skinny.

Latest / Once Upon A Gene

Creating Space for Mental Health for Men Living with Rare Diseases with David Ross

David Ross is a patient advocate, passionate about mental health and creating space for males experiencing mental health struggles. His activism began in 2017 when he was diagnosed with a rare disease called Cowden syndrome. He became dedicated to raising awareness and helping to support others impacted by Cowden syndrome.

EPISODE HIGHLIGHTS

When were you introduced to the rare disease world?

I was diagnosed with my rare disease, Cowden syndrome, about three and a half years ago and it's been a roller coaster journey learning about my condition, managing my health and the impact on my family…

The skinny

The skinny isn't ready yet — notes appear once the transcript is processed.