Latest / Beautifully Complex / 359: How Chronic Caregiving Stress Alters Parent Physical Health, with Andrea Jones
Transcript
- 0:01Speaker 1: So I learned the hard way, and now I'm a
- 0:03Speaker 1: lot more strategic about preventing because I've experienced the extreme
- 0:08Speaker 1: end of that burnout state, right of having difficulty getting
- 0:13Speaker 1: out of bed in the morning and having no energy
- 0:15Speaker 1: for anything, and a lot of health issues that came
- 0:18Speaker 1: from that.
- 0:21Speaker 2: Welcome to Beautifully Complex, where we unpack what it really
- 0:24Speaker 2: means to parent neurodivergent kids with dignity and clarity. I'm
- 0:28Speaker 2: Penny Williams, and I know firsthand how tough and transformative
- 0:33Speaker 2: this journey can be. Let's dive in and discover how
- 0:36Speaker 2: to raise regulated, resilient, beautifully complex kids together. Oh and
- 0:41Speaker 2: if you want more support, join our free community at
- 0:45Speaker 2: hub dot beautifully complex dot life. Hello parents and educators
- 0:54Speaker 2: and caring adults. I am so glad that you're here
- 0:57Speaker 2: with us today. I have with me Andrea Jones to
- 1:00Speaker 2: talk about parent health, like parent physical health when we
- 1:05Speaker 2: have constant caregiving stress, because it can have a huge
- 1:12Speaker 2: impact on our physical health, and I think it's something
- 1:15Speaker 2: that needs to be on parent radar, But also we
- 1:18Speaker 2: need strategies. How do we maybe circumvent some of this,
- 1:22Speaker 2: How do we prevent some of it from happening. So, Andrew,
- 1:26Speaker 2: will you start by introducing yourself to the audience and
- 1:28Speaker 2: then we'll jump into our topic.
- 1:31Speaker 1: Absolutely well, I'm Andrea Jones. I am a registered nurse,
- 1:35Speaker 1: functional health practitioner, and a parent of a child with
- 1:39Speaker 1: special needs. So I actually spent the first fifteen years
- 1:42Speaker 1: of my career working in inpatient pediatrics, so I got
- 1:46Speaker 1: to see firsthand how childhood illness really impacts families, both
- 1:51Speaker 1: acute illness and chronic illness. And it wasn't really until
- 1:57Speaker 1: I had my own experience with that as a being
- 2:00Speaker 1: on the parent side of things that I really started
- 2:02Speaker 1: to understand like, Okay, like we're no longer in an
- 2:06Speaker 1: acute stress situation, Like this is now a marathon, this
- 2:11Speaker 1: is not a sprint, and I have to start to
- 2:13Speaker 1: think about this differently. So I think my clinical experience,
- 2:18Speaker 1: my professional experience, did inform me because I was listening
- 2:22Speaker 1: to parents a lot, you know, of what they were
- 2:24Speaker 1: going through. You know, as nurses were not just supporting
- 2:28Speaker 1: the child, We're supporting the whole family in that setting.
- 2:31Speaker 1: But it really it's like reading a book about a
- 2:34Speaker 1: subject and then living the subject, right, those are two
- 2:37Speaker 1: different learning experiences. But I really do feel like that
- 2:41Speaker 1: experience helped kind of shape how I started to think
- 2:45Speaker 1: about taking care of myself because for many years, especially
- 2:50Speaker 1: you know, when my daughter was first diagnosed with pandas
- 2:53Speaker 1: I would say, the first three years after that, it
- 2:56Speaker 1: was extremely high stress. And you know, when you're in
- 3:01Speaker 1: that situation, it feels like nothing I do is going
- 3:04Speaker 1: to make a difference because it doesn't change the stressors, right, right,
- 3:08Speaker 1: And so I found myself getting stuck in that thought
- 3:11Speaker 1: loop a lot of like does it matter, Like it's
- 3:13Speaker 1: not really making an impact, until I realized I had
- 3:16Speaker 1: no choice but to do something different. So that's a
- 3:19Speaker 1: little bit about my background what we're talking about today.
- 3:23Speaker 2: Yeah, and I'm so glad that you said we can't
- 3:26Speaker 2: change the stressor, but we can change our response to
- 3:33Speaker 2: the stressor. We can change what we do for ourselves
- 3:36Speaker 2: under that stress, right, absolutely. Yeah, And so let's start
- 3:42Speaker 2: with sort of defining what we mean by chronic caregiving stress.
- 3:48Speaker 2: What does that look and feel like?
- 3:51Speaker 1: Yeah, it looks and feels distinctly different, and the research
- 3:54Speaker 1: does differentiate that from like an acute stressor. So an
- 3:58Speaker 1: acute stressor is a very short lived you know, maybe
- 4:01Speaker 1: it's a few days to a few weeks of an
- 4:04Speaker 1: illness or a.
- 4:05Speaker 3: Behavioral issue or what.
