25:57and even as you've opened up treatment centers,
- 26:00you know,
- 26:01what is important to you,
- 26:03um,
- 26:03when working with someone that might be experiencing that,
- 26:06what do we need to know as providers?
- 26:10Oh,
- 26:11that's,
- 26:11there's a little,
- 26:12there's a little piece of that like fire that gets ignited,
- 26:16right?
- 26:17As providers,
- 26:19I think it's really important to never set a bar for any individual out there.
- 26:26So what I have seen time and time again are providers who will say well,
- 26:30so and so has been struggling for X number of years and therefore the most we can hope for is fill in the blank.
- 26:36That's garbage.
- 26:38We don't have any ability to determine what another human being is capable of doing or where,
- 26:45where they're capable of going.
- 26:47It's our job to remove barriers.
- 26:50It's our job to step back and try to figure things out.
- 26:53And I,
- 26:53I do think with some of the severe and enduring eating disorders,
- 26:57there are things that we haven't,
- 26:59we don't know yet.
- 27:00Right.
- 27:00We're still doing brain research.
- 27:01Like I know my brain is different than other people and I accommodate that.
- 27:06Um Right,
- 27:06like I found we have to accommodate that to be healthy.
- 27:09And there are people still trying to figure out how to do that.
- 27:12We're still learning.
- 27:14The most important thing is being able,
- 27:16I think to listen to the people that are struggling what they're saying that they need while we're trying to obviously also protect them,
- 27:26you know,
- 27:26and keep them alive and healthy and as well as possible while they are moving towards their own recovery,
- 27:33letting people define what their own recovery looks like.
- 27:36Rather than imposing what we think their recovery should look like.
- 27:41It's really hard to get a treatment alliance when you do that the thing and I've shared this,
- 27:48this other places that the thing that really made me the most angry.
- 27:53Um in when I hit a place of being functional again,
- 27:58was I reconnected with a provider that had treated me in programs.
- 28:03Um,
- 28:03who I liked not gonna say I didn't,
- 28:06um,
- 28:06she was interested in having me speak to a program that she was running.
- 28:10So she was kind of like,
- 28:11oh,
- 28:11you know,
- 28:12come down and,
- 28:12and let's,
- 28:13let's talk about what that would look like,
- 28:14kind of thing.
- 28:15And she was interested in some of the writing that I had done.
- 28:18But when I walked through the door after she said hi before I could say hi back,
- 28:22it was like,
- 28:23oh hi Monica,
- 28:24we all thought you'd be dead by now.
- 28:25Oh oh,
- 28:28what the like what even is that?
- 28:31What,
- 28:32what I get like what I got angry about,
- 28:35right?
- 28:36Um Was not uh like,
- 28:37I don't see that as a comment around like severity.
- 28:41So anybody that might be listening to this,
- 28:43I really hope you're not triggered by that because it's not about severity.
- 28:47What this is about is treatment professionals who gave up and in.
- 28:50So you can hear I'm sounding angry,
- 28:52right?
- 28:52Like it's treatment professionals who gave up and if you are somebody thinking that about one of your clients,
- 29:01then there is no way on this planet that you are giving that client's treatment,
- 29:06you're all,
- 29:07you're not working anymore.
- 29:09And that is not fair to the person struggling.
- 29:14If you've gotten to a place where you're frustrated with whether it's your own skill set,
- 29:18you don't know what to do.
- 29:19Next.
- 29:19Consultation is not working for you.
- 29:21Uh,
- 29:21like whatever it is.
- 29:23Yeah,
- 29:24you have an ethical and moral obligation to find care that does work for that individual.
- 29:29Like you don't give up on any human being.
- 29:33Yeah.
- 29:33So that's the thing that happens with this particular subgroup of folks struggling I think is that people do give up and they become complacent and they're,
- 29:42they're doing like good enough care keeping somebody,
- 29:45you know,
- 29:46kind of just getting by.
- 29:47I don't think that's good enough.
- 29:49I'm sorry,
- 29:50I still sound angry.
- 29:51You don't have to sound passionate.
- 29:54That makes perfect sense that you're angry about it.
- 29:57Yeah,
- 29:58I just,
- 29:58I don't know how we can come into this field,
- 30:01right?
- 30:01And say we're here to help people and then we give up on a section of people.
- 30:06Yeah.
- 30:07Mhm And real.
- 30:09And this is,
- 30:10this is someone that is really kind of experiencing this over and over and over.
- 30:17Um And,
- 30:19and it might,
- 30:19I mean,
- 30:20it might feel extremely painful to the person experiencing this for years,
- 30:25years and years and years.
