Latest / DA CREW Podcast / SEASON 2 DA CREW PODCAST_ EPISODE _182_ HOST LATONYA M LITTLEJOHN

Transcript

SEASON 2 DA CREW PODCAST_ EPISODE _182_ HOST LATONYA M LITTLEJOHN · DA CREW Podcast

• 0:30
  Speaker 1: A person Percy.
• 0:35
  Speaker 2: All things ain't what things do stupid?
• 0:40
  Speaker 3: Where did all.
• 0:41
  Speaker 2: The blue Sky's boys?
• 0:45
  Speaker 3: They blows from the north and sometimes.
• 0:53
  Speaker 2: Tony Nation every second Monday and four Friday of each monney.
• 0:59
  Speaker 3: This is see that you don't want to miss every
• 1:06
  Speaker 3: body the man don't even a gain you stand your.
• 1:13
  Speaker 4: Poor good evening, good evening, good evening.
• 3:42
  Speaker 1: Welcome to another episode of delay but not to deny
• 3:47
  Speaker 1: on the podcast.
• 3:48
  Speaker 3: Uh.
• 3:49
  Speaker 1: This is a very special near and dear to my
• 3:53
  Speaker 1: heart episode because today is World Spin a bod of
• 3:58
  Speaker 1: today and how Siphilist Day. The theme for this year
• 4:04
  Speaker 1: is bridging gaps together. The day was established in twenty
• 4:08
  Speaker 1: eleven to raise awareness and understanding of these conditions and
• 4:12
  Speaker 1: to promote.
• 4:13
  Speaker 3: The rights of people with them.
• 4:15
  Speaker 1: And here are some ways to participate with World's Finabiffita
• 4:20
  Speaker 1: and Hydrocephalist Day. You could share stories, encourage people with
• 4:25
  Speaker 1: finabiffiita or hydrocephalists to share their stories. You can donate
• 4:29
  Speaker 1: to organizations their fun research for the neural to depict
• 4:37
  Speaker 1: learn more about these birth defects and how to reduce
• 4:40
  Speaker 1: the risk of them. You can host events organized and
• 4:44
  Speaker 1: awareness Day at your school, workplace, or organization. You could
• 4:49
  Speaker 1: set up a display, create a display with photos, stories, brochures,
• 4:54
  Speaker 1: facts about spina biffida and hydrocephalists. You can also reach
• 4:58
  Speaker 1: out and connect with someone who has.
• 5:00
  Speaker 3: Fine diffit or hydrocephalus or both.
• 5:04
  Speaker 1: Encourage people to wear teal or yellow on these days.
• 5:11
  Speaker 1: Before I go any further, any further, I want to
• 5:15
  Speaker 1: send a great, big shout out to my sister in
• 5:18
  Speaker 1: laws Shanique Little John, my brother in law Maurice Little
• 5:22
  Speaker 1: John from Unique Creations for these beautiful spin off the shirts.
• 5:29
  Speaker 1: I don't know if you can see. I'm trying to
• 5:32
  Speaker 1: give came whatp There we go and it has my
• 5:38
  Speaker 1: name on the back, So I'm not gonna do all that,
• 5:40
  Speaker 1: but thank you all for creating these beautiful shirts for us. Also,
• 5:50
  Speaker 1: I want to go to God in prayer because.
• 5:51
  Speaker 3: Who today is today like never before.
• 5:54
  Speaker 1: But Heavenly Father, we come to you right now asking
• 5:57
  Speaker 1: you to be in the midst of the conversation, asking.
• 6:00
  Speaker 4: You to.
• 6:02
  Speaker 3: Let the hearers hear what is needed to be heard tonight.
• 6:06
  Speaker 1: Let us speak firmly, accurately about what it is that
• 6:10
  Speaker 1: we're dealing with, that we're living with, and because of you,
• 6:14
  Speaker 1: we're stead fast and still moving through. I asked all
• 6:18
  Speaker 1: of these prayers in Jesus' name. I prayer Amen, Hi, notedge.
• 6:26
  Speaker 3: Hi.
• 6:26
  Speaker 2: Then I'm well, I'm well.
• 6:31
  Speaker 3: Praise God.
• 6:32
  Speaker 2: We're here. We look we together, you know how we
• 6:34
  Speaker 2: do well?
• 6:37
  Speaker 3: Listen.
• 6:38
  Speaker 1: So we both have had some crazy to go on.
• 6:45
  Speaker 1: You with the hydrocephalus part, meet me with the spider
• 6:50
  Speaker 1: bit of the part, and we both got both.
• 6:54
  Speaker 3: But if you don't mind sharing with us, what happened.
• 7:01
  Speaker 1: To lead you to have to have surgery was like
• 7:06
  Speaker 1: two months ago?
• 7:08
  Speaker 2: Uh, like three months ago, like July? Okay, July, it
• 7:13
  Speaker 2: was three months on the eighteenth. Yeah, So what led
• 7:17
  Speaker 2: me to it? Well, it was really kind of strange
• 7:20
  Speaker 2: how it occurred, because it was nothing but God. I
• 7:24
  Speaker 2: had just separated from my husband and was living with
• 7:28
  Speaker 2: my cousin and I was fine for six months. Nothing.
• 7:33
  Speaker 2: I moved, she gets me into my own spot, and
• 7:36
  Speaker 2: it's like a month later. I started feeling sick and
• 7:40
  Speaker 2: I stopped growing up. But I thought it was something
• 7:42
  Speaker 2: I ate because I didn't have the regular shunk symptoms
• 7:45
  Speaker 2: that I usually have where the mind grains and the fever.
• 7:49
  Speaker 2: I didn't have any of that, so I thought it
• 7:50
  Speaker 2: was a stomach bug, but I still didn't feel good.
