Latest / OneLegUpAlex Media / Adapting With Triathlete and Author Win Charles About Smashing Stigmas With Cerebral Palsy 5-2-24

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Adapting With Triathlete and Author Win Charles About Smashing Stigmas With Cerebral Palsy 5-2-24 · OneLegUpAlex Media

0:01
Here's your host, Alex Starrett, and welcome inside to another edition of Adapting
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with Alex Garrett and the one that got podcast And thanks to pod match for
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making this connection. This is so cool. I've got win Charles Allen,
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and I love about when she is a triathlete, that's right, a triathlete,
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she's an author and she doesn't let trebel palsy stop her. And I'm
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sure she'll tell us how she's adapted to cerebral palsy to becoming a triathlete and
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so much more when thanks for joining me. I love it. Adapted to
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salele halsy. Well tell me that next week, next Tuesday, when I'm
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having Doc Surdery read doubted by all one more time and say adapted to stayable
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holdly. Yes, I'm having doing next week, but that's to be said
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point right now. And so I have adapted to say able Halsy. I'm
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using Alex would here people because I love it. I have adapted it to
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stay up with palsy because I grew up not knowing I had it. Yes,
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DP is a knowledge condition at PAS. Yes, I acquired it in
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eighty seven. Yes, it's impact in my life. The whole life long
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now, when I said you required you were not born with it, then
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when I was born with it, the ac client term as I acquired in
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eighty seven. I don't know how I acquired it, but I was born
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with it. So do you feel like despite having acquired it and being born
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with at the same time, I guess right, do you feel like you've
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had to adapt along the way and that's why you wrote your book. I've
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had to adapt along the way. I vote my book because I lost my
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mom and then I lost my dad and fortunately in two thousand and nineteen,
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lost my mom in two thousand and ten, and lost my dad in two
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thy nineteen, and in the my mom, and then I did the Collie
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Man and then lost my dad. So I did the cone Iron Man.
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It we did it when? And I say wait, because I had a
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teammate do it with me, and we did. She passed away in August.
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We must have did it in November two thousand ten, November October November
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that and my teammates at the time said, oh, when I have a
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surprise for you, And my teammate happened to be my family member. Okay,
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Oh, I have a spice to you. And I'm the type that
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says, oh, just cut to the case, don't don't you have a
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slight right after my mom dies? If you knew my mom died, do
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we say, oh, we all were there watching my mom die, So
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you knew my mom and died. So I'm like, if this is a
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spies about my mom dying, it's not a surprise. But if this is
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a surpise about something else, tell me. And so I'm like, oh,
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oh, whatever cuts in the case. He goes, well, do
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you want to do? I am man? And at this point I'm listening
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at my desk and on the phone with her, and I'm thinking, how
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the heck am I supposed to do? Iron Iron Man? Let alone?
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Call know? Let alone a triathlon? And I am like, Kay,
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does my dad know about this? What have I gotten myself into? Well?
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Tell us out. I trained like man and woman, like anyone else
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would do. Talk about the training if it differs for them someone with CP
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or is it now it's the same training, training measurement, and it's adapted,
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but it's the same training. And the advantage I had is I love
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it in Colonade all that the time, and you will say, a bunch
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of triathletes come up to vote in Colonado to train in El Sude. Mind
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you in Elstitude. A lot of biathletes, coaches and and distance running coaches
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send their trias, send their clients to Colorado, especially their triathletes, because
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they want I altadud training. So I do the advantage of ilsa sude training
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do and hence where I lived. So I was talking on that, but
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go ahead? Was in the desert? Or where did you do your triathle
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on it? I did it in the Colina Hawaii. I didn't. I
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did one in Colina, Hawahite. I did one in Atlanta, one in
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Boulder. I did one in Atlanta, one in Atlanta, one in Boulder.
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The main one was in ConA, and then I did another one in
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Boulder, Toler, Oh, Florida, Son, Florida, So Florida,
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Boulder, at Atlanta and then Antona. Because you have to build yourself up
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to Tona. Anyone does anyone does? You can just say, oh,
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one day I'm on the couch. Oh one day I'm gonna want a masicine.
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I know one day I'm gonna do a triathlin. You have to building
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yourself up. So Tola recommended the people at iron Man recommended that we do
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a year, which we did, and then the iron Man got so they
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are so picky about these athletes coming in with disabilities, even though they love
6:58
them, even though the iron Man and loves them from ion Golf. But
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the iron Man is picky about how much special equipment you can bring in.
