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Skyclarys Approved After Years of Struggle | Cork News

After seven hundred fifty days of agonizing wait, Ireland’s HSE has finally approved funding for Skyclarys — the first and only treatment that can slow Friedreich’s ataxia, a devastating rare disease. Patients like Niamh Ní Hoireabhaird, who campaigned tirelessly with public rallies and personal pleas, now face a future of hope after years of uncertainty. Yet this victory exposes deep flaws in Ireland’s system for approving life-saving drugs, sparking urgent calls for reform as advocates demand faster, fairer access to treatments that matter most. Listen in comfort:Get a discount on a Soli…

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