Latest / Podcasts By Donna Jodhan / Remarkable World Commentary Episode #107: Interview with Ann Chiappetta, Author, Poet and President of Friends in Art
Transcript
- 0:12Podcast Commentator: Greetings, Donna J. Jordan, LLBAP and MBA invites you to listen to her
- 0:20biweekly podcast, Remarkable World Commentary.
- 0:24Here, Donna shares some of her innermost thoughts,
- 0:27insights, perspectives, and more with her listeners.
- 0:31Donna focuses on topics that directly affect the future of kids,
- 0:35especially kids with disabilities.
- 0:38Donna is a blind advocate, author, sight loss coach,
- 0:42dinner mystery producer, writer, entrepreneur,
- 0:45law graduate, and podcast commentator.
- 0:49She has decades of lived experiences, knowledge,
- 0:53skills, and expertise in access, technology and information.
- 0:58As someone who has been internationally recognized for her work and roles,
- 1:02she just wants to make things better than possible.
- 1:07Donna J. Jodhan, LLB, ACSP, MBA: Hello everybody, and welcome to another episode of The Remarkable World Commentary.
- 1:14I'm Donna J. Jordan, a lifelong disability advocate and one who sees the world mainly
- 1:21through sound, through touch, and through stubborn optimism.
- 1:27I am a law graduate and accessibility consultant.
- 1:32I am an author of several books and a lifelong barrier buster who also happens to
- 1:39be blind. You may know me from a few headline moments,
- 1:44as in November of 2010, I won the landmark charter case that forced
- 1:50the Canadian government to make its websites accessible to every Canadian,
- 1:57not just his assaulted ones.
- 1:59And in July of 2019, I co-led the Accessible Canada Act with more than two dozen
- 2:08disability groups to turn equal access into federal law.
- 2:14And most recently, on June the 3rd, 2022, I was greatly humbled by Her Late
- 2:20Majesty's Platinum Jubilee Award for tireless commitment to removing barriers.
- 2:28When I'm not in a courtroom or in a committee room or in a pottery studio,
- 2:36you'll find me coaching kids with vision loss,
- 2:39producing audio mysteries, or helping tech companies to make their
- 2:45gadgets talk back in real language.
- 2:51Everything I do circles one goal to turn accessibility from an afterthought into
- 2:58everyday practice. I invite you now to think of this show as your shared workbench,
- 3:07where policy meets live experience and live experience sparks fresh ideas.
- 3:14Now, before we jump into today's conversation,
- 3:19let me shine a spotlight on today's guest, a change maker whose work is every bit as
- 3:28remarkable as the world that we are trying to change.
- 3:34And welcome to my Remarkable World Commentary podcast.
- 3:40I am pleased and I'm privileged to have you with us.
- 3:44I've heard a lot about you and now we get to meet.
- 3:48So welcome.
- 3:51Ann Chiappetta: Thank you very much for having me on today.
- 3:53I look forward to our conversation.
- 3:56Donna J. Jodhan, LLB, ACSP, MBA: Right? All right. So and let's start with this question.
- 4:02I want to begin in 1993.
- 4:06You were just 28 years old and you were expecting your first child,
- 4:14and you were told that you had retinitis pigmentosa and you would be legally blind.
- 4:22I have been blind since birth, so I have never had to grieve a way of seeing
- 4:30the world. But you did.
- 4:33And you did it while becoming a mother.
- 4:37Please take us back to that year.
- 4:40What did that diagnosis take from you and what did it eventually hand you that you
- 4:48never, ever expected?
- 4:53Ann Chiappetta: Well, When I was first diagnosed, it.
- 4:57It changed my world forever and I didn't know what to expect.
- 5:02I was scared and, you know, I I didn't know how to explain what was going
- 5:09on to myself, let alone my family.
- 5:12And I ended up losing my job because I couldn't see well enough.
- 5:20Eventually I had to just leave that job.
- 5:24My husband was deployed on and off, so I was a lot of times just by myself,
- 5:29it was me, my kid. And if it wasn't for my mother in law and father in law,
- 5:35just helping out when I needed to go somewhere or something, I probably would have
- 5:38been way more isolated, but I was depressed and didn't know it.
- 5:46The, but I did have these people in my life who came and helped me and I call them my
- 5:53angels because the first one was my my ophthalmologist.
- 5:58He was the one who got me in touch with blind services where I lived.
- 6:03And then my rehab counselor, she was another angel in my life.
- 6:08And the things I didn't expect was I didn't expect to go back to school post blindness.
- 6:14I didn't expect to earn my master's degree.
- 6:17Post blindness. I didn't expect to dive into the parts of myself that I didn't know.
- 6:25I had to be able to just not take no for an answer.
- 6:31Like I, I. So if I was going to go blind, I was going to learn how to do it.