• 7:53
  Speaker 2: So when I called her, she was like, all right, well,
• 7:55
  Speaker 2: I'm on my way, and I said, I'll leave the
• 7:57
  Speaker 2: door open and she said okay. So she came in
• 8:00
  Speaker 2: and I was in the bathroom and she was just
• 8:01
  Speaker 2: like you okay, and I was like, na, I'm gonna
• 8:03
  Speaker 2: have to go to hospital. So she called emergency, you know.
• 8:05
  Speaker 2: The ambulance was like, you got to come get her. She
• 8:07
  Speaker 2: got a VP shunt, you know, da da da da dad,
• 8:10
  Speaker 2: You need to come get her now. Took me to
• 8:12
  Speaker 2: the hospital the eoch you know. Of course they knew
• 8:15
  Speaker 2: I had the VP shunt cause she let it be know.
• 8:17
  Speaker 2: And they did all the basic proceeds they usually do.
• 8:20
  Speaker 2: They do the x ray, the CT and the er
• 8:24
  Speaker 2: doctor comes to me and says, it looks like you
• 8:26
  Speaker 2: have a kink. I'm like, I know that's not a
• 8:28
  Speaker 2: kink because I pretty much know my body and I
• 8:30
  Speaker 2: know what a kick response to. So it turned out
• 8:34
  Speaker 2: to be that he said that, you know, it will
• 8:38
  Speaker 2: transfer you over to your neurosurgeon. Well, I stayed overnight
• 8:42
  Speaker 2: at the emergency room and then transfer me over. So
• 8:44
  Speaker 2: my cousin was like, no, we come and get you
• 8:46
  Speaker 2: going back home, and we'll go next week. So I
• 8:48
  Speaker 2: made an appointment next week to see my neurosurgeon. And
• 8:51
  Speaker 2: when I got there, he was like, what you doing there?
• 8:53
  Speaker 2: And I was like, uh, that's it. So he's like, okay.
• 8:56
  Speaker 2: So he did all he did, all the tests, the
• 8:59
  Speaker 2: check in my eye for the fluid, you know, just
• 9:02
  Speaker 2: normal test that they do looking for the shunt. So
• 9:05
  Speaker 2: he said, well, what happened? And I told him the
• 9:07
  Speaker 2: story and he said okay. So he looked back at
• 9:10
  Speaker 2: the x rays because the hospitals were connected, and he said,
• 9:14
  Speaker 2: what did the EO doctor say? He said he said,
• 9:16
  Speaker 2: I said. He said I had a kink and I said, damn,
• 9:19
  Speaker 2: he said a kink. I said yeah. He said he
• 9:21
  Speaker 2: don't know what this is. But I said, I know.
• 9:23
  Speaker 2: That's why I'm staying here with you. I know you
• 9:24
  Speaker 2: know what you're talking about. So he said, all right, well,
• 9:27
  Speaker 2: let's look at the X rays again, and he saw,
• 9:30
  Speaker 2: like right in the lining of my neck, the shunt
• 9:34
  Speaker 2: has split in half, like if you cut a straw
• 9:37
  Speaker 2: in half. That's how we looked in the xt ray.
• 9:40
  Speaker 2: So he said, most people can live with this for five,
• 9:45
  Speaker 2: ten more years. He said, but I've known you longer,
• 9:48
  Speaker 2: so we're getting this fixed now. Now, mind you, this
• 9:52
  Speaker 2: last shunt was in my head for over thirty years,
• 9:55
  Speaker 2: and it's not supposed to be in your head no
• 9:56
  Speaker 2: more than fifteen. Bless God right there in itself. Yeah yeah, I've.
• 10:03
  Speaker 1: Had mine for forty five, no revisions.
• 10:06
  Speaker 2: God got gotta be God.
• 10:12
  Speaker 1: Because I didn't get the upkeep that I needed. And girl,
• 10:20
  Speaker 1: the headaches are.
• 10:22
  Speaker 2: Yeah, yeah, yeah, that's how I know that. That's how
• 10:27
  Speaker 2: I know that didn't have the average shunt issue because
• 10:30
  Speaker 2: I didn't have the headaches. With a headache deadly, I mean,
• 10:34
  Speaker 2: you don't want to look at light, you don't want
• 10:35
  Speaker 2: to deal with nobody, you don't want to sound. It's
• 10:38
  Speaker 2: that bad. So I knew something else had to be wrong.
• 10:41
  Speaker 2: And the only reason why I knew was something was
• 10:42
  Speaker 2: wrong because my blood pressure was elevated. That's the only
• 10:46
  Speaker 2: major maker symptoms that I knew something wasn't right. And
• 10:50
  Speaker 2: I knew it had to be my shun because I
• 10:52
  Speaker 2: never had high blood pressure. It's in my DNA, I mean,
• 10:55
  Speaker 2: my genetics to have it, but I've never had it,
• 10:58
  Speaker 2: So I knew something was off. And that's when I
• 11:01
  Speaker 2: knew it was the shunt. When they fixed the shunt,
• 11:03
  Speaker 2: my blood pressure went back down to where it need
• 11:06
  Speaker 2: to be. So it was a shunt. But when you
• 11:08
  Speaker 2: know your body, you know your body, so something nobody
• 11:11
  Speaker 2: can't tell you what your body's gonna do. You know
• 11:14
  Speaker 2: what I'm saying, You know, you know, you know.
• 11:17
  Speaker 1: For the last I'm gonna say four days. I had
• 11:22
  Speaker 1: my hair all.
• 11:23
  Speaker 3: Cute and up, and.
• 11:27
  Speaker 1: It was cute, and so I started feeling pressure and
• 11:31
  Speaker 1: I was like, mhm, let me.
• 11:34
  Speaker 3: Go ahead and take this down because it ain't working working.
• 11:38
  Speaker 3: I took it down. I was still feeling the pain,
• 11:43
  Speaker 3: like on this my head.
• 11:45
  Speaker 2: And so.
• 11:47
  Speaker 1: You know me, I'm stubborn. I don't like doctors. They
• 11:51
  Speaker 1: don't like me, evidently because I wound up going to
• 11:56
  Speaker 1: the hospital two days ago.