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So they put me in a boat. Do the swim with me. This
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one at COONa is absolutely beautiful. And then wonder over there, Yeah,
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ocean, it's open the water swim and so we did the swim. We
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did. We did not do the bike because I'm just sorry. We were
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in the middle of a bike but we got cut off due to my teammate
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was pulling me and titling a bike and complaining this is hard by in the
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middle of the Colna IRONMN and my aid and I my aid and I still
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can't figure out how in the wall to run to one her age class,
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mind you, the year before, because the only way that she was getting
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back to ConA was going through the Iron Man Foundation at the time. And
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fortunately, as I believe we called this the Iron Man, the Foundation doesn't
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exist, and so the iron Man. We went through the Iron Man and
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foundation had to do a the deal of why we wanted to compete in ConA
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and get a million of votes online? Which we wanted anything? And so
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yeah, well, of all of the triathlons you did and all the different
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levels, there's obviously three stages. So which stage would you say you felt
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most rewarded in every stage? Or was there a certain stage like you thought
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you couldn't do but you did it? I thought, I thought at one
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point. Now I haven't done a run at COONa, and unfortunately, when
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I do do the Iron Man full distance, it will be in plants,
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and fortunately I get to go run plants, which is ultil I decided it.
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Yeah, but I wanted to do that on ConA, but unfortunately,
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due too, I'm a woman, and due too I'm a special needs woman,
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and they might send me to ConA just because I'm special needs. But
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typically the women do it, the women who I go to body and do
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it in plants, So I don't can't they send me? Uh, typically
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they would probably do me. Not oh, they would probably do me in
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plants. I mean I might the best need to do anyway, So I
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don't care but I haven't done amount Antona. I want to do them a
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run at Kona and thought we're working on that, and unfortunately I'm having backs
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doing next Tuesdays, so that puts a little damper on my train. Am
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I get in line in the audience a little bit? You know? I
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know, do with CP have certain spasms and whatnot? And did you have
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to control some of that going into these triathlons or did you let yourself be
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you? And and if the spasm that's just like I have a thousand months
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of spasms a day. People don't see them, and people don't see them
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except they do see the big ones. And I I take now, I
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take this is my seedlings, and I'm letting a public play. So here
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we go. I take manganeseo for a two pervestis fathoms but their days.
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I take a M and it's like c B will be CEP. So I
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am not on mass of relaxes. I wasn't doing the Iron Man at any
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stretch of the imagination. So because massive relaxes and myself that get long.
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But I'm kind of ban on them or something like that, right, I
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don't know exactly, but for the Iron the Man. Yeah, they if
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I was able to body they would test be Yeah, absolutely for the Iron
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Man. If I was able to embodied, they wouldn't test me. They
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don't want drugs, They don't want dugs in your system. Yeah, now
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that I'm thinking about it, you know absolutely. But I wasn't on the
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back clibin anyway. And I wouldn't be on backleben just because it was the
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I Man. They wouldn't probably make me do a he tests. They now
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let you write because they don't want drug and the hintsmins and I'm iron Man.
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They want your body to be cleared. So so I wasn't on back
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limen. I've been off with backlbin since two thousand and nine. And so
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tell people how you tell people how you get around? Are you in a
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power chair? Walker? Crunches you? How do you get around? I
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am? I use a walker and apowerchaan very cool, very cool? You
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know reason for Arizona. You know I know that a friend of mine,
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Brianna Russa. Don't you're familiar with her, but she's done wheelchair basketball in
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Arizona at U of A. I mean it is a growing sport college.
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Uh, wheelchair basketball. I don't have you got any involvement with that when
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you were a little younger in the college days or whatnot or now. I
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am not a tool as Nato. I didn't grow up and I grew up
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in Colado. I moved to it because I had to because I lost my
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dad and I sold his house and so I had to And yeah, but
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I am not true as an a native. So college college was strangles and
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that's all I'm stillings of why. And but I want to get involved wall
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with a spot that is not going to have been quite a while now because
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I'm having back. So as I said, by the way, your book
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is called I Win, I Win. It's an amazing story of how you
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remember your life through the years having this condition called CP. And of course
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this hits home for me because I grew up around kids a sort of a
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palsy. So I understand where you're coming from. But I love bringing on
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people who who are talking about it because I feel like we got to educate
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more people, right when we got to educate more people. Oh yeah,
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so let me ask you this, did you have to care for your mom
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or dad? And I asked this because as someone who has one leg and
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you know it has this ability. I find that they don't teach you growing
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up how to care for your parents the way they care for you. So
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that's just a challenge. So did you find caring for your parents? I
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didn't have to have so much for my mom, So now that I say
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that, I wish I did. But I had to cancel my dad.