- 6:35And at some point, you know, being scared and afraid went to the bottom of
- 6:42the list and the top of the list was, I have to do this for me and my children.
- 6:46And that's what I learned.
- 6:48I learned, I had resiliency, I learned I could do things I didn't think I
- 6:52could. So that's what I learned.
- 6:56In the beginning at least.
- 6:59Donna J. Jodhan, LLB, ACSP, MBA: A truly remarkable story.
- 7:01And I do thank you for sharing this.
- 7:03And I could hear it in your voice as well.
- 7:05I mean, yes, I could feel your pain.
- 7:08I, like I said, I, I never knew I knew another world in a different way,
- 7:12but not, not like you did.
- 7:14And my goodness. Something I find remarkable about your story is that it has three
- 7:23distinct creative lives in it.
- 7:28Before you lost your sight.
- 7:30You were designing an acrylic display.
- 7:34You were designing acrylic displays and furniture.
- 7:38Then when you could no longer see your own drawing,
- 7:43you turned to writing.
- 7:46And a decade later you came back to visual art.
- 7:51Walk our listeners through those terms.
- 7:55What made you put the pencil down and pick up the words right?
- 8:02Or pick up the words up?
- 8:04And how did you make peace with that trade?
- 8:11Ann Chiappetta: Well, I was always a creative person as a kid.
- 8:13I loved art and music and photography and writing and singing and dancing.
- 8:18So I was very creative kid.
- 8:20So I did write all, you know, I wrote, you know,
- 8:24I wrote poetry in school and, you know, did some acting and things like
- 8:29that. But when, when I, when I got into the acrylic furniture design
- 8:36I didn't realize I could, I could make a living out of it and I did.
- 8:40So that was, that was a gift.
- 8:41Yeah. And then when I realized I wasn't going to be able to do that anymore,
- 8:48in a way, you know that that I thought I could do it.
- 8:52I started writing more and and the writing became a catharsis,
- 8:58a catharsis for me. All of my, all of my thoughts about my self-worth and
- 9:05going blind and the not knowing all of that came out in my poetry.
- 9:09And if I didn't have that way to to create I think I would have probably suffered
- 9:19more, you know, in terms of my mental health,
- 9:21but I was able to, to put all of that in my poetry and my writing.
- 9:26And you know, then people liked it.
- 9:30Like I took another chance and someone said, well,
- 9:34why don't you try to, you know, put it in, you know,
- 9:36get it in a journal or something.
- 9:38So I did that and, and it worked.
- 9:40I was like, well, you, you know, I was shocked that people wanted to
- 9:45put my writing in a journal.
- 9:47I was shocked. But then yeah, but that was that was like the beginning of
- 9:53that life for me. Like that, that creative spark that kept me
- 9:59seeking more.
- 10:03Donna J. Jodhan, LLB, ACSP, MBA: This just simply blows me away.
- 10:05Like, you know, like you were 28 years old.
- 10:08You you received this, this, this devastating news.
- 10:12And you don't, you don't give up.
- 10:14You keep on going. And you're here today to tell this story.
- 10:19And, you know, I think many, many listeners would love to take your story
- 10:24of inspiration and make it a story of inspiration.
- 10:29I mean, you have written something that I wish that every person in this field would
- 10:37hear, and it is very simple.
- 10:40You do not want to be called the blind lady.
- 10:45I have said I have a name and my name is Ann.
- 10:52You also spent about ten years delivering a disability awareness program called
- 11:01Building Bridges to Children in kindergarten through second grade,
- 11:08which is exactly where I believe this work has to start.
- 11:15What do did most children understand immediately that the other other that the
- 11:22adults around them have to unlearn?
- 11:28Ann Chiappetta: So when they when I first got approached to do this program,
- 11:33I was like, I don't know.
- 11:35I, I, I don't know, but then I was invited to just watch some of these other people who
- 11:43people in wheelchairs who use wheelchairs, people who were deaf,
- 11:47people who had CP, but they were looking for someone who was blind to to join their cadre.
- 11:55And so I went. And then I realized, I want to do this,
- 11:59I want, I want to do this.
- 12:01So you know, I think the adults have to unlearn things.
- 12:07And the kids, the kids are fresh, they're new,
- 12:10they're blank slates. They, they, you know, they see me walk in with my
- 12:14guide dog. They're like, oh, you know, you know,
- 12:18what is, and then, you know, they're chit chatting around and,
- 12:21you know, they tell me. And so we finally get them settled down and their questions are
- 12:25great. And they're so attentive, so attentive,
- 12:28these little kids that people say children have only ten minutes,
- 12:31you know, to get their attention and keep them there. They're there for 45 minutes or
- 12:35an hour, just watching and listening and asking questions.
