Latest / QUESTION EVERYTHING / Too Young for Cancer: Sydney Towle on Fighting for Her Life at 25
Transcript
- 0:03Speaker 1: No one has all the answers, but when we ask
- 0:05Speaker 1: the right questions, we get a little closer, closer to truths,
- 0:11Speaker 1: closer to each other, even closer to ourselves. I'm journalist
- 0:16Speaker 1: Danielle Robe, and each week, my guests and I come
- 0:19Speaker 1: together to challenge the status quo and our own ways
- 0:22Speaker 1: of thinking by daring to ask what if, why not?
- 0:28Speaker 1: And who says?
- 0:30Speaker 2: So?
- 0:30Speaker 1: Come curious, dig deep, and join the conversation. It's time
- 0:36Speaker 1: to question everything. Let me paint a picture of Sydney Toll.
- 0:45Speaker 1: She's twenty five years old. Sydney has effortless, earthy beauty
- 0:50Speaker 1: that just doesn't try hard. Blonde, tussled hair kind of
- 0:54Speaker 1: looks kissed by Salt and Son. Her style is unfussy
- 0:58Speaker 1: and bohemian, and around her neck she wears a small
- 1:00Speaker 1: shark tooth on a cord, a quiet nod to her
- 1:03Speaker 1: Florida roots. There's a grounded ease about her, an energy
- 1:07Speaker 1: that feels equal parts yoga teacher and little sister. She's
- 1:10Speaker 1: deeply kind and she thinks before she speaks. Two years ago,
- 1:14Speaker 1: when she was twenty three, fresh out of college graduation
- 1:17Speaker 1: from Dartmouth, Son kissed from surf and run clubs in
- 1:19Speaker 1: Los Angeles, newly yoga certified and sharing her life online.
- 1:23Speaker 1: She finished a jog, glanced down and felt a lump.
- 1:27Speaker 1: That lump was misdiagnosed, because how could a healthy, vibrant, bubbly,
- 1:31Speaker 1: twenty three year old girl have colangio carcinoma, a rare
- 1:35Speaker 1: bile duct cancer that usually strikes people over fifty years old.
- 1:39Speaker 1: But she did. Sydney logged onto TikTok, where she'd been
- 1:42Speaker 1: posting dance videos and lighthearted moments since college, and recorded
- 1:46Speaker 1: something different than her usual content. In a pink bikini top,
- 1:50Speaker 1: her face streaked with tears, she looked into the camera
- 1:53Speaker 1: and said, I have cancer. I'm strong, so I'll be good,
- 1:57Speaker 1: and then she gave a shaky thumbs up. Then She's
- 2:00Speaker 1: had major liver surgery, lost her gallbladder, endured relentless chemo,
- 2:06Speaker 1: and kept showing up. Her feed turned from kitchen dances
- 2:10Speaker 1: to hospital hallways IV tubes.
- 2:13Speaker 2: I haven't so I feel so sick every day every day.
- 2:22Speaker 1: That's when I found Sydney. She posted a video dancing
- 2:24Speaker 1: with her brother in the hospital, laughing silly human and
- 2:29Speaker 1: I stopped tears welled up. I didn't know her, but
- 2:33Speaker 1: I was rooting for her, and I wasn't the only one.
- 2:37Speaker 1: Millions of people filled her comments with love, keep going, Sydney,
- 2:41Speaker 1: You've got this. But in another corner of the Internet,
- 2:44Speaker 1: on Reddit, strangers picked apart her posts, insisting that she
- 2:49Speaker 1: was lying. They zoomed in on her scars, her hair,
- 2:53Speaker 1: her smile, deciding that her optimism made her suspicious. One
- 2:57Speaker 1: commenter even wrote, I literally feel like hunching her in
- 3:00Speaker 1: the face. The story spiraled so far that the New
- 3:03Speaker 1: York Times investigated and confirmed what should have never been
- 3:06Speaker 1: in question. Sydney really does have cancer. Sydney has since
- 3:11Speaker 1: moved to New York so she could be cared for
- 3:13Speaker 1: at Memorial Sloan kettering. She has to do chemo indefinitely,
- 3:17Speaker 1: and she keeps showing up at the infusion center and
- 3:20Speaker 1: on TikTok, and while some twenty five year olds in
- 3:22Speaker 1: New York are filming I get ready with me, Sydney's
- 3:26Speaker 1: filming one too, except hers begins a little bit differently.
- 3:29Speaker 1: She smiles towards the camera and says brightly, let's go
- 3:33Speaker 1: slay some chemo. Let's go slay some chemo, Like I
- 3:37Speaker 1: haven't done that.
- 3:37Speaker 3: A really long time, but I'm going to chemo today
- 3:40Speaker 3: and I'm also seeing my oncologist.
- 3:43Speaker 2: I'll be so honest. I did not feel like explained
- 3:45Speaker 2: chemo today, but we gotta do it.
- 3:53Speaker 1: Think about your world at twenty five friends, work the
- 3:56Speaker 1: right black top for Friday night, a new crush, maybe
- 3:59Speaker 1: a little k and then think about Sydney anchored to
- 4:02Speaker 1: a chemo chair, nauseous from all of it, still finding
- 4:06Speaker 1: reasons to laugh and show up. Cancer in young people
- 4:10Speaker 1: is rising at rates scientists can't ignore, especially cancers of
- 4:14Speaker 1: the gut, liver, and reproductive system. No one knows exactly
- 4:18Speaker 1: why yet. Maybe it's our food, our environment, our stress.
- 4:21Speaker 1: But the faces of cancer are getting younger and younger,
- 4:24Speaker 1: and Sydney is one of them. This is her first
- 4:27Speaker 1: ever podcast conversation. I wanted to talk to her not
- 4:30Speaker 1: just because she's surviving something unimaginable, but because she's living
- 4:34Speaker 1: through it and she doesn't have to, but she is
- 4:37Speaker 1: doing it with so much honesty and grace and humor
- 4:40Speaker 1: and a huge amount of courage. I wanted her story
- 4:43Speaker 1: etched in time so that one day, when she's on
- 4:46Speaker 1: the other side of this, she can look back and
- 4:49Speaker 1: see what she survived and how brightly she kept shining
- 4:53Speaker 1: through it. I think we're circling two questions today. The
- 4:56Speaker 1: first is how do you keep showing up for life
- 5:00Speaker 1: when life stops looking like what you imagined? And the
- 5:03Speaker 1: second is how do you hold hope and grief and
- 5:07Speaker 1: reality at the same time. It's time to question everything
- 5:11Speaker 1: with Sydney told So, Sydney, I first found you on TikTok,
- 5:22Speaker 1: I think, like so many other people did, and I
- 5:25Speaker 1: was immediately drawn to you because you are so vibrant
- 5:29Speaker 1: and really positive and super endearing. And I imagine, even
- 5:35Speaker 1: though you have millions of followers across platforms, that not
- 5:38Speaker 1: everybody knows your story. So I want to lay the
- 5:40Speaker 1: groundwork for them. You're twenty five, but at twenty three,
- 5:44Speaker 1: just two years ago, you had graduated from Dartmouth and
- 5:47Speaker 1: you moved to LA You had your yoga certification, and
- 5:51Speaker 1: I watched all your videos. You were swimming and running
- 5:54Speaker 1: and just being really active, and you built a small
- 5:58Speaker 1: but growing following. And one day you went for a run,
- 6:02Speaker 1: and within twenty four hours, your entire life changed. What
- 6:05Speaker 1: happened on that run?
- 6:06Speaker 3: Yeah, So, I was actually back at school at Dartmouth
- 6:10Speaker 3: and I was visiting one of my friends for a
- 6:12Speaker 3: music festival that they have there, and I went for
- 6:15Speaker 3: a run and right when I finished, I looked down
- 6:19Speaker 3: and I noticed that I had a lump protruding from
- 6:22Speaker 3: the right side of my abdomen.
- 6:24Speaker 2: And I was kind of like, what the heck is that?
- 6:27Speaker 3: And I immediately posted on Snapchat because we still use
- 6:30Speaker 3: snauschat at the time, and I was like, what is
- 6:34Speaker 3: this and people were like, oh, it's a hernia.
