Latest / The You Project / #1524 Premenstrual Dysphoric Disorder - Nikki Morrison
Transcript
- 0:00Speaker 1: I get a team. It's up. It's it's Nicole Morrison,
- 0:04Speaker 1: It's Tiffany and Cook, it's us, it's you. It's the
- 0:06Speaker 1: fucking new Project for the fifteen hundred and thirtieth time,
- 0:10Speaker 1: or something like that. Tippany an Cook over there with
- 0:13Speaker 1: the wrong promo behind her, as is always the way,
- 0:17Speaker 1: not representing the U Project at all, but some opposition podcast.
- 0:22Speaker 1: I will not even mention the name of Hi Tiv.
- 0:27Speaker 2: I'll be sure to snip out a visual promo from
- 0:29Speaker 2: this one then, if I've decked it out the right way. Really,
- 0:33Speaker 2: will you make hay while the sun shines?
- 0:36Speaker 1: Will you? I see what you're doing there using my
- 0:39Speaker 1: show to promote your show, Like, oh my god, did
- 0:43Speaker 1: I leave that up?
- 0:45Speaker 3: That happened? Oh?
- 0:47Speaker 1: How did that exactly? Nicole? You know what she's up to.
- 0:51Speaker 1: There's a bit of subterfuge. I'm not even sure what
- 0:54Speaker 1: that means, but I think it's I don't know, Tiv,
- 1:00Speaker 1: what's going on over there at you Central.
- 1:02Speaker 2: Oh it's been a busy old time. I feel like
- 1:04Speaker 2: I haven't seen you for so long already. I feel
- 1:07Speaker 2: like it's been days and days.
- 1:10Speaker 1: Well, you and I normally do three and sometimes four
- 1:12Speaker 1: podcasts a week. As we record this, it's it's heading
- 1:16Speaker 1: towards three pm on Wednesday, avough, and we've done fuck
- 1:21Speaker 1: all in the industry in one another. No, no, well,
- 1:26Speaker 1: here we are to remedy that. Nicole Nikki Morrison.
- 1:31Speaker 3: Hi h here you going?
- 1:33Speaker 1: I'm well, very good. That's beautiful audio you've got there.
- 1:36Speaker 1: That's beautiful. Now it's two thirty nine. As I said,
- 1:39Speaker 1: I think I rang you at about two twenty three,
- 1:41Speaker 1: which would be yeah, sixteen sixteen minutes ago, and I said,
- 1:45Speaker 1: do you can't do a podcast? And you went, oh
- 1:49Speaker 1: sure when? And I went about now? Then you went,
- 1:53Speaker 1: oh right.
- 1:54Speaker 3: Okay, then I'm going to get a call at this
- 1:58Speaker 3: time okay, and I wait for it.
- 2:02Speaker 1: Yeah exactly. Yeah. What he's not ringing because he loves me,
- 2:07Speaker 1: He's ring because he wants something. Yes, yeah, that's my
- 2:11Speaker 1: way at least. I'm as long as you're transfer.
- 2:13Speaker 3: Straight about it, exactly exactly.
- 2:19Speaker 1: So a month or two ago you and I were
- 2:23Speaker 1: chatting about a condition. Do we call it a condition?
- 2:29Speaker 3: Yeah?
- 2:31Speaker 1: So we call it a condition that I've never heard of,
- 2:33Speaker 1: which that doesn't mean much, but for a bloke I
- 2:36Speaker 1: probably know a fair bit about women's physiology and medical
- 2:40Speaker 1: conditions and biology, because I spent the best part of
- 2:45Speaker 1: forty years training more women than I did men, including
- 2:48Speaker 1: elite athletes, more women than men, and a lot of
- 2:51Speaker 1: the general public. Huge amount of my work was with
- 2:55Speaker 1: the general public, and as I said to you before,
- 2:57Speaker 1: you know, dealing with you know, or working with women
- 3:00Speaker 1: who were going through menopause, perimenopause and you know, younger
- 3:04Speaker 1: women and women with eating disorders who are a meno
- 3:07Speaker 1: reea because did I say that correctly, who don't have
- 3:11Speaker 1: their period, and women who suffer from postpartum depression and
- 3:15Speaker 1: all of those things that you know, women have to
- 3:19Speaker 1: deal with and navigate at various stages of their kind
- 3:23Speaker 1: of journey. And so it was a steep learning curve
- 3:27Speaker 1: for me over the years, especially when I was in
- 3:29Speaker 1: my twenties and was even more of an idiot than
- 3:33Speaker 1: I am now and trying to you know, that's one
- 3:36Speaker 1: of the really interesting things as a young trainer, working
- 3:39Speaker 1: with people with issues that you're never going to have
- 3:42Speaker 1: right and trying to understand that and then support them
- 3:46Speaker 1: through that. But anyway, one day you were feeling shit,
- 3:50Speaker 1: correct me if I'm wrong, and we were chatting, and
- 3:53Speaker 1: you told me that you have that you suffer from
- 3:56Speaker 1: a thing called pre menstrual dysphoric disorder. Did I get
- 4:02Speaker 1: that right?
- 4:03Speaker 3: Yeah? You did?
- 4:04Speaker 1: You ever heard of that? Tiff night?
- 4:07Speaker 3: Yeah? Many ends?
- 4:08Speaker 1: Yeah, me too. So let's let's start with the obvious.
- 4:13Speaker 1: What is it?
- 4:15Speaker 3: Okay? So a lot of women suffer from pre minstu
- 4:20Speaker 3: symptoms prior to their menstrual cycle kicking in. And that
- 4:25Speaker 3: can be anything from having certain food cravings. So then
- 4:29Speaker 3: bit tied, feling bit luck, whatever the case may be.
