All You Need Is the Next Step: Karen Morici & Emily Durham | The Human Algorithm by trialport

The Human Algorithm · Oct 29, 2026 · 24m

There's no single way to be a rare disease advocate. Karen Morici of CDG CARE and Emily Durham of the Channeling Hope Foundation join The Human Algorithm to share how a parent and a scientist found their way into advocacy, and why every voice counts.Karen was a hairstylist in Chicago with no science background when her son was diagnosed with a congenital disorder of glycosylation (CDG). One phone call from CDG CARE made her feel less alone, and helping other families became her way of healing. Emily always wanted to be a scientist. Research ethics led her to rare disease, and today she helps…