- 6:38Speaker 2: I looked it up.
- 6:39Speaker 3: The symptoms said hernia, so I thought it was an
- 6:41Speaker 3: exercise induced hernia and that was not the case. But
- 6:45Speaker 3: that's also what the initial urgent care doctor said as well.
- 6:48Speaker 3: Oh wow, yeah, so nobody thought that it was cancer
- 6:51Speaker 3: at first. Obviously your first instinct isn't this twenty five
- 6:55Speaker 3: year old probably has this rare cancer?
- 6:57Speaker 1: And what happened from there?
- 6:59Speaker 3: So I went home to LA and I ignored it,
- 7:03Speaker 3: honestly for a month or two. And I knew when
- 7:08Speaker 3: I would go for runs or when I would go
- 7:09Speaker 3: for like long walks, I would feel this burning sensation.
- 7:13Speaker 3: But I still ignored it, just because I think I
- 7:15Speaker 3: was in denial a little bit, and I would even
- 7:19Speaker 3: jokingly say sometimes like what if I have cancer, And
- 7:23Speaker 3: the people around me would be like, why would you
- 7:25Speaker 3: even say that, Like you're so young, you're so healthy,
- 7:27Speaker 3: you go to run club or you go to surf club,
- 7:30Speaker 3: Like there's just no way. And then I went to
- 7:33Speaker 3: the urgent care. He thought it was a hernia, but
- 7:35Speaker 3: he was like, just in case, I'll send you for
- 7:38Speaker 3: an ultrasound. And then when I went to the ultrasound,
- 7:41Speaker 3: it's really weird because they don't say anything to you
- 7:44Speaker 3: when they're doing it obviously, like they can't they're not
- 7:47Speaker 3: the ones reading the stands.
- 7:49Speaker 2: So she was very calm. She was like, oh, like,
- 7:51Speaker 2: have a nice day.
- 7:53Speaker 3: And it turns out there was an eight or nine
- 7:56Speaker 3: centimeter solid mass in my.
- 7:58Speaker 1: Liver and so you get the diagnosis and it's colangio carcinoma,
- 8:04Speaker 1: which is a rare cancer at twenty three years old,
- 8:08Speaker 1: Tell me what's going through your mind when you hear
- 8:09Speaker 1: those words come out of their mouth.
- 8:11Speaker 3: So I had no idea, and I think most people
- 8:13Speaker 3: don't know what calandiocarcinoma is. I heard carcinoma, and I
- 8:17Speaker 3: know that's one of the worst forms of cancer, like
- 8:20Speaker 3: one of the most deadly forms so I remember I
- 8:23Speaker 3: went to go pick up the report from the MRI
- 8:26Speaker 3: place and I opened the report, I'm by myself, and
- 8:31Speaker 3: right when I open it, I just see the words
- 8:33Speaker 3: likely carcinoma, multiple enhancing masses, and I immediately just dropped
- 8:38Speaker 3: to the ground in the parking lot, and I.
- 8:40Speaker 2: Was like in shock.
- 8:41Speaker 3: I mean, I kind of had this gut feeling that
- 8:43Speaker 3: it was cancer, but to see like multiple tumors increasing
- 8:48Speaker 3: in size, I was like, how is this possible?
- 8:51Speaker 1: And to see those words you were alone?
- 8:53Speaker 3: I was alone again. I had a gut feeling, but
- 8:56Speaker 3: I was hoping I was wrong. So opening it by myself,
- 9:00Speaker 3: i'm a parking lot, I was just like, oh my gosh,
- 9:02Speaker 3: how is this my new reality? You know, it was
- 9:05Speaker 3: confirmation of a nightmare, right exactly? Yeah, what do you
- 9:08Speaker 3: remember about that day? Immediately after, so I immediately facetimed
- 9:13Speaker 3: my family, and normally they both don't pick up. My
- 9:16Speaker 3: brother and my mom they both picked up on like
- 9:18Speaker 3: the first ring, so it was already a crazy moment.
- 9:21Speaker 3: And then I was already crying. I was already bawling,
- 9:23Speaker 3: and they were like, what's wrong, What's wrong? And I
- 9:25Speaker 3: was just like, I've cancer. And they both started.
- 9:27Speaker 2: Immediately bawling as well.
- 9:30Speaker 3: So that was a core memory probably that I will
- 9:33Speaker 3: never forget is their reaction calling them and seeing their
- 9:36Speaker 3: faces when I said that, and then also texting all
- 9:39Speaker 3: of my friends at the same time saying I have
- 9:41Speaker 3: cancer because.
- 9:42Speaker 2: I just didn't know what to do.
- 9:43Speaker 3: I think you kind of immediately when you get news
- 9:45Speaker 3: like that, you reach out to everyone you know and
- 9:47Speaker 3: you're like, what's going on. And obviously all of my
- 9:50Speaker 3: friends were like, what are you talking about?
- 9:52Speaker 1: It's interesting that you texted all your friends. You're a
- 9:55Speaker 1: friend girl, Yes I am.
- 9:57Speaker 2: I love my friends.
- 9:57Speaker 3: And one of my friends in La I text him
- 10:00Speaker 3: and said I have cancer right when it was happening,
- 10:02Speaker 3: and he was supposed to go to San Diego that day.
- 10:05Speaker 3: He immediately canceled the trip to go see his friends
- 10:08Speaker 3: and then spent the day with me at the beach,
- 10:10Speaker 3: just hanging out.
- 10:10Speaker 2: So I have some really great friends.
- 10:13Speaker 1: Did you guys talk about it or did that day
- 10:15Speaker 1: did you just want to enjoy the beach and not
- 10:17Speaker 1: think about it.
- 10:18Speaker 3: I think we just didn't talk about it. I think
- 10:21Speaker 3: I was in so much shock. I don't think there's
- 10:23Speaker 3: like a way to process that much information in one time.
- 10:27Speaker 2: So yeah, we just hung out.
- 10:29Speaker 1: What were the psychological impacts of the diagnosis in the
- 10:33Speaker 1: days and weeks to come.
- 10:34Speaker 3: Honestly, it's so hard to think about because I think
- 10:36Speaker 3: a lot of my processing has been through disassociation, like
- 10:41Speaker 3: kind of pretending it's not happening. So I try not
- 10:44Speaker 3: to think about it too much. Yeah, but I think
- 10:47Speaker 3: it has taken obviously a very big toll, like psychologically
- 10:50Speaker 3: and mentally, because how are you supposed to cope with
- 10:53Speaker 3: all the other normal things that twenty three year old
- 10:55Speaker 3: twenty four year old deals with while also having stage
- 10:58Speaker 3: four cancer while I didn't know stage one.
- 11:00Speaker 2: At the time, having cancer, Yeah, and especially a rare cancer.
- 11:04Speaker 3: I went back to therapy, I think to like talk
- 11:07Speaker 3: through things and unpack things. But I think also talking
- 11:10Speaker 3: on TikTok and sharing videos like that has been a
- 11:13Speaker 3: really helpful way for me to process everything that's going
- 11:16Speaker 3: on as well. So yeah, psychologically it's been a lot.
- 11:19Speaker 3: Physically it's been a lot, but there's also been a
- 11:21Speaker 3: lot of good that's come from it.
- 11:23Speaker 1: I want to hear about all three of those things. Yeah,
- 11:25Speaker 1: tell me about the first TikTok that you posted sharing
- 11:28Speaker 1: your diagnosis.
- 11:29Speaker 3: So I had got home from the beach with my friend,
- 11:33Speaker 3: and I just started bawling right when I got home,
- 11:36Speaker 3: right when I was alone, because I feel like I'm
- 11:38Speaker 3: not the type of person to be able to cry
- 11:40Speaker 3: in front of other people, which is funny because I
- 11:42Speaker 3: cry on TikTok a lot.
- 11:43Speaker 2: And obviously a lot of people see that, but.
- 11:45Speaker 3: In person, I preferred to process my emotions on my own,
- 11:49Speaker 3: and so I just started bawling.