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I can for my dad for nine days because nine days absolute absolute shi t
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show. Basically he couldn't move because he had stage fall on cancer, was
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barely pleasing on oxygen. My local hospital sent him home for nine days,
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which they shouldn't have done, and he refused to go back into the hospital.
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We finally as a family, decided to keep him back into the hospital.
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He wanted a part of all oxygen, tank and polleyball and continent,
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but and all the hospital. Sony miles Away said this is the way too
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out of Oscoe. He need to go to a big hospital. Then I
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did not realize you could do this, but apparently you can't refuse being fight
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to life out. He refused being fight to life out. I thought when
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a patient was critical, I thought it was not up to the patient,
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But apparently it is, and so I took care of his way. He
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wanted everything, he did everything his way. Let me tell you where you
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come from with that. He's he was yet had the mind right up to
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the end. My dad did. So it sounds like that was the same
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fer you. You know, when I gotta I gotta ask you this because
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as we're talking some some talking to people disabilities, I feel like I'm talking
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inside baseball because you and I know things about the community that the outsider may
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not know. And that's one thing about you know. In this community we
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bust each other's chops a lot. So have you found camaraderie or connection or
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friendship with others who are disabled or has it been bringing your personality into the
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world of Phoenix. Are you finding it easy? Oh? I am finding
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easy. But I may be disabled, but I'm show up as attack.
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I have a brain. I'm less mentally disabled than I am bysically disabled.
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So I get on a bust and business. The morning, I go to
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the appointments to buy myself. I manage that. I manage. I have
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help, but that helps pretty much stays behind the scenes, and I have
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aids that come in in the morning, come in in the afternoon. And
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I live in my own condo. That's the failians Sincellia itself. I live
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in a condo complex that was designed specifically with people with the mental disabilities and
18:17
physical disabilities. It's feed accessible. That's my next question. Is accessible for
18:25
you? Phoenix is very successible? Yes? And no. I say no
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because people don't watch where they're going. The driving is insane, and I
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thought Colorado wasn't. I thought Colorado was bad. I know New York Man
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happens aful but and but people don't watch where they're going, so I have
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to be really careful with crossing the street. And I am the one that
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had all the way. But basically Phoenix is a lot more handicapped successful than
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Colorado was. Well, I was in Colorado, Yeah, not so much.
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Well, tell us about any crazy stories from between between both states that
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you want to tell me on this podcast. Oh I need waysic guys.
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Well, I and this was I would stay too. I have a light
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wheelchair that's meant for traveling. And I was out of state. I was
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actually back east and I was visiting. I always travel with I AID,
19:48
so I always travel with I AID, and so I was visiting a friend
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of mine. This friend knows me really really well, and she we will
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and I have not done this ever since. And that's what I haven't.
20:07
It's a line. Now, I put a really heavy bag on the back
20:14
of my light wheelchair and didn't even sing anything of it. Well, I'm
20:21
going I laugh, it's funny now, but it was not funny. It's
20:26
time I left. I didn't even sing anything of it. And for those
20:33
who know me, for those who know me in the podcast land, for
20:38
those who know me personally, they know that I'm my outgoing prison. They
20:44
know that I when I get pushed, I get pushed. And they know
20:48
that Wind loves to travel, so funny my happy dag go on in the
20:53
back of a wheelchair. Wind doesn't even think about it. The next the
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I'm going up, which I didn't even know about it, And the next
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thing I know, my wind catch into my head and I literally fall backwards
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and the jail falls backwards, and I'm like, oh my god, Colin
21:23
Baising, So they rescue me, they rest jail. But I will never
21:32
And this bag is lighter than my heavy pots on the back. But I
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will never put a heavy bag on the back of this chair. Chair again,
21:41
because I realized that this chair could flip over with me in it.
21:48
And I've had chairs flip elbow with me in it in the past. I've
21:53
gone forward, I've gone backwards. I've gone I haven't gone sideways, but
22:03
I've gone bullwards and backwards. All right, Well, let me ask you
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about traveling then, because obviously you travel a lot. You went to Hawaii
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for damn sake. You know you you travel. So what's that like?
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Do you find the airlines are accommodating not accommoding? What is your they are?
22:21
They are? You just have to I so I only got this chair
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last December, but I have always traveled with Wilman nude man no chia.