- 12:40And so the payoff for me is when I go into a supermarket or into a store or
- 12:50a movie theater. I have, you know, I often hear a child say mommy,
- 12:54mommy or dad or whatever.
- 12:56That's that's a guide dog.
- 12:58You're not supposed to touch it.
- 13:00You're not supposed to do anything to it.
- 13:02Just leave it alone. And when I hear that, that is the payoff of all that educating
- 13:10children to educate their parents.
- 13:14Donna J. Jodhan, LLB, ACSP, MBA: So isn't it awesome that it is the kids who educate the parents?
- 13:19So there's such innocent little guys?
- 13:22Yes, there are sponges that know everything.
- 13:26It's marvelous to hear that, you know.
- 13:30Absolutely marvelous.
- 13:33Ann Chiappetta: Yeah, it's really cool.
- 13:35Donna J. Jodhan, LLB, ACSP, MBA: Yeah. For some nine years, you were a readjustment counselor
- 13:45therapist at the White Plains Center sitting with combat veterans and their
- 13:55families. And you have said that you were the only blind counselor among 3000
- 14:04people in the readjustment program.
- 14:09Tell our listeners, what did that work was?
- 14:13What was that work? What was that work like?
- 14:16And be honest with us.
- 14:19What did your blindness bring into that counseling room that Assited therapists could
- 14:27not have brought?
- 14:30Ann Chiappetta: Oh, well, let's see. So I think go to your the,
- 14:39what you just said about what did I bring to the counseling?
- 14:44The counseling of veterans and their families that are cited.
- 14:47Counselor couldn't is that I couldn't see people,
- 14:52so they tended to disclose with me more, probably sooner and with less fear or anxiety
- 15:02because I couldn't see them.
- 15:06And, and I often got to places and in people's disclosing that maybe other
- 15:15counselors wouldn't get to as quickly.
- 15:18I can't prove that there's no data for that, but that's just,
- 15:21that's how I felt. You know, with, you know,
- 15:24after doing it for so long.
- 15:28And the other thing about being a counselor with a guide dog is that it seemed to put
- 15:37people at ease as soon as they walked in to my to my room,
- 15:41my dog would go and greet them and then go lay down and ignore them.
- 15:44And they were like, oh, okay.
- 15:48So so for them, it put a lot of people at ease.
- 15:52And then there were other people who would often rely on my guide dog to help ease
- 15:59their, their nervousness or anxiety while we were in session.
- 16:06Which I allowed because it was like a natural thing.
- 16:10I didn't push it. I didn't make it not happen.
- 16:15If it happened, I let it happen.
- 16:17Like if it was, if it was appropriate.
- 16:20So those are the two things I brought into the counseling room that no other sighted
- 16:26counselor could, could bring.
- 16:29And the other part about this is that being being in a,
- 16:36in a big federal system and having a visual disability.
- 16:41There were a lot of challenges a lot all around accessibility or the lack of it all
- 16:49about people's lack of awareness or disinterest in bringing me the tools that I
- 16:57needed. And it was a struggle all the time to be in a constant state state of catching up
- 17:06to everybody else. And, you know, it was, it was hard,
- 17:12it was really hard to be a counselor and have to be,
- 17:17feel like I was behind on everything because everything took me so much longer than
- 17:21everybody else. Every, you know, and I'm talking about the
- 17:23reporting, you know, all of our all of our tools and measurements that we have to put in
- 17:28the computer, all that stuff, you know, it, it was just not the way it
- 17:33should be. And I, and I hope it improves for other councillors with disabilities because
- 17:41we can bring things into that counselling room that people without
- 17:44disabilities just can't do.
- 17:46Donna J. Jodhan, LLB, ACSP, MBA: So were you one of the first ones?
- 17:50Vision impaired persons?
- 17:53Ann Chiappetta: No, there were there were other visually impaired people in this.
- 17:57I knew a a psychologist who worked for the VA for years.
- 18:01She was actually one of my, my like mentors.
- 18:04I actually contacted her.
- 18:05I was like, can I do this job?
- 18:07And she's like, of course you can. So she was,
- 18:10you know, so so that was and there were sporadically all over.
- 18:15Yeah. I mean, I'm sure there's counselors there who,
- 18:19you know, are legally blind.
- 18:20My former director was probably legally blind.
- 18:26But you know, he, he was only partially sighted,
- 18:29but he had special glasses and all that stuff.
- 18:32So, you know, I'm sure there was a you know you know,
- 18:38spattering of people with visual impairments.
- 18:41But definitely it's, it's difficult in any big system to be an employee with a
- 18:48disability. You just have extra challenges and extra things.
- 18:52I mean, I just think about, you know, the transportation back and forth
- 18:57to work, you know I couldn't be sporadic about things.
- 19:01I couldn't be called in at the last minute.
