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Yvette Holmes: Parenting Through Rare Diagnosis and Building Global Support for TBR1 Families
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In this episode of Complex Kids, Simple Solutions, Michelle welcomes Yvette Holmes, a devoted mother and rare disease advocate based in the Netherlands, whose son Jack was one of the first individuals diagnosed with the genetic disorder TBR1.
Yvette shares the emotional and isolating road that followed Jack’s diagnosis, and how that journey led her to create a powerful online community through the TBR1 Facebook group, now a global lifeline for families navigating similar rare paths.
Together, Michelle and Yvette talk about the challenges of raising a child with an ultra-rare…
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