22:33
So a Mano chair is a little bit easier to travel with. But this
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chair is meant this is a Powell chair, and it's meant for traveling.
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Walk. Uh, palachair brings a lot more to Menians to me and I
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have the use of my likes. I can get upstairs, I can walk
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a little bit with the walker. I can walk. I'm not that's the
23:03
same old I can yeah, I mean not that the sable way. I
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can walk and beat to reach by walk into get up a find of sands,
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and walking just has to be placed at the top of the sands.
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So I'm not that sable. But what I've learned is how to use I
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don't care and the requested I don't care, so that no one has to
23:29
hold on to me, walk backwards and get I just let the cute guys
23:36
do all the work. And yes, I'm gay, but I just let
23:40
the night in the shining almost and the cute guys doing the Look how's romance
23:45
been now that we're getting in that department, how's romance work for you?
23:49
I haven't just go and yet in fans that is something I want to do.
23:56
And I have ax boyfriend. I'm allowed to say that, and I
24:03
have because he and I are stale friends this day and he knows I'm gay
24:08
and he will be in my life forever as a male friend. And he
24:15
also has Alba Halsey and is blind. And I was on a dating site
24:22
and I didn't even think about it. I was looking for a woman at
24:27
the time, but he found me. He found me, and I'm like,
24:33
you got have a big kidd, I'm gay, but well we'll leave
24:38
it. And so I have an ex boyfriend, and I haven't necessarily discovered
24:47
the gay coming the gay rainbow flag coming out of I am out of closet.
24:53
By the way, people, this is not my first interview when I
24:56
said I'm gay. I have said it on my own podcast, and yeah,
25:03
people know I'm gay. But do I say it in hospital? No?
25:08
But if people ask me in private, I will say, yes,
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I'm okay. But do I have male friends and that I love feeling?
25:18
Yes? Have I experienced the langual friends in Phoenix? No? Is that
25:26
something I want to do? Yes, But when it comes to me having
25:33
a relation, yep. The number one will is and my aide. People
25:41
know this publicly is whoever my partner is in real life, and I'm talking
25:48
partner. They will never ever, ever, ever, and I emphasize never
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ever be my aid. They will be my partner. They will never be
26:00
my aide. Now, if they want to help me with certain stuff,
26:07
that's fine, but I think it posts a lot of straining on the plumber
26:15
if they become now this is my personal belief, and if they become the
26:22
person's care taker, that changes the whole dynamic, and of course disable old
26:32
people cannot get married because if they're on Social Security and this is a public
26:40
fact. You guys can look it up. And so if they are social
26:45
Security, they get to socially guilty taken away. So it's a fine line.
26:51
And so you did. It's funny you say that because I just think
26:55
I got engaged to my fiance. She is also a sep he. And
27:00
of course we're worried about the benefits thing when marriage happens and whatnot. But
27:04
you know, it's interesting talk about that because that's weighing on my mind all
27:08
the time. Is doesn't hurt some of this ability who has benefits to get
27:14
married? It's it's insane to think that way. No, no, and
27:18
so I would, I would. They would have to my pun and this
27:26
is my person, open me and my princess, because we're not talking about
27:32
nine and ninety normals. We're talking about a princess. My princess would have
27:37
to love me for me, not just say I'm dating a woman because she
27:45
has a disability, and let's feel sorry for that woman and let me rescue
27:51
her. Let's it's not the princism. It's not the princess and he it's
27:59
definitely not Stolly book Love, My love is like a stilly book stoy.
28:04
Nope, So does that mean you have twenty four hour AID coverage? If
28:08
if your partner is not gonna be your caregiver, do you have twenty four
28:11
our A cover? I have, and now aid's coming in morning, aids
28:17
coming in the afternoon. But as I get old, I bought my condo
28:22
full long term camp pur business because yes, by the condo fall term camp
28:27
business. Yes, people can say wow, yes, people can dodge office
28:33
and are listening. But yes, I bought my condo my sting bead doing
28:37
condoulong to camp purposiness. But I will tell you that the Saber community,
28:51
I guess as we're talking about this is it's very like I'm gonna say,
28:55
but we're very active in that department. If you have dating and romance and
29:00
people don't realize that do that? No? No, And I have not
29:06
found miss Princess for me yet, But I don't care. If she is
29:12
a class country. I don't care if she is in Phoenix, I don't
29:18
care. Tell me about your speech because did you find sorry the podcast was
29:27
going to be difficult or were you like that confident I'm gonna do this like,
29:30
tell us about this speech development. I've always looked using, say,
29:37
using speech dictation. So when I got to Malkin in the book and I'm
29:42
like, well, how the hell am I supposed to maulkin that book,
29:47
I come a win and I'm like, well, I'm gonna start. I
29:52
started listening to podcasts because I wrote a book. And then when I typed
29:57
into Apple iTunes at the time making the pup button dance on the iPhone.
