Latest / Aspergers & Autism Podcast [The Aspie World] AuDHD / Autism Parenting SUPPORT Is Outdated!

Transcript

Autism Parenting SUPPORT Is Outdated! · Aspergers & Autism Podcast [The Aspie World] AuDHD

• 0:00
  To my computer. Hey guys, welcome back to
• 0:03
  another interview here on the channel.
• 0:05
  What is going on? It's the New Year, I'm pumped to
• 0:07
  be back. And today I have a very special
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  guest. Actually she's one of my friends
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  also and colleagues today I'm talking to Carla from Ames
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  Global which is a I'd say they are an international kind of
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  support group for supporting autistic children by helping and
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  supporting the parents which really cool going to go into all
• 0:24
  that right now. Let's go Carla what's going on?
• 0:28
  Alright then, thank you so much and happy New Year's to you and
• 0:32
  your Lee. Yeah, Happy New Year to you too.
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  It's been crazy as everyone can tell.
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  I've moved into a new house and this is my new office but it's
• 0:38
  an absolute bomb site at the moment.
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  So it's so I apologize to everybody about the background
• 0:43
  but we're here is a new year kind of rhyme to school.
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  I'm wishing everybody has a good 2020 and you Carla helper your
• 0:49
  new year was great. Thank you.
• 0:52
  Yeah, no great. We're just pumped to to help
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  more parents. Yes.
• 0:56
  So as a little bit of background guys, I mean kind of like
• 1:00
  working with color and And the team for about, I don't know,
• 1:04
  I'd say about eight to nine months.
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  Now, I've been maybe a year maybe, I don't know who knows.
• 1:08
  And these guys are awesome. They actually have a great
• 1:10
  backpack out which I do have and it's in this box.
• 1:12
  Next to me which I'm going to do a video on my Instagram.
• 1:15
  So if you haven't already checked out my Instagram, go
• 1:16
  follow me on Instagram. I will try and do a video on
• 1:19
  here where I show the backpack is all, but I don't know when it
• 1:21
  will be so I can't give you a definite but if you don't follow
• 1:23
  me on Instagram, they have a backpack and is like a sensory
• 1:26
  backpack made for kids, and it's absolutely amazing.
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  I actually, I really do love it. My son loves it too.
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  So that's how we got involved. I think as you would like,
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  Creating products for autistic kids which is obviously a huge
• 1:35
  huge thing that people do need. But since then you guys have
• 1:38
  moved into like more education learning and training the actual
• 1:42
  parents and trying to like how can you, how can you help the
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  most children in the most effective way I think would be a
• 1:49
  good way to explain it. So like you know what concerns
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  do you think that autistic children how to write what
• 1:54
  concerns do you think that the parents of autistic children
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  have color like, how would you, how would you explain this?
• 1:58
  Yeah, that's a good question. I think we've been in the field
• 2:01
  of Autism and Related conditions for the last 17 years.
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  And I think the net, and I mainly the concerns around the
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  child's communication, how they communicate, their sensory needs
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  a lot of anxiety issues and you know, functional communication
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  is a big one and then also social social interaction like,
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  how do we get our kids out there, to make friends and to
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  learn from their peers. So those concerns I feel like
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  are the most important ones, you know, parents, Sometimes worry
• 2:33
  about the future. I think that's always in the
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  back of their mind. But yeah, I think the most
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  important thing is to help their child where there are right now.
• 2:41
  Yeah, you would you say that like that the the the kind of
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  like making friends because I got a lot of questions about
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  this, right? Do you say that this is one of
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  the main concerns like making friends is a kind of like a
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  third of the top and is this something that's quite common
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  between all the parents that you speak to?
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  I think yes I think making friends in their own way, right?
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  I think Parents will for the most part parents really want
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  what's best for their kids so they don't mind which friends
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  they make, they just want them to be happy and we've busted
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  that myth long time ago, third autistic, people don't want
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  friends, they do things. Yeah, we just need to find a way
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  for them to be able to make the friends that they want to have
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  in their lives and to have the interest similar interest
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  involved. Yeah, I know, definitely.
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  And and I agree. It's not, it's not what the
• 3:30
  can't make friends, although they don't Wanna make friends.
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  It's just that, it's the process.
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  And how you find those specific friend rate?
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  Sorry, so kind of what type of support is available and when,
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  when is this, have a spot available?