• 11:59
  Speaker 3: M hm.
• 12:01
  Speaker 1: They were so packed that they had me in the
• 12:04
  Speaker 1: hall for six hours, which is because everybody's business was
• 12:13
  Speaker 1: everybody's business, yeah, just no, yeah, no. Privacy hippo was
• 12:23
  Speaker 1: out the window because lady in front of me, older
• 12:29
  Speaker 1: lady being in cat right in front of me. Hey god,
• 12:34
  Speaker 1: I couldn't see anything because her head was, you know, blocking.
• 12:39
  Speaker 1: But the fact of we got doctors and nurses walking
• 12:43
  Speaker 1: up and down the hall, no privacy curtain.
• 12:47
  Speaker 3: Nothing, And so.
• 12:52
  Speaker 1: They took blood, told me if I was stealing a
• 12:55
  Speaker 1: lobby an hour after that they would take more blood.
• 12:59
  Speaker 1: They did that, and then they wound up taking me
• 13:04
  Speaker 1: to the hallway and they did a ur analysis and
• 13:12
  Speaker 1: I had already told them I knew that it was
• 13:15
  Speaker 1: a U t I, because.
• 13:19
  Speaker 3: Yeah, I'm gonna get a U T I if I
• 13:22
  Speaker 3: don't get nothing else.
• 13:24
  Speaker 1: And so, yeah, I'm in pain, hurting and begging for
• 13:32
  Speaker 1: something to relieve my pain.
• 13:35
  Speaker 3: And they gave me a shot and it didn't do.
• 13:41
  Speaker 1: Anything, and so they wound up giving me some medicine.
• 13:48
  Speaker 1: And so when my son came to pick me up,
• 13:54
  Speaker 1: I was a hot, sweaty miss. I had called you,
• 13:57
  Speaker 1: but I was hot.
• 13:59
  Speaker 3: I mean menopause. I am in that that stage of
• 14:06
  Speaker 3: life has not hit me first, in my opinion.
• 14:15
  Speaker 2: Yeah, And so basically.
• 14:19
  Speaker 3: What I wanted to talk about was just.
• 14:24
  Speaker 1: I know I'm a little more open than you are
• 14:27
  Speaker 1: with the whole spina bild of thing.
• 14:29
  Speaker 3: So you know, I'm.
• 14:31
  Speaker 2: I'm getting there with me.
• 14:35
  Speaker 1: But it's just I want people to understand, you know,
• 14:39
  Speaker 1: we're no different from everybody else, have to go about
• 14:44
  Speaker 1: things in a different manner. But you know, we we
• 14:49
  Speaker 1: wake up, we go to sleep, just like anybody.
• 14:51
  Speaker 2: Else, and you know, exactly exactly put.
• 14:55
  Speaker 3: In front of the other, just like everybody else.
• 14:59
  Speaker 1: Find a b It is known as the snowflake disorder
• 15:02
  Speaker 1: because no two people have it the same exactly we
• 15:07
  Speaker 1: have the same exactly.
• 15:10
  Speaker 3: One. I'm not gonna bother trying to pronounce it. Mm
• 15:15
  Speaker 3: hmmm do that.
• 15:17
  Speaker 2: And I wouldn't. I would have, but I'm not either.
• 15:21
  Speaker 3: People like that.
• 15:22
  Speaker 1: But when the thing comes in is you're in a wheelchair,
• 15:28
  Speaker 1: and I'm considered able by it.
• 15:31
  Speaker 2: Mm hmmm.
• 15:34
  Speaker 3: So I know, you know, life looks a little different
• 15:36
  Speaker 3: for you than it does for me.
• 15:40
  Speaker 1: But then sometimes everything is like all the same because
• 15:44
  Speaker 1: you know, I'm on the po when you go to
• 15:47
  Speaker 1: the mailbox and to the trash can, and you when
• 15:52
  Speaker 1: I go to the mailbox and trash and yeah, I.
• 15:57
  Speaker 3: Pass out, But I'm grateful. I'm learning to.
• 16:04
  Speaker 1: Accept things for what they are. However, however, I do stink.
• 16:11
  Speaker 1: I do have mustard see faith. I do believe that
• 16:15
  Speaker 1: God can heal me from spina biff and still use
• 16:20
  Speaker 1: me to speak on what I've gone through. So you know,
• 16:27
  Speaker 1: a lot of people think that you're healing has to
• 16:30
  Speaker 1: happen in heaven. If he could make a blind man see,
• 16:34
  Speaker 1: surely he can make definitely have to go through the
• 16:39
  Speaker 1: stuff that I go through.
• 16:41
  Speaker 2: Definitely definitely.
• 16:43
  Speaker 3: So I mean, I guess it's just how you work
• 16:46
  Speaker 3: your faith.
• 16:48
  Speaker 1: Yeah, and you know what you believe in, who you believe,
• 16:54
  Speaker 1: and you know not you know, your God may not
• 16:58
  Speaker 1: be my guide, but.
• 17:00
  Speaker 2: But I got it the same dot.
• 17:04
  Speaker 3: Just as long as you believe in him because he
• 17:06
  Speaker 3: believes in you.
• 17:07
  Speaker 2: Yeah, ye, that.
• 17:11
  Speaker 3: A change can come about.
• 17:14
  Speaker 2: Exactly.
• 17:16
  Speaker 1: It was so much more that I wanted to say,
• 17:20
  Speaker 1: let's talk about these little stinking cathators.
• 17:23
  Speaker 3: So I was gonna bring one it. I was gonna have.
• 17:31
  Speaker 2: This is my show and tail now.
• 17:35
  Speaker 3: The people like that.
• 17:36
  Speaker 1: But there are different kind of catheters that and women
• 17:44
  Speaker 1: have to use in order to empty our bladders. The
• 17:51
  Speaker 1: ones that I carry around looked like little tampas, so
• 17:55
  Speaker 1: nobody knows that I have them unless I'm just like, hey,
• 17:59
  Speaker 1: look what I have. But you know, I don't do that.