30:03
Now at the podcast there was when I did this ins album Mahlesy, there
30:08
was absolutely absolutely nothing. And so therefore I thought, I make that mit
30:18
my niche niche, whatever you call it. And I say whatever you call
30:22
it people, because that's how I say it. And then so I decided
30:29
to make that my niche niche. And then I decided to promote the book
30:36
along with interviewing people. And I still have that. And when it comes
30:41
to my speech and pament, yes, I have done years and the years
30:48
and the years of speech but and I still have a little bit of it.
30:52
I still have a little bit speech impediment. And when I get tired,
30:59
my speech goes out the door, thank you very much. And all
31:03
when I'm stressed, when speech goes out store and it's and so it is
31:15
interesting being in the spotlight having a speech and handiment which you can't really pick
31:22
up on. I can, but people that have CP can. And so
31:27
it is interesting being spotlight and having a space embediment. But how to get
31:34
rid of the speech ebendment? Quickly do a podcast and kick it off with
31:41
one of your feels and what in the office space as episode number one?
31:51
Oh no, I didn't do a trailer. I didn't deal a solo episode.
31:55
I kicked it off vite as an interview podcast and that's still still number
32:04
one. And then I just said, well, if it's sixth slaw and
32:09
sixth the law, and I I gave myself a challenge. I'm type give
32:15
me a challenge. I'd taken head on, give me a back suggery.
32:21
I'll take you that head on my choice. By the way, my back
32:23
sugery this time is my choice. Last time it wasn't. And because of
32:30
this, thank you very much, and is quite common in stable halls.
32:37
How important? How important is it when the people with disabilities own it and
32:43
don't hate themselves sport? Do you feel like some people hate themselves because they
32:46
have a disability and don't want to own it or how do you what's your
32:50
view on that. A lot of people don't want to own it. And
32:59
that's what I'm saying, that you own it. You know what I mean.
33:01
And it took me a long time. The only reason why I own
33:06
it is because I got emotionally and physically abused and I was in a house
33:13
that was following down around me. So I decided to make him move,
33:19
sell my house, make him move to think and says oh, I wanted
33:22
to sell the house in twenty ten, that did not happen. After my
33:25
mom died, but that did not happen. I wanted to move my dad
33:30
and I to a cheap becaussive would be safe, but that did not happen.
33:35
So by the time he got diagnosed it's canton. I knew he was
33:38
going to either come home disabled or dead. Became he didn't come home so
33:49
dead and phel be and so I had I made the decision to sell my
33:55
house. My mom, my step mom, was at work when I made
34:00
this decision. I sat down with my team and my team goes, we
34:07
have a problem, and I said, I know we do, and he
34:13
My team did the numbers and I said, well, I kind of have
34:21
a thing I want to tell your guests. And my team left it up
34:25
to me to sell the house. And my lawyer and my financial advis are
34:31
lots of apps to me to sell the house. And they I remember with
34:38
tears in my eyes. I mean my lawyer, I am near credits,
34:43
and I said, I want to sell themselves because my look, my financial
34:49
advisor gave me three options. He goes, well, we can get the
34:55
money from somewhere, we can modify this house. All we could just sell
35:02
a house, move you to a cheaper constant stick was ended up being in
35:09
Arizona. It was supposed to be the east coast, but it landed being
35:14
Azela. And I decided to sell my house, take the capital out of
35:22
my house and ask in Colidal and then buy myself a house. And the
35:31
living stick was this a childhood home? You're talking about winter or this is
35:37
a childholme I sold my child. Yes, that's a lot. And what
35:42
I mean by that is people with his bloodies, we tend to have to
35:45
think about the day to day, where they're gonna have service, where they're
35:46
gonna you know, how health is every day. So now you're adding this,
35:51
so is it? How smart is it? And not saying most are?