- 11:50Speaker 2: And then, honestly, I don't know.
- 11:52Speaker 3: What spurred me to just record a video, but I
- 11:55Speaker 3: had already been posting on the app, and I'd posted
- 11:57Speaker 3: kind of everything randomly, so I just said, you know,
- 12:01Speaker 3: I've posted everything on here, so I'm going to say
- 12:04Speaker 3: this as well. I just found out I have cancer
- 12:07Speaker 3: and I posted it. I didn't think anything of it,
- 12:10Speaker 3: and then that video ended up going kind of viral,
- 12:14Speaker 3: and I had so many people reach out to me,
- 12:17Speaker 3: so many people comment, and I think cancer, unfortunately, is
- 12:20Speaker 3: just a very relatable thing. It's becoming more common, so unfortunately,
- 12:25Speaker 3: a lot of people I think are able to relate
- 12:27Speaker 3: to my story themselves or through their family or friends
- 12:30Speaker 3: or someone they know.
- 12:32Speaker 1: How do you feel about all of the interaction around
- 12:37Speaker 1: talking about your cancer. Are people helpful, have you found
- 12:41Speaker 1: any information or doctors from it? Or is it emotionally exhausting?
- 12:46Speaker 3: There are a lot of feelings associated with it. It
- 12:48Speaker 3: has been very helpful, I think in both directions for
- 12:51Speaker 3: me and for other people, because all post videos as
- 12:54Speaker 3: well from things I've learned from other people commpting like histotripsy,
- 12:58Speaker 3: like these new technological advances for cancer treatment, and then
- 13:02Speaker 3: I'll post my experience with it, like I looked into this,
- 13:05Speaker 3: and then someone will message me or comment and say
- 13:09Speaker 3: thank you so much. I had no idea this was
- 13:10Speaker 3: a thing. In thanks to you, my significant other or
- 13:13Speaker 3: my parent or my child was.
- 13:15Speaker 2: Able to look into this.
- 13:16Speaker 1: Wow.
- 13:17Speaker 3: So it's amazing the amount of information you're allowed to
- 13:19Speaker 3: receive and give to other people.
- 13:21Speaker 2: Like it's kind of just a.
- 13:22Speaker 1: Circle, it is. I see it in the comment section.
- 13:26Speaker 1: There's a TikTok that you made in your car. I
- 13:28Speaker 1: have to be honest with you. I find it hard
- 13:30Speaker 1: sometimes to watch other people be emotional on the internet,
- 13:34Speaker 1: and I don't feel that way with you. I'm not
- 13:36Speaker 1: sure why I need to unpack I know, and there's
- 13:40Speaker 1: a TikTok that's in your car. You would just received
- 13:43Speaker 1: some sad news. It signaled a step back, and you said,
- 13:47Speaker 1: this just isn't what I thought my life was going
- 13:49Speaker 1: to be. Like, what was going through your mind? What
- 13:51Speaker 1: did you think pre cancer diagnosis? What did you envision?
- 13:55Speaker 1: It's a great question. I said this in another TikTok.
- 13:58Speaker 3: Actually at the time in twenty twenty three, like the
- 14:00Speaker 3: year I was diagnosed, I said, this has been the
- 14:02Speaker 3: best year of my life, even though one of the
- 14:04Speaker 3: worst things has happened, because I really found my community.
- 14:08Speaker 3: I was loving my life in LA. I was going
- 14:10Speaker 3: to surf crew every week, I was going to run club.
- 14:13Speaker 3: I felt like I had so much community and so
- 14:15Speaker 3: much happiness around me and so many good friends. And
- 14:18Speaker 3: then that happened so unexpectedly, and it was kind of
- 14:22Speaker 3: just like, how is it possible to have such happiness
- 14:24Speaker 3: in such a good life and have that kind of
- 14:26Speaker 3: feel like it's being ripped from under you. So I
- 14:29Speaker 3: guess I envisioned myself staying in La probably honestly not
- 14:33Speaker 3: moving to New York, and continuing to build that community,
- 14:36Speaker 3: continuing to surf, continuing to run. But I have a
- 14:39Speaker 3: full time job in addition to doing content, which not
- 14:41Speaker 3: many people know.
- 14:43Speaker 2: So doing that and yeah, definitely not this.
- 14:46Speaker 1: You don't fit any of the demographic factors for colangiocarcinoma,
- 14:51Speaker 1: which is bioduct cancer. You received the diagnosis at twenty three,
- 14:55Speaker 1: and it's this rare cancer that people over fifty usually have.
- 15:00Speaker 1: How do you reckon with the fact that you have
- 15:02Speaker 1: this when the odds are so slim.
- 15:04Speaker 2: I think about that so often and I'm like, how
- 15:07Speaker 2: is this possible?
- 15:08Speaker 3: Because I went to the Clandiocarsonoma conference this year and
- 15:12Speaker 3: I spoke and everyone pretty much in the room was
- 15:16Speaker 3: around fifty or over the age of fifty, and so
- 15:19Speaker 3: I'm like in these group photos and I'm the youngest
- 15:22Speaker 3: person there, the youngest person in the room. People would
- 15:24Speaker 3: constantly come up to me and be like, you're so young,
- 15:27Speaker 3: And doctors say that all the time.
- 15:29Speaker 2: They're like, you're so young. When I came to New York.
- 15:31Speaker 3: To MSK I memori alson Kettering to get a second
- 15:34Speaker 3: opinion my oncoll just now redid all the tests that
- 15:37Speaker 3: I had originally done and redid my biopsy because he
- 15:40Speaker 3: was like, you don't fit these demographics, Like I have
- 15:43Speaker 3: a hard time believing that you have clandiocarcinoma, and I do,
- 15:48Speaker 3: and it's so hard for me to process that, like
- 15:50Speaker 3: why did this happen to me at such a young age?
- 15:53Speaker 3: Like I don't understand it honestly, And I think the
- 15:56Speaker 3: only way I get through it is by not trying
- 15:58Speaker 3: to understand it anymore, just accepting that it's what's happening
- 16:01Speaker 3: right now. And you can only control your reaction things,
- 16:05Speaker 3: not what's happening.
- 16:06Speaker 1: So have you disassociated yes, so much?
- 16:09Speaker 3: I think honestly, some of the only times I process
- 16:12Speaker 3: things are when I'm talking to TikTok to my phone.
- 16:14Speaker 2: They're else.
- 16:15Speaker 3: I don't speak about it that often, Like I don't
- 16:17Speaker 3: speak about it with my friends. I try not to
- 16:19Speaker 3: speak about it with my family too often.
- 16:22Speaker 2: Why.
- 16:23Speaker 3: I think it's easier to pretend that it's not happening
- 16:25Speaker 3: when you don't speak about it.
- 16:27Speaker 2: Speaking about it almost makes it feel real.
- 16:29Speaker 3: So just not talking about it, pretending that it's not happening,
- 16:32Speaker 3: pretending that I can go out to dinner and go
- 16:34Speaker 3: out with my friends but I'm just a normal twenty
- 16:37Speaker 3: five year old. That's kind of how I get through it.
- 16:39Speaker 1: I think, do you feel different from your friends. The
- 16:41Speaker 1: way you talk about it is in college, you guys
- 16:44Speaker 1: were like a unit. You had this group.
- 16:46Speaker 3: Yes, it's hard sometimes to have normal conversations now about
- 16:52Speaker 3: like dating and like normal worries of a twenty five
- 16:56Speaker 3: year old, because I just feel like my worries are
- 16:59Speaker 3: a lot different now, Like I don't care about.
- 17:01Speaker 2: The small things as much. I care more about like
- 17:04Speaker 2: life and death and like what's going to happen in
- 17:06Speaker 2: the next year or so. So it is kind of hard.
- 17:08Speaker 3: For me to have lighthearted conversations or you know, small
- 17:12Speaker 3: talk if I'm going to like a party like something
- 17:15Speaker 3: like that. It's kind of hard for me to pretend
- 17:17Speaker 3: that everything's normal when something so big is happening.