- 4:07Speaker 1: You know, a kid goes in for surgery for a
- 4:09Speaker 1: broken leg and they have to learn how to walk
- 4:12Speaker 1: with a cast. Again, that's an acute stressor, but doesn't
- 4:15Speaker 1: have a lifelong impact In most cases. A chronic stressor
- 4:20Speaker 1: is long term, tends to be life changing, meaning like
- 4:24Speaker 1: I can look back at her diagnosis and say, absolutely,
- 4:28Speaker 1: beyond a shadow of a doubt, everything in our life
- 4:31Speaker 1: changed from that point, how we functioned as a family,
- 4:34Speaker 1: how that changed my ability to work, Like there were
- 4:37Speaker 1: multiple layers of stressors, right, And I think that's the
- 4:41Speaker 1: other important piece to this. With chronic stress it's never
- 4:44Speaker 1: just one stressor. It's multiple layers of stressors, which I'm
- 4:48Speaker 1: sure you've you know, you've talked about too. But a
- 4:51Speaker 1: chronic stressor is long term, and therefore we have to
- 4:55Speaker 1: think about strategies differently because any of us can door
- 5:00Speaker 1: a short term stressor, because we know in the back
- 5:03Speaker 1: of our head, three weeks from now, the doctor said,
- 5:05Speaker 1: we get the cast off and life gets to go
- 5:07Speaker 1: back to normal.
- 5:08Speaker 3: Right.
- 5:09Speaker 1: But many of us that maybe are parenting differently wired
- 5:12Speaker 1: children or children with a chronic illness or you know,
- 5:15Speaker 1: a behavioral or whatever diagnosis. We don't have an end
- 5:20Speaker 1: date right to when that stress might be. And I
- 5:22Speaker 1: think that's without diving into what the research defines as
- 5:27Speaker 1: chronic versus acute. That's how I would describe it. There
- 5:30Speaker 1: is maybe no end in sight. And that changes how
- 5:34Speaker 1: we think about our stress too.
- 5:36Speaker 2: I when you say multiple layers, like, I'm thinking about
- 5:39Speaker 2: our own stress of the parenting that we want, the
- 5:43Speaker 2: childhood that we want to create for our kids, then
- 5:45Speaker 2: the stress of the way society says we should parent.
- 5:48Speaker 2: Then the stress of the school saying well, your kid
- 5:50Speaker 2: has to get here, they have to behave in this
- 5:52Speaker 2: certain manner, they have to perform, you know, to this
- 5:56Speaker 2: certain level. Right, And that's just three aspect. There's so
- 6:00Speaker 2: many more, so, right and be really this like just
- 6:05Speaker 2: layer upon layer upon layer of stressors coming at us. Right,
- 6:10Speaker 2: how do we then reduce the impact. I don't know
- 6:14Speaker 2: how to say it, like, right, how do we keep
- 6:16Speaker 2: it from affecting our physical health? And what does that
- 6:21Speaker 2: even look like? I don't know if you want to
- 6:22Speaker 2: start with prevention or if you want to start with
- 6:24Speaker 2: what it looks like if we don't go down the
- 6:26Speaker 2: path of prevention. I'll leave that up to you. But
- 6:30Speaker 2: that's where my brain is going.
- 6:32Speaker 1: Yeah, and I think so many of us. You know,
- 6:35Speaker 1: I thought I was doing fine until I wasn't right.
- 6:38Speaker 1: And because I have a pretty strong internal I have
- 6:42Speaker 1: a lot of internal strength, I would say to me,
- 6:45Speaker 1: and so I just there were a lot of signs
- 6:47Speaker 1: that I ignored in myself.
- 6:48Speaker 3: And I think that's very very common.
- 6:50Speaker 1: I know, at least you know the parents that I
- 6:52Speaker 1: talk to, it's very common we ignore those little blinking
- 6:57Speaker 1: lights on our dashboard that are saying like, hey, I'm
- 6:59Speaker 1: not really doing well right, and we'll talk about what
- 7:02Speaker 1: those are. But for me, I thought I was doing
- 7:05Speaker 1: well till I wasn't. And then it was like every
- 7:08Speaker 1: little thing felt like too much right. And then I realized, like, oh,
- 7:13Speaker 1: I have gone beyond like what a normal like, well
- 7:17Speaker 1: beyond what a normal capacity should be. And now I
- 7:21Speaker 1: really have to start looking at why am I not
- 7:24Speaker 1: resourcing myself? Because it wasn't necessarily a matter of I
- 7:28Speaker 1: can't resource myself, but I had some pretty strong part
- 7:32Speaker 1: of that internal strength in me is a little bit
- 7:34Speaker 1: fiercely independent, not wanting to ask for help, because maybe
- 7:39Speaker 1: you've experienced shame in that area, right, Like maybe you
- 7:43Speaker 1: have in laws that don't understand you, or they don't
- 7:45Speaker 1: understand what's happening with your kids, so they're not going
- 7:48Speaker 1: to step in and help. Maybe you are tapped out
- 7:51Speaker 1: of financial resources, right, and so that prevents you from
- 7:54Speaker 1: or it feels like a very legitimate obstacle, right. So
- 7:58Speaker 1: for me, I very much learned the hard way of
- 8:01Speaker 1: like massive burnout that showed up as you know, lots
- 8:06Speaker 1: of physical health issues. My gut was a mess, my
- 8:08Speaker 1: hormones went whack a doodle crazy, which could have been
- 8:12Speaker 1: a little bit of perimenopause, could have been probably the
- 8:15Speaker 1: combination of both, and I just fell apart, like my
- 8:17Speaker 1: whole body was just like yeah, girl, we're done, Like
- 8:19Speaker 1: you can't keep going at this rate. So now I'm
- 8:23Speaker 1: a lot more strategic with myself, and I'm a lot
- 8:26Speaker 1: more strategic with parents and helping them to identify what's
- 8:31Speaker 1: the one thing you can do today It may not
- 8:34Speaker 1: feel like enough, Like we're not trying to eat the
- 8:37Speaker 1: whole elephant in a day.