35:57
But to be financially sound with her disability is that? So? Is
36:00
that important to talk about? Like how we all learned the financial soundness of
36:06
our lives as well as the health. Yes. Yes, And a lot
36:10
of the reasons why I moved down here is because my health was awful in
36:22
Aspen, Colonna and the one I was house found due to the weather and
36:27
due to my mom having my stepmom having a full time job and leaving me
36:31
with aids eight hours a day. Yeah, that was a good one to
36:36
get close to the aim. And then my stemom expects me to get close
36:42
to her. I don't think. So you leave for eight hours a day,
36:45
How the heck am I supposed to get close to you? And so,
36:51
yeah, that was a stepmom steps dot up waiting to happen. She's
36:57
no longer in my life, so as my stepsism know as my step aunt.
37:04
And so I feel like a lot of these experiences have helped you shape
37:08
your book. And so when someone buys your book, win, Charles,
37:14
I win. What can they look forward to? It sounds like you have
37:17
the very spunky personality you're not afraid to speak your mind. So is that
37:22
what they see in the book? They well, that's the original book.
37:27
Well, that's the book that kicks off of the podcast, that kicks off
37:32
me as a motivation. When I'll speaker, they will see them all mild
37:36
side of me. And now that i'm they won't see the spicy side of
37:42
me in that book. They will see the mule inside of me. But
37:46
now that I'm in the phoenix, as I'm working on how to book a
37:52
novel and then a spice book that's out of everyone comes own good to my
37:59
own, but I would wanting to do it. They still people want my
38:04
mom, my bilot to mom who was dying, shotten me off easy and
38:08
then gave me another book idea. So this another book idea has been brewing
38:15
it since two seven ten. Now it's time. She wanted me to be
38:21
in a safe space, and she told me this by telem passively, and
38:28
so she wanted me to be in a safe space to write the second book,
38:32
which is the way out of my comfort zone. And some people will
38:37
be surprised by that. But they don't see the spicy side of me in
38:45
that book. They see the more mutant breathing sign of me now that and
38:51
yes people, I still don't do a johnsone, And yes people, I'm
38:55
making did you brob did you grow up writing? When? Did were you
39:00
write? Your whole life? Right now? I was a teacher. I
39:04
this home. Things gone because my mom died and she was the biggest champion
39:12
on the me so last disabilities. And so my mommy died, was here
39:17
when your mom was here, tell us about why she inspired you to be
39:21
creative, because obviously you've got a creative mind to write a book and to
39:24
be yourself to podcast, or that she inspired that creative mind while she was
39:30
here with you. My dad was. I get the entrepreneur spi from my
39:39
dad's side. I get the no nonsense spirit for my dad's side. But
39:45
my mom taught me how to live a life with the disability without being well
39:52
with me all right? On that note, On that note, I got
39:58
time for my dad. Yeah. I gotta say, you seem like if
40:01
someone told you no, you can't do that, you're going to use that
40:04
as amon and say yes I can, Yes I can. What's the biggest
40:08
thing that has pissed you off when they say no, you can't do this.
40:13
What have you proven to people or want to prove to people that you're
40:15
still working at If you will that you can do it well, I I
40:22
shocked people when I will tell the story publicly, because hence to why I'm
40:29
having back surgery. And we'll be calling this people a week before my back
40:34
surgery. By the time this comes out, I will be becoming so said
40:38
back, so do And so I went to Scolios's doctor down here, and
40:46
we have two phenomenal medical systems down here. Two one is on a house
40:55
and one is been in a house. I went to someone else to see
41:00
this scoliosis doctor and these slices. Doctor says, you're fine, go away,
41:10
you have scoliosis. You'll find this. Nothing we can do, I
41:15
said, and I had. I had a person with me at that time.
41:20
She was shut up taking notes. And then she took notes and I
41:27
said, there's suffercing. No, I don't have scoliosis. There's suffercing more
41:32
wrong with my back. There's suffthing wrong with my back. I want X
41:37
rays please. I want you to get the oils to go get X rays.
41:44
So we go on this wild goose chase to find X rays. They
41:50
tell me oh, and everyone keeps telling me I need Ahil lift to go
41:55
get X rays just because they see me in Aladre. Don't make assumptions.
42:01
People, don't make assumptions a bond body. If you see persons in Voltaire,
42:09
don't make assumptions that they can't walk. Or if you see a person
42:15
with one leg like Fabmin with Alex, don't make a put don't make assumptions.
42:22
And he can't hobble with clutches, thank you. And the reason why
42:28
I said that is because the zoom pictures him standing with clutches, basically,
42:35
And so I say that with love, and so don't assume that people can
42:39
hobble, can't hobble, and don't assume that people can't stand up on their
42:45
own get up on the bed, and you know this is this is great.