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  So, usually, when a child is diagnosed, they, they diagnosed
• 3:51
  by a pediatrician and the pediatrician will recommend
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  possibly number of hours of behavioral therapy, or they will
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  say, okay, let's start with speech therapy.
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  Or occupational therapy and then see how that goes.
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  It's quite overwhelming to receive a diagnosis as a parent
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  you know to your child and and you go through a lot of
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  different emotions and then on top of that.
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  Sorry. Yes, no I just you know, the say
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  saying this reminded me something I said in my last last
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  time I was a lot of info coronavirus, I was doing all the
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  talks and Keynotes and one of the things my Keynotes is are
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  saying that when parents get this diagnosis for their kid.
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  It's in a very Drastic can have negative environment because the
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  hospital or a clinic and like nobody goes to a clinic for
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  funding and I mean, it's like, hey, I'm I've been diagnosed
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  with something that's great. Never happens.
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  So when because autism neurological kind of can develop
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  mental condition, it's different to kind of like saying, oh, you
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  have a disease or something. So, when parents have this
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  environment, that is normally - and you get the diagnosis, like
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  you said, it's overwhelming, it's kind of like, all right,
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  there's something wrong. That's, that's the, that's the
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  key is like they think it's something wrong when actually,
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  it's something that can be manageable, right?
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  Which is what you're trying to portray.
• 5:00
  Yes, exactly. And that.
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  That I don't think that is told to parents in the beginning.
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  I think that we still need to do a lot of work there, how we
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  translate that message, how we provide the message of your
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  child's autistic, but that doesn't mean that he or she
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  won't be able to learn. Make friends you know, develop
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  in typical ways or in there. We'll just pick ways but you
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  know, not different to their peers, not that different to
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  their peers, they just need the right type of support.
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  And I feel like if parents goes Right into all of these
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  therapies, it's not just overwhelming for the child but
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  also for the parents and and that sometimes leads into issues
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  with relationships, you know, with the with the parents is
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  relationship and also with friends and family members.
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  So I feel like there needs to be a bit of a pause.
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  And what we found is that if parents educate themselves on
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  some of the basics of what they can do themselves.
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  Yeah I don't need to Spencer. You know, the other thing is
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  the, the financial aspect of they don't need to spend any
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  money on all these different therapies.
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  Everyone's getting overwhelmed. We've seen this.
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  It's a Snowball Effect. Yeah, I think that's why we're
• 6:15
  focusing so much on parent, Education and Training.
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  Yeah, unless you've got, you know, a lot of it, I'm not
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  saying that there's like scammers out there, bro.
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  I'm trying to say is that sometimes you get clinics, that
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  have just created so many different programs.
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  Because obviously they're trying to stay afloat and of a bottom,
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  they're recommending all things. Do you think or do I need all
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  this stuff and so, it's a compass.
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  Into this - kind of thing. It's overwhelmingly.
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  Like I'm Gina piled with stuff and sometimes, it's like, if you
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  just wasted many, like you said, you know, and then that strain
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  on your relationship, you know, the mom and dad might be like,
• 6:41
  oh, you know, got a financial strain, as well as the same
• 6:43
  emotional. Strain is really interesting,
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  but above that I like it. Are there any issues that you
• 6:47
  see in the current support services are available.
• 6:50
  Yeah, I mean you just highlighted one of them right?
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  And that's probably the biggest one is that if a parent receives
• 6:56
  a diagnosis for their child and they are recommended a certain
• 6:59
  number of hours of therapy, they go.
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  Go to this therapeutic setting and it's the amounts that they
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  charging are massive. And now the parent is thinking,
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  okay, well I need to do this because the professional is
• 7:14
  recommending this to me but I don't like from the years of
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  experience that I have speaking to Professor's and autistic
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  adults and Advocates like yourself.
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  You know that I've learned we've learned that need to myself at
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  Ames Global. I've learned that they don't
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  actually need all this. Don't be like you can decrease
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  the amount of therapy easily and financially sustainable.
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  So to keep things a little bit more affordable because this is
• 7:44
  not just the one year thing, you know, your childhood cystic for
• 7:48
  here. Shh, it's kind of like, you're
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  optimizing the, the support route, right?
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  Yourself rather than kind of like, you know, just like
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  shooting in the dark, right? You just kind of give them a bit
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  more direct and it's really interesting.
