Hope Is Ineffective Without Action: Kristen Wheeden | The Human Algorithm by trialport

The Human Algorithm · Oct 30, 2026 · 27m

"Hope is ineffective without action." Kristen Wheeden, president of the United Porphyrias Association, joins The Human Algorithm to share how her son's diagnosis turned a career in business and public health into a calling.Kristen's son Brady was diagnosed at age four with erythropoietic protoporphyria (EPP), a rare condition where exposure to light causes excruciating pain. Kristen dove into the rare disease world, earned a doctorate in public health, and in 2022 helped launch the United Porphyrias Association. Today Brady is a senior in college. Kristen talks about his path from counting…