Latest / OneLegUpAlex Media / Take Action Today For the One Million Ostomates As Supply Management In Jeopardy 7-25-25
Transcript
- 0:00Speaker 1: All right, we'll get to more content here on the
- 0:02Speaker 1: One Leg Up network, but I gotta say at One
- 0:04Speaker 1: Leg Up Alex, something very personal has hit home, and
- 0:09Speaker 1: it's amazing. This comes as Ada thirty five. It's hitting
- 0:16Speaker 1: tomorrow because it just shows American's Disabilities Act is only
- 0:21Speaker 1: going so far. When you read that those with ostomy
- 0:25Speaker 1: supplies are in jeopardy of effectively managing their ostomy and
- 0:31Speaker 1: supply management. See when the Centers for Medicare and Medicaid
- 0:37Speaker 1: Services proposes this dangerous change, as written by Jene Gliba
- 0:42Speaker 1: of the UOAA, they want to redefine osteme and urological
- 0:47Speaker 1: supplies as medical equipment items to include them in competitive bidding,
- 0:53Speaker 1: which is a system where supplier's bid to offer the
- 0:56Speaker 1: lowest prices for Medicare contracts, meaning limited choices for you
- 1:02Speaker 1: or your patients. And as I said in Washington, DC
- 1:05Speaker 1: to those in office and those staffers in the offices
- 1:10Speaker 1: of Senator Schumer and Senator Booker and Congressman Van Drew,
- 1:15Speaker 1: if you force people to change where they get their supplies,
- 1:19Speaker 1: it's gonna throw off their regimen. They're gonna throw off
- 1:22Speaker 1: their routine. It's also going to help them to help
- 1:26Speaker 1: their it's also not gonna help their chances to always adapt.
- 1:30Speaker 1: It'll hurt their chances actually, And when I got this alert,
- 1:38Speaker 1: it affected me too, because of course we love edge
- 1:40Speaker 1: Park and we want to keep that partnership with edge
- 1:43Speaker 1: Park supplies and we don't want to lose that ability
- 1:48Speaker 1: to just get your ass to me and my ass
- 1:50Speaker 1: to me freely. So if you want to take action,
- 1:54Speaker 1: just share my access matters as a hashtag on your
- 1:58Speaker 1: social media and be sure to follow the UOAA underscore
- 2:04Speaker 1: on Instagram for further updates. Again, this breaking news story
- 2:09Speaker 1: is as follows UOAA saying that right now, ostomy supplies
- 2:21Speaker 1: are in danger of being exclusive. If you will, it
- 2:24Speaker 1: means you may not get the supplies you need or
- 2:28Speaker 1: quite frankly or comfortable with. And we want comfort, we
- 2:31Speaker 1: want care. We don't want to be having to scramble
- 2:34Speaker 1: should CMS Gov go through with this, So take action
- 2:39Speaker 1: at astome dot org, backslash, take dash action, or just
- 2:43Speaker 1: click the link in the bio, and I'm gonna share
- 2:45Speaker 1: this in my story as well. This is why advocacy
- 2:51Speaker 1: never ends. Always, adapting never ends, because there's always roadblocks,
- 2:55Speaker 1: there's always challenges, and I hope those listening and have
- 3:02Speaker 1: a loved one with an ostomy can take this into
- 3:06Speaker 1: consideration and do something to support those friends and family
- 3:12Speaker 1: and even strangers in a time where it looks like
- 3:17Speaker 1: it looks like there's real jeopardy to effectively managing our ostomies.
- 3:25Speaker 1: That's it for now, but to have one leg up,
- 3:27Speaker 1: we have to take action. We have to say my
- 3:30Speaker 1: access matters today.