- 19:03I, you know, I had my limitations.
- 19:07So so, you know, it's, it's a give and take.
- 19:12But I learned so much there about myself, about other people,
- 19:18about how my, my guide dog could, could be you know,
- 19:25like an impetus to something better in terms of counseling.
- 19:29Right. You know, another tool.
- 19:31So so many things.
- 19:34Donna J. Jodhan, LLB, ACSP, MBA: What kind of dog did you have?
- 19:37Ann Chiappetta: Well, my first dog was a black lab, and then I in in between my the dog that
- 19:43excuse me that I had when I retired from the VA was a big yellow Labrador named Bailey.
- 19:48And I have wrote a book about my dogs.
- 19:51So I have a memoir out there.
- 19:52So. You know.
- 19:56Donna J. Jodhan, LLB, ACSP, MBA: You are just an inspiration.
- 19:58And I hope people are listening and paying attention like God,
- 20:02you know, like, oh, all right.
- 20:05So before you could practice, you had to fight simply to sit the
- 20:14licensing examination with accommodations.
- 20:19Okay. A fight that took you three years and that had you writing to the president of the
- 20:29American Association for marriage and family therapy,
- 20:36and to the New York State Regulatory Board.
- 20:41As someone who has spent a good part of my own life in exactly that kind of fight,
- 20:50I would like our listeners to hear what it actually cost.
- 20:56What did those three years take out of you and what finally moved them?
- 21:06Ann Chiappetta: Well, well, first of all, it's a long time ago.
- 21:11It was, it was, you know, a long time ago in a galaxy far,
- 21:14far away and struggled to get her MFT.
- 21:17Yes. But so I was new at the VA at the time.
- 21:23I was still, you know, learning about, you know,
- 21:27everything in terms of, you know, my employment status and,
- 21:32you know, all these things learning about, you know, so much.
- 21:35So when I started to apply for my you know, to,
- 21:43to, for my to, to take my test at first they,
- 21:50the only thing they said was, well, we can give it to you in large print.
- 21:53I'm like, well, that's not going to work for me. No.
- 21:56And so that was the first year of fighting them.
- 22:00The second year of fighting them.
- 22:03I I asked, you know, the American, the a MFT to help me out and they didn't help
- 22:11me out very much. They, they honestly, I think they passed the buck
- 22:14on it a bit. And they said they, there was excuses.
- 22:19They didn't have the equipment, they didn't know what jaws was.
- 22:24They they could all they could offer it in Braille.
- 22:27I said, but I am not a Braille reader.
- 22:28That is not in the, in the format that I'm most accustomed with.
- 22:34And that would be a barrier for me.
- 22:36And that took another year.
- 22:38And then in the third year in the third year,
- 22:42the, the former director of the state education,
- 22:48whatever, whoever was in charge of the the testing accommodations or whatever,
- 22:53she retired and somebody took over and he actually called me and he said,
- 23:00I'm seeing all of these, this correspondence you had.
- 23:03And he said, I am so sorry that you went through that.
- 23:06What can we do to make it better for you?
- 23:09And yeah, and so he did.
- 23:11He made it better. And I took the test and I failed,
- 23:16but it was almost five years later.
- 23:18Right? So I was like, oh.
- 23:20And then I took it again and I failed again.
- 23:23And by then I was like, that's it.
- 23:25I'm done. I just I did not have the emotional resilience to go through all of that again
- 23:36and then possibly fail a third time, and then that would be it.
- 23:39I wouldn't be able to reapply for years after that.
- 23:41So. Right, right. I, I, I just, I couldn't do it.
- 23:47And for a long time, it really, it really got me down.
- 23:52And then I realized, you know what I, I'm, I can't be,
- 23:57I can't allow myself to identify myself with failure about something like that when I did
- 24:04so much good, so much, so many other places in my life.
- 24:07So I came to terms with it.
- 24:09But it took a long time.
- 24:10And it was hard. Really hard.
- 24:15Donna J. Jodhan, LLB, ACSP, MBA: I know what it's like because I'm presently going through the cyber security exam with
- 24:21comp, Tia and Pearson and others.
- 24:25And yeah, it's not easy.
- 24:27And if you don't have the emotional strength after doing it twice,
- 24:32who's going to blame you for saying no?
- 24:33No more? I mean, that's where I'm at right now.
- 24:37I totally understand what you're telling me.
- 24:40Ann Chiappetta: Well, it is a tough thing.
- 24:44It's a tough thing. Because you have to you have to be able to get past it.
- 24:49Donna J. Jodhan, LLB, ACSP, MBA: You have to.
- 24:50Ann Chiappetta: Put it in a healthy place.
- 24:51So. Yeah. Yeah.
- 24:53Donna J. Jodhan, LLB, ACSP, MBA: I know you're going to have people every now and then saying,
- 24:55why is she putting herself through this?
