The Rare Cancer Nobody Knows About
From dismissed period cramps to appendix cancer discovery: Why rare disease awareness months matter—and how one advocate is making sure no one else misses the warning signs
Lindsay had terrible period cramps. For years, actually—as long as she can remember. Heavy bleeding, bloating that made her feel like her body wasn’t her own, cramps that would sideline her for days.
She kept thinking: there’s something wrong here. And she’d go to her doctors, over and over, convinced she had endometriosis. She’d done the research. She had her case ready.
Every single time? Same answer: “You’re a woman…
The skinny
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