- 4:34Speaker 3: Premnstr dysphoric disorder is all of that on steroids.
- 4:41Speaker 1: Wow.
- 4:43Speaker 3: And it lasts. It sort of kicks in about a
- 4:47Speaker 3: few days before your cycle is meant to kick in,
- 4:49Speaker 3: and then it lasts several days after the cycle ends.
- 4:53Speaker 3: So it kind of feels like you might feel normal
- 4:57Speaker 3: for two weeks out of every four weeks.
- 5:01Speaker 1: Wow. Yeah, And so sometimes half of your life you're
- 5:07Speaker 1: kind of dealing with this.
- 5:09Speaker 3: Oh gotcha? Absolutely?
- 5:12Speaker 1: Wow.
- 5:12Speaker 3: And that's and for me, as I've gotten older, the
- 5:17Speaker 3: symptoms got more intense in terms of for me, it
- 5:20Speaker 3: was migraines, nausea, just incredible helvic pain, and just anxiety, depression, moods.
- 5:33Speaker 3: It was like I became a different person and then
- 5:37Speaker 3: it had stopped, and I sort of look back and go,
- 5:40Speaker 3: what the hell was that? What just happened there? Because
- 5:43Speaker 3: I didn't know what was happening, I didn't think to
- 5:45Speaker 3: connect the dots as I just went through that for years,
- 5:51Speaker 3: and I learned about premature dysphoric disorder purely by chance
- 5:57Speaker 3: when I was talking to a girl who's actually a
- 6:00Speaker 3: patient that I was caring for at the time, and
- 6:04Speaker 3: she was starting to explain some of the symptoms that
- 6:07Speaker 3: she had and I'm like, yeah, I kind of get
- 6:09Speaker 3: that too, and she's like, Nikki, it's a real thing.
- 6:12Speaker 3: I'm like, what do you mean. I thought it was
- 6:15Speaker 3: just me just being me and me just having to
- 6:17Speaker 3: deal with it. She's like, no, it's an actual condition
- 6:21Speaker 3: called pre minster hisphoric disorder. I belonged to a research
- 6:24Speaker 3: group about it. I belonged to a support group about it.
- 6:29Speaker 3: It's starting to get more traction in terms of being
- 6:34Speaker 3: known in Australia and in terms of psychologists starting to
- 6:40Speaker 3: do more research into it and how to treat it
- 6:42Speaker 3: and manage it. And that's where I started to learn
- 6:47Speaker 3: about it. But prior to that. I've just been trying
- 6:50Speaker 3: to survive.
- 6:52Speaker 2: Really, I have a confession I have. I was familiar
- 6:56Speaker 2: with PMDDY. I just was googling, went oh, this is
- 7:00Speaker 2: the yes, so I actually am't familiar with it.
- 7:03Speaker 3: Yeah, it's and look, there's a whole range of symptoms
- 7:07Speaker 3: that A lists and you know, everyone's going to have
- 7:11Speaker 3: their own experience of that, and you won't necessarily have
- 7:16Speaker 3: all of the symptoms. I had like a handful of them,
- 7:20Speaker 3: and others will have different ones. But it's thanks acutally well.
- 7:27Speaker 3: In my experience, it took over my life and was
- 7:32Speaker 3: exhausting to the point where I thought something that had
- 7:36Speaker 3: changed one wow. You know.
- 7:39Speaker 1: You know what's interesting is before we progress, everyone, NICKI
- 7:43Speaker 1: was worried. Before we not worried, but just concerned that
- 7:47Speaker 1: this would be confused with medical advice. This is not
- 7:51Speaker 1: medical advice, This is not a recommendation. This is just
- 7:56Speaker 1: this is really an education for me and maybe for
- 7:59Speaker 1: some of you around something yeah, and trying to open
- 8:05Speaker 1: the door on awareness and understanding and you know, maybe
- 8:09Speaker 1: we can push the needle a little bit on something
- 8:12Speaker 1: in their space, which is what I want to do.
- 8:16Speaker 1: But you know what's ironic is so you've been a
- 8:19Speaker 1: nurse for a long time and you're a high level nurse,
- 8:21Speaker 1: you're very qualified, and you also you're a death dueler,
- 8:26Speaker 1: and you do you work with people at the end
- 8:28Speaker 1: stage of life, and you work with cancer patients and
- 8:32Speaker 1: you do a lot of amazing But you had a
- 8:34Speaker 1: patient teach you about.
- 8:37Speaker 3: I know, it was literally were she was about coming
- 8:43Speaker 3: to the clinic, and I went out to the waiting
- 8:45Speaker 3: room just to have a chat with her before she
- 8:47Speaker 3: came in to see the consultants. And you know, we've
- 8:51Speaker 3: become good friends along the way, and yeah, she was
- 8:55Speaker 3: just telling me about some of the things that she'd
- 8:57Speaker 3: been experiencing and just surely happened by chance. And it
- 9:02Speaker 3: was like, oh my gosh, maybe it's not just me.
- 9:08Speaker 3: Maybe this isn't all in my head. Maybe this isn't
- 9:13Speaker 3: me just being weird. Maybe this is an actual thing.
- 9:17Speaker 3: And from that day on, I just felt relief.
- 9:22Speaker 1: Tell us about your experience, Nikki, up until that point
- 9:25Speaker 1: in time, because I mean, we had this chat months ago,
- 9:29Speaker 1: but I feel like you told me that basically, some people, Yeah,
- 9:35Speaker 1: some experts in inverted commas that you've been see have
- 9:38Speaker 1: kind of like, you know, you know, jog it out,
- 9:42Speaker 1: it's in your mind, or it's like you're overreacting. All
- 9:45Speaker 1: women go through this like chill out and stop being
- 9:49Speaker 1: a big baby kind of.
