Living with CHARGE Syndrome: Deafblindness, Guide Dogs & Thriving | Bethany Joy Boring

The Blind Chick · Jan 29, 2026 · 1h 5m

1) Episode Summary

Bethany Joy Boring joins Penn and Moses for a candid, funny, and deeply practical conversation about living with CHARGE syndrome, navigating combined vision + hearing loss, and the mindset shifts required to move from “proving yourself” to simply being yourself (as introduced in the recording you provided). Bethany shares her guide-dog journey (including the fear and stigma that delayed her cane use), how Toastmasters became her on-ramp to public speaking, and why she believes storytelling and community are essential to resilience. The episode also clarifies coaching vs…