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The 3 Most Embarrassing Parkinson’s Symptoms (According to You) · Living with Parkinson’s | Bryce Perry

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  Last time in episode 46, I shared my three most
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  embarrassing Parkinson's symptoms.
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  Things like masked face, forgetting words, that sentence,
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  and not being able to multitask. And wow, the comments went
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  crazy. Many of you said yes, Bryce,
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  that's me too. But an overwhelming number of
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  you had three other symptoms that you said were most
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  embarrassing to you. So today we're flipping it.
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  The first video was mine and this one is yours.
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  These are the three most embarrassing Parkinson's
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  symptoms according to you, the Doing Life Today community.
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  And stick around till the end because the Bryce ISM in this
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  one might be the most real one I've ever shared.
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  Welcome to Living with Parkinson's, The Good, the Bad,
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  and the Reality. Real talk, real life, real
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  community with Bryce Perry. Let's begin.
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  Well, welcome back everyone. If you're new here, my name is
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  Bryce and I've been living with Parkinson's now for over 15
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  years. And on this channel, we talk
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  about the good, the bad, and the reality of life with
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  Parkinson's. So if you're looking for
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  honesty, hope, and maybe even a laugh or two along the way,
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  you're in the right place and hit subscribe and come along for
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  the for the journey. But today, I want to dive right
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  in to the three things that you said.
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  You said we're bothering with the most embarrassing symptoms
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  to you. And the number 11, the number
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  one, one was drooling. Now, this one came up over and
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  over again in the comments. And it's not the kind of thing
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  you want to bring up at a dinner party, right?
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  I call it like the Niagara Falls surprise.
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  One minute you're fine, and the next minute, well, let's just
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  say you're grateful if you're not wearing a dark shirt.
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  I remember being at a family gathering one time, and I was
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  sitting there with my coffee and suddenly realizing that I had a
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  Little River making its way down my chin.
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  And of course, that's exactly what someone always asked for.
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  A picture, right? Smile, Bryce.
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  Sure, Let me just wipe off the evidence first.
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  So how do you deal with it? Well, for me, keeping tissues
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  close by is a must. Some people swear by chewing gum
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  or hard candy to keep swallowing more.
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  Regular speech therapy can help too, because it actually trains
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  those swallowing muscles. And I do have a bracism on this
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  as well. And I did the speech therapy and
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  it really helped me immensely, immensely.
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  But here's your bracism. With Parkinson's, sometimes
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  dignity is as simple as remembering to keep napkins in
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  the glove box. So don't forget that.
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  Don't be embarrassed. Make just make sure you have the
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  right precautions around to wipe it up.
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  OK? The second symptom that was the
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  most embarrassing to you was this dyskinesia.
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  Now this one I didn't include in my first list, but you sure did.
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  Dyskinesia is an involuntary movement, often from long term
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  levodopa use where your body feels like it's dancing without
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  permission. I once joked that I was
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  auditioning for river dance at a wedding and let's just say
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  nobody was clapping along. The hard part is you feel it so
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  much bigger than it sometimes looks.
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  You know, people ask if I'm nervous or if I've had too much
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  coffee. Nope, just Parkinson's showing
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  off again. So what do I do?
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  What helps? For me, working with my doctor
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  on Med timing made the big difference.
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  Sometimes a small adjustment is all it takes.
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  And find comfortable seating If if I know that I might be
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  moving, I'd rather be in a chair with arms than perched on a bar
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  stool that I'm about to wobble off.
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  So think ahead, Always think ahead.
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  OK, quick pause here. If you related to either of
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  these first two symptoms, hit the like button so more people
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  can find this video and realize that they're not alone.
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  And what about you? Do you deal with these things?
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  Do you deal with truly, do you deal with these things?
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  In the comments, I want to know what do you deal with it and how
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  do you deal with it? You know, many people watch
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  these videos, a lot of people watch this podcast and a lot of
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  people read all the comments. So by you showing up and just
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  giving your tips on what you do, you're going to help somebody
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  else. You really are.