- 9:51Speaker 3: Yeah, when it was getting really bad, sort of into
- 9:55Speaker 3: my mid to late thirties, I was really starting to look,
- 10:00Speaker 3: look at this is taking over my life. I can't
- 10:04Speaker 3: function like this anymore. So I started to you know,
- 10:09Speaker 3: I speak to different endocrinologists and different medical medical professionals
- 10:13Speaker 3: in sort of the gynecology area, and often, don't get
- 10:21Speaker 3: me wrong, somewhere wonderful. But I had to get through
- 10:26Speaker 3: a lot of hoops before I found people who would
- 10:28Speaker 3: believe me and support me and provide me with the
- 10:35Speaker 3: management that I needed to.
- 10:38Speaker 1: What does that mean? Tell us about the hoops that
- 10:40Speaker 1: you had to get through. Can you give us? Is
- 10:43Speaker 1: it just just that they didn't believe you?
- 10:46Speaker 3: Yeah. I remember clearly sitting in one GP's office and
- 10:54Speaker 3: I was practically in tears in front of us, saying,
- 10:58Speaker 3: this is my life. I'm not functioning. I'm going to
- 11:01Speaker 3: have a breakdown if it's something doesn't happen, And she
- 11:04Speaker 3: just said, you're thinking about it too much, and I
- 11:10Speaker 3: was like, right, so that occasions like that were really
- 11:17Speaker 3: demoralizing and disheartening, but also just I admitted, you know,
- 11:25Speaker 3: stand up for myself because as a nurse I've encouraged
- 11:29Speaker 3: patients to be their own advocate and to have their
- 11:32Speaker 3: own voice. And I thought, I've got to do this
- 11:34Speaker 3: for me now and and not give up, and not
- 11:39Speaker 3: give up. And thankfully, you know, going through a lot
- 11:44Speaker 3: of different specialists and trying so many different medications and
- 11:50Speaker 3: that often made me worse, but you know, that was
- 11:55Speaker 3: all part of the experience and in terms of trial
- 11:58Speaker 3: and errorfying it find out what I actually needed to
- 12:03Speaker 3: deal with my particular case. Yeah, it's been a long
- 12:08Speaker 3: journey than many years, but thankfully in the end I
- 12:14Speaker 3: met with specialists who were compassionate and listened to me
- 12:20Speaker 3: and understanding and believed me and took me seriously.
- 12:29Speaker 1: So where did you start?
- 12:32Speaker 3: Like what?
- 12:33Speaker 1: So finally somebody listened and I mean, are there I
- 12:36Speaker 1: guess there is, but are there people who specialize in
- 12:41Speaker 1: this or you know, in all this is within their
- 12:44Speaker 1: speciality where they deal with this, and they went did
- 12:47Speaker 1: somebody go, no, Nicole, this is absolutely real and you're
- 12:52Speaker 1: not crazy, And yeah, right, tell us a bit about
- 12:55Speaker 1: that that person and that process.
- 13:00Speaker 3: My friend who first told me about PMTD told me
- 13:05Speaker 3: about a research group that she was involved with, and
- 13:09Speaker 3: I subsequently contacted them myself because I didn't know where
- 13:15Speaker 3: to go, and I thought, Okay, I'm just going to
- 13:18Speaker 3: do this and see what happens. Anyway, the head of
- 13:22Speaker 3: that service, who's quite a u pushed psychiatrist, actually rang
- 13:31Speaker 3: me herself and spoke to me on the phone and
- 13:34Speaker 3: listened to me and listened to my symptoms and I said,
- 13:38Speaker 3: does that sound a bit like what I think you're
- 13:42Speaker 3: talking about? And she's like yes, And I said, trouble.
- 13:48Speaker 3: I can't live like this anymore. It is horrible. You're
- 13:51Speaker 3: not making it up. And I'm go and speak to us.
- 13:56Speaker 3: And that was I think. I don't know. I probably
- 13:59Speaker 3: did cry on the phone because I was just so
- 14:00Speaker 3: exhausted by that point. Just to have someone believe me,
- 14:05Speaker 3: to have a professional believe me and validate me and
- 14:10Speaker 3: acknowledge what I was saying and not dismiss it as
- 14:13Speaker 3: I'm overreacting or I'm building it up in my head.
- 14:18Speaker 3: That was that really started to change the course of
- 14:22Speaker 3: how I started to deal with it.
- 14:26Speaker 1: It's it's like there's there's two like there's two issues,
- 14:30Speaker 1: parallel issues. One is the physical pain and then the
- 14:35Speaker 1: other is the psychological anguish of people going it's not real,
- 14:40Speaker 1: nik exactly, thinking you're thinking too much, Nikki. Yeah, I
- 14:45Speaker 1: mean that must have complicated and compounded the issue.
- 14:49Speaker 3: Oh god, Yeah, I was. I was a mess. I was,
- 14:54Speaker 3: and I'm not trying to be dramatic about it, but
- 14:57Speaker 3: I was so stressed physical and mentally emotionally, just from
- 15:03Speaker 3: trying to find someone who would believe me and would
- 15:06Speaker 3: try and help me navigate this maze that I felt
- 15:08Speaker 3: I was locked into. Yeah. It literally felt like something's
- 15:14Speaker 3: going to give sooner. I'm going to Leprescen.
- 15:17Speaker 1: Yeah, could you I know this is probably hard to do,
- 15:22Speaker 1: but for me, the dude who never has to deal
- 15:24Speaker 1: with stuff like that, obviously, but could you try to
- 15:29Speaker 1: help me understand and maybe some of the other men
- 15:34Speaker 1: who are listening to this and some of the women
- 15:36Speaker 1: who were unfamiliar with it, and maybe who have sailed
- 15:39Speaker 1: through I don't know, but those of us who don't
- 15:42Speaker 1: get it, try to give me an insight into the
- 15:45Speaker 1: physical reality, Like what like if you got it, like
- 15:50Speaker 1: a like a level seven out of ten gut ache.
