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Rare Disease Access Battle | Chico News
For families battling rare diseases, getting a diagnosis is just the beginning—often taking years and leaving them stranded in a bureaucratic maze that can delay life-saving treatments. In California, kids with rapidly worsening conditions face heartbreaking delays as insurance companies demand prior authorization and step therapy approvals, risking their ability to walk, breathe, or even attend school. One parent’s harrowing journey with an ultra-rare genetic disorder underscores the urgency—and the hope—that’s driving a new bill, Assembly Bill 1887, now awaiting Governor Newsom’s signature…
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