- 8:38Speaker 3: Right.
- 8:38Speaker 1: It's the metaphor is how do you eat an elephant
- 8:41Speaker 1: one bite at a time. Terrible metaphor, I know, but
- 8:43Speaker 1: like it gets the picture across, right, it does.
- 8:46Speaker 3: And so what's the.
- 8:47Speaker 1: One thing that I can do today? And for me,
- 8:50Speaker 1: that meant really kind of getting over myself for lack
- 8:53Speaker 1: of a better word, and learning to ask for help
- 8:56Speaker 1: and learning to advocate for myself in a different way.
- 9:00Speaker 1: Doing some of the things that I felt like felt
- 9:03Speaker 1: like privileges almost, like moving finances around to go to therapy, right,
- 9:08Speaker 1: or making sure that I was going for walks every
- 9:10Speaker 1: day or three times a week so that I got
- 9:13Speaker 1: breaks from my child, right. Those felt like luxuries and
- 9:17Speaker 1: I had to learn that they actually were not luxuries,
- 9:20Speaker 1: like they were lifelines. And so yeah, so I learned
- 9:23Speaker 1: the hard way, and now I'm a lot more strategic
- 9:25Speaker 1: about preventing because I've experienced the extreme end of that
- 9:30Speaker 1: burnout state, right of having difficulty getting out of bed
- 9:34Speaker 1: in the morning and having no energy for anything, and
- 9:38Speaker 1: a lot of health issues that came from that.
- 9:40Speaker 3: Yeah.
- 9:41Speaker 2: Yeah, I was struggling for a while with my health
- 9:45Speaker 2: and it took I think it was three years and
- 9:49Speaker 2: seven doctors to get a diagnosis of fibromyalgia. And the
- 9:56Speaker 2: way that we finally figured it out was every time
- 9:59Speaker 2: there was this stressor, like a big stressor I was
- 10:02Speaker 2: in pain. Yeah, it, but it helped me to recognize
- 10:08Speaker 2: how important self care is and that self care isn't
- 10:12Speaker 2: like taking a vacation or getting a massage. Self care
- 10:18Speaker 2: is being able to manage stressors without them tearing us apart. Absolutely, yes,
- 10:26Speaker 2: And that is a totally different picture than what we're
- 10:30Speaker 2: typically talking about when we talk about self care exactly.
- 10:33Speaker 2: And so I think this conversation is so so important
- 10:36Speaker 2: because there are all sorts of different physical things. Do
- 10:40Speaker 2: you want to name some of the more common physical ailments,
- 10:45Speaker 2: I'll call them, for lack of a better word, Yeah,
- 10:47Speaker 2: that can come from chronic stress.
- 10:50Speaker 1: Absolutely, I would say for women, but obviously mothers, especially
- 10:55Speaker 1: difficulty sleeping. That is a big sign that your stress system,
- 11:00Speaker 1: your nervous system is disregulated, because we digest our day
- 11:06Speaker 1: while we're sleeping, not just literally but emotionally as well,
- 11:10Speaker 1: and so we don't recognize that we're you know how
- 11:14Speaker 1: I spent my day, meaning I didn't eat regular meals, right,
- 11:17Speaker 1: even if it was a snack of protein, right, I
- 11:21Speaker 1: didn't get enough water in. That's going to spill into
- 11:25Speaker 1: your nighttime. Right. And so a lot of times women
- 11:27Speaker 1: will come to me like what supplement should I take
- 11:29Speaker 1: for sleep? And my first question is what does your
- 11:32Speaker 1: day look like? And they get confused because they're like, wait,
- 11:35Speaker 1: I asked you, like, what supplement I should take for sleep?
- 11:38Speaker 1: I'm like, well, I got to know some things first, right. So,
- 11:41Speaker 1: sleep disregulation is a big one. Waking up that three
- 11:44Speaker 1: am heart racing, like feeling sweaty, kind of panicky feeling
- 11:50Speaker 1: that's not usually just anxiety. Usually that's also a cortisol
- 11:54Speaker 1: slash blood sugar dysregulation issue. Fatigue that's another big one
- 11:59Speaker 1: where you because you're not sleeping well, you wake up
- 12:03Speaker 1: not feeling rested, and then by two or three in
- 12:05Speaker 1: the afternoon you are completely done for right, which is
- 12:08Speaker 1: like when your kids are getting home from school and
- 12:10Speaker 1: their second wave of intensity is hitting, right, So it's
- 12:15Speaker 1: like the worst time you've got to be on and
- 12:18Speaker 1: you can't be because you're exhausted. And that's when you know,
- 12:21Speaker 1: we feel guilty because we're snapping or we're irritable, and
- 12:25Speaker 1: it's because our body is sending up these cues. Digestive
- 12:29Speaker 1: issues is another really really big one. I see a
- 12:32Speaker 1: lot of women with heartburn, reflux, bloating in gas, constipation.