- 15:53Speaker 1: Is it like excruciating acute adominal pain?
- 15:57Speaker 3: Is it?
- 15:58Speaker 1: What is it?
- 15:59Speaker 3: It's like everyone's going to be different. Obviously for me,
- 16:06Speaker 3: I would just get like a head fog that would
- 16:09Speaker 3: sort of develop into migrain nausea that was so intense
- 16:13Speaker 3: that I just I couldn't move, you know, or otherwise
- 16:18Speaker 3: I just haven't had in the toilet bowl because I
- 16:20Speaker 3: just couldn't go anywhere else, and burning pain for me
- 16:27Speaker 3: in my back, and you know, as it kind of
- 16:31Speaker 3: got worse and worse, just it was like I'd been
- 16:34Speaker 3: hit by a bus and I just have to literally
- 16:38Speaker 3: I would have to sleep off a couple of just
- 16:40Speaker 3: lose a couple of days in sleep because I couldn't
- 16:42Speaker 3: deal with it any other way.
- 16:43Speaker 1: And that must be hard for you because you're the
- 16:47Speaker 1: least lazy person. I know.
- 16:49Speaker 3: It was so stressful because you know, I was trying
- 16:56Speaker 3: to hold down my job, which was being different were
- 17:00Speaker 3: more difficult to do because I couldn't show up because
- 17:03Speaker 3: I was so affected, and that psychologically that was playing
- 17:10Speaker 3: on me too, and just yeah, I just have to
- 17:15Speaker 3: sort of step off the world for a few days
- 17:17Speaker 3: just to try and cope with it.
- 17:21Speaker 1: If have you had anything in the ballpark? Feel free
- 17:24Speaker 1: to not answer anything. I don't know if I'm allowed to,
- 17:27Speaker 1: but feel free to tell me to you know, I'm like, fuck,
- 17:30Speaker 1: where do I which doors can I open? I'm in
- 17:33Speaker 1: this conversation. But does any of this resonate for you
- 17:36Speaker 1: or what are your thoughts around this?
- 17:38Speaker 2: When I was a teenager, I had quite a turbulent
- 17:41Speaker 2: time with my hormones and a I've got monthly migraines
- 17:45Speaker 2: in the lead up to starting to have a cycle.
- 17:49Speaker 2: And when I went on the contraceptive pill as a
- 17:54Speaker 2: teen I had a lot of mood issues in finding
- 17:57Speaker 2: the right pill, and that was feedback from Mum. She's like,
- 18:00Speaker 2: you're a little bit like you have to go and
- 18:02Speaker 2: get that change. So there was a yeah, yeah, And
- 18:07Speaker 2: I get a lot of I'm a sugar head a
- 18:10Speaker 2: couple of days before I crave sugar big time the
- 18:13Speaker 2: day the day before my cycle starts. And maybe if
- 18:18Speaker 2: I tracked moods and symptoms and watched them a little
- 18:21Speaker 2: more carefully, I would probably see more. But nothing that's
- 18:24Speaker 2: stabilitating like what Nicky experiences. But I do know people
- 18:28Speaker 2: that are and just.
- 18:31Speaker 3: On the mood stuff I'm a fairly steady, calm person generally,
- 18:37Speaker 3: but when all those symptoms were ramping up, I was
- 18:44Speaker 3: looking to have a fight with someone or I was
- 18:47Speaker 3: so depressed that I just was it was a struggle
- 18:50Speaker 3: for me to get out my front door.
- 18:53Speaker 1: Because also, also you live by yourself. I mean there's
- 19:00Speaker 1: not like there's someone else in the night that can
- 19:03Speaker 1: bring you a glass of water or just check in
- 19:05Speaker 1: on you, or sit on your bed and hold your
- 19:08Speaker 1: hand and have a chat. That must have made it worse, right, yes.
- 19:13Speaker 3: Because I just sort of isolated, because I just so
- 19:19Speaker 3: stuck in it, and I just kept on sort of
- 19:22Speaker 3: getting deeper down the rabbit hole. And it got to
- 19:26Speaker 3: the point where I said to my mum, Okay, Mom,
- 19:31Speaker 3: I'm going to text you every morning just to let
- 19:33Speaker 3: you know that I've gotten to work today, because it
- 19:37Speaker 3: was so it was a battle to get out of
- 19:39Speaker 3: the door sometimes and if I could text her to
- 19:44Speaker 3: say I got to work, then I was like, good,
- 19:46Speaker 3: she's out the house. She's made to get herself together
- 19:48Speaker 3: and get herself off to work. That was when it
- 19:53Speaker 3: was really bad, and when I wasn't getting any making
- 19:56Speaker 3: any headway in getting treatment, so that that was that
- 20:05Speaker 3: was pretty massive, and I think that put you know,
- 20:08Speaker 3: bless my mum. She has just been an absolute rock
- 20:11Speaker 3: and an angel. But yeah, there was a point where
- 20:15Speaker 3: I had to move back in with my parents because
- 20:17Speaker 3: I couldn't handle living by myself anymore. I feel, say
- 20:22Speaker 3: by myself.
- 20:23Speaker 1: Wow. So I'm going to ask you a hard question,
- 20:27Speaker 1: which you are welcome to decline. Sure, but you've spoken
- 20:32Speaker 1: very openly about you know, we've both spoken about eating disorders,
- 20:37Speaker 1: disordered eating body dysmorphia, and some of the weird and
- 20:40Speaker 1: wonderful and borderline crazy shit that both you and I
- 20:44Speaker 1: have done with food, with exercise, with obsessive, compulsive, addictive behaviors.