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  OK, now I'm going to move into like the third one, the third
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  one, the biggest ones of what embarrasses you.
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  All right. And that third one was bathroom
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  urgency and or accidents. Now this one, yes, this one is a
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  tough one. A lot of you said this was that.
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  A lot of you said that this was the one that embarrassed you the
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  most. And I get it.
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  You know, you can joke about drooling and you can laugh off a
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  wiggle here and there, but nobody wants to talk about not
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  making it to the bathroom in time.
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  All right? And I'll be honest, it happened
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  to me once in a grocery store. I thought that I had time, and I
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  didn't. And I walk.
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  And the walk of shame from the aisle 7 to the exit.
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  Well, yeah, I will never forget that.
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  That was the day that I learned that planning ahead meant more
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  than just making a shopping list.
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  So if you've had issues in this area, know that you're not alone
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  and know that you know others have been there.
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  I've been there, and it's terrible.
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  It's awful. It is embarrassing, and I
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  totally get it. But here are some tips.
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  OK, Number one, always know where the bathrooms are when you
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  go to somewhere new. OK, I always check if I go to a
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  restaurant, to a restaurant, the first thing I check is where are
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  the restrooms? If I'm in a shopping center,
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  where are the restrooms? I'm in the grocery store, where
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  are the restrooms? Always think ahead because if
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  you have to make that mad dash, you don't want to think twice.
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  OK, here's tip #2 carry a change of clothes with you in the car
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  just in case. Just in case.
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  I know it's embarrassing, I know you feel like you shouldn't have
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  to, but just do it. It'll save you in the long run.
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  And my third tip is this, don't be afraid to talk to your doctor
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  because there are actual strategies and medications that
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  can help manage urgency. And you're going really, yes,
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  there really is. Talk to your doctor, explain
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  your issues and your problems. Explain how it's happening.
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  Explain when it happens and what your days like.
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  Track it, like I always say, and bring it up with your doctor and
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  don't settle for anything less than something.
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  Just try something, OK? Now, if you've made it this far,
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  you know what that means. You've unlocked the Bryces for
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  this one, OK? And here it is with Parkinson's.
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  Embarrassment will show up whether you invite it or not.
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  The trick is learning how to keep showing up anyway.
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  In other words, you have Parkinson's, you're going to be
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  embarrassed. The trick is how you deal with
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  it. So those are the three most
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  embarrassing Parkinson symptoms, according to you in the
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  community. Drooling, dyskinesia, and
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  bathroom urgency. Now, which one of these have you
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  dealt with? Or is there another one that you
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  think belongs on the list? Drop it in the comments.
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  I read every single one and who knows, maybe there's three more
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  that we'll have to deal with and go through.
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  Many can there be, right? How many can there?
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  Give us a break and if you want to go deeper, right?
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  And these type of things are they're hard to talk about in
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  comments in public, but in the inner circle, they're diving
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  deep. There's there's another one that
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  I didn't mention that they're diving deep into right now and
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  they're diving deep hard. So join it.
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  Come on in. Click the link in the
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  description below and come to the private community where we
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  talk about these things 24/7 7 with no judgement.
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  OK, now listen, thank you for watching.
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  Don't forget to subscribe if you haven't already and share this
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  with somebody that you know might need it today.
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  And until next time, keep showing up, keep being real, and
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  keep doing life today. Parkinson's may be part of your
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  life, but it doesn't get to define it.
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  Thanks for listening to Living with Parkinson's, the good, the
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  Bad, and the Reality. If this episode moved you,
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  helped you, or reminded you you're not alone, share it with
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  someone who needs to hear it. Want to go deeper?
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  The Inner Circle is waiting. Monthly Zoom calls, 24/7
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  community, and a Direct Line to Bryce.
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  You'll find the link in the show notes.
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  Until next time, keep showing up and keep doing life today.