- 12:37Speaker 1: Those are really common signs that you may not think
- 12:40Speaker 1: are connected, but they absolutely are connected to you know,
- 12:43Speaker 1: if you are in stress, your digestive system, because of
- 12:47Speaker 1: how it's connected to the vagus nerve, is going to
- 12:51Speaker 1: be the first thing that's impacted. And I know for me,
- 12:55Speaker 1: like I ignored a lot of signs of digestive issues
- 12:58Speaker 1: not until it was too late. It wasn't too late,
- 13:01Speaker 1: but it was like it took so much work to
- 13:03Speaker 1: come back from that, and that was just you know,
- 13:06Speaker 1: I was like, yeah, that was seven years of the
- 13:08Speaker 1: most intense stress I've ever had in my life. And
- 13:11Speaker 1: so I would say those are the three big ones.
- 13:15Speaker 1: There are some subtle things that we can see on
- 13:18Speaker 1: blood work too that can tell us, you know, that
- 13:20Speaker 1: somebody is really living in more of a chronic state
- 13:22Speaker 1: of fight or flight, but symptom presentation wise, those are
- 13:25Speaker 1: I would say the big three.
- 13:28Speaker 2: And can it also affect things like our cardiac health
- 13:32Speaker 2: or things like that. Let's talk some about cortisol. Yeah,
- 13:37Speaker 2: because we see the term cortisol all over the place
- 13:40Speaker 2: now and I think it's really important to understand what
- 13:43Speaker 2: cortisol is what role it's playing so that we know
- 13:49Speaker 2: what to do with this information that we're getting, yeah,
- 13:52Speaker 2: or that we're hearing like little snippets.
- 13:54Speaker 3: Right. Yeah.
- 13:55Speaker 1: So cortisol is it's a hormone produced by your adrenal gland,
- 13:59Speaker 1: so just sits right on top of your kidneys. There
- 14:01Speaker 1: are these two little walnut shaped organs that just sit
- 14:04Speaker 1: right on the top of your kidneys and their job
- 14:08Speaker 1: is to I mean, if you think about cortisol, it's
- 14:10Speaker 1: a very energizing hormone. It's what controls when you wake up,
- 14:14Speaker 1: how you wake up, what your energy peak and dip
- 14:17Speaker 1: is throughout the day. It's also you know, if you
- 14:20Speaker 1: think of the extreme end of that, it's you know,
- 14:23Speaker 1: if you are being chased by a bear, that is
- 14:26Speaker 1: what gives you the energy to outrun the bear when
- 14:28Speaker 1: you physiologically should not be able to. So so many
- 14:32Speaker 1: of us without our own consent, right, we've been thrown
- 14:35Speaker 1: into this world of special needs parenting or parenting a
- 14:39Speaker 1: child with difficulties. You're in a caregiver role now that
- 14:42Speaker 1: you didn't sign up for. And that's what allows us
- 14:45Speaker 1: to step into that place and survive the initial stages, right.
- 14:49Speaker 1: But then what happens after that, If we don't ever
- 14:52Speaker 1: come out of that chronic release of cortisol where the
- 14:56Speaker 1: body's like, we're in survival mode. We've got to keep
- 14:59Speaker 1: releasing this energy because she needs it to survive. If
- 15:03Speaker 1: we don't ever come out of that, then what happens
- 15:05Speaker 1: is we specifically for women, the pattern I see the
- 15:09Speaker 1: most often is not high cortisol. It's low, like you've
- 15:12Speaker 1: bottomed out completely. The symptoms look very similar, which is
- 15:17Speaker 1: why blood work and you're intestine can be really helpful
- 15:19Speaker 1: to help us identify like are we in a high
- 15:21Speaker 1: pattern or a low pattern, because that changes how we
- 15:24Speaker 1: treat the symptoms. This is what I had seen anecdotally
- 15:28Speaker 1: in my practice over the last seven years, was like
- 15:31Speaker 1: everybody's bottomed out in their cortisol, and yet they think
- 15:34Speaker 1: they have high cortisol because the symptoms kind of mirror
- 15:38Speaker 1: each other. But that's what the research shows. The research
- 15:41Speaker 1: shows that caregiver stress that burnout looks different physiologically. It
- 15:47Speaker 1: tends to not be high cortisol. It tends to be low.
- 15:50Speaker 1: But then what happens is paradoxical, meaning that you're in
- 15:55Speaker 1: that low cortisol state and then because you're low, your
- 15:59Speaker 1: body will you use its last resources to dump out more,
- 16:04Speaker 1: and so you'll have these like spurts of high cortisol,
- 16:06Speaker 1: which is that three am wake up, right, that's like
- 16:09Speaker 1: your heart's racing very much. Can mimic cardiovascular changes. This
- 16:13Speaker 1: is why women a lot of times end up in
- 16:15Speaker 1: the er thinking they're having a heart attack when they're not.