- 20:52Speaker 1: Do you think that any of the stuff that you
- 20:56Speaker 1: did as a kid and as a young adult brought
- 21:01Speaker 1: this on, impacted this, intersected with this, or do you
- 21:05Speaker 1: think it's it's completely genetic.
- 21:09Speaker 3: I've asked myself that so many times, and I've had
- 21:16Speaker 3: to work through a lot of guilt and shame about
- 21:19Speaker 3: all of that, because I thought, have I caused this
- 21:24Speaker 3: well to the point where the managements that I had
- 21:30Speaker 3: to have surgically changed my life. So I don't know.
- 21:41Speaker 3: I can't answer that definitively part of me has you know,
- 21:47Speaker 3: just really beat that horse to the nth degree. And
- 21:51Speaker 3: I thought, Nikki, you just can't keep going down.
- 21:54Speaker 1: Yeah. Well, I mean for me, it was more out
- 21:58Speaker 1: of curiosity because trying to figure out you know, maybe
- 22:02Speaker 1: I don't know, like in science, were always like, what's
- 22:06Speaker 1: the mechanism? How does this thing work? Did I do?
- 22:11Speaker 1: Did I do something or not do something? And and
- 22:13Speaker 1: for me, it's definitely not about blame or self loathing,
- 22:18Speaker 1: just understanding and awareness, you know.
- 22:22Speaker 3: Yeah, and maybe halps, I don't know. I just sort
- 22:27Speaker 3: of thought, look, nick, maybe contributed, maybe it didn't. You
- 22:32Speaker 3: can't know that. You can't change that, so you just
- 22:35Speaker 3: got to get on with it. Yeah.
- 22:38Speaker 1: Yeah, so you mentioned, well you mentioned a treatment that
- 22:47Speaker 1: changed your life in some way. Can can you talk
- 22:50Speaker 1: to us about that?
- 22:52Speaker 3: Yeah? So I'm in my mid forties and I had
- 23:00Speaker 3: when I was getting serious about looking at what are
- 23:04Speaker 3: some viable treatment options for this condition? I kept on
- 23:10Speaker 3: coming across surgery, and the surgery that I was looking
- 23:15Speaker 3: at would be removing the uterus and the ovaries, so
- 23:19Speaker 3: basically removing my reproductive system. And given I was about
- 23:26Speaker 3: forty one or forty two. At the time when I
- 23:29Speaker 3: was looking at that, a lot of practitioners were very
- 23:34Speaker 3: reluctant to agree for me to have that surgery because
- 23:40Speaker 3: they thought, you're too young and it's too drastic. But thankfully,
- 23:46Speaker 3: in the end, I met with an endochronologist who just
- 23:53Speaker 3: worked with me and collaborated with me and believed and
- 23:57Speaker 3: saw what I was going through, and she referred me
- 24:01Speaker 3: to a surgeon, and all along the way it was
- 24:06Speaker 3: made very clear to me, You've got to be aware
- 24:08Speaker 3: that this is a life changing decision that you're making.
- 24:11Speaker 3: You know the consequences. Take your time to make the decision,
- 24:16Speaker 3: because it would mean I can't have children. So after
- 24:24Speaker 3: a lot of thought and just not being able to
- 24:30Speaker 3: live that way anymore, the only option I did have
- 24:33Speaker 3: left to me was to have the surgery.
- 24:37Speaker 1: And is that a common treatment path, Nikki?
- 24:44Speaker 3: It can be. There are other options, certainly in terms
- 24:50Speaker 3: of different medications to help you manage the symptoms, different
- 24:54Speaker 3: lifestyle behavioral modifications that you can make. Oh, I was
- 25:00Speaker 3: doing all of that and I was not getting any better.
- 25:05Speaker 3: It was I was just like keeping my hand above order.
- 25:11Speaker 3: So at the end, in the end, it felt like
- 25:13Speaker 3: for me, it was the only choice that was available
- 25:16Speaker 3: to me.
- 25:19Speaker 1: And now I'm going to ask you a weird It's
- 25:21Speaker 1: not weird between you and me because we know each
- 25:24Speaker 1: other well, but it might be a weird question in
- 25:26Speaker 1: the context of where we've been so far. But I
- 25:31Speaker 1: know that you're a very spiritual person, and that you know,
- 25:36Speaker 1: you're probably more heart driven, soul driven, spirit driven for
- 25:41Speaker 1: one of a better term, than you are brain driven
- 25:44Speaker 1: in your life. Is that an accurate comment? Yeah, yeah,
- 25:50Speaker 1: which is not to say that you're not smart and
- 25:51Speaker 1: don't use of course, I mean you've got multiple degrees.
- 25:55Speaker 1: You're highly intelligent, But so did you. I know that
- 26:01Speaker 1: you always kind of tune in, you know, like to
- 26:04Speaker 1: the universe, to God, to the trees, to mother Earth
- 26:06Speaker 1: to you know, you're always when I talk to you,
- 26:09Speaker 1: you're like, you're always tuning into something. Yes, thankfully, thankfully
- 26:14Speaker 1: it's not fucking Instagram, right, So to I'm glad you're going.
- 26:20Speaker 1: I'm glad you're go into a better source than most
- 26:22Speaker 1: of us. Did you do that? Did you pray? Did
- 26:27Speaker 1: you meditate? Did you seek? Did you and what kind
- 26:30Speaker 1: of happened in that?
- 26:33Speaker 3: Oh? Gosh, yes, I prayed, I meditated, if we said,
- 26:44Speaker 3: what do I do if I don't have the surgery?