- 25:00Ann Chiappetta: That's what I kept asking myself.
- 25:02Why am I doing this?
- 25:04Donna J. Jodhan, LLB, ACSP, MBA: We do it for our kids of the future.
- 25:06In my in my personal opinion, we have to do it for our kids.
- 25:09We have to show them that you must not give up.
- 25:13You can't. But then again, it emotionally.
- 25:19Yeah. Yeah. Now, you trained in marriage and family therapy at I sorry,
- 25:29I own it. And you have said that counselor training taught you how to listen,
- 25:37how to remember, and how to break a conversation down into its parts.
- 25:45Now, you have written novels.
- 25:49How much of the therapist is sitting there when you build a character,
- 25:57and can you always tell where the counselor stops and where the novelist begins?
- 26:07Ann Chiappetta: So this is a great question.
- 26:10So first of all I think having had all that training allows me to delve into personality
- 26:18traits the psychology of characters and things like that,
- 26:24that that are very beneficial to writing fiction.
- 26:31And I'm very, very much aware of that.
- 26:35However, you know, when you're writing fiction,
- 26:38you can't write it dry, you're not doing reporting.
- 26:41You need to allow yourself to fly your creativity,
- 26:45your imagination, your your seeking, your curiosity.
- 26:51So that's, that's also part of writing.
- 26:54If you can get those two parts together and kind of work together,
- 26:58then it's, it's super cool.
- 27:02And especially when I write poetry, when I write poetry,
- 27:07I'm writing it first and foremost, as a person who cannot see,
- 27:13but you don't know that when you read my poetry,
- 27:16you don't know that I can't see because I present other aspects of the,
- 27:22the whole person or the sensory to, to you.
- 27:27Once in a while I might want to disclose that in a poem or something,
- 27:29but usually I don't. And the same thing with my fiction.
- 27:33So, you know, like the, so all of me is there in some way or shape or
- 27:39form. And I don't necessarily even, I'm not even aware anymore.
- 27:44Like where one part of my training, you know,
- 27:49forms over into, into my creativity.
- 27:52It's just, it's just a whole thing that I do together,
- 27:55all in one, all in one big thing.
- 27:59So but I'm glad I had my training.
- 28:02I'm, I'm glad I went to college.
- 28:04I'm glad I pursued what I wanted.
- 28:06I'm glad I did what I did, and I wouldn't do it over.
- 28:11But I mean, I wouldn't, I wouldn't change
- 28:14anything. That's what I mean.
- 28:16Donna J. Jodhan, LLB, ACSP, MBA: Right. But did you purposely not disclose that you were,
- 28:23you know, blind or it just came naturally to you.
- 28:27You know, the flow of everything.
- 28:31Ann Chiappetta: It's interesting. Some of these poetry, I belong to a poetry group and we do a
- 28:36generative workshop. We get 6 or 8 of us together,
- 28:39and we all share poetry and we focus on something.
- 28:43And sometimes I just close to these people we meet over Zoom.
- 28:47Sometimes I say right at first I'm blind, sometimes I don't.
- 28:51And it's interesting how people handle it, you know,
- 28:57like I don't, I don't automatically come and say, oh, yeah, I don't,
- 29:01I, you know, maybe the second or the third time we meet,
- 29:03I might say something in response to another of the poets because they point something out
- 29:09that indirectly or directly affects my poem.
- 29:14And then, and then I tell them I don't, I don't like coming out like all that,
- 29:19like I don't like that. I don't think it's I don't know.
- 29:25Donna J. Jodhan, LLB, ACSP, MBA: But are people surprised when you say that you are blind?
- 29:28Yes they are. Ha. Good.
- 29:31Ann Chiappetta: Yes. Yes they are. They're like, oh, how do you do this?
- 29:35And how do you do that?
- 29:36What do you do? Because like sometimes I'll read one of the poems you know,
- 29:41like we read other people's poetry.
- 29:43Sometimes we read, you know, whatever.
- 29:45And I can get things done on my computer.
- 29:48I have, you know, I'm pretty accomplished that way.
- 29:50I like technology and it helps me.
- 29:54And sometimes they're surprised I can do what I do.
- 29:59Donna J. Jodhan, LLB, ACSP, MBA: They always are. But, you know, I'm wondering whether poetry
- 30:04written by someone with who had, who started out with no vision is different
- 30:09from someone like yourself who had vision and now you're into another world.
- 30:14Do you think it makes a difference?
- 30:17Ann Chiappetta: No, I think your creative, your creativity is your creativity.
- 30:23And I know other poets who have been blind from birth and their poetry is beautiful.
- 30:30Nothing lacking in it.
- 30:31It's just wonderful. So.