- 17:20Speaker 1: You wrote in your TikTok bio that you are slaying cancer. Yes,
- 17:24Speaker 1: when you use that phrase, what does it mean to you?
- 17:27Speaker 2: It has never had a definition to me.
- 17:29Speaker 3: Really, I feel like it's more of an emotional like
- 17:33Speaker 3: fortification of like I don't want to do this thing.
- 17:37Speaker 3: I don't want to show up every day. I don't
- 17:39Speaker 3: want to go to chemo. But regardless if I want
- 17:42Speaker 3: to or not, I'm going to, So even if it's
- 17:45Speaker 3: the last thing I want to do. If I say
- 17:48Speaker 3: in a video like let's go slay some chemo, it
- 17:50Speaker 3: kind of hypes me up and makes me more ready
- 17:53Speaker 3: and prepared to go take this on, even if I
- 17:56Speaker 3: don't quite feel ready.
- 17:58Speaker 1: Do you see cancer as an enemy to fight or
- 18:02Speaker 1: something that has forced you to look at things differently?
- 18:05Speaker 2: Both?
- 18:06Speaker 3: Honestly, I think more importantly probably it's forced me to
- 18:09Speaker 3: look at things differently because my perspective on life, I
- 18:11Speaker 3: feel like has changed so much over the past two years.
- 18:15Speaker 3: But also recently I've been trying to see it more
- 18:17Speaker 3: as an enemy. And I was talking to one of
- 18:20Speaker 3: my friends who also had cancer in the city, and
- 18:24Speaker 3: you were saying, like, what if we kind of treated
- 18:26Speaker 3: it like it was this enemy, like it was this
- 18:28Speaker 3: like mean person. And that kind of gave me a
- 18:31Speaker 3: perspective change because I was like, Yeah, I don't want
- 18:34Speaker 3: to be friends with it.
- 18:35Speaker 2: I want it to be gone from my body.
- 18:37Speaker 3: So treating it almost in that light has been kind
- 18:40Speaker 3: of helpful because it makes me want to fight it
- 18:42Speaker 3: more aggressively and like, no, you don't belong to your
- 18:44Speaker 3: get out of my body. And that's been a little
- 18:48Speaker 3: bit helpful to think about it in that light.
- 18:50Speaker 1: It sounds like you're doing mental gymnastics always. How do
- 18:54Speaker 1: you experience time right now? Does it go by fast?
- 18:56Speaker 1: Does it go by slowly?
- 18:58Speaker 2: It really depends on the week because my chemo weeks.
- 19:01Speaker 3: So I had chemo this Monday, and it always goes
- 19:04Speaker 3: so much slower after chemo because I want the day
- 19:08Speaker 3: to go by, and whenever you want time to go
- 19:10Speaker 3: by faster, it.
- 19:11Speaker 2: Goes by slower. I feel like that's always the case.
- 19:14Speaker 2: But when I'm off of chemo, like on vacation, you're
- 19:17Speaker 2: on a trip, it goes by so fast, and I'm like,
- 19:21Speaker 2: I wish I could just stay in this moment longer.
- 19:23Speaker 2: I wish I could stay in this peaceful moment, because
- 19:26Speaker 2: it feels like it's really hard to find peace these days.
- 19:29Speaker 3: So it's always those peaceful times that it feels like
- 19:31Speaker 3: are very fleeting.
- 19:32Speaker 1: Where are you experiencing peace or joy right now?
- 19:36Speaker 3: It's always by the beach because I grew up by
- 19:38Speaker 3: the beach in Florida, so I think whenever I'm by
- 19:41Speaker 3: the beach, and I think a lot of people feel
- 19:43Speaker 3: that way.
- 19:43Speaker 2: By the ocean, it's just very calming.
- 19:45Speaker 1: I read on today dot Com that you were not
- 19:48Speaker 1: able to freeze your eggs or take any other precautionary
- 19:51Speaker 1: measures ahead of getting treatment. What does that mean for you?
- 19:55Speaker 3: I actually woke up thinking about that this morning because
- 19:58Speaker 3: a lot of my friends who have had cancer, because
- 20:01Speaker 3: I've met a lot of people in this community, did
- 20:03Speaker 3: freeze their eggs before, and I feel like for some reason,
- 20:06Speaker 3: it wasn't brought to my attention that it was an
- 20:09Speaker 3: important thing to do before starting chemo. I think also
- 20:13Speaker 3: because we didn't know how long I was going to
- 20:14Speaker 3: be in chemo for, which is now indefinitely, and I
- 20:17Speaker 3: think about that very often, especially when I'm dating or
- 20:22Speaker 3: trying to think about the potential of a future and
- 20:24Speaker 3: a family. It makes me really anxious and sad to
- 20:28Speaker 3: think about the fact that I.
- 20:29Speaker 2: Didn't freeze my eggs ahead of time.
- 20:31Speaker 3: Because you need at least this is what they told me,
- 20:33Speaker 3: you need a couple months off of chemo, or like
- 20:36Speaker 3: at least a month to be able to do the
- 20:38Speaker 3: process of freezing your eggs. And I don't have that
- 20:40Speaker 3: time off, so I'm not able to do it. So
- 20:43Speaker 3: I'm kind of waiting for that day that hopefully I'll
- 20:45Speaker 3: get a break and I'll be able to do it
- 20:46Speaker 3: just so I have that safety net, a feeling like
- 20:49Speaker 3: one day if I am able to have a family,
- 20:51Speaker 3: and I want to have a family, I do have
- 20:52Speaker 3: that potential, which obviously there are other ways like adoption,
- 20:56Speaker 3: IVF and stuff, but it is something that I wish
- 20:58Speaker 3: I had done ahead of time.
- 21:00Speaker 1: I like that you're thinking about a future though, I know.
- 21:02Speaker 3: I mean it's important too, I think to have something
- 21:05Speaker 3: to hold on to and to like fight.
- 21:07Speaker 1: For, you know, absolutely, yeah, So talk to me about
- 21:11Speaker 1: your regimen right now? What does your day to day
- 21:14Speaker 1: look like when you are experiencing chemo.
- 21:17Speaker 2: I wake up, I do my get ready with me
- 21:19Speaker 2: for chemo Ghostla.
- 21:20Speaker 3: In chemo, my mom will normally come with me, and
- 21:24Speaker 3: then we go home and I try to work. I
- 21:26Speaker 3: work remotely, so I work remotely as much as I can,
- 21:30Speaker 3: and then I sleep the rest of the time. And
- 21:33Speaker 3: I really am just waiting for those two or three
- 21:35Speaker 3: days to pass to where I start to.
- 21:37Speaker 2: Feel normal again.
- 21:38Speaker 3: Like today, I feel like I woke up and I
- 21:39Speaker 3: started to feel a little bit more like myself again, and.
- 21:42Speaker 2: That's just the best feeling. Once I start to come
- 21:44Speaker 2: back to myself, the.
- 21:45Speaker 3: Brain fog starts to go away and I start to
- 21:47Speaker 3: feel like Sitney again.
- 21:48Speaker 2: That's like the best feeling.
- 22:03Speaker 1: So you underwent five months of treatment, and then your
- 22:07Speaker 1: progress allowed you to undergo surgery, which had been the
- 22:10Speaker 1: initial goal. Correct, So in January of twenty twenty four,
- 22:13Speaker 1: you had a liver resection is that what it's called,
- 22:16Speaker 1: and your gallbladder was removed, and then you had several
- 22:19Speaker 1: abdominal lymph nodes taken out. Yes, and the plan was
- 22:22Speaker 1: to resume chemo afterward, but there was a combination of
- 22:25Speaker 1: positive margins which means residual cancer cells, and your white
- 22:28Speaker 1: blood cell count that never really rebounded. So what happened
- 22:32Speaker 1: after that?
- 22:33Speaker 3: Yeah, so I went back and I had one session
- 22:36Speaker 3: of chemo, and then they looked at my blood work
- 22:39Speaker 3: the next time and they were like, we can't give
- 22:41Speaker 3: you chemo.
- 22:42Speaker 2: Your numbers are too low.
