30+ Years Without a Diagnosis, Until Now | Abbey and Zach Cook

My Hero 360 · Sep 17, 2025 · 28m

In this episode of My Hero 360, Kerri Fitzgerald speaks with two heroes—first, Abbey Cook, the mother of two sons who were misdiagnosed for years, and second, Zach Cook, one of her sons who was just recently diagnosed with the rare genetic condition cerebrotendinous xanthomatosis (CTX). The Cook family went years without a proper diagnosis, but a new FDA-approved treatment option, coupled with the correct diagnosis, has made a big impact on their life.

My Hero 360 would like to thank the CTX Alliance for their partnership on this interview.

Key Highlights:

Hear how it took the Cook family…