- 30:27Yeah.
- 30:28It's really difficult to put words on how horrible the experience is to feel like there is something so inherently wrong with you that you can't do recovery rate,
- 30:41whether it's from self injury and eating disorder or both.
- 30:45And the provider's frustration is something that you can,
- 30:51it's palpable.
- 30:52You can feel it when you're in the room,
- 30:54you really feel like they don't like you and it's really hard to get better working with people who don't seem to like you and you already don't like yourself very much.
- 31:06Right?
- 31:07But you're hurting.
- 31:09I struggle a lot with that.
- 31:10Like,
- 31:11even today,
- 31:11trying to figure out how do we,
- 31:14how do we put in safeguards for people?
- 31:16Because I'm still seeing these people hurt over and over again,
- 31:21you know,
- 31:21by um I think ultimately probably well meaning providers,
- 31:26right?
- 31:26Like I don't wanna say anybody is like not well meaning but it's a really vulnerable group of folks that deserve to know that they can heal.
- 31:38I don't know what every person's healing looks like,
- 31:41right?
- 31:42But I know everybody can heal.
- 31:44I think everybody is gonna look different but nobody should be sitting on the receiving end of hopelessness coming from a team or a provider.
- 31:53And I,
- 31:53I'm curious if that speaks to just even how we've evolved as,
- 31:58you know,
- 31:59the eating disorder industry in the field,
- 32:01you were mentioning meta offers um all sorts of opportunities to connect,
- 32:07right?
- 32:07And we really,
- 32:08really see that as um something that someone that is in so much pain that is really trying to heal,
- 32:17but struggling to do so,
- 32:18getting connected with support,
- 32:20people staying connected.
- 32:22Like I'm even curious if you had those services,
- 32:26you know,
- 32:26back in the day when you were experiencing this,
- 32:29what might have been different if you had that support.
- 32:32If you could log into that app,
- 32:35I think about that a lot to tell you the truth.
- 32:38I look at folks when,
- 32:39when I am on the forums,
- 32:41Ruth Elliott,
- 32:42who's our clinical director,
- 32:43who's also an amazing clinician and a dear friend of mine.
- 32:46We're on there posting as well trying to offer support along with the moderators and the love and compassion that people are held with.
- 32:57You can really,
- 32:58and people do like,
- 32:58people will show up there and they just,
- 33:00you can tell they just hate themselves so vehemently and there is so much kindness and compassion coming at them so much understanding,
- 33:08you know,
- 33:09where people can,
- 33:11can just hold that space a little bit and understand like,
- 33:14yeah,
- 33:14that's where you are right now and offer them hope and motivation and compassion and experience with people saying I remember when I felt that way,
- 33:24there are a few things that were helpful to me or don't forget that,
- 33:27you know,
- 33:28there's just a lot of,
- 33:29there's a lot of connection and I think it could have been really helpful in those moments that felt really dark,
- 33:37that felt really messy where I was maybe the most disempowered that I have ever been to have somebody kind of be like actually things you can heal.
- 33:52Mhm And mean it when they were saying that.
- 33:56Absolutely.
- 33:57Yeah.
- 33:58And a lot of times I,
- 33:59I think it is,
- 34:00it can be people,
- 34:01right,
- 34:01who have,
- 34:02um,
- 34:02who have been there or who currently are there where you work together.
- 34:07Yeah.
- 34:08Oh,
- 34:08it's like a treatment.
- 34:10It,
- 34:11we can't heal in an environment that confirms our worst fears about ourselves.
- 34:19And it's really about finding a safe space where you are fully accepted for just being authentically.
- 34:26You,
- 34:27it reminds me of just,
- 34:28you know,
- 34:28you showing up at work every day.
- 34:30It's,
- 34:30it's like finding those spaces where you feel accepted no matter what you feel loved,
- 34:39you feel held and it's so crucial to healing.
- 34:44Think I agree with you.
- 34:46I just think coming to a place where you can literally be you,
- 34:50whatever that looks like on any given day and know that you are loved and accepted with compassion no matter what is so important.
- 35:01Yeah,
- 35:02you don't have to wear a mask.
- 35:04You don't have to be pretending that you're somebody else.
- 35:07You can just be whoever and however you are and all of your messy,
- 35:13unique wonderful glory.
- 35:15Mhm mhm How freeing.
- 35:18Yes,
- 35:19Monica.
- 35:20I was having lunch with a provider the other day in Kentucky.
- 35:23Her name is Hillary Bacon and I'm saying her name because I'm gonna share her idea.
- 35:28So we she's getting her graduate degree,
- 35:32I'm sorry,
- 35:32her doctoral degree.