42:49
I want to ask you about this. I just feel like people assume
42:53
and maybe I'm I'm in a fault too, because if I see someone in
42:57
a power wheelchair that I may not know, I figure they know someone here
43:00
in New York it's such a small community, right, But does that piss
43:02
you off? If someone's like, oh, do you know so and so
43:06
because they're in a chair also, you know wheel chair. Also, I
43:08
got that a lot in Aspen. I'm like, no, can we please
43:15
stop theft now? Yeah, and so I got that a lot play basically,
43:21
but no, not now that's about But I said too, So I
43:27
said to the stock that I want x ys. We go and get x
43:30
y's. That was an interesting feeling himself, because they didn't believe me that
43:36
I had power my legs, lily, and they said, well, the
43:39
only place that has a play a lift is this one accual at place all
43:46
the way downtown Phoenix. Thank you very much. And so and for those
43:52
of you that know down to Phoenix, you know, no Phoenix, you
43:57
know Scottsdale. Scottsdale a place in itself, and then this downtown Phoenix.
44:04
So I drive all the way downtown Phoenix. I go to the X way
44:08
place. The X ray text says, oh something is mom, and my
44:15
medical liaison just looks at them. I'm like, oh, something's mom.
44:22
But X ray texts can't tell you what's the mom by legally, by law,
44:30
and so I knew when I got to that X ray something with the
44:35
mom. Well, by the time I took him back to my doctor,
44:38
they go loops her Scolos's fusion had failed. So I have now which I
44:51
won't have as of to say, a full twenty three by about two pm,
44:57
Phoenix says all the time, if all of a sudden's don't call plan,
45:00
I have now failed. Back to joy Cynem, it had failed sixteen
45:07
years ago. No one told me, and we think it's because of the
45:13
CP tone of something. And then I got a lot taking out because I
45:17
brooke the law don't ask out, and so I've had nothing but issues with
45:24
this back and now it's got them to the point where I have had I
45:31
have a screw that's attached to the bone, which is not good. And
45:38
so I said, I want this done. I want to think it out.
45:43
I want it done. I don't care how long it takes. They
45:45
said it's going to tank. Originally they told me four to five hours,
45:53
and now they're saying five and a half. I'm hopefully it's four. But
46:00
if it's fine and a have it and a half. I'm hopeful, let's
46:06
eas by for it to find outs not five and a half. But if
46:10
it's fine and a half, five and a half. So yeah, insurance
46:15
looking, isn't it is insurance helping you with this? Or oh yeah,
46:20
in chance, in chance is helping me with this? That's this has been
46:29
so eye opening. I have a I have a couple of things that I
46:32
want to ask you. First of all, you know comedy, because I
46:36
feel like I got some comedy in you and a spicy side. This comedianor
46:39
you know her, she's from vermonth uh Tina Ramo. Have you seen her
46:45
work on TikTok at all? No? I haven't, And he is going
46:50
to have to send me a link because I know about John Blue, So
46:58
I wondered if Blu who's a comedian, you guys, you need to look
47:04
gosh blew up. He had CPA as well, and he's made it in
47:07
the comedian Well, and Josh hung Fitz is my guy. He's the guy
47:14
on one leg. He just talks. He does all those Halloween costumes.
47:16
He's awesome. Okay, But when I got to ask you this, would
47:22
you ever get up on a stage and cause you got some humor, a
47:25
little dark humor, I gotta say too, would you talk about it on
47:29
a stand up stage? I feel like you'd fit well. You got the
47:31
it rolls naturally with you. Maybe maybe I would, Maybe maybe I would,
47:37
But I am Molan sia and invited and honest then I am a stand
47:44
up comedian. Obviously, if your back's not doing well, that's kind of
47:50
debilitating. But you don't seem to be one to let anything debilitate you.
47:54
So that's that's kudos to you. What do you do for leisure in Phoenix?
48:00
Like? What do you get to go to a diamondback games? Sons
48:02
games? Are you sports gown down there or what? Nope, I am
48:07
I'm so busy. My leisure time is listening to a podcast, listening to
48:15
music. My leader of time is actually singing lessons. I don't do it
48:21
professionally yet, but we're getting into that point. And but I am an
48:28
amateur singer. And so my leasure, my leader of time is writing a
48:36
hoss, my god, write an ass, which I'm getting back to write
48:40
an ass ask for my back. So and so that really, when you're
48:46
dealing with a hoss and hip ho SAPPI, you're dealing with a O A
48:52
thousand account animal know you can't be on the phone, No, you have
48:58
to be contall of the old body and the hass. And so that's I
49:02
know leave you time and people know I do that. Is your saddle adapted
49:07
for you or is a regular satele? No, it's a normal sattle.