- 16:18Speaker 1: It's a panic attack, but it's driven by cortisol. Right.
- 16:22Speaker 1: So it is complex. If it sounds overwhelming, that's because
- 16:26Speaker 1: it is that complex and it is very nuanced. But
- 16:30Speaker 1: I would say for most caregivers, the pattern that I
- 16:32Speaker 1: see is that low cortisol because you've been so depleted
- 16:37Speaker 1: for such a long time, and so understanding that does
- 16:40Speaker 1: actually help us to know where we need to start
- 16:43Speaker 1: in helping somebody to regain some function of their adrenal
- 16:47Speaker 1: glands and keeping their cortisol from wigging out all of
- 16:51Speaker 1: the time. For lack of a better word, I was like,
- 16:53Speaker 1: the I had the worst cortisol dumps. Oh my god,
- 16:56Speaker 1: it was awful, And so I'm like, I don't ever
- 16:58Speaker 1: want to go to that place ever again. Yeah, if
- 17:01Speaker 1: that means I have to slow down a lot, then
- 17:03Speaker 1: I will because that's miserable.
- 17:19Speaker 2: I'm having a hard time wrapping my brain around cortosol
- 17:23Speaker 2: being low when you have chronic stress. Yep, what am
- 17:28Speaker 2: I missing? Like I feel like, wouldn't it be dumping
- 17:32Speaker 2: cortosol constantly right and would not make it high?
- 17:37Speaker 1: You would think so, And it is confusing, And I
- 17:40Speaker 1: wish I had like a graph to visually show people,
- 17:43Speaker 1: because it does make more sense when you see it
- 17:46Speaker 1: kind of in a pattern. We all have a baseline
- 17:50Speaker 1: cortisol production that we should be in, right, like this
- 17:53Speaker 1: medium range if you think about it like this For
- 17:55Speaker 1: those of you that are watching, and I'm just kind
- 17:57Speaker 1: of making a graph with my hand, it's very rudimentary,
- 17:59Speaker 1: not exciting at all. We all should be within this range.
- 18:03Speaker 1: But when your cortisol, when you have this bucket of
- 18:07Speaker 1: cortisol that your body can tap into because it requires resources, right,
- 18:11Speaker 1: it requires nutrients to make that hormone in the body,
- 18:15Speaker 1: b vitamins, zinc, magnesium, glucose, all of that's needed to
- 18:20Speaker 1: be able to produce cortisol. Well. When we're under stressed,
- 18:23Speaker 1: we're typically under eating or we're eating foods that aren't
- 18:26Speaker 1: super nourishing because we're stressed right, and so then we're
- 18:30Speaker 1: not getting those nutrients to be adrenal glands to then
- 18:34Speaker 1: be able to produce adequate amounts of cortisol. So what
- 18:38Speaker 1: I typically see is more like a flatline. When we
- 18:42Speaker 1: actually do the testing, we'll just see a flat line
- 18:44Speaker 1: where there's not a whole lot of cortisol production throughout
- 18:47Speaker 1: the day at all, but there will be like a
- 18:48Speaker 1: little bump at three o'clock in the morning where it's like, Hey,
- 18:51Speaker 1: we're just gonna shoot this woman awake and make her
- 18:54Speaker 1: lay in bed sweating and feeling miserable for an hour.
- 18:57Speaker 1: And so it is paradox and it is confusing, which
- 19:02Speaker 1: is why I definitely recommend, especially for women over the
- 19:05Speaker 1: age of thirty five, if you're experiencing those symptoms, don't
- 19:09Speaker 1: assume that it's high cortisol. It very likely, and I
- 19:13Speaker 1: would say most likely would be more of a low
- 19:16Speaker 1: cortisol picture, which requires a very different approach to resolving that.
- 19:21Speaker 2: Wow, gotcha, and what does that affect? Like, I know
- 19:26Speaker 2: that every chemical in the body doesn't just do one thing.
- 19:29Speaker 2: It affects other things as well. So are there like
- 19:32Speaker 2: symptoms that parents could see in themselves that might be
- 19:38Speaker 2: identifying that they have low or high cortosol that that
- 19:43Speaker 2: system is sort of out of whack.
- 19:45Speaker 3: Yeah.
- 19:45Speaker 1: Absolutely, I would say it does range there. I would
- 19:49Speaker 1: say well over fifty different symptoms that somebody could experience.
- 19:53Speaker 1: Some people experience it like shaking, like that angry feeling
- 19:57Speaker 1: when you get when your blood sugar is low. That's
- 19:59Speaker 1: because cortisol coming in to rescue the low blood sugar,
- 20:02Speaker 1: so that like shaky, jittery feeling. It can feel like
- 20:06Speaker 1: passing out, like that right before you pass out feeling
- 20:09Speaker 1: where you're like a little bit woozy. That's some cortisol dysregulation.