- 22:43Speaker 3: And hearing that, I think for any cancer patient is
- 22:46Speaker 3: one of the worst things you can hear. I've had
- 22:47Speaker 3: other people tell me that too, which is a weird
- 22:51Speaker 3: thing to say, because you hate going to chemo so much.
- 22:54Speaker 3: When they tell you that you can't get it, it
- 22:56Speaker 3: feels like the world is ending a little bit, because we.
- 22:59Speaker 2: Know how important it is. To get chemo every week
- 23:01Speaker 2: and to like stay on a regimen.
- 23:02Speaker 3: So hearing that I think, I like had a break
- 23:05Speaker 3: down at the time, like we're stopping chemo, we're pausing chemo.
- 23:08Speaker 3: It was nice, like I was like, I get a break,
- 23:10Speaker 3: but it was also like, I know that I should
- 23:12Speaker 3: be getting chemo. I know that that's the right thing
- 23:14Speaker 3: to be doing at this time if I want to
- 23:16Speaker 3: keep making like progress. So that was really hard to
- 23:19Speaker 3: deal with at the time, but it was also nice
- 23:21Speaker 3: because I got to enjoy my summer with my friends,
- 23:23Speaker 3: and I'll think about it, you know.
- 23:25Speaker 1: That was this summer. That was last summer, okay, and
- 23:28Speaker 1: then what happened in the fall.
- 23:30Speaker 3: So I went in for updated CT scans and it
- 23:33Speaker 3: showed a nodule on my liver and we weren't sure
- 23:37Speaker 3: at the time if that was scar tissue or if
- 23:39Speaker 3: that was a tumor. Son we waited another month and
- 23:41Speaker 3: did follow up scans and it had grown, which meant
- 23:44Speaker 3: that it was cancer. And so seeing that it was
- 23:48Speaker 3: increasing in size was also kind of a moment of
- 23:50Speaker 3: like I need to kick things into gear, like clearly
- 23:53Speaker 3: this isn't working. And that's when I started to also
- 23:56Speaker 3: look at Memorial Stonecuttering and like alternative treatment.
- 23:59Speaker 1: And is that the reason moved to New York.
- 24:01Speaker 2: That's a major reason. Yeah.
- 24:03Speaker 3: I also wanted to be closer to my family and
- 24:05Speaker 3: my friends, because most of my college friends live in
- 24:08Speaker 3: New York and my family's also on the East Coast.
- 24:11Speaker 3: So it was a combination of wanting better treatment but
- 24:15Speaker 3: also wanting to be close to the people that knew
- 24:17Speaker 3: me the best and know me longest.
- 24:19Speaker 1: How important is it to be at a specific hospital.
- 24:23Speaker 2: It's very important.
- 24:25Speaker 3: I've talked to so many people with different types of
- 24:27Speaker 3: cancer and my cancer who have said, oh, this small
- 24:31Speaker 3: local hospital I originally went to had never seen clangoparsonoma,
- 24:35Speaker 3: so they had no idea what to look for.
- 24:37Speaker 2: People have been misdiagnosed based on that. So getting to a.
- 24:42Speaker 3: Hospital that specializes, especially in the cancer that you have,
- 24:45Speaker 3: is so critical. To have someone who's used to seeing
- 24:49Speaker 3: your cancer, who's used to treating it, who has plenty
- 24:52Speaker 3: of background knowledge, I think is critical.
- 24:54Speaker 1: Yeah, you shared your struggle online about remaining positive and
- 24:59Speaker 1: then also trying to find the balance of feeling all
- 25:02Speaker 1: of the feelings and the sadness and the grief that
- 25:05Speaker 1: comes with this. How do you allow yourself to feel
- 25:09Speaker 1: the dark days but not get swallowed up by them.
- 25:12Speaker 2: Yeah, that's a great question.
- 25:14Speaker 3: I think I've obviously had a hard time dealing with
- 25:17Speaker 3: that as well, because it is a sad thing that's happening.
- 25:20Speaker 3: You know, even if I am positive most of the time,
- 25:22Speaker 3: it is still a really hard thing to go through.
- 25:25Speaker 3: And I think one of the quotes I've heard that's
- 25:28Speaker 3: helped me a lot is that emotion is energy and motion,
- 25:31Speaker 3: and so if you try to stop it, it's like
- 25:33Speaker 3: it'll just get stuffed down and ultimately it's all still
- 25:37Speaker 3: going to come back up sometimes, So allowing myself to
- 25:40Speaker 3: kind of picture it as a wave, the sadness is
- 25:42Speaker 3: like hitting me as a wave. But I just have
- 25:44Speaker 3: to let it go and feel it and process it
- 25:47Speaker 3: and then it'll move on. I think that's the most
- 25:49Speaker 3: helpful thing, just letting yourself feel whatever it is that
- 25:52Speaker 3: you're feeling, like, not trying to stuf it down, not
- 25:54Speaker 3: trying to be positive.
- 25:56Speaker 2: All the time. But I try not to do that.
- 25:58Speaker 3: I try to post also the sad time, because I
- 26:00Speaker 3: know that, like, no one's happy all the time, and
- 26:03Speaker 3: I think that's what also people relate to is that
- 26:05Speaker 3: I'm not happy and positive all the time. I'm also
- 26:08Speaker 3: definitely sad and feeling all the emotions that.
- 26:11Speaker 2: Are going on.
- 26:11Speaker 1: Even in your saddest moments, there's a lot of hope
- 26:14Speaker 1: in your videos.
- 26:15Speaker 3: I honestly don't know where it comes from. There's no
- 26:18Speaker 3: other way, I think for me to deal with this
- 26:20Speaker 3: than being hopeful. Like I just don't see an alternative
- 26:23Speaker 3: to being like positive, because I mean, I'm either going
- 26:26Speaker 3: to get through it, I'm not.
- 26:27Speaker 2: How I get there is up to me.
- 26:29Speaker 1: So the nausea, the exhaustion, the roller coaster of all
- 26:32Speaker 1: of this. Is there something you're saying to yourself when
- 26:35Speaker 1: you feel like you're at your wits end you can't
- 26:37Speaker 1: go on?
- 26:38Speaker 3: I always have said to myself since the beginning, this
- 26:41Speaker 3: too shall pass. Every time I'm at like the deepest,
- 26:44Speaker 3: darkest part, I'm like, you have been through the ringer,
- 26:48Speaker 3: you have been through the worst days, and you've still
- 26:51Speaker 3: gone past it, and you've still had so many happy
- 26:54Speaker 3: moments after those really dark days, sometimes immediately after those
- 26:58Speaker 3: dark days, you know. And so I'm always just reminding
- 27:01Speaker 3: myself that even if it feels like you're not going
- 27:04Speaker 3: to get through it. You have gotten through it endless time,
- 27:06Speaker 3: so you can do it again. It does get harder,
- 27:09Speaker 3: honestly as time goes on, because it's like, how many
- 27:12Speaker 3: times do I have to keep picking myself back up
- 27:15Speaker 3: and getting over that hurdle. So as time goes on,
- 27:18Speaker 3: it has gotten more difficult to just keep telling myself
- 27:21Speaker 3: that this is going to pass, this is going to pass.
- 27:23Speaker 1: There's a lot of mental fortitude involved with what you're dealing.
- 27:26Speaker 3: With, Definitely. I mean I think for myself and for
- 27:30Speaker 3: the people around me too. It's a huge mental I
- 27:33Speaker 3: don't want to say burden, but it is really hard
- 27:35Speaker 3: I think for everyone to deal with.
- 27:37Speaker 2: Definitely for me. Yeah, when you.
- 27:38Speaker 1: Say everyone around you, the main people in your life
- 27:41Speaker 1: are your mom and your brother.
- 27:42Speaker 2: Yeah, my mom and.
- 27:43Speaker 3: My brother, and then my best friends that are here
- 27:45Speaker 3: and also in LA it's hard because they don't talk
- 27:48Speaker 3: about it as much.
- 27:48Speaker 2: With me. I think people want.
- 27:50Speaker 3: To be strong for you, like no one wants to
- 27:52Speaker 3: show that they're also feeling these heavy feelings too, so
- 27:57Speaker 3: them being strong, I don't see the emotions behind behind
- 28:00Speaker 3: it for most of the people in my life.