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  Because like, you know, that there are, there are so many
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  different people trying to do different things and it's so
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  hard for the parents to kind of like navigate to this and think,
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  you know, what's what? And it's something interesting
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  actually. So Carla mentioned that, you
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  know, she didn't, you know, she's obviously done years of
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  research, which is also interviewed a lot of different
• 8:17
  people. So if you want to check out our
• 8:18
  YouTube channel, which mostly interviews are hosted on
• 8:20
  currently, I will leave a link for everything in the
• 8:24
  description of this video and in the show, not to this podcast.
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  So Kyle, he's a question like, how do you help overcome the
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  issues and all the The kind of challenging issues that parents
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  have currently like how do you guys help that?
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  So we've got various options. I mean we do we do have
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  therapists available to to work with parents in their homes.
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  That that is one of the options that we have also got online
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  therapy, therapists available and therapy and then
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  supervision. But the one thing that we really
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  focus on is like I said the parent trainings.
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  And at the moment we're teaching parents how to create an Autism
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  friendly Went at home. How to interact with their child
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  successfully and how to increase functional communication and
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  that leads then into a decrease in anxiety because if your child
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  is able to communicate in his or her need way, you know, best way
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  possible. Then for them, their anxiety
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  will decrease or to be like, yeah.
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  Yeah, that's really interesting because I think anxiety is one
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  of the biggest kind of like because you know that there's
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  all this other stuff obviously. Some causes a lot of issues, but
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  anxiety seems to be kind of like at the Pinnacle of like, that's
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  as soon as you have like a bulk load of like anxiousness and
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  anxiety, everything else kind of crumbles away.
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  So like if you can, if you can hit that and you can kind of
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  attack that and say, okay, how do we stop this?
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  This worry. I'll because I'm going to see is
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  a worry in, which is a byproduct from something that hasn't
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  happened. So there's a lot of different
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  ways you can attach and I think you're right, you know, if you
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  can hit anxiety and the other things will become a little bit
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  more easy because of a manageable, other more
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  optimized, right? Sorry, I just wanted to say with
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  that anxiety. It is, it is so important to
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  note that if your child is going to therapies, that are pushing a
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  child to the point where, you know, we were told and one of
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  the, one of the training programs that I went through and
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  I went out of was to that we need to break our kids into
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  learning and that is that is horrible for any child.
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  So we need to see it from the other point from the other side.
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  From that from an autistic person side and from an autistic
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  child side. And that's what we tried with
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  Amos Global to do. Because, you know, we're a
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  holistic form of therapy and we need to focus on the awareness,
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  the interest, the movement, and the same story.
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  And that's why Ames is called Ames know.
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  And, you know, it's interesting because like, it's not just,
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  it's not just a type of therapy or the type of kind of, like,
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  helping support you offer. It's the people who offer that
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  support one of the things I met, you know, You could be like, you
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  know, something he doesn't really care about kids but it's
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  in that role and, you know, because it's a good job or
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  whatever and they went to college for it and then now
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  they're teaching kids and they're not even that
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  approachable and very charismatic but I know you guys
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  very well. I know they're not like I know
• 11:15
  Carla like these guys really nice.
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  You know? So if you, if anybody was going
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  to be like getting, you know, some therapy or training, or
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  whatever support for these people, you know, that it's good
• 11:24
  because these people care, you know, they, you know, then
• 11:26
  that's a parent like you guys have, you know, I mean, you're
• 11:29
  not, I can explain you're not - or you're not in it just for the
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  job. It.
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  Because you want to help people write in this is super
• 11:34
  important. Now, aims Global you guys are
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  hosting a live free webinar, helping train parents to tell us
• 11:41
  about it. Tell us about it and let us know
• 11:43
  what it's all about. Yes, of course, we're very
• 11:45
  excited about this. The first one is actually coming
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  up this Saturday, the 8th of January and the times vary, I
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  mean, depending on where you are.
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  So it's 9 a.m. UK time and we are going to
• 11:59
  focus on providing parents with Practical support strategies.
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  So, these are going to include templates that they can print
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  immediately utilize with their child to increase, functional
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  communication collaboration. So working with their child,
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  increasing social skills, increasing the coping skills so
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  that the anxiety again can decrease.