- 20:15Speaker 1: I do have some clients that experience like dry throat
- 20:18Speaker 1: where their their throat feels really parched and dry. They'll
- 20:21Speaker 1: feel that like sensation to gulp. A lot a lot
- 20:25Speaker 1: of people do experience like abdominal tightness where they just
- 20:28Speaker 1: feel jittery, stressed, tight in their belly. That's a big one.
- 20:32Speaker 1: And then when we have those symptoms continue to grow,
- 20:36Speaker 1: that will start to see like physical appearance changes. So
- 20:39Speaker 1: we might notice puffiness in our hands or our face
- 20:42Speaker 1: because we're retaining water to help dilute that cortisol. There's
- 20:46Speaker 1: you know a physiologic response to that weight gain around
- 20:49Speaker 1: the belly. That's a very common one for women. I
- 20:52Speaker 1: mean it's hard to differentiate that from like what's perimenopause,
- 20:55Speaker 1: what's cortisol, But they go.
- 20:57Speaker 3: Hand in hand, right, we all overlap.
- 20:59Speaker 1: Yeah, they do us, right, But there is some physical
- 21:02Speaker 1: appearance changes for a lot of women. It can range
- 21:07Speaker 1: from you know, anxiety, heart palpitations, racing thoughts that like
- 21:12Speaker 1: racing thought you know, your brain just won't shut up,
- 21:15Speaker 1: to just feeling very flat and fatigued. So there are
- 21:19Speaker 1: you know, if you were to google high cortisol symptoms,
- 21:22Speaker 1: you would get a long list, which is why testing
- 21:25Speaker 1: can be helpful in helping us identify what pattern exactly
- 21:29Speaker 1: are we looking at and what system are we looking
- 21:32Speaker 1: at because court is all it's I think about it
- 21:35Speaker 1: like a rescue hormone. Its job is to provide us
- 21:38Speaker 1: the quick energy that we need to rescue us from
- 21:42Speaker 1: a stressor right. But when we live in that state
- 21:44Speaker 1: all the time, it actually can become quite toxic to
- 21:47Speaker 1: the body. And that's where we start to see that
- 21:50Speaker 1: chronic impact on all of the systems.
- 21:54Speaker 2: Yeah, what else do we need to know about chronic
- 21:57Speaker 2: stress and our physical health.
- 21:59Speaker 3: Oh gosh, what else do we need to know?
- 22:02Speaker 2: Many things? I'm sure many things.
- 22:03Speaker 3: Yeah.
- 22:04Speaker 1: I think what I would say is kind of going
- 22:07Speaker 1: back to what you were saying about self care. I
- 22:09Speaker 1: used to like it felt like a four letter word
- 22:11Speaker 1: to me, Like if I hear one more person tell
- 22:14Speaker 1: how much I need to take care of myself? Okay,
- 22:16Speaker 1: well are you going to come over and clean my house?
- 22:18Speaker 1: Because my kid was having a meltdown for five hours? Like,
- 22:21Speaker 1: you know, It's like it just felt like this, like
- 22:24Speaker 1: how do we even you know? I think the reality
- 22:28Speaker 1: is that when you are a caregiver, regardless of the circumstances,
- 22:33Speaker 1: when you're not getting to parent your child the way
- 22:37Speaker 1: that you would if they were not struggling whatever, that
- 22:40Speaker 1: struggle looks like, the burden for you is greater, which
- 22:44Speaker 1: means that you have to change the way you think
- 22:46Speaker 1: about your life and your stressors.
- 22:49Speaker 3: That means that I.
- 22:50Speaker 1: Have to create some sort of room in my life
- 22:54Speaker 1: to manage that and create windows or margins or buffers.
- 22:59Speaker 1: I don't have the option not to like that. That
- 23:01Speaker 1: is the thing I tell parents all the time. You
- 23:03Speaker 1: have to flip how you think about this. This is
- 23:06Speaker 1: no longer a when my child is better, I can
- 23:09Speaker 1: x Y and Z or I will eat better, I
- 23:12Speaker 1: will take care of myself. It means we have to
- 23:14Speaker 1: do something about it now before this becomes a bigger problem.
- 23:19Speaker 1: And I remember one day I just kind of decided.
- 23:22Speaker 1: And this might sound mean unless you have a child,
- 23:26Speaker 1: like a child that struggles.
- 23:27Speaker 3: Like mine, you'll understand.
- 23:29Speaker 1: She used to have the worst, like sensory meltdowns around food,
- 23:33Speaker 1: which was like, you're supposed to rest and digest when
- 23:36Speaker 1: you're eating, right, Like rest and digest. Okay, well, it's
- 23:38Speaker 1: really hard to rest and digest when your kid is
- 23:40Speaker 1: screaming in your face while you're trying to, you know,
- 23:42Speaker 1: eat a meal. And so I just decided one day
- 23:45Speaker 1: I was going to let her throw the fit, and
- 23:47Speaker 1: I was going to eat my meal, and I was
- 23:49Speaker 1: going to reassure her I'm right here, I'm not going anywhere,
- 23:52Speaker 1: but I do need to eat my food, because what
- 23:54Speaker 1: I was doing was I was skipping meals because they
- 23:57Speaker 1: were so stressful. And then you know, kind of not
- 24:01Speaker 1: not clinically binging, but basically like binging later because I
- 24:05Speaker 1: was so hungry, and that was creating, you know, just
- 24:09Speaker 1: a lot of issues in my body. And so the
- 24:11Speaker 1: reason I'm sharing that with you is that sometimes we
- 24:13Speaker 1: have to do extreme things because our situation is more extreme.