- 28:02Speaker 1: Is that helpful for you or do you wish that
- 28:04Speaker 1: they would show it a little bit.
- 28:05Speaker 3: It's helpful for me most of the time because it
- 28:08Speaker 3: allows me to pretend that everything's fine when everyone else is.
- 28:12Speaker 2: Also pretending things are fine.
- 28:14Speaker 3: But sometimes I think I do wish that I was
- 28:18Speaker 3: more emotional with the people that I love, and that
- 28:21Speaker 3: would probably allow them to be more emotional with me
- 28:23Speaker 3: in return to just so that we could actually acknowledge
- 28:27Speaker 3: it and maybe like talk through some things that we
- 28:29Speaker 3: probably are kind of pushing to the side to put
- 28:33Speaker 3: on a brave face.
- 28:34Speaker 1: Have you lost any relationships or have you fired any
- 28:37Speaker 1: friends in this process?
- 28:39Speaker 2: That's a good question.
- 28:40Speaker 3: People always say that when you're going through something like this,
- 28:44Speaker 3: you see who really matters and people will show up
- 28:47Speaker 3: for you, And that's definitely been the case.
- 28:50Speaker 2: I've seen.
- 28:51Speaker 3: You know who reaches out, and it is also unexpected
- 28:55Speaker 3: to see who reaches out, like people from your past
- 28:58Speaker 3: or people that you maybe thought were more acquaintances or
- 29:01Speaker 3: you didn't know as well, that will show up for
- 29:03Speaker 3: you in the biggest ways.
- 29:05Speaker 1: I got chills when you said that.
- 29:06Speaker 3: Yeah, and even like strangers on the street will come
- 29:09Speaker 3: up to me and give me a hug and be like,
- 29:11Speaker 3: you're basically my daughter, and I'm like, that's crazy that
- 29:15Speaker 3: people that I've never met before have so much love
- 29:19Speaker 3: for me. That's hard to process for me, Like, I
- 29:22Speaker 3: honestly can't process that.
- 29:24Speaker 2: It's so crazy.
- 29:25Speaker 1: If you could point to one or two examples of
- 29:28Speaker 1: the most beautiful and even unexpected ways people have shown up.
- 29:31Speaker 3: For you, one of the biggest ways is when people
- 29:34Speaker 3: that I went to school with or people that I've
- 29:37Speaker 3: met kind of briefly will say, can I come to
- 29:40Speaker 3: chemo with you? I think that's so sweet that you
- 29:42Speaker 3: would want to come and sit in a hospital with
- 29:45Speaker 3: me while I'm getting treatment. Like, nobody really wants to
- 29:47Speaker 3: be in a hospital. Nobody wants to see someone else
- 29:49Speaker 3: getting chemo. It's kind of a sad thing to watch.
- 29:53Speaker 3: So when people offer to come with me, I think
- 29:56Speaker 3: that's really sweet. And at the same time, I never
- 29:59Speaker 3: want people to come with me. I only ever really
- 30:01Speaker 3: want my family to because I don't want people to
- 30:04Speaker 3: see me that way.
- 30:05Speaker 1: Would you feel like you have to perform for them?
- 30:07Speaker 2: Yeah?
- 30:07Speaker 3: I do feel like with my mom coming, I don't
- 30:10Speaker 3: have to put on a brave face.
- 30:11Speaker 2: I don't have to be positive, I don't have to
- 30:14Speaker 2: be happy.
- 30:14Speaker 3: I can just kind of sit there and let myself
- 30:18Speaker 3: go through the treatment. Yeah, but I feel like almost
- 30:21Speaker 3: if I was around my friends, if I was around acquaintances,
- 30:24Speaker 3: I do kind of have to be a more happy
- 30:27Speaker 3: version of myself in a sense, or a more energetic
- 30:30Speaker 3: version of myself, like hold.
- 30:32Speaker 2: A conversation and things like that.
- 30:34Speaker 1: What have you learned about your own resilience?
- 30:37Speaker 2: Oh my gosh, so much.
- 30:38Speaker 3: I feel like I had no idea how much my
- 30:41Speaker 3: body was capable of before this. I had never been
- 30:45Speaker 3: tested in this way, never had a broken bone, never
- 30:48Speaker 3: gotten stunned by a bee, and then going through such
- 30:52Speaker 3: a huge physical challenge like this and knowing that my
- 30:55Speaker 3: body keeps coming back for me, it makes me so
- 30:58Speaker 3: proud of it, and I'm like, the human boss is amazing.
- 31:01Speaker 3: To go through so much and to still be here
- 31:04Speaker 3: and to be fighting every single day, I'm very proud
- 31:07Speaker 3: of I.
- 31:07Speaker 2: Think my body as a whole.
- 31:09Speaker 3: And obviously there is a lot of mental resilience required, because,
- 31:14Speaker 3: as we've talked about, you have to show up for
- 31:15Speaker 3: yourself every single day, Like even if you're having an
- 31:18Speaker 3: off day, you're still showing up for yourself because you're
- 31:21Speaker 3: still pushing through.
- 31:21Speaker 2: You're still waiting to get to the other side.
- 31:24Speaker 3: You're for surprise yourself. Yeah, I think every time I
- 31:27Speaker 3: finished chemo. Every time at the end of the week,
- 31:29Speaker 3: I'm surprised for myself because I'm like, you did it again,
- 31:32Speaker 3: you got through it. And it's so hard, especially to
- 31:36Speaker 3: know that it's indefinite, like there's not a finish line.
- 31:39Speaker 3: And I just made a video yesterday saying like it
- 31:42Speaker 3: feels like I'm on a treadmill, and it feels like
- 31:45Speaker 3: the destination that I'm running to just keeps getting further
- 31:47Speaker 3: and further away. And it's so hard to deal with that,
- 31:52Speaker 3: deal with not having a definite ending and just knowing
- 31:54Speaker 3: that I have to keep going back week after week
- 31:58Speaker 3: and dealing with this.
- 31:59Speaker 2: It's really tough.
- 32:00Speaker 1: What does indefinite mean?
- 32:02Speaker 3: Indefinite means that we're crossing our fingers and hoping for
- 32:07Speaker 3: a day where I can get surgery again. But it's
- 32:10Speaker 3: really weird to also now have a pump in my
- 32:12Speaker 3: body and to know that's kind of there forever potentially,
- 32:16Speaker 3: to know that my body is maybe forever changed or
- 32:18Speaker 3: it is forever changed by a lot of what's happened,
- 32:21Speaker 3: but by the pump specifically, and just not having that
- 32:24Speaker 3: end date in mind that like you'll do X amount
- 32:27Speaker 3: of chemo and you'll be good.
- 32:28Speaker 2: It's not like that.
- 32:29Speaker 3: It's like, we'll see what happens, and we'll keep doing
- 32:32Speaker 3: chemo until we can't do it anymore.
- 32:47Speaker 1: You posted the other day a photo of your stomach. Yeah,
- 32:51Speaker 1: and you have a big scar that kind of like
- 32:53Speaker 1: lines the center of your stomach. I'll tell you my
- 32:56Speaker 1: first reaction. I thought warrior. I thought that's a battle wound,
- 33:00Speaker 1: and it's a physical manifestation of her fight. When you
- 33:05Speaker 1: look at it, what do you feel?
- 33:06Speaker 3: Honestly, I feel like I got so used to the
- 33:09Speaker 3: scar because I've had it for over a year at
- 33:11Speaker 3: this point.
- 33:12Speaker 2: That I think it's kind of bad ass. I agree
- 33:14Speaker 2: that shows what I've been through.
- 33:16Speaker 3: It shows like all the fight that I've had to
- 33:18Speaker 3: go through, you know. But now it's been a huge
- 33:21Speaker 3: adjustment to look down at the pump and see this
- 33:24Speaker 3: new thing sticking out of my body that is not
- 33:26Speaker 3: there for most people that has been I think more
- 33:29Speaker 3: of an adjustment because everyone has scars, but I feel
- 33:33Speaker 3: like this is something that's a little more unusual. I
- 33:36Speaker 3: was just in Florida on vacation and wearing a bathing suit,
- 33:38Speaker 3: and little kids are curious and they don't have the
- 33:42Speaker 3: same ability to hide, you know, what they're thinking or feeling.
