Latest / Beyond the Diagnosis: Duchenne Perspectives
Advocacy in Action: Highlighting PJ's Protocol
In today’s episode, we’re talking about Advocacy in Action, where lived experience meets meaningful change. In this episode, we’re joined by Brian Nicholoff, creator of PJ’s Protocol, and Rachel Shrader, Vice President of Clinical Care and Education at Parent Project Muscular Dystrophy.
Together, Brian and Rachel share how advocacy moves from personal experience to practical action—improving care, empowering families, and creating lasting impact across the Duchenne community. This is advocacy in action.
The skinny
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