- 24:18Speaker 1: It's not the average, right, And so that means that
- 24:22Speaker 1: I have to create boundaries internally and externally to manage that.
- 24:26Speaker 1: And so I think that's what I would say is
- 24:28Speaker 1: the chronic stress is not going to go away until
- 24:31Speaker 1: we learn how to manage this differently. And that looks
- 24:33Speaker 1: like resourcing ourselves, you know, advocating for help for us
- 24:38Speaker 1: just as much as we're advocating for help for our
- 24:40Speaker 1: child in all of the avenues that we're doing that
- 24:43Speaker 1: with their doctors, their teachers, their friends. Right, how many of.
- 24:47Speaker 3: Us are actually doing that for ourselves? Not many, And we.
- 24:51Speaker 1: Don't think about that as being you know, two or
- 24:53Speaker 1: three pretty significant layers to burn out, right, is that
- 24:57Speaker 1: we're outsourcing all of this, all of us to help
- 25:00Speaker 1: our child, and we're forgetting that we also need that
- 25:03Speaker 1: help to mm hm.
- 25:05Speaker 2: And I think mental health is also a big layer
- 25:09Speaker 2: absolute that will affect our physical health. I know, for
- 25:12Speaker 2: me figuring out how to manage my stress, like I
- 25:16Speaker 2: kept going to all these doctors and they kept saying,
- 25:17Speaker 2: all your tests are fine, and you know, you just
- 25:20Speaker 2: need to reduce your stress. That's what they would to
- 25:23Speaker 2: reduce your stress. And I'm like, how am I going
- 25:26Speaker 2: to do that? Like, I you know, I didn't understand
- 25:29Speaker 2: that I could work on my mindset, I could work
- 25:31Speaker 2: on my own anxiety. I could work on things that
- 25:35Speaker 2: would affect the way that I felt about the stressors, yes,
- 25:40Speaker 2: so that maybe they wouldn't stress me as much. Like
- 25:43Speaker 2: the example that you gave with your daughter and saying, Okay,
- 25:48Speaker 2: this is our reality right now that sensory issues, sensory
- 25:53Speaker 2: struggles are going to make meal time really difficult for her,
- 25:58Speaker 2: But I still need to eat and I can't engage
- 26:01Speaker 2: in that sort of intensity with her. And that's stress management, right, Like,
- 26:08Speaker 2: that's what we need to but that's also working on our
- 26:11Speaker 2: own mental health. We have to get to a place
- 26:14Speaker 2: where we can accept that it's okay to do that,
- 26:17Speaker 2: that we can actually really live it. Because I could say, well,
- 26:22Speaker 2: I'm just going to let this thing happen because it's
- 26:24Speaker 2: going to happen anyway. I'm going to take care of myself.
- 26:26Speaker 2: I could still really be stressing internally. You know, there's
- 26:30Speaker 2: more to it that we really have to work on.
- 26:33Speaker 2: But I think that mental health piece is a huge
- 26:36Speaker 2: part of our physical health, and we tend to separate
- 26:40Speaker 2: them too much. So I just wanted to add that
- 26:43Speaker 2: layer to you because for me, it was really I
- 26:46Speaker 2: had to figure out my mindset to manage my stress.
- 26:50Speaker 2: That was the only thing I was going to be
- 26:51Speaker 2: able to do successfully to reduce the stress as they
- 26:55Speaker 2: were telling me to do. And it took me years
- 26:58Speaker 2: to figure that out. I don't tell you that part, right,
- 27:01Speaker 2: you know, to send you away and say you're fine,
- 27:04Speaker 2: reduce your stress, something like, yeah, okay, you're not helping.
- 27:07Speaker 1: Well, what does that look like in this situation? And
- 27:10Speaker 1: it is so different for you know, I would say
- 27:13Speaker 1: from family to family, but even family member to family member, right, Like,
- 27:18Speaker 1: there was a period of time where my daughter did
- 27:21Speaker 1: so much better just eating her food in her room.
- 27:24Speaker 1: And if I had held so firmly to this belief
- 27:29Speaker 1: that families eat together and that's how health happens, which
- 27:34Speaker 1: is kind of how I was raised, right, I think
- 27:37Speaker 1: is wonderful, right, and now we do get to eat
- 27:39Speaker 1: family meals together, But there was a period of time
- 27:42Speaker 1: where that was costing me so much more. In this
- 27:46Speaker 1: you know stress area than it was to just let
- 27:50Speaker 1: her eat in her room and like, come, come and
- 27:52Speaker 1: join us when you're ready. You know, we're here if
- 27:55Speaker 1: you need us. You're being well fed, she's being well
- 27:57Speaker 1: cared for. Nobody's being neglected. Everybody gets to eat a
- 28:00Speaker 1: meal in peace. That is the goal, right. So, but
- 28:04Speaker 1: it did mean shifting my mindset, and that is you know,
- 28:08Speaker 1: I think that's where we struggle a lot and not
- 28:10Speaker 1: even realizing maybe where our mental health is being impacted,
- 28:15Speaker 1: because it feels so in so many areas it's being impacted. Right.