- 33:45Speaker 3: And so I had a lot of little kids like
- 33:48Speaker 3: staring at my stomach and asking their parents like what
- 33:50Speaker 3: is that?
- 33:51Speaker 2: Like what's going on there?
- 33:52Speaker 3: And so for me that's a constant reminder like, oh,
- 33:56Speaker 3: there is something unusual going on. But I had a
- 34:00Speaker 3: friend to reach out to me after being in Florida
- 34:02Speaker 3: and she was like, curiosity is the best thing because
- 34:05Speaker 3: who knows if someone's curiosity is going to lead them
- 34:08Speaker 3: to finding out that this exists for them too, that
- 34:11Speaker 3: this exists for their family member, that something that you've
- 34:14Speaker 3: had to go through can help them potentially or someone
- 34:17Speaker 3: that they know.
- 34:18Speaker 2: So now I'm like, this is amazing.
- 34:20Speaker 3: This is a cool thing that I have and it's
- 34:22Speaker 3: helping me and it could help someone else. So that's
- 34:24Speaker 3: how I'm trying to reframe it.
- 34:26Speaker 1: I like that perspective shift.
- 34:27Speaker 3: It's not easy, Yeah, it's not easy, but it's so
- 34:30Speaker 3: helpful because the alternative is me being worried about it.
- 34:33Speaker 3: And so if I could turn it into a positive,
- 34:36Speaker 3: that's like exponentially better.
- 34:38Speaker 1: So a lot of what we've talked about is like
- 34:40Speaker 1: the physical manifestation of what cancer has done to your body.
- 34:45Speaker 1: But there's a lot of grief here, and I can
- 34:47Speaker 1: imagine a lot of loneliness. What has been the biggest
- 34:50Speaker 1: fight for you in all of this.
- 34:53Speaker 3: I think it is probably that feeling of loneliness.
- 34:56Speaker 2: I think loneliness is one of the worst.
- 34:58Speaker 3: Emotional feelings that someone can experience. It has gotten a
- 35:03Speaker 3: lot better over time because I've met so many young
- 35:05Speaker 3: people with cancer who can relate to what I'm going through.
- 35:08Speaker 3: Because of me posting on social media and being vulnerable,
- 35:12Speaker 3: I've been able to meet so many people who have
- 35:13Speaker 3: felt the exact same things as me, and that has
- 35:16Speaker 3: been so helpful. I think if I had never posted
- 35:20Speaker 3: and just gone through this, I would have felt.
- 35:22Speaker 2: A lot more alone, just.
- 35:24Speaker 3: Because none of my other friends are going through this.
- 35:27Speaker 3: It's such a hard thing to relate to unless you're
- 35:29Speaker 3: going through it yourself. You can maybe grieve with someone,
- 35:33Speaker 3: you can try to relate to them, but you can't
- 35:36Speaker 3: experience it the same way.
- 35:38Speaker 1: I think about who I was at twenty five, and
- 35:41Speaker 1: it's an interesting age because you've had a few years
- 35:44Speaker 1: post college and so you're watching your friends get first
- 35:48Speaker 1: or second jobs and have fights with their boyfriends and
- 35:52Speaker 1: feel frustrated and they don't know how to deal with it.
- 35:55Speaker 1: Or some people are going on dates and there's like
- 35:59Speaker 1: wild nights in Brooklyn I can't imagine, and just normal
- 36:04Speaker 1: twenty five year old stuff. Yeah, and I read a
- 36:08Speaker 1: piece that you wrote in Cosmo where you talked about
- 36:12Speaker 1: how it's so difficult to kind of have this very
- 36:17Speaker 1: similar and different experience than them. Do you feel like
- 36:20Speaker 1: time has been stolen from you?
- 36:22Speaker 3: It's hard to not feel like it has, especially when
- 36:26Speaker 3: I'm at chemo and I'm like sleeping off the week.
- 36:29Speaker 3: It feels like time is being wasted, especially when I
- 36:31Speaker 3: have so much a greater awareness of time now, where
- 36:34Speaker 3: it feels like time is more precious now. And then
- 36:37Speaker 3: I see my friends going out and having fun, and
- 36:40Speaker 3: I do try to go with them sometimes, but I'm
- 36:43Speaker 3: normally in bed by midnight, you know, when they're still out,
- 36:47Speaker 3: and that's really sad. Like I see them having fun,
- 36:50Speaker 3: I see them with their boyfriends and progressing their relationships
- 36:54Speaker 3: and people getting engaged, and I'm not even in a relationship.
- 36:58Speaker 3: I wouldn't even say I'm dating honestly, like, I try to,
- 37:01Speaker 3: but it's really hard to date while you're actively going
- 37:05Speaker 3: through chemo and you have cancer, because it's not something
- 37:08Speaker 3: that I would just casually bring up to someone that
- 37:11Speaker 3: I don't really.
- 37:12Speaker 2: Know that well.
- 37:12Speaker 1: You know, are you wanting to date?
- 37:15Speaker 2: I am wanting to date. Yeah, it's not my priority
- 37:18Speaker 2: right now.
- 37:18Speaker 3: And honestly, I feel like being single the past couple
- 37:22Speaker 3: of years and focusing so much on myself because of
- 37:25Speaker 3: this has been so immensely helpful, honestly, like, I've learned
- 37:29Speaker 3: so much more about myself and who I am to
- 37:33Speaker 3: the point where I like myself and I like being alone.
- 37:37Speaker 3: So while I do like it, it's like I also
- 37:40Speaker 3: do miss that comfort of having someone. And I see
- 37:44Speaker 3: my friends with their boyfriends and I love it. I
- 37:47Speaker 3: love it for them, but it also makes me kind
- 37:49Speaker 3: of sad because I'm like I'm the fifth wheel, or
- 37:53Speaker 3: like I wish I had someone else to share these
- 37:55Speaker 3: experiences with too, honestly, like to find comfort in.
- 37:59Speaker 1: Do you find that when you are dating that people
- 38:02Speaker 1: understand what's happening. You're saying, no way.
- 38:06Speaker 3: It's honestly hard for me to conceptualize as well, because
- 38:09Speaker 3: I couldn't imagine if I was on the other end
- 38:12Speaker 3: and I had just started dating someone and they told
- 38:14Speaker 3: me that they had stage four cancer.
- 38:16Speaker 2: Honestly, I don't know how I would react.
- 38:18Speaker 3: I don't know if it would change my opinion at
- 38:19Speaker 3: all or my perspective, but I think it has to
- 38:23Speaker 3: in some way. Like you're dealing with someone who has
- 38:27Speaker 3: something going on that's very physically and mentally challenging, and
- 38:31Speaker 3: to know that you're probably not going to be the
- 38:32Speaker 3: priority in their life that you have to support them,
- 38:35Speaker 3: I can imagine must be really difficult. So if someone
- 38:39Speaker 3: does step away, if someone hears that I have cancer
- 38:42Speaker 3: and is like, I don't want to be involved, I
- 38:43Speaker 3: honestly don't blame them, because it's a really big thing
- 38:46Speaker 3: to take on. As anyone that's close in my life.
- 38:49Speaker 1: Knows, has this experience changed what you're looking for in love?
- 38:53Speaker 2: I think it has.
- 38:54Speaker 3: I think more than anything, I need to be one
- 38:56Speaker 3: hundred percent comfortable with someone. I feel like you kind
- 39:00Speaker 3: of can get an initial vibe off someone right away
- 39:02Speaker 3: if you feel comfortable with them or not. And I
- 39:05Speaker 3: think now, if I don't feel one hundred percent comfortable
- 39:07Speaker 3: with someone, I would just move on because that's what
- 39:11Speaker 3: is most important to me, is someone who I can
- 39:12Speaker 3: be one hundred percent myself around, because there are so
- 39:15Speaker 3: many bad days with this too. I want someone who's
- 39:18Speaker 3: going to be able to be there on the worst
- 39:20Speaker 3: days and not care and not judge me, and like,
- 39:24Speaker 3: just be there for me.