• 18:03
  Speaker 1: But there are some people.
• 18:05
  Speaker 3: That have, like the bag that they give you, like
• 18:09
  Speaker 3: in the hospital or whatever.
• 18:11
  Speaker 1: Yeah, yeah, you know, there's so many different ways that
• 18:17
  Speaker 1: it can be done.
• 18:18
  Speaker 3: And exactly my heart goes out to the men that
• 18:22
  Speaker 3: have to deal with.
• 18:22
  Speaker 2: It, because God bless them, blest thing. It ain't fine
• 18:28
  Speaker 2: for us. Mm hmmm mm hmmm.
• 18:34
  Speaker 3: It's so much they could be said about spin. Yeah,
• 18:39
  Speaker 3: and I am like sick as a dog. And you
• 18:42
  Speaker 3: probably can see it all in my face, which.
• 18:45
  Speaker 2: You look fine, you look you're pushing through. God is
• 18:48
  Speaker 2: usually regardless, pushing regardless.
• 18:51
  Speaker 3: Yeah, chest still hurts.
• 18:56
  Speaker 1: The Lovely Lord hospital sent me home with one hundred
• 18:59
  Speaker 1: and three degree temperature.
• 19:02
  Speaker 2: That's ridiculous.
• 19:04
  Speaker 3: I've been but God, I've been happy.
• 19:08
  Speaker 2: Yeah, wat.
• 19:11
  Speaker 3: All because fiction like and the same about it for
• 19:18
  Speaker 3: me is no matter how much.
• 19:20
  Speaker 1: Water I drink, I can drink it, drink the well dry.
• 19:27
  Speaker 2: It's gonna get one. Yeah. Yeah, we just prone to it.
• 19:30
  Speaker 2: We just prone to it regardless. It's like we can
• 19:32
  Speaker 2: do just about everything possible. I mean, all I do
• 19:35
  Speaker 2: is mostly cranberry juice and water, you know, so we
• 19:39
  Speaker 2: can do everything possibly and it still will be like
• 19:42
  Speaker 2: not you have a UCS, Like seriously, what do I
• 19:45
  Speaker 2: need to do? So Yeah, it's one of those things
• 19:49
  Speaker 2: that we can't really fight it, but we just got
• 19:52
  Speaker 2: to push through it. It is what it is.
• 19:55
  Speaker 1: I feel like spin has stolen a lot from me,
• 20:02
  Speaker 1: one being my ability to feel when I have to
• 20:06
  Speaker 1: go to the restroom.
• 20:08
  Speaker 2: And.
• 20:12
  Speaker 1: The calcium D and well, the calcium deficiency and the
• 20:17
  Speaker 1: vitamin D deficiency which caused me to lose my teeth.
• 20:21
  Speaker 1: It's it's just so much related to it that it's
• 20:31
  Speaker 1: easy for a person to fall into a space.
• 20:36
  Speaker 3: Of why me, Oh yeah, and you know you know that.
• 20:45
  Speaker 2: Yeah.
• 20:46
  Speaker 1: Sometimes, but I don't know why me?
• 20:50
  Speaker 2: Sometimes you may not know it all the time, but
• 20:53
  Speaker 2: I don't know why. I mean as well, it's.
• 20:58
  Speaker 3: Something that we go through.
• 21:00
  Speaker 1: I do understand you gotta go through and to get
• 21:03
  Speaker 1: through it.
• 21:03
  Speaker 3: So you know, I'm still standing as.
• 21:09
  Speaker 2: God is using that. God is using this to show
• 21:12
  Speaker 2: people that you and all. I mean. I'm not saying
• 21:15
  Speaker 2: that we need people to feel bad about us, we
• 21:17
  Speaker 2: need people to feel down, because tru I believe my
• 21:19
  Speaker 2: life is still good. I'm still happy most most times.
• 21:23
  Speaker 2: But it also shows you that you need to be
• 21:27
  Speaker 2: thankful because it could have been the other way. Not
• 21:30
  Speaker 2: saying that, you know what I'm saying, This is a
• 21:32
  Speaker 2: punishment or anything to that those times. But we would
• 21:35
  Speaker 2: give anything. Most of us would give anything to work,
• 21:39
  Speaker 2: to be able, to be able body, to be able
• 21:41
  Speaker 2: to run jump, you know what I'm saying. We would
• 21:43
  Speaker 2: give anything to do that. But God didn't see that
• 21:46
  Speaker 2: for us. And the thing about it is that most
• 21:49
  Speaker 2: people don't realize this. God don't see us like this.
• 21:52
  Speaker 2: Man sees us this way. God sees us completely, whole,
• 21:56
  Speaker 2: completely made completely his children. We are his daughter.
• 22:01
  Speaker 3: I didn't learn that until I became an adult.
• 22:05
  Speaker 2: Yeah, me too.
• 22:07
  Speaker 3: Going to school getting picked on.
• 22:11
  Speaker 1: Yeah, and I could not see what it was that
• 22:15
  Speaker 1: they I mean, they were all like mock the way
• 22:17
  Speaker 1: that I walked and stuff, and.
• 22:18
  Speaker 3: I'm like, I don't.
• 22:22
  Speaker 2: Yeah, yeah, I walked like that. So h Yeah.
• 22:25
  Speaker 1: But my son's aunt got married and she asked me
• 22:31
  Speaker 1: to be a bridesmaid.
• 22:34
  Speaker 3: Mm hmm.
• 22:36
  Speaker 1: After they got back from their honeymoon, we watched the
• 22:40
  Speaker 1: wedding on the WHO And that's the first time I
• 22:45
  Speaker 1: ever noticed wow. Wow to be in a room full.
• 22:51
  Speaker 3: Of adults and have one person say why he was
• 22:57
  Speaker 3: walking like that? He was walking like.
• 22:58
  Speaker 2: He was tired, my lord, my lord, look like.