- 26:46Speaker 3: If it's not the right thing for me to have
- 26:48Speaker 3: the surgery, then I won't have it. Then how am
- 26:51Speaker 3: I going to function? How am I going to show
- 26:53Speaker 3: up in life? How am I going to contribute to
- 26:57Speaker 3: life the way I want to contribute? Because I can't
- 27:00Speaker 3: survive this. I don't see it well. I mean I
- 27:04Speaker 3: couldn't see the time how I could survive it otherwise
- 27:08Speaker 3: in terms of being able to continue to work and
- 27:11Speaker 3: function and show up as the person wanted to be
- 27:14Speaker 3: in my life and in my family, and and you know,
- 27:19Speaker 3: just for myself as well. I was losing myself.
- 27:23Speaker 1: So when you're asking these questions, right, and you're in
- 27:26Speaker 1: this kind of you're opening this spiritual door to connect
- 27:29Speaker 1: to an intelligence or wisdom or whatever. You know. I know,
- 27:33Speaker 1: different people believe different things, but something greater and smarter
- 27:37Speaker 1: and wiser than me and you, right, and TIF like
- 27:40Speaker 1: you to connect. Are you looking for clarity? Are you
- 27:45Speaker 1: looking for calm? Like what is it that that happens
- 27:50Speaker 1: that kind of tells you where you go? You know,
- 27:54Speaker 1: it's like I feel a sense of calm or confidence
- 27:57Speaker 1: or knowing about.
- 27:58Speaker 3: This for me, it's off and a real process of
- 28:03Speaker 3: journaling and writing and talking about it with trusted others
- 28:08Speaker 3: and doing a lot of prayer about it and really
- 28:15Speaker 3: just going into I guess for in a better way
- 28:20Speaker 3: to put the real bets of myself to go, Okay,
- 28:28Speaker 3: how do I what do I do? Where do I
- 28:29Speaker 3: go from here? It's I sort of have to make
- 28:33Speaker 3: my way through all the layers and all the talk
- 28:35Speaker 3: and the chatter in my head of do these I
- 28:37Speaker 3: do and go okay, I need to find the stillness
- 28:43Speaker 3: around this. I need to find the stillness. And for me,
- 28:47Speaker 3: a part of that was a lot of walking in nature,
- 28:50Speaker 3: because when I'm out in nature, that's when I feel
- 28:54Speaker 3: grounded and calm, and often that's when I feel like
- 29:01Speaker 3: I get the clarity that I need or I create
- 29:04Speaker 3: the conditions that allows that clarity to come through. And
- 29:09Speaker 3: it just when I got the sort of the the
- 29:15Speaker 3: guidance of Nicky have the surgery, I just thought, Okay,
- 29:20Speaker 3: I'm just going to sit with that. But it was
- 29:22Speaker 3: consistent over a period of time and I just thought, well,
- 29:26Speaker 3: that's it. Then it wasn't dramatic, it was just it
- 29:29Speaker 3: was calm, it was clear, it was concise, which for
- 29:32Speaker 3: me is often the way that the guidance appears in
- 29:37Speaker 3: my heart. As I said, ody h, but it's definitely
- 29:46Speaker 3: a process for me.
- 29:48Speaker 1: Yeah, So I mean, I want to chuck in a
- 29:53Speaker 1: red herring here, but just because I thought of it,
- 29:56Speaker 1: And if you haven't heard Nikki before, this might not
- 29:59Speaker 1: make much sense, but I'll try to make it make sense.
- 30:03Speaker 1: So one of the things, So there's a thing in
- 30:07Speaker 1: Victoria called assisted dying. Is that what it's called? Yeah?
- 30:11Speaker 1: And you are sorry, what's.
- 30:14Speaker 3: Called elementary assisted dying? Right?
- 30:17Speaker 1: And you are a what do we call you?
- 30:20Speaker 3: Like?
- 30:20Speaker 1: You help people on that journey through that process. So
- 30:23Speaker 1: what's the name for that? Like for you life an
- 30:28Speaker 1: end of life tooler? Okay, like doing your job, which
- 30:32Speaker 1: is I mean? And I also know that you volunteer
- 30:34Speaker 1: and you work with homeless people, and you work with
- 30:36Speaker 1: addicts and alcoholics and men in prison and you do
- 30:40Speaker 1: and I know that you don't want accolades and you
- 30:42Speaker 1: don't want glory. I know that.
- 30:43Speaker 3: I know that.
- 30:44Speaker 1: So this is me just telling people kind of who
- 30:46Speaker 1: you are. And then you spend your life in service
- 30:50Speaker 1: helping sick people, and then you spend some of your
- 30:54Speaker 1: time helping people die, you know, I mean like that,
- 31:00Speaker 1: I don't can't think of another way to say it. Okay,
- 31:05Speaker 1: is yeah, it is what it is, isn't it. How
- 31:08Speaker 1: does all of this and I know this is a
- 31:11Speaker 1: little bit of a left turn from our chat until now,
- 31:15Speaker 1: but how does this inform your thinking and decision making?
- 31:21Speaker 1: And I don't know direction, you know, when you're you know,
- 31:27Speaker 1: like you deal with some what would for me and
- 31:31Speaker 1: Tiff probably I can't speak for Tiff, but for me anyway,
- 31:34Speaker 1: this would be very confronting, hard stuff that you do
- 31:37Speaker 1: every day. How does that impact how you manage you
- 31:45Speaker 1: or maybe you're thinking, or your gratitude or your I
- 31:48Speaker 1: don't know. It just seems like that must really impact
- 31:52Speaker 1: the way that you do life.