- 30:36Donna J. Jodhan, LLB, ACSP, MBA: Okay, so your first book what is it called?
- 30:44Up welling. Is that the name of it?
- 30:47Ann Chiappetta: Yes.
- 30:48Donna J. Jodhan, LLB, ACSP, MBA: Upwelling. What a very unique title.
- 30:54This did not happen. Not because of the writing,
- 30:59because the desktop publishing tools that you needed were not accessible to a screen
- 31:07reader. I think that a great many people listening assume that self-publishing is the
- 31:16accessible option. What did you run into and how did you get around it?
- 31:24And what should a blind author know before they start down that road?
- 31:33Ann Chiappetta: So this was in 2016. I think we're in 2026 now.
- 31:38I think we've made some great inroads in accessibility in terms of desktop publishing
- 31:44and technology. But back in 2016, it wasn't quite the way I thought it would
- 31:52be. The, the, I mean, I could use my tools on my computer,
- 31:58like Microsoft Word and that kind of thing.
- 32:01But when I went out of that out of that out of the Microsoft realm and started to try to
- 32:11go to a formatting to Formatting things and, you know,
- 32:18in like Adobe, things like that.
- 32:20Not accessible at all.
- 32:22And I could not I could not format it for desktop publishing.
- 32:26And I kept asking for favors from people and they were like,
- 32:30oh yeah, we'll do it for you.
- 32:32And that never worked.
- 32:33And you know, it was like six months went by,
- 32:37eight months went by and like, I really want to get this done.
- 32:43You know, I, and I know I have a good manuscript.
- 32:46I've had people tell me that and I've had, you know,
- 32:51I went to traditional route.
- 32:53I tried to get this, you know, post published through journals,
- 32:57poetry journals, but they all denied me.
- 33:01They said, no, it's not.
- 33:02And, you know, whatever.
- 33:04I mean, you got to have a thick skin when you're a writer or an artist.
- 33:07So I was like I was just frustrated more than anything else.
- 33:10And then I, I, I said, okay, I'm going to go back and read books on
- 33:17the National Library Services Board service.
- 33:20I'm going to go read some books by other blind authors and see what they have to say
- 33:25about how they got published.
- 33:27So I did that and I found an email address at the back of this other author's book.
- 33:37And I emailed them and they got back to me right away and said,
- 33:40yes, we, yeah, we publish independently published books.
- 33:45We'll help you out. We're a book preparation service with editing and they're called DLD
- 33:51books.com. And they've been my editors and publishers ever since.
- 33:57Donna J. Jodhan, LLB, ACSP, MBA: Wow. I wish I knew all this when I wrote my books.
- 34:01Ann Chiappetta: I wish I did, too. I mean, I had to go through this.
- 34:04Oh, this was so frustrating.
- 34:06I really felt like there was no help in the world for me at the time.
- 34:10And then suddenly I was like, oh, look what I found.
- 34:13So that's not giving up, right?
- 34:16We talked about not giving up.
- 34:17Donna J. Jodhan, LLB, ACSP, MBA: No, we can't give up. But like in my day, I wrote a bunch of books on top 12 Discovered
- 34:23Untapped Wealth and Secrets to Financial Success.
- 34:26But I, I went through the Booksurge publishing company on AuthorHouse and,
- 34:33and after a while I just said, you know what?
- 34:35I'm going to go to a different route, but I,
- 34:37you know, you cannot give up.
- 34:38You must keep on fighting.
- 34:41Ann Chiappetta: Yes.
- 34:43Donna J. Jodhan, LLB, ACSP, MBA: Right. I mean, what else can I say?
- 34:50Ann Chiappetta: Yes. And the other thing is, is, you know, don't be afraid to ask other
- 34:54authors what they do or how they do things.
- 34:57You know, there's a huge networking opportunities out there to avail yourselves
- 35:03of and you build on that and, you know, your first book might be a big
- 35:09struggle, but you know, your second book might be easier.
- 35:12Your third book might even be easier than that.
- 35:15And then before you know it, you've got it.
- 35:17You've got a system. You've got the people you know you can go to to help.
- 35:22And that's what I found that more than anything else is I learned so much about
- 35:28just, you know, just independent publishing what that means,
- 35:33how it affects me as a person, you know and all these other wonderful people
- 35:39that I've met. That's just great.
- 35:42Donna J. Jodhan, LLB, ACSP, MBA: I can hear it in your voice.
- 35:46Now you work across four different platforms,
- 35:50and there are not many blind authors doing all four poetry,
- 35:57memoir, short fiction, and novels.
- 36:02And your short story appeared in The Artificial Divide.
- 36:07And this is an Anthology written entirely by blind and visually impaired authors.
- 36:17And this past May, you featured as a poet at the Greater Pittsburgh Festival of
- 36:27Books. Do those four forms come from the same place inside of you,
- 36:34or does each one ask for different kind of attention?