• 23:08
  Speaker 3: Get offensive, I do, And I'm you know, God is
• 23:11
  Speaker 3: working on me, but.
• 23:12
  Speaker 1: I I don't understand for the life of me why
• 23:18
  Speaker 1: people choose to tear other people down, as if they
• 23:24
  Speaker 1: don't already deal with enough.
• 23:28
  Speaker 2: Some people are just ignorant, know no better.
• 23:33
  Speaker 3: I quit school.
• 23:36
  Speaker 1: Because I was getting picked on, I was being bullied,
• 23:47
  Speaker 1: and I just told my mama, I'm not going back.
• 23:50
  Speaker 3: Do what you want to.
• 23:52
  Speaker 1: I mean putting me out, send me wherever I'm not
• 23:56
  Speaker 1: going back because I know that that is going to
• 23:59
  Speaker 1: be back.
• 24:00
  Speaker 2: So yeah, you know that.
• 24:05
  Speaker 3: And so you know what I had when he started school.
• 24:12
  Speaker 1: My mind frame was because I know I wasn't the
• 24:15
  Speaker 1: only teenage parent. So I'm like, these people they picked
• 24:19
  Speaker 1: on me got kids, and if they bother you at school,
• 24:24
  Speaker 1: I need.
• 24:24
  Speaker 3: You to say something to your teacher so that they
• 24:28
  Speaker 3: can say something to me.
• 24:30
  Speaker 1: And I made it clear, Look, you coming to school to.
• 24:35
  Speaker 3: Learn, make here and there, and come on. I don't
• 24:41
  Speaker 3: need nobody calling me telling me you did X, Y
• 24:44
  Speaker 3: and Z and none of that stuff.
• 24:48
  Speaker 1: Being a teenage mom was hard because, for one doctor
• 24:52
  Speaker 1: said I would never have kids because.
• 24:54
  Speaker 4: Of his friend.
• 24:56
  Speaker 1: Yeah, imagine my shot When my mom was like you,
• 25:00
  Speaker 1: I think you're pregnant.
• 25:02
  Speaker 3: I was like, I think that job is overworking you lady.
• 25:06
  Speaker 3: And so.
• 25:08
  Speaker 1: I found that out, and she came home from work
• 25:10
  Speaker 1: the next morning with a pregnancy test and I was like,
• 25:14
  Speaker 1: you pregnant and she was like, no, but I think
• 25:16
  Speaker 1: you are.
• 25:17
  Speaker 3: And I was like.
• 25:20
  Speaker 1: And the lines came up, and immediately I started laughing
• 25:26
  Speaker 1: because I felt like it was a prank.
• 25:27
  Speaker 3: I thought it was one of those little.
• 25:29
  Speaker 1: Faith fess or whatever, because you got to know my
• 25:35
  Speaker 1: mama to understand why I think the way that I do.
• 25:42
  Speaker 3: So you know, I.
• 25:43
  Speaker 1: Really did not believe that I was pregnant up until.
• 25:50
  Speaker 3: Maybe thirty eight weeks because I didn't gain weight. Oh wow,
• 25:56
  Speaker 3: I didn't gain weight and.
• 26:00
  Speaker 1: The feeling of him moving felt like what it feels
• 26:05
  Speaker 1: like when you're hungry.
• 26:06
  Speaker 2: So wow, okay, yeah, I didn't.
• 26:12
  Speaker 1: Well, let me take that back. I did gain weight,
• 26:16
  Speaker 1: but it wasn't in my stomach. I went from one
• 26:19
  Speaker 1: hundred and forty pounds to two oh five at.
• 26:23
  Speaker 3: The end of my pregnancy.
• 26:25
  Speaker 2: Wow.
• 26:26
  Speaker 1: Yeah, and his little self came out at six pounds.
• 26:33
  Speaker 1: But I say all of that to say, you know,
• 26:37
  Speaker 1: doctors only can tell people what they're taught.
• 26:43
  Speaker 2: Yeah, untimely.
• 26:45
  Speaker 1: Ultimately, at the end of the day, it is God
• 26:48
  Speaker 1: who wakes us up. Is God tells us.
• 26:53
  Speaker 3: What today is going to be.
• 26:55
  Speaker 1: And that's just what it is. I meant, just get
• 27:00
  Speaker 1: it wrong all the time. I was supposed to be
• 27:02
  Speaker 1: out of here by nine years old. I'm about to
• 27:05
  Speaker 1: be forty six in January. Yeah, you know, so I
• 27:14
  Speaker 1: I'm blessed. Oftentimes I do sit in the y me
• 27:20
  Speaker 1: why do I have to go through what I go through?
• 27:23
  Speaker 1: And you know, just having to because some of the
• 27:27
  Speaker 1: stuff that you know, as a person living with finda
• 27:29
  Speaker 1: different and how your self was.
• 27:32
  Speaker 2: It ain't normal.
• 27:33
  Speaker 3: I mean, no matter how you spend it, it's not normal.
• 27:37
  Speaker 3: It's our normal, but it's not.
• 27:39
  Speaker 2: Yeah, it's not normal normal.
• 27:42
  Speaker 1: Right, and you know, from one day to the next,
• 27:48
  Speaker 1: you don't know what's gonna happen.
• 27:49
  Speaker 3: So you see, just waiting for the shoot ball, like.
• 27:54
  Speaker 2: Left that part that part. Yeah, yeah, definitely, I'm.
• 28:00
  Speaker 3: Shoot if I get this little surgery done with this inner.
• 28:02
  Speaker 2: Stem, yeah, blessed Lord.
• 28:06
  Speaker 1: Yeah, that would be like a game changer for me
• 28:14
  Speaker 1: because I know that it's been a game changer for
• 28:17
  Speaker 1: a lot of other people.
• 28:18
  Speaker 2: So yeah, you know, I'm just yeah, my slink procedure
• 28:25
  Speaker 2: was a game changer for me because be your whole
• 28:28
  Speaker 2: life leaking m and then for the doctor to say,
• 28:33
  Speaker 2: oh no, we can fix that, well, please fix it.