- 31:56Speaker 3: And me, I think it's a privilege to be in
- 32:03Speaker 3: that position and be in the sacred space of all
- 32:11Speaker 3: that intimate private space of others. And it makes me
- 32:19Speaker 3: fit how I say it, it's feeds me, It nourishes me,
- 32:29Speaker 3: It enlivens me. To be in that position, to be
- 32:34Speaker 3: abut off the kindness and compassion and human wrongth when
- 32:42Speaker 3: some run is at their most vulnerable is extraordinary. There
- 32:48Speaker 3: aren't words to describe it, well, I can't find them,
- 32:53Speaker 3: but it is it's like my heart and my soul
- 32:57Speaker 3: is alive in those moments.
- 33:00Speaker 1: Wow wow, I.
- 33:04Speaker 3: Think, yeah, it's like un lit up on the inside. Wow.
- 33:10Speaker 1: Do you think that that that role amongst the other
- 33:18Speaker 1: roles that you play? But I don't know. We talk
- 33:21Speaker 1: about purpose a lot in our culture, right whether or
- 33:24Speaker 1: not it's preordained or me ordained, you know, whether or
- 33:27Speaker 1: not we've got to discover it or create it or
- 33:29Speaker 1: choose it. Like, what do you think your purpose is?
- 33:35Speaker 1: I mean, I know that's a big question, but do
- 33:37Speaker 1: you do you have clarity about your purpose?
- 33:45Speaker 3: I think it ultimately. I feel like my purpose is
- 33:50Speaker 3: surface and that can take different iterations in terms of
- 34:00Speaker 3: h I guess my my sort of overriding prayer that
- 34:09Speaker 3: I put out there is placing where you want me
- 34:11Speaker 3: to be. So sometimes that's that's the cold face in
- 34:16Speaker 3: terms of you know, being right in the thick of
- 34:18Speaker 3: an acute hospital doing treatment, diagnosis, all that sort of stuff.
- 34:22Speaker 3: And at other times it's been at the end of
- 34:25Speaker 3: life where it's a totally different environment. But it's ultimately
- 34:34Speaker 3: I see all of that as a function.
- 34:38Speaker 1: Mhmm.
- 34:40Speaker 3: Yeah, And you know, just service. And I don't mean
- 34:42Speaker 3: that to sound you know, I don't know weird, but
- 34:47Speaker 3: just ash giving, sharing human wants and compassion, and that
- 34:56Speaker 3: is something that all of us can do with each
- 34:58Speaker 3: other and it doesn't cost, but it can make so
- 35:02Speaker 3: different in someone else's life. Just such a difference for
- 35:05Speaker 3: someone to feel that they're acknowledged and they're known acknowledged
- 35:10Speaker 3: and they're known and they're seen, you know. That's that's
- 35:15Speaker 3: especially in my work in like one of the major
- 35:20Speaker 3: public hospitals where there's a lot of homeless and like
- 35:25Speaker 3: disenfranchised people, to see them as the person rather than
- 35:31Speaker 3: to see them as patient X or medical number four
- 35:37Speaker 3: seventy nine or whatever. But to see them and to
- 35:39Speaker 3: go up and you know them as a person. You know,
- 35:44Speaker 3: there's I don't think there's any greater gift than for
- 35:47Speaker 3: someone to feel that they're being seen and heard and
- 35:51Speaker 3: listened to and acknowledged and cared about. Giving someone out
- 35:54Speaker 3: of time, that is the most precious thing.
- 36:01Speaker 1: So my prayer tonight is going to be, dear sweet
- 36:03Speaker 1: baby Jesus, make me more like Nikki. All right, let's
- 36:08Speaker 1: just I could listen to you. I feel like I
- 36:13Speaker 1: want to talk to you when we open the door,
- 36:16Speaker 1: and you kind of share like truly, I don't know
- 36:19Speaker 1: that you know for me, I don't know how everyone
- 36:22Speaker 1: else feels. But I find you very inspiring and also,
- 36:29Speaker 1: Craig do better.
- 36:31Speaker 3: No, no, no, I'm just I'm just one person just
- 36:34Speaker 3: having a crack and you know, learning from others. And
- 36:37Speaker 3: I work with amazing people who inspire me and humble
- 36:42Speaker 3: me and just lead the way for me. They like
- 36:47Speaker 3: them for me. So I'm so privileged to be in
- 36:51Speaker 3: those spaces.
- 36:54Speaker 1: So it's not it's I know, I know, we know.
- 36:57Speaker 1: There's no chest beating coming from you. I'm doing it
- 36:59Speaker 1: for you. All right, let's just wind up. Tell us,
- 37:03Speaker 1: so you had that surgery, what was the outcome? What
- 37:09Speaker 1: you know, if you could tell us in a few
- 37:11Speaker 1: minutes kind of the without rushing you. If you need more,
- 37:14Speaker 1: that's fine, but like, what was the outcome of that?
- 37:17Speaker 1: How long before you felt different or better or you
- 37:20Speaker 1: didn't feel different or better? And where are you now?
- 37:23Speaker 3: So I think it's been really two years, I think
- 37:27Speaker 3: off the top of my head since I since I
- 37:30Speaker 3: had the surgery. It's been up and down for sure,
- 37:35Speaker 3: in terms of just all of a sudden, you know,
- 37:40Speaker 3: major bits are no longer in my body. My body's
- 37:44Speaker 3: like the hell, you know, and just trying to balance
- 37:49Speaker 3: hormones and biochemistry. That's been It's been really up and
- 37:53Speaker 3: down at times. Within the past that's probably six months.
- 38:02Speaker 3: I start to feel like I'm coming out of the
- 38:09Speaker 3: postop sort of recovery period of it in terms of
- 38:13Speaker 3: I think my body is starting to stabilize a bit more.
