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Skyclarys Approved for Friedreich’s Ataxia | Cork News
A breakthrough for rare disease families: Skyclarys, the first approved treatment for Friedreich’s ataxia, is now accessible in Ireland after a powerful campaign led by Craig Coady, father of patient Paudie. After losing his other son to the condition, Craig fought tirelessly to secure this life-changing drug — and his efforts paid off. Paudie, thrilled with the news, is set to start treatment soon and return to school with renewed hope. While the approval brings immense relief, Craig stresses that no family should have to fight so hard for basic access to care — and he’s calling for systemic…
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