174: The Power of Consistency and Utilizing Data: Building Donor Relationships in a Small Community with Jennifer Coughlin
In this episode, we are joined by Jennifer Coughlin, who bravely opens up about her profound voyage through the challenges of raising a child grappling with a rare genetic condition. With only around 250 diagnosed cases worldwide, Jennifer's youngest daughter, Edith, faces a myriad of obstacles, including visual impairment, developmental delays, seizures, epilepsy, and intellectual disability.
Jennifer's life took a drastic turn when she received Edith's diagnosis, prompting her to leave her career at an investment bank to prioritize her daughter's care. Through this challenging transition…
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