49:12
Very cool, all right. When I got to ask you about this because
49:16
it just been and I've seen jockey's fall off horses all the time, it's
49:21
kind of amazing that that happened. So kudos for staying upright on them.
49:25
How long did it take to learn that? It took me a to be
49:30
a good amateulna. It's gonna take it took me about a month and it's
49:37
going to take me about a month to learn how to control my own body
49:45
weight again. And I used to be adapted snowballing as well, give that
49:50
up to move to Phoenix hands on, So I yeah, I know asking's
49:55
a big snowboard town. When you had the surgery, are you missing work?
50:00
Like? Do you work on the daily as well? As? Are
50:02
you? I am? I am a full time content preyer and people have
50:08
given me Grayson space, which I'm very great fog. They know my surgery
50:15
is public knowledge. They know my surgery is I kept not my fan base
50:22
updated, because one thing I will tell you is they care my fan base.
50:30
Most people when they listen to a podcast that they love, they came
50:35
about their hosts more than they can about people they're interviewing. Let's say,
50:39
you know, interviewing Michelle Obama. Yes, they will care about that interview
50:45
then, but the average person walking down the street and the average person on
50:52
pot the match, thank you very much, they don't care about you know.
51:00
So I will also say this, I find myself more comfortable talking to
51:04
people instead of talking about my own stories. But I feel like you're telling
51:07
me and all these other podcasts right here, tell your own story. That's
51:10
why people listen. Right Be authentic, Be authentic, and my god,
51:19
people like you survived, what you did, what you're having what now?
51:25
And So my work, my work is a full time content creator. And
51:30
yes, I make a minimal amount a little bit of money to support my
51:37
full time content creation. Yes, I'm getting dead on my financial end of
51:45
it. Now that I'm in a safe space and now that I have learned
51:50
how to truly be Adolf, and so that's always fun. And because a
51:58
lot of disabled people think that mommy and daddy, grandma and grandpa, I'm
52:04
going to do it for you. Well, mommy and daddy, grandma,
52:07
and Grandpa are going to die someday and you are going to have to learn
52:15
how to deal with your own disability. Sounds I got to pull yourself up
52:20
from the bootsteps after your parents. Yeah. Yeah, I learned how to
52:25
be adult by the age of twenty three. By the age of thirty two,
52:35
going on thirty three, I had another blow to my life which I
52:40
lost my dad. And my mom was fifty eight once she died, and
52:47
my dad was sixty eight when he died. I find it soret of stigmatic
52:57
that you know, oh, you're gonna with your parents for work because you
53:00
have a disability. People literally think that in their mind, and you're right
53:05
here on this podcast when and I'm sorry you grow podcasts. Well, what's
53:08
your podcast name? By the way, CEO Disability, I'm slowly transitioning into
53:19
it was formerly known as asked When, And I'm solely transitioning from CEO Disability
53:29
to Winning Win at Life, which I use my own name to both my
53:39
podcast. Yes, I used my name as a bland name too, but
53:44
when in life, I'm solely transitioning back. Still doing is getting in a
53:49
way by now people, so I can't be fully walking. But I might
53:54
as well be fully walking. And so to those that you that hear this
54:01
and one to come on my podcast, you more than welcome do it.
54:06
You're just going to wait a little bit because now I'm taking interviews in and
54:13
then I'm fully rampling it back up in August. Well that I would love
54:20
to do a collaboration again. This has been great and uh and yeah,
54:23
if you want to reach out to when you have a website as well,
54:27
right when the THEO disability dot we believe dot com all just google my name
54:35
win Charles w I N C H A I L A S. And my
54:39
podcast could be found everywhere and Winny at life will still be the same feed,
54:49
So don't want we'll go into the same speed. But yeah, but
54:57
I finally found fan, I finally found my name and form my podcast after
55:02
ten years. Mind you, I know ten years on the podcast are good
55:07
for me as well. It's amazing. So when would love to have you
55:12
back on once again? Is your healing and then ramping back up, let's
55:15
connect again and then maybe I'll jump on yours if you want. It's up
55:20
to you. I would love to do that. Yeah, all right,
55:24
let's say in touch. That's Win, Charles and I Win. Is the
55:30
is the book and so much more. Just just look up when Charles thanks
55:34
so much, Thank you,