• 28:37
  Speaker 2: But this was as I was maybe in my early thirties,
• 28:42
  Speaker 2: so you're talking about thirty plus years of dealing with
• 28:45
  Speaker 2: that type of thing. So I get it. It's like,
• 28:48
  Speaker 2: please fix it. Yeah, and it's definitely different for me.
• 28:51
  Speaker 2: I am thankful for that. Yeah, So I listen, I
• 28:55
  Speaker 2: know what you're talking about, and I'm praying that that
• 28:58
  Speaker 2: I can, you know, have that done for you. So
• 29:00
  Speaker 2: it is a game change. It changes your whole attitude,
• 29:04
  Speaker 2: your whole perspective. You know, everything is not gonna be perfect. No,
• 29:07
  Speaker 2: it's not gonna perfect here, but it changes the way
• 29:10
  Speaker 2: you you move and you think of yourself in the
• 29:14
  Speaker 2: way you might look at yourself, you know. So yeah,
• 29:17
  Speaker 2: it's a lot.
• 29:18
  Speaker 1: I mean it has definitely played on my my psyche
• 29:22
  Speaker 1: for a while.
• 29:24
  Speaker 3: Mm hmm, feeling worthy.
• 29:28
  Speaker 2: Get that.
• 29:29
  Speaker 3: I've had people to tell me you know you won't have.
• 29:35
  Speaker 1: Because and yeah, you know, once you hear those things,
• 29:41
  Speaker 1: you start telling yourself those things.
• 29:43
  Speaker 2: And most definitely start.
• 29:45
  Speaker 3: To manifest and mm hmm. Then you right there where
• 29:50
  Speaker 3: they said you would be.
• 29:51
  Speaker 1: But yeah, and that's something that I'm I'm I'm dealing with,
• 29:57
  Speaker 1: trying to work through, pray through, right through is these abandonments. Yeah,
• 30:08
  Speaker 1: I feel like if I didn't have final diffidence, I
• 30:11
  Speaker 1: wouldn't have had to been put up or adoption.
• 30:14
  Speaker 2: And I think that too, And.
• 30:16
  Speaker 1: I feel like I could have grown up with at
• 30:21
  Speaker 1: least two of my siblings. My daddy a little delulu,
• 30:25
  Speaker 1: So we're not gonna We're gonna pray for him. But girl,
• 30:33
  Speaker 1: I mean, you know, the fact of the matter is,
• 30:39
  Speaker 1: you know, knowing that my mom was a teenager with
• 30:43
  Speaker 1: her own disability when she had and having me with
• 30:49
  Speaker 1: the partner that she chose, and he didn't want to help.
• 30:53
  Speaker 3: So you know, I've.
• 30:55
  Speaker 1: Had this man tell me to my face, I gave
• 30:58
  Speaker 1: you a mama money for the boys.
• 31:01
  Speaker 3: Well, sir, I am here, here, here.
• 31:03
  Speaker 2: I am in the hello exactly.
• 31:07
  Speaker 3: I'm sorry she spent your money doing something else. Not
• 31:11
  Speaker 3: my fault.
• 31:13
  Speaker 2: But but then if you didn't have this and we
• 31:16
  Speaker 2: didn't have this, then we probably wouldn't know each other. Now,
• 31:21
  Speaker 2: I don't think I don't know exactly how God does that.
• 31:27
  Speaker 1: It is like that though, because I I like talking
• 31:32
  Speaker 1: to people, I'll say that I can't be a little
• 31:37
  Speaker 1: standoffish around people that I don't know.
• 31:42
  Speaker 2: Yeah, and being that.
• 31:43
  Speaker 3: We've never seen each other in the flesh and have
• 31:47
  Speaker 3: been friends for seven years, it's just.
• 31:51
  Speaker 2: Felt like we're practiced twins.
• 31:55
  Speaker 3: But you know, it's just.
• 32:00
  Speaker 1: It's one of those things where it gets harder before
• 32:06
  Speaker 1: it gets easier.
• 32:07
  Speaker 2: Yeah, yeah, I saw I saw.
• 32:11
  Speaker 1: A post on Facebook the other day where a young
• 32:16
  Speaker 1: lady was talking about her cycle and talking about wearing.
• 32:24
  Speaker 3: The adult pull ups or what have you.
• 32:29
  Speaker 1: And because I know the young lady, I was like,
• 32:31
  Speaker 1: listen here, listen, y'all got too many options to do
• 32:37
  Speaker 1: then to come over here stepping in lane, trying to
• 32:43
  Speaker 1: get stuff shipped to the house, trying to get us
• 32:47
  Speaker 1: and y'all out here bout them and don't need them
• 32:49
  Speaker 1: just because of your cycle.
• 32:51
  Speaker 3: That is the.
• 32:53
  Speaker 2: That's not what that's for.
• 32:55
  Speaker 3: So you know, I mean, I used to be ashamed
• 33:01
  Speaker 3: of what I deal with, but.
• 33:06
  Speaker 1: I no longer walk in shame because I'm here with
• 33:12
  Speaker 1: the purpose for a purpose, on purpose. So you know
• 33:18
  Speaker 1: what that looks like, because I don't know what it
• 33:20
  Speaker 1: looks like right now, I'm.
• 33:23
  Speaker 3: Just happy to be able to wake.
• 33:27
  Speaker 1: Up from one day to the necks and put one
• 33:30
  Speaker 1: foot in front of the other and no matter how
• 33:33
  Speaker 1: bad it feels like my head right now feels like somebody.
• 33:37
  Speaker 3: Has a drill and just and it's my life.
• 33:45
  Speaker 1: Like there is not a drug created yet that can
• 33:52
  Speaker 1: take away the pain that I feel in my head,
• 33:55
  Speaker 1: and if there is, they haven't good it on the
• 33:58
  Speaker 1: market yet.
• 33:59
  Speaker 3: So yeah, but I feel like I've been talking a lot.