- 36:43Ann Chiappetta: Wow. So yeah, they do ask for different types of attention.
- 36:48I have to be in the right state of mind to pursue poetry or or short fiction or even
- 36:57even my creative nonfiction, you know, writing essays or blog posts.
- 37:02I've learned to switch my brain pretty quickly between them.
- 37:06Didn't always be like, it wasn't always like that.
- 37:09Like I would struggle switching from one to the other.
- 37:14And, you know, some people just can't do that.
- 37:17They, they stick in their genre and that's it.
- 37:19They love reading other genres, but they wouldn't write in other genres.
- 37:23But I mean, I, I like to do everything.
- 37:28Wow. Yeah, I just, I'm like, well, you know,
- 37:32maybe this, this week, I'll, I'll finish that short story and send
- 37:35it off for editing. And then I'll send a couple of poems to my poetry editor.
- 37:39And then it just, I don't know, I just don't,
- 37:43I don't think about it.
- 37:44I don't I don't have expectations with it.
- 37:50I, I just listen to what my creativity tells me and what my instincts tell me,
- 37:56and I just go with it.
- 38:00Donna J. Jodhan, LLB, ACSP, MBA: I would love our listeners to understand how you physically make a book.
- 38:07Okay. You compose using text to speech, then you will listen to your own words as you
- 38:16type them. You have said that this helps you,
- 38:21you know, to write prose and poems that sound good and read aloud.
- 38:28Tell us about that. Has writing, you know, by ear changed the actual shape of
- 38:37your senses?
- 38:41Ann Chiappetta: So yes, the the answer to that is yes.
- 38:44I when I, when I use my computer and I use text to speech and,
- 38:51you know, types and I hear it eventually when,
- 38:57when I go back and I go to have it read all in one shot,
- 39:03not, you know, so like, you know, the whole page or something,
- 39:07I will know from the way things sound, whether it's balanced or whether there's an
- 39:13awkward sentence or let's face it, we all have typos.
- 39:18You know, those are also something, right?
- 39:20Yeah. You know, I just know, by the way, the cadence of the words and
- 39:24everything after doing this for so long, you,
- 39:27you have an ear for it.
- 39:28Just like you had to learn to have an ear for a screen reading software program like jaws.
- 39:34When you first, when you first lose your vision and you've got to learn those tools
- 39:40it's the same thing. So, so I've trained my ear to,
- 39:45to listen. And the same thing with poetry.
- 39:47If my poetry, let's say I write a poem like a five stanza poem and I let jaws read it for
- 39:55me all in one shot. And it sounds like it sounds like didn't I know if I read it out
- 40:02loud? It's also going to sound.
- 40:05I'm also going to stumble on things, or that line might be too long or that meter
- 40:11might not be right. So if my screen reading equipment is telling me,
- 40:16oh, you know, maybe, maybe it doesn't sound so good,
- 40:19then when I go to perform it or someone else is going to read it,
- 40:25they're going to also most likely go something's.
- 40:30Yeah. So yeah. So, so that's, that's how I do self evaluations in my
- 40:39writing and my editing and, and my content, you know and that's just,
- 40:47you know, that takes time.
- 40:48Just like anything else, you know, you want to put yourself in there
- 40:53and have a quality product, you've got to put the work in.
- 40:56So, and all my technology helps me do that and I love it.
- 41:02Donna J. Jodhan, LLB, ACSP, MBA: I can tell in your voice you really love it.
- 41:05Ann Chiappetta: I do.
- 41:06Donna J. Jodhan, LLB, ACSP, MBA: Yes. The clock is ticking down, but I wanted to squeeze this question in for
- 41:12you. Follow your dog is a story of love and love and trust.
- 41:18And this was picked up for professional audio production through the National Library
- 41:26Service and Perkins, where put it into the hands of readers who could never have picked
- 41:35it off of a shelf. You have also wrote the introduction to Guide Dog Users
- 41:44Handbook for people considering their very first writer and guide dog users honored you
- 41:53with its Lee Berger.
- 41:55Is that the way? Sorry.
- 41:57Ann Chiappetta: Lee. Berg. Metz.
- 41:59Donna J. Jodhan, LLB, ACSP, MBA: Lee. Berg. Metz. Media Award for exactly that kind of work.
- 42:06What did you most want her?
- 42:10A prospective handler to understand.
- 42:13Something you wish that somebody had told you
- 42:17before. Veronica.
- 42:20Ann Chiappetta: Verona.
- 42:21Donna J. Jodhan, LLB, ACSP, MBA: Verona. I'm sorry.
- 42:23Ann Chiappetta: That's okay. Well
- 42:30Donna J. Jodhan, LLB, ACSP, MBA: Well, that's a nice name. I like that Verona girl.