- 28:20Speaker 1: It's financial, it's emotional, it's in your marriage relationship, it's
- 28:24Speaker 1: in your relationship with your other children and how they're
- 28:26Speaker 1: being impacted by what's happening.
- 28:28Speaker 3: In the family.
- 28:29Speaker 1: And so that's what feels unescapable. But I think you
- 28:33Speaker 1: nailed it with the I can work on myself. I
- 28:36Speaker 1: can go to therapy. I can work on how I
- 28:39Speaker 1: think about these things. I can work on how I
- 28:41Speaker 1: process these things. I can go for a five minute walk.
- 28:45Speaker 1: I can yank weeds in the yard and throw them
- 28:49Speaker 1: somewhere to get my anger out, you know, like any
- 28:53Speaker 1: of those things are appropriate stress management, and it goes beyond.
- 28:58Speaker 3: Like you said, just manage your stress.
- 29:00Speaker 1: Okay, Well, if I had a magic wand and I
- 29:02Speaker 1: could just get rid of my stress, yeah, we'd have
- 29:05Speaker 1: done that. I would have figured that out already. I'm
- 29:07Speaker 1: not you know, none of us are unintelligent here. So yeah, yeah,
- 29:12Speaker 1: you nailed.
- 29:13Speaker 3: It with that.
- 29:13Speaker 2: And there's just a separation like I'm going to MDS
- 29:18Speaker 2: for my physical wellness. Yes, and they never suggested maybe
- 29:23Speaker 2: you should speak to a therapist. Maybe there's you know,
- 29:27Speaker 2: other components.
- 29:28Speaker 1: Now.
- 29:28Speaker 2: I probably would have felt like I was being gaslighted
- 29:30Speaker 2: if they had just said talk to a therapist, because
- 29:33Speaker 2: I would have felt like they were saying it was
- 29:35Speaker 2: all in my head. But yes, they weren't connecting that
- 29:41Speaker 2: for me, and so it was really difficult to get
- 29:44Speaker 2: there on my own. I know there's so much more
- 29:46Speaker 2: that people can learn from you, Andrea. We have barely
- 29:49Speaker 2: scratched the surface of this conversation. Where can they find
- 29:52Speaker 2: you online so that they can connect and learn more?
- 29:55Speaker 1: Yes, so I hope we get to chat more. This
- 29:57Speaker 1: was a really fun conversation of places you can find me.
- 30:01Speaker 1: I'm on Instagram. My handle is at abundant Wellness with Andrea.
- 30:05Speaker 1: I also have a private channel on there just for
- 30:09Speaker 1: parents of special needs kids, where we have you know,
- 30:11Speaker 1: different conversations in there that are really enriching. I would
- 30:14Speaker 1: say that's probably the easiest place to find me. You
- 30:17Speaker 1: can certainly shoot me an email. It's Andrea at Abundant
- 30:21Speaker 1: Wellness with Andrea dot com. I'm also on YouTube, but
- 30:24Speaker 1: it's kind of just a longer conversation of what I
- 30:28Speaker 1: share on Instagram. So however you want to find me
- 30:31Speaker 1: all all three of those places are good, and.
- 30:34Speaker 2: I'll link everything up in the show notes for folks too,
- 30:36Speaker 2: which is at PARENTINGADHD and autism dot com. Thank you
- 30:40Speaker 2: for being here, Thank you for being real with Thanks
- 30:43Speaker 2: for having me this experience, because I think it's so
- 30:46Speaker 2: important that we are speaking the truth for parents and
- 30:51Speaker 2: not sugarcoating it and not saying, you know, if you
- 30:54Speaker 2: just change your diet and it will all be great,
- 30:56Speaker 2: or if you just exercise more everything, I'll be fine, right,
- 30:59Speaker 2: Like yeah, getting to the real nitty gritty of it
- 31:03Speaker 2: and that acceptance that it is more of a struggle,
- 31:07Speaker 2: so I really appreciate that.
- 31:08Speaker 3: Well, thank you, Penny, thank you for having me.
- 31:10Speaker 2: Of course I will see everybody next time, take good care.
- 31:15Speaker 2: I see you. You're doing hard and meaningful work, and
- 31:19Speaker 2: you don't have to do it alone. If you found
- 31:21Speaker 2: this episode helpful, share it with someone who needs it
- 31:24Speaker 2: and leave a quick review so others can find this
- 31:27Speaker 2: support too. When you're ready for next steps, the Regulated
- 31:31Speaker 2: Kids Project is here with the tools, coaching, and community
- 31:36Speaker 2: to help you raise a more regulated, resilient child. Get
- 31:40Speaker 2: more info at regulated kids dot com