• 34:07
  Speaker 3: They're like, I did at you, but.
• 34:13
  Speaker 2: What are you trying.
• 34:19
  Speaker 3: Out of?
• 34:19
  Speaker 2: Rubbed off? That's all good, though, that's all good.
• 34:28
  Speaker 3: I'm grateful. I'm grateful of how we connected.
• 34:34
  Speaker 1: And you know, even like watching Trevida's show last night
• 34:37
  Speaker 1: seeing her link up with somebody that has gone.
• 34:45
  Speaker 2: Yeah, I was like, that's my best friend.
• 34:49
  Speaker 3: I'm about to lose my but.
• 34:52
  Speaker 1: To have somebody that can relate, there's a whole lot
• 34:57
  Speaker 1: about you know, you can talk to people more that
• 35:00
  Speaker 1: can relate to what you got going on.
• 35:02
  Speaker 2: First, Yeah, it doesn't exactly.
• 35:06
  Speaker 1: I can talk to her about spina beffata all day long,
• 35:08
  Speaker 1: as long as the day is blue, and she will
• 35:12
  Speaker 1: never understand what I did with and the same thing
• 35:15
  Speaker 1: with the Kiari malformation, and there's.
• 35:19
  Speaker 3: A very small.
• 35:23
  Speaker 1: Thing where it has something to do with spina. Bit
• 35:26
  Speaker 1: for the hydrophilis too, you know, just knowing she goes
• 35:32
  Speaker 1: through that and I don't know anything, no more than
• 35:37
  Speaker 1: you know what she shared with me or whatever.
• 35:39
  Speaker 3: Yeah, you know, I just I'm here. I'm here. Oh,
• 35:47
  Speaker 3: but I want to congratulate you, ma'am on panning your
• 35:52
  Speaker 3: first book.
• 35:55
  Speaker 2: That's nothing but right there, that a little push God
• 36:01
  Speaker 2: and you pushing. You're catching me at the right moment,
• 36:06
  Speaker 2: is what that was A guy that I got something
• 36:09
  Speaker 2: fu in. Oh, you're gonna come back on vacation feeling great.
• 36:13
  Speaker 2: Anya says, Oh, you want to do you want to
• 36:16
  Speaker 2: do this work with me? Cooked together.
• 36:21
  Speaker 1: I had talked to and the other young lady about
• 36:25
  Speaker 1: the book, and I said, but I need nadget to
• 36:29
  Speaker 1: do a book.
• 36:29
  Speaker 3: I said, do we got one? Okay, giddy, listen, I
• 36:35
  Speaker 3: need you.
• 36:39
  Speaker 2: But but thank you.
• 36:43
  Speaker 1: I believe that somebody's healing is connected to your story
• 36:47
  Speaker 1: mine as well. Yes, ma'am, I joke a lot, but
• 36:52
  Speaker 1: I do firmly believe that we all are here for
• 36:57
  Speaker 1: a purpose.
• 36:59
  Speaker 2: Yeah, you know, so I want some days you wonder, okay, Father,
• 37:05
  Speaker 2: well we're doing here today, what's happening? We were don't
• 37:11
  Speaker 2: But yeah, definitely I agree. It's a purpose and a
• 37:15
  Speaker 2: surroundment and reason for it all.
• 37:18
  Speaker 3: And we may never know what it is.
• 37:19
  Speaker 2: But mm hmmm. But the way I say this, Lord
• 37:23
  Speaker 2: use me. That's the baby, that's my nephew. There will
• 37:29
  Speaker 2: always be my baby, Yes it will.
• 37:33
  Speaker 3: So what do you have in store moving forward?
• 37:38
  Speaker 1: We know that you got this and coming out in
• 37:44
  Speaker 1: the next couple of weeks or so.
• 37:46
  Speaker 2: In the next couple of weeks or so, and then
• 37:48
  Speaker 2: I'm doing another one with you as well. Now, Father,
• 37:52
  Speaker 2: I don't know what he's doing with me, because this
• 37:55
  Speaker 2: is all like in the making. I have been talking
• 37:58
  Speaker 2: about doing some type of writing for for years and
• 38:00
  Speaker 2: then I'm like, no, I can't do this, and then
• 38:03
  Speaker 2: of course being married and you know, doing what I
• 38:05
  Speaker 2: needed to do as a wife at the time. So
• 38:09
  Speaker 2: it's like God pulled me away and said, Okay, this
• 38:12
  Speaker 2: is your time. Now, let's get to writing. Let's get
• 38:15
  Speaker 2: to doing it. Yeah okay, So and I'm honored. I'm honored,
• 38:20
  Speaker 2: and I'm excited because I actually get to see my
• 38:24
  Speaker 2: name on something and I don't have children, so I
• 38:27
  Speaker 2: actually get to leave a legacy somewhere and I'm just
• 38:30
  Speaker 2: like in awe of what God is doing and that
• 38:33
  Speaker 2: I am so excited, so excited, and I can do
• 38:36
  Speaker 2: it with my besty.
• 38:44
  Speaker 1: Do you see yourself continuing to write even after the
• 38:47
  Speaker 1: anthologies are done?
• 38:50
  Speaker 2: Yeah, I'm actually wanted to finish the book that's coming
• 38:54
  Speaker 2: out in a couple of weeks. I'm actually going to
• 38:56
  Speaker 2: continue my story. I want to continue my story. Looking
• 39:00
  Speaker 2: to do that hopefully soon. I mean, I'm planning on
• 39:03
  Speaker 2: working on that as we speak, so to speak. But yeah,
• 39:06
  Speaker 2: I want to. I want to do it while I
• 39:08
  Speaker 2: feel like doing it, and I know that if I don't,
• 39:11
  Speaker 2: I won't and that's just that's just me. Now, I'll
• 39:15
  Speaker 2: do it for others because I'm gonna push myself for others.