- 35:34And um the,
- 35:35the information that she's working on is kind of studying um the system of A A and N A and how much community that provides and the the mentorship that it provides and how it does provide exactly what you are saying that come as you are,
- 35:53be who you are.
- 35:54This is what's going on and talking about how can we create something like that within the eating disorder community where we have sponsors,
- 36:05where we have mentors,
- 36:06where we have weekly meetings,
- 36:09literally meeting in,
- 36:10you know,
- 36:11every city,
- 36:12how can we create something like that?
- 36:14Um simply for that support and simply for our people to show up as they are,
- 36:20you know.
- 36:21Yeah,
- 36:22it can be so healing.
- 36:23I think sometimes people are reluctant to try that because the fear is like everybody's gonna trigger everybody else and then they're all gonna relapse.
- 36:30Yeah.
- 36:31A A and N A are not perfect,
- 36:33right?
- 36:33There are people that get triggered there.
- 36:34There are people that sometimes have lapses but the idea is the more recovery you have and the more healing mentors have done,
- 36:42the more stable that becomes and it seems like we've never really gone far enough with that in the field.
- 36:51I think,
- 36:52I think there's something there.
- 36:54I think we can.
- 36:55I'm curious,
- 36:56Monica,
- 36:56when you were going through your healing process,
- 37:01do you remember what was helpful to you when you were able maybe to shift your thinking or when you had an aha moment just for all those folks out there who are thinking to themselves,
- 37:13I'll never get better.
- 37:15I'm just curious what helped you the a million things to be honest because I think that like anything,
- 37:22it's,
- 37:22it's this evolution.
- 37:24One thing that was important for sure was um developing some semblance of self compassion.
- 37:30It's really hard to hurt something you care about,
- 37:33right?
- 37:34Learning to develop something like an inner parent,
- 37:37an inner best friend is really helpful as well.
- 37:40But also recognizing that recovery is not a destination,
- 37:45that healing isn't finite.
- 37:48Instead,
- 37:48I didn't wanna know this to be,
- 37:50to be really honest.
- 37:53Um I did,
- 37:54I did not want to know this.
- 37:55I actually wanted recovery to be a destination.
- 37:56I wanted healing to be finite and realizing that we are constantly evolving,
- 38:04right?
- 38:04We're constantly healing and we're constantly learning to become the next version of ourselves.
- 38:09And when I also thought about this,
- 38:13this might sound really weird,
- 38:14but this was also helpful to me,
- 38:16you know,
- 38:17we're always saying like be in the present,
- 38:18it's really important that you're in the present.
- 38:20I think that's really true.
- 38:22But a way of conceptualizing it was my who I am,
- 38:27right?
- 38:27This second is my future self.
- 38:30To my past self.
- 38:32Yes,
- 38:33who I am right now is the past self to my future self.
- 38:38What do I wanna do with that?
- 38:42Like it's a moment of power,
- 38:43it was a different way somehow for me to kind of conceptualize the power of now to quote ear.
- 38:49But you know,
- 38:50thinking about the choices that I'm making today certainly impact my future.
- 38:56So,
- 38:57but this the choices that I make today are also going to be a memory of a past self for my future self.
- 39:05And there's a lot I can do with that,
- 39:07right?
- 39:07I can choose to be,
- 39:10I can choose to lean into and embrace a lot of pain and discomfort in service of healing and becoming a better version of me,
- 39:17not specifically for other people,
- 39:20but for me and other people and what I can contribute to the world and those contributions,
- 39:26I think also circle back to heal me.
- 39:29Mhm Wow.
- 39:32So it's,
- 39:33it's about conceptualizing the present as what can I do today for future me?
- 39:42That's really powerful when you start connecting,
- 39:46you know,
- 39:46the past,
- 39:47present and future self together.
- 39:49I think it's just really helpful.
- 39:51It makes you really realize that you really do have a lot more power in this present moment.
- 39:57I can choose to do something that's really,
- 39:59really,
- 39:59really uncomfortable,
- 40:00right?
- 40:01This second.
- 40:02But it's temporary and if it's in service of something better,
- 40:06you know,
- 40:06I I'll tell people all the time like it is actually possible to eat lunch and cry at the same time.
- 40:11Who wants to do it?
- 40:13I can do it either.
- 40:15But it's possible to do that and it is in service of something else when you realize you might have to do that for a period of time.
- 40:22Mhm But it actually lends itself to healing you and when you look back on it,
- 40:29like I can look back on it and be like,
- 40:30yeah,
- 40:30that period of time wasn't fun,
- 40:32but it allowed me to get to a place where I have a lot more freedom and being willing.