- 42:34Ann Chiappetta: I think what the hardest part about training with a guide dog is not giving up.
- 42:44And, and that there are going to be times where you're going to want to just go,
- 42:47why did I even do this?
- 42:50And when the beginning of training, it is tough.
- 42:52It's probably the hardest thing I've ever done in my life as a person who is blind.
- 42:57But it's the best thing ever.
- 43:02If you, you know, if you can't see and you get a guide dog,
- 43:06it's it's like seeing again.
- 43:08That's all I can say. It is.
- 43:11It is, it's just beautiful.
- 43:14But it's, it's a hard one thing to do and to keep,
- 43:17you know, it. I've had three dogs now, and each one of them has had my challenges
- 43:23with them at first. And then I just, we just keep on working at it.
- 43:27And you get to a place where it's just beautiful and you know,
- 43:32each other. You're a team and you flow and it's like,
- 43:34you don't even have to talk anymore.
- 43:36You just do things together.
- 43:38Like it's almost like mind meld.
- 43:40It's but it's hard work.
- 43:42It's really hard work. And you've got to decide whether you want a white cane or you
- 43:48want a responsibility.
- 43:52Donna J. Jodhan, LLB, ACSP, MBA: That's a great way of putting it. I've never had a guide dog in my life.
- 43:55I travel a lot, but that's no excuse for not having a dog.
- 43:58But no. Do you want to work hard or do you want a responsibility?
- 44:03I love that. I love that.
- 44:06Ann Chiappetta: Thanks.
- 44:07Donna J. Jodhan, LLB, ACSP, MBA: So in closing, I'd like to ask you this.
- 44:10What words of wisdom or words of inspiration would you like to impart to our listeners
- 44:18based on your own story, based on how you have dealt with being told?
- 44:23At age 28, you had retinitis pigmentosa and you were pregnant.
- 44:29I never asked you how many children do you have?
- 44:32Ann Chiappetta: I have two.
- 44:33Donna J. Jodhan, LLB, ACSP, MBA: Oh, wow. Tell us.
- 44:36Ann Chiappetta: Give us. So my son lives in Florida.
- 44:41He's 35. My daughter is 30, 31, and she lives here with us.
- 44:49And works in the postal service in Pennsylvania where we retired,
- 44:54so it's great having her
- 44:55around. Yeah.
- 44:59Donna J. Jodhan, LLB, ACSP, MBA: Any words of wisdom for.
- 45:01Ann Chiappetta: Words of wisdom?
- 45:03Donna J. Jodhan, LLB, ACSP, MBA: Inspiration. Don't give up.
- 45:05Ann Chiappetta: Fight. Yeah.
- 45:06Donna J. Jodhan, LLB, ACSP, MBA: Don't fight.
- 45:07Ann Chiappetta: Don't give up. Fight the good fight and.
- 45:09And ask for help. Don't be afraid to ask for help.
- 45:12And you know, don't be afraid to say, you know you know,
- 45:17I'm uncomfortable with this. And can we try a different way?
- 45:21There's always another way to do things.
- 45:23And the other thing is get help, mental health help.
- 45:29If, if you really feel you're struggling with your adjustment,
- 45:32if it's affecting you dramatically in your life ask for
- 45:39help. It's out there.
- 45:43Donna J. Jodhan, LLB, ACSP, MBA: This is a wonderful story of inspiration, motivation,
- 45:47commitment. And it's very, very refreshing.
- 45:49And I want to thank you, Anne, for having agreed to be our guest on
- 45:55this interview. I would love to keep in touch with you to find out what.
- 46:00What else is on your horizon?
- 46:02What are you doing? You know, please reach out to us and let us know.
- 46:07Ann Chiappetta: Yes, yes, yes, I have another book I'm working on.
- 46:10So I when it's when it's out, I'll let you know.
- 46:13Donna J. Jodhan, LLB, ACSP, MBA: Yeah. Please do. And if I don't hear from you in a month or so.
- 46:17I'll come looking for you.
- 46:18Ann Chiappetta: Okay.
- 46:19Donna J. Jodhan, LLB, ACSP, MBA: All right.
- 46:20Ann Chiappetta: Yes. Thank you so much.
- 46:23Donna J. Jodhan, LLB, ACSP, MBA: Thank you. Anne. And listen, keep up the great work and don't give up.
- 46:29All right. Thank you very much.
- 46:30And you have a great rest of the day.
- 46:33Ann Chiappetta: Thank you.
- 46:34Donna J. Jodhan, LLB, ACSP, MBA: Okay. Bye. Bye now. Bye bye.
- 46:37Ann Chiappetta: Bye.
- 46:41Podcast Commentator: Donna wants to hear from you and invites you to write to her at donna@gmail.com.
- 46:47Until next time.