• 39:18
  Speaker 2: But if I'm pushing for myself, it's kind of hard
• 39:21
  Speaker 2: because I think, oh well, I do it all the time,
• 39:23
  Speaker 2: Oh well, because it's just me. But I really feel
• 39:26
  Speaker 2: like God is telling me it's time. It's time, so
• 39:29
  Speaker 2: I will be doing that.
• 39:31
  Speaker 3: The procrastination spirit hit me hard, like.
• 39:36
  Speaker 2: I'm trying not to let that hit me.
• 39:38
  Speaker 1: With my first heard of right, it right after my
• 39:42
  Speaker 1: biological mother past in twenty fourteen.
• 39:45
  Speaker 3: I didn't get it published to twenty eighteen, just because.
• 39:50
  Speaker 2: I don't I don't want to ready, Yeah, I don't
• 39:56
  Speaker 2: want to be that. I'm trying not to do that anyway.
• 39:58
  Speaker 2: I'm trying. I don't. I'm not gonna say I'm gonna
• 40:01
  Speaker 2: be perfect at it, but yeah, hopefully it'll be sometime
• 40:04
  Speaker 2: next year if nothing else.
• 40:06
  Speaker 1: Okay, yeah, yeah, well, ma'am, I would like to thank
• 40:12
  Speaker 1: you for spending this World Spin Off Day with me,
• 40:18
  Speaker 1: as we do.
• 40:18
  Speaker 2: It every year.
• 40:22
  Speaker 3: I would like to see.
• 40:27
  Speaker 1: South Carolina do one of the walks or what have
• 40:31
  Speaker 1: you that, like to go to another state that does
• 40:38
  Speaker 1: have the because the month of October has so much
• 40:46
  Speaker 1: weight on it with with wrist cancer awareness and domestic
• 40:52
  Speaker 1: awareness and you know a lot of people don't know,
• 40:56
  Speaker 1: you know about spina bifida and yeah hydro, I mean
• 41:03
  Speaker 1: is in September, but somehow it became a part of
• 41:07
  Speaker 1: today as well.
• 41:09
  Speaker 2: Yeah. Yeah, but.
• 41:13
  Speaker 3: Listen, I'm just grateful. Yeah you tell me, it always
• 41:18
  Speaker 3: have been worse.
• 41:21
  Speaker 1: Yeah, you know, dealing with this headache, like I feel
• 41:26
  Speaker 1: cross eyed, that's how bad.
• 41:28
  Speaker 3: My head right, now and.
• 41:32
  Speaker 2: Well, ma'am, you need to go rest.
• 41:33
  Speaker 3: And ma'am, that's all I've been doing.
• 41:37
  Speaker 1: I've turned into listen. I don't lay down so much.
• 41:41
  Speaker 1: I became a lay down like.
• 41:45
  Speaker 2: Your body is fighting, man, your body is fighting for
• 41:48
  Speaker 2: you have to let it rust. But you had so what.
• 41:52
  Speaker 3: It is fighting at this point. It's not.
• 42:01
  Speaker 2: But I hope you feel better. I hope you feel
• 42:03
  Speaker 2: better because I know this is not fun. It's not
• 42:05
  Speaker 2: fun at all. It's not.
• 42:08
  Speaker 1: Yeah, it's like over time when you get another one,
• 42:12
  Speaker 1: that's always worse than the one before.
• 42:15
  Speaker 2: Yeah that way, Yeah, one a month ago, a month ago. Yeah, yeah,
• 42:24
  Speaker 2: like I never left. Yeah, that's the life of the
• 42:31
  Speaker 2: for the.
• 42:32
  Speaker 3: The crazy thing is I went to my urologists and
• 42:35
  Speaker 3: they did in your analysis. It's good. That was last week.
• 42:45
  Speaker 2: I go to mine in a couple of weeks. So yeah,
• 42:50
  Speaker 2: mm hmm. Yeah.
• 42:53
  Speaker 1: You know, at this point, you know, it's it's just whatever.
• 42:58
  Speaker 1: As long as I don't give up the stone. That's
• 43:00
  Speaker 1: the only thing that keeps me going is the fact
• 43:02
  Speaker 1: that you you.
• 43:03
  Speaker 2: Were not gonna give up. I'm not gonna let that happen.
• 43:05
  Speaker 2: I won't fight you myself. Oh gay mat me come
• 43:08
  Speaker 2: to South Carolina. Don't make me do it.
• 43:11
  Speaker 3: You're gonna you're gonna have to look it for the book,
• 43:13
  Speaker 3: because man, it's hard.
• 43:17
  Speaker 2: It's yeah, I know it's enough.
• 43:21
  Speaker 3: I would like.
• 43:23
  Speaker 1: To light my skin and started getting hot. I would
• 43:26
  Speaker 1: like to thank you for coming and listen listening to
• 43:33
  Speaker 1: me blab about what we deal with.
• 43:38
  Speaker 2: You know, it was easier this time. It was easyer.
• 43:42
  Speaker 2: I didn't have to say much. Thank you hard.
• 43:47
  Speaker 1: He he knew you needed a risk because.
• 43:54
  Speaker 2: Everybody don't even know all that, they don't even.
• 43:59
  Speaker 3: Know what we do. But I.
• 44:02
  Speaker 1: But again, I would like to thank everybody for tuning
• 44:05
  Speaker 1: in to delay but not deny the podcast tonight. I
• 44:09
  Speaker 1: hope something that was said tonight is something that you
• 44:13
  Speaker 1: were able to receive, even if not for yourself, for
• 44:18
  Speaker 1: somebody you love. No matter where you are in life,
• 44:26
  Speaker 1: you may be delayed, but what's meant for you will
• 44:29
  Speaker 1: always find you, so you're never denied. So holding on
• 44:33
  Speaker 1: to that and holding on to your belief is what's
• 44:37
  Speaker 1: going to get you through And until next month, I'm
• 44:41
  Speaker 1: out of here. Thank y'all for coming out.
• 44:44
  Speaker 3: God bless you.
• 44:44
  Speaker 4: Good night, passssssssssssss