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  So it's really on. We try to hit all the most
• 12:24
  important Concepts to help the parent and the child.
• 12:29
  And then from there on that provides that And such a nice
• 12:33
  solid base that they can, they can then increase more of the
• 12:37
  other stuff that their child might need to know whether it is
• 12:39
  academics or self-help skills or Independence skills.
• 12:43
  Just so I'm actually going to, I want to, I want to join this.
• 12:47
  So how do people how do people sign up for this free webinar?
• 12:51
  You know, and what can I expect, you know, from the signup
• 12:54
  process goes. So we've got a, we've got a
• 12:57
  landing page where they can just go to and I can I can share that
• 13:01
  link with you. You, okay?
• 13:02
  And they just the description. Thank you.
• 13:05
  Yeah. They just need to sign up with
• 13:08
  your email address and then we will send the date that they
• 13:11
  can, that they can register for. I think the next one is the
• 13:15
  weekend after a while. I know this the 15th of January,
• 13:18
  okay? So I think I first one is full
• 13:21
  like, we just received a notification that it's full, but
• 13:25
  the 15th of January is for the next one and there's still some
• 13:29
  spaces available, but it is free.
• 13:31
  And We will be sharing all our notes.
• 13:33
  It's going to be money but done myself.
• 13:36
  So the two founders of a global and we will share everything
• 13:41
  that we've learned from autistic adults and the professors and
• 13:45
  everyone will the speech therapist, no T's that we work
• 13:47
  with. So we're very excited about
• 13:49
  this, I'm excited. I'm pumped about it, you guys
• 13:51
  are amazing, like and this isn't really interesting, like I know
• 13:53
  you guys very well and you guys are very well educated you know,
• 13:57
  and I think there can be a lot of value in that 30 so you know
• 14:00
  and it's completely free. So if you want to sign up, Up.
• 14:02
  Make sure you do now. Like the net said, sorry like
• 14:04
  Carla said, the first one kind of I guess is for leopard.
• 14:07
  If you sign up if you use that sign up page, those ping you a
• 14:09
  message and this is something important.
• 14:11
  So can people join on their cell phone or the tablet and
• 14:14
  computer? Or is it just computed only how
• 14:15
  do they can I use multi-platforms?
• 14:17
  Yeah they can use any any platform to sign up and they can
• 14:21
  also use any platform to to join the webinar because it's going
• 14:25
  to be unzoom. So we'll send a link through as
• 14:28
  soon as they sign up will send through a link that they need to
• 14:31
  follow. To make sure that they attend
• 14:34
  the workshop. And for anybody, any
• 14:36
  technophobes are there who are listening and watching, you can
• 14:40
  answer any Zoom call using a web browser on your phone or your
• 14:43
  tablet. You don't actually have to have
• 14:44
  the zoom after it does help. So if you want to download Zoom
• 14:47
  make an account that does help but you know, don't be afraid
• 14:50
  of. No, I don't have zoom, it
• 14:51
  doesn't matter. You can click a link and it just
• 14:53
  loads in your browser. And everything's cool.
• 14:55
  So, Carla, thank you so much for joining me today.
• 14:57
  I am super pumped to to join your webinar.
• 15:00
  Actually, I'm going to be there, can be front.
• 15:02
  The front row, but I'm going to go on the second one because
• 15:04
  I've missed a deadline for the first one.
• 15:07
  So that's how I roll man. Moving house.
• 15:09
  Know what just so guys if you want it, be in to check out what
• 15:12
  Ames club or have to check out the free webinar to learn some
• 15:15
  awesome skills. If you're a parent, over the
• 15:16
  sister kid, or anybody who's interested in this, make sure to
• 15:19
  check out the links in the description down below.
• 15:21
  I will also leave a link for this social media so you can
• 15:23
  check out the videos they pump out on Instagram, YouTube and
• 15:25
  Facebook, very cool stuff. These guys are awesome and yours
• 15:29
  truly recommend. So guys, I'll You in the next
• 15:32
  video and I'll see you on the course.
• 15:34
  Bruce, thank you, Dan. Thanks for listening to this
• 15:39
  podcast episode. If you are new, don't forget to
• 15:42
  subscribe to listen to more of these because I know that you're
• 15:44
  listening and you're not subscribed.
• 15:45
  So do it right now. All right, guys, talk to you
• 15:47
  soon.