- 40:39This is the other thing that's really important,
- 40:41being willing to be reflective and really honest with yourself.
- 40:47I never really,
- 40:49I never wanted to be different from other people and some of that was a survival mechanism,
- 40:56right?
- 40:56And I wanted to be able to say like,
- 40:58yeah,
- 40:58I think my brain is completely healed and I'm like,
- 41:02as,
- 41:03as recovered as you can ever be.
- 41:04And then I got to this place where I was like,
- 41:06you know what my brain is different.
- 41:08My brain loves numbers and symmetry and patterns and I can pretend that's not the case and probably fall down the rabbit hole 800 times or I can say,
- 41:18you know what Monica,
- 41:19your brain is different.
- 41:20How would you figure out a way to accommodate it and live a healthy life with it?
- 41:26So for me,
- 41:26what that looks like is um like shifting,
- 41:29for example,
- 41:30shifting my relationship with movement.
- 41:32That was something that was a big part of my eating disorder.
- 41:37So if my brain likes symmetry and patterns and my body for um reasons of common,
- 41:44like chronic pain really needs physical activity,
- 41:48so I can keep my pain levels down.
- 41:50How do I navigate that I navigate that,
- 41:52but I don't have a routine.
- 41:54I do,
- 41:54I will never do the same thing more than two or three days in a row tops.
- 41:59Why?
- 41:59Because on day number four or five,
- 42:01I'm gonna wake up feeling like I have to do that thing.
- 42:04So I know that about myself.
- 42:05So I don't do it.
- 42:07Strength training is really helpful for my neck and my back.
- 42:11I'm not gonna ever be the person that you see on any type of machine that has numbers involved.
- 42:15If I am,
- 42:16my sweatshirt is over,
- 42:17it,
- 42:18is that necessary?
- 42:19Probably not at this stage in my life.
- 42:21But you know,
- 42:22I'm used to accommodating myself that way to stay healthy.
- 42:27And I think,
- 42:28you know,
- 42:29there would be if you had asked me that 10 years ago,
- 42:32I wouldn't have shared that information.
- 42:34But I also think that I'm doing people a disservice by not sometimes sharing that information because does that mean I'm not recovered?
- 42:42Because I vary my routine and I'm my,
- 42:46you know,
- 42:46spontaneity is my routine to make sure that my brain stays healthy.
- 42:50There are some people that say,
- 42:52yeah,
- 42:52that means I'm not recovered.
- 42:53Ok.
- 42:53That's their opinion.
- 42:55I live a very healthy,
- 42:56mostly balanced life in other areas.
- 42:59But there's a,
- 43:00you know,
- 43:01some rumor going around that I work a lot.
- 43:03But other than that,
- 43:06I just beautiful,
- 43:07the self,
- 43:08self compassion and self acceptance,
- 43:11that radical acceptance like this is how my brain works.
- 43:14This is who I am and we're experts on ourselves and being able to take care of ourselves.
- 43:19That way is important.
- 43:21Maybe someday as we're doing more brain research and we're looking at the structure and maybe someday they're gonna figure out how to change that type of pathway in the brain.
- 43:29What I know right now is we don't know the answer to that and I've got that brain.
- 43:33So,
- 43:34and I prefer to live life the way that I live it now versus how I was gonna get.
- 43:39Right.
- 43:40Yeah.
- 43:40Right.
- 43:40So there's a lot of freedom right now that I'm grateful for every single day,
- 43:46Monica.
- 43:47Thank you so much.
- 43:48We have,
- 43:49I have one more question for you.
- 43:51How can our listeners connect with you?
- 43:54Connect with meta?
- 43:55How can we do that?
- 43:57Oh,
- 43:57well,
- 43:58join us on our recovery community.
- 44:00We'd love to have you there,
- 44:01which is recover with meta dot org.
- 44:03And that has all the links to everything else that people would need,
- 44:06including our Instagram account.
- 44:08And um if people are interested in our group services,
- 44:11meta inc dot org is our main website.
- 44:14OK.
- 44:15Me and our email addresses and links are all there.
- 44:18Awesome.
- 44:19Thank you so much.
- 44:21Thank you so much for having me.
- 44:23Thank you so much Monica and thank you to our listeners for joining.
- 44:27I hope you enjoyed this conversation today.
- 44:29If you loved this episode,
- 44:31you can support us by subscribing rating,
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- 44:59I hope you join us next time on All Bodies All Foods.
- 45:06Thank you for listening with us today on All Bodies All Foods presented by the Renfrew Center for Eating Disorders.
- 45:13We're looking forward to you joining us next time as we continue these conversations.