Truncus Arteriosus - A Rare Form of Congenital Heart Disease with Sonja Voice
ONCE UPON A GENE - EPISODE 051
Truncus Arteriosus - A Rare Form of Congenital Heart Disease with Sonja Voice
Charlotte was born with a rare form of congenital heart disease called Truncus Arteriosus. After Charlotte was born, her mom, Sonja Voice, found support groups and found the hope she needed to advocate for Charlotte.
EPISODE HIGHLIGHTS
Can you tell us about Charlotte?
My daughter was born at the end of March with a rare diagnosis, Truncus Arteriosus. I traveled from my home in Seattle to Boston to deliver Charlotte so she could receive an immediate heart surgery at two days old.
When…
The skinny
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