- 38:19Speaker 3: I still have symptoms will on a better way to
- 38:24Speaker 3: put it, but they're nowhere near as prolonged or as
- 38:30Speaker 3: debilitating as they were, which I'm so grateful for this
- 38:36Speaker 3: in the sense that I've got my life back today
- 38:39Speaker 3: in that I can say, yeah, I will, I will
- 38:43Speaker 3: show up to that because I'm not trying to think,
- 38:47Speaker 3: oh my god, what's my body going to be? Like,
- 38:49Speaker 3: where am I going to be that, What's going to happen?
- 38:50Speaker 3: Am I going to be able to function that day?
- 38:53Speaker 3: I'm able to function more days than I'm not. And
- 38:56Speaker 3: they's just been so precious, the whole precious, And.
- 39:01Speaker 1: I guess on top of what we spoke about before,
- 39:04Speaker 1: the dealing with the emotional and psychological and not being
- 39:08Speaker 1: believed and all of that as well, as the physical
- 39:10Speaker 1: pain and debilitating kind of stuff, which you mentioned. The
- 39:15Speaker 1: third bit to that is work and not wanting to
- 39:19Speaker 1: let people down, patients patients down, or your colleagues down,
- 39:24Speaker 1: and not wanting to be seen as being that unreliable
- 39:28Speaker 1: chick that keeps taking time off because oh she's sick again.
- 39:32Speaker 3: Yeah, that was excruciating, absolutely xcretiating for me. I was
- 39:40Speaker 3: really fortunate to have some very compassionate and kind and
- 39:45Speaker 3: understanding managers and it was my responsibility to be upfront
- 39:50Speaker 3: with him about what was going on. That's what That's
- 39:54Speaker 3: how I felt about it. But yeah, that's been excreciating.
- 40:02Speaker 1: As always, we love chatting with you if people want to.
- 40:05Speaker 1: And I know you're not the spokesperson or the advocate,
- 40:08Speaker 1: but in this three way conversation you are. If people
- 40:12Speaker 1: want to find out more, what is it? Just like, go,
- 40:16Speaker 1: do a Google search, do some reading, watch a video
- 40:20Speaker 1: or two.
- 40:21Speaker 3: Yeah, I think you've got my email address and I've
- 40:25Speaker 3: been more than happy to put on the links that
- 40:28Speaker 3: I've that have been shown to me.
- 40:32Speaker 1: Would you are you happy to tell people your email
- 40:34Speaker 1: or do you want them to come via us?
- 40:36Speaker 3: Come by you? Great?
- 40:38Speaker 1: Yep? Okay, so just send it to Craig harpadot net.
- 40:44Speaker 1: If you want to Nikki to connect with you and
- 40:48Speaker 1: steer you in the right direction, that'd be great. Uh
- 40:52Speaker 1: what did you think of that? Tip?
- 40:55Speaker 2: Could listen to her all day?
- 40:58Speaker 1: Really sweet, isn't she?
- 40:59Speaker 3: Yeah?
- 41:00Speaker 2: But no, I think that was There'll be so many
- 41:02Speaker 2: people that will probably feel heard for the very first time,
- 41:07Speaker 2: to be honest.
- 41:08Speaker 3: So some like if it is relief to someone, you know.
- 41:15Speaker 2: The funny thing I was going to comment earlier when
- 41:18Speaker 2: I googled it and realized I had heard of it before,
- 41:20Speaker 2: but I didn't. I didn't remember the full name, but
- 41:24Speaker 2: the classification of it being a mental disorder when it's
- 41:26Speaker 2: a it's a hormonal issue, And I find that is
- 41:31Speaker 2: really perplexing and has a lot of stigma and causes,
- 41:35Speaker 2: shame and causes. So it's really tough.
- 41:39Speaker 3: You know. I literally asked myself, how many times am
- 41:43Speaker 3: I going crazy? This is it? Some lose my mind?
- 41:47Speaker 3: Now it's all done, it's all over.
- 41:51Speaker 1: You are crazy. But that's a separate issue. Yeah, yeah,
- 41:55Speaker 1: that's different, Yeah.
- 41:56Speaker 3: In a different way.
- 41:57Speaker 2: But also having an understanding that that those hormones drive
- 42:01Speaker 2: behavior like even and this is like what tiny version
- 42:06Speaker 2: of it.
- 42:06Speaker 1: But when I.
- 42:07Speaker 2: Realized that those days before my first day of my cycle,
- 42:11Speaker 2: with the days that I was just losing my shit
- 42:14Speaker 2: on sugar and binging, yeah, this shame and self loathing,
- 42:19Speaker 2: and I dropped because I went, oh, oh, that's just
- 42:23Speaker 2: that thing that happens for one day and I let
- 42:25Speaker 2: it go on and then it's like sometimes I just
- 42:26Speaker 2: do it and I let it go and I go,
- 42:27Speaker 2: that's okay because there's a reason. It's not like, oh,
- 42:29Speaker 2: you've lost it. Oh you've just lost control. You're going
- 42:32Speaker 2: to be a fatty unders every day of line.
- 42:34Speaker 3: Yep. I was just trapped in that. Yeah, yeah, yeah,
- 42:41Speaker 3: and it's yeah, I was just trapped.
- 42:45Speaker 1: In there, Nicky. We appreciate you. Thanks for coming to
- 42:49Speaker 1: play on the You project. Thanks Tiff, Thanks guys, Thanks
- 42:53Speaker 1: so much.
- 42:54Speaker 3: Tiff.
- 42:55Speaker 2: Good to see you again.
- 42:57Speaker 3: Yeah, so good to see you. Look for to seeing
- 42:59Speaker 3: you again and