- 39:26Speaker 1: Have you been in love before?
- 39:27Speaker 2: I think I have been in love before.
- 39:29Speaker 3: Yeah, in college, my last relationship, which is weird because
- 39:33Speaker 3: thinking about it, I haven't been in a relationship since then,
- 39:35Speaker 3: throughout this whole time, So it's kind of strange to
- 39:38Speaker 3: think about the fact that it's been a while since
- 39:40Speaker 3: I've been in love with.
- 39:42Speaker 2: A romantic partner.
- 39:43Speaker 3: But it also has allowed me to find love in
- 39:46Speaker 3: so many other ways, Like I feel like I love
- 39:49Speaker 3: my friends so much, and I love my family, and
- 39:52Speaker 3: I love life so much, and I feel like I've
- 39:56Speaker 3: learned throughout this experience that love doesn't necessarily need to
- 39:59Speaker 3: be in a real antic partner, can be for yourself,
- 40:01Speaker 3: or for your friends, or for life itself.
- 40:05Speaker 1: In an essay in Cosma that you wrote, you said,
- 40:08Speaker 1: my friends are settling down, wondering when they'll take the
- 40:10Speaker 1: next steps with their boyfriends and making their five year plans.
- 40:13Speaker 1: I wonder if I'll be here in five years. Have
- 40:16Speaker 1: you had conversations about death?
- 40:18Speaker 2: Honestly, not really.
- 40:19Speaker 3: I feel like, not necessarily that I'm superstitious, but I
- 40:23Speaker 3: feel like I don't want to speak about something that
- 40:26Speaker 3: may or may not happen.
- 40:27Speaker 2: I'd rather just focus on the positives.
- 40:30Speaker 3: So I think I maybe once mentioned to my mom
- 40:33Speaker 3: that I should write a wall, just because I wanted
- 40:36Speaker 3: there to be some sort of sense of security. But
- 40:38Speaker 3: for the most part, no, we don't talk about it
- 40:40Speaker 3: at all.
- 40:40Speaker 2: We talk about life.
- 40:41Speaker 3: We talk about living and dating and all the fun
- 40:43Speaker 3: things that I think twenty five year olds don't really
- 40:47Speaker 3: to talk about.
- 40:47Speaker 1: In this series, I get to talk to people from
- 40:50Speaker 1: all walks of life, and a lot of the questions
- 40:53Speaker 1: that you're facing are questions that I've asked or have
- 40:59Speaker 1: heard people out themselves that are seventy eighty ninety What
- 41:04Speaker 1: have you learned about what is important about life?
- 41:08Speaker 3: I think the small things have become so small. I
- 41:12Speaker 3: think that there's just been a lot of clarity on
- 41:15Speaker 3: what's the most important in life, And to me, that's love,
- 41:19Speaker 3: that's relationships, your friendships, and so those are the things
- 41:22Speaker 3: that I care about. I try not to sweat the
- 41:24Speaker 3: small stuff anymore. I try not to be anxious about
- 41:26Speaker 3: what's happened in the past.
- 41:27Speaker 2: And I think we talked a.
- 41:28Speaker 3: Little bit about being present, and I think that being
- 41:32Speaker 3: present has been one of the biggest lessons for me,
- 41:33Speaker 3: is enjoying this moment because none of.
- 41:36Speaker 2: Us know what's going to happen.
- 41:37Speaker 3: It's not just people with cancer, but like none of
- 41:39Speaker 3: us know what the next day is going to hold.
- 41:42Speaker 3: So there's no point in stressing over that. And there's
- 41:44Speaker 3: no point stressing over things that have happened in your
- 41:46Speaker 3: past because you.
- 41:47Speaker 2: Can't change them.
- 41:48Speaker 3: So I think I've learned so much about being present
- 41:52Speaker 3: and being in this moment and trying to enjoy it
- 41:54Speaker 3: as much as possible.
- 41:56Speaker 1: I see your courage online every single day. I know
- 41:59Speaker 1: millions of people do. But your mom and your brother
- 42:01Speaker 1: have been with you upfront through all of this. How
- 42:05Speaker 1: have they shown up for you in this time.
- 42:08Speaker 3: I was just talking to my mom yesterday on the phone,
- 42:10Speaker 3: and we were talking about cold capping, which is a
- 42:13Speaker 3: very intense process that some chemo patients will go through
- 42:17Speaker 3: to save their hair. But she showed up every chemo
- 42:20Speaker 3: session we would have to go get fifty pounds of
- 42:22Speaker 3: dry ice. She would have to do every twenty minutes
- 42:25Speaker 3: change these giant ice packs on my head for around
- 42:30Speaker 3: six hours every chemo session. And she came out to
- 42:34Speaker 3: California for me, you know, took a break from her
- 42:37Speaker 3: job and showed up to be there for me so
- 42:41Speaker 3: that she could cold cap and so that she could
- 42:43Speaker 3: be there for mental support as well.
- 42:45Speaker 2: And my brother has come to chemo with me as well.
- 42:48Speaker 3: And they always are offering to do whatever they can.
- 42:52Speaker 3: And it's really hard to know what you can do
- 42:54Speaker 3: for someone in this situation, but they're always there for me,
- 42:58Speaker 3: and I think that's the biggest thing.
- 43:00Speaker 1: Is there something that you believed about life before this
- 43:03Speaker 1: journey that you no longer believed to be true?
- 43:05Speaker 3: I think before I believed that everything happens for a reason,
- 43:10Speaker 3: and I think a lot of people that go through
- 43:11Speaker 3: cancer will tell you everything does not happen for a reason.
- 43:16Speaker 3: And I think when people say that now, it's like,
- 43:18Speaker 3: that's just not true. Things can happen, maybe to teach
- 43:21Speaker 3: you something or maybe you learn from it, but that
- 43:23Speaker 3: doesn't mean that it was supposed to happen. And I
- 43:25Speaker 3: think that cancer is not supposed to happen anyone. So
- 43:28Speaker 3: I think that's probably one of the biggest things that
- 43:30Speaker 3: has changed.
- 43:31Speaker 1: I've heard that a lot. There's a lot of sort
- 43:33Speaker 1: of moral platitudes that people share when something hard happens.
- 43:38Speaker 1: And everybody that I've talked to that has dealt with
- 43:41Speaker 1: illness is like, literally, don't like you know, that's like
- 43:47Speaker 1: what actually makes them the most mad?
- 43:48Speaker 3: Yeah, I mean yeah, because I would say that before too.
- 43:51Speaker 3: I would be like, oh, this bad thing happened to me, Well,
- 43:54Speaker 3: you know what, it was probably for a reason. I
- 43:56Speaker 3: don't think that there was a reason for this, but
- 43:58Speaker 3: that doesn't mean that I haven't learned things from it.
- 44:00Speaker 1: Yeah, So cancer diagnosis in young, seemingly healthy people are
- 44:05Speaker 1: on the rise. If you had one takeaway from this
- 44:08Speaker 1: experience that you would want young people who receive a
- 44:12Speaker 1: diagnosis to know, what would it be.
- 44:14Speaker 3: I think the most important thing that I've learned over
- 44:16Speaker 3: the past two years is to seek out second opinions
- 44:20Speaker 3: and third opinions and fourth opinions if you can, because
- 44:24Speaker 3: the way that the first doctor will treat you or
- 44:27Speaker 3: give you a treatment plan for is not the same
- 44:30Speaker 3: as the next person. And I think that's been really
- 44:33Speaker 3: critical for me, especially with a rare cancer, is finding
- 44:36Speaker 3: someone who knows it very well, is able to see
- 44:39Speaker 3: it from all angles and have also multiple perspectives to
- 44:43Speaker 3: go into it and know that I'm getting the best
- 44:44Speaker 3: treatment possible, because I think one of the worst feelings
- 44:47Speaker 3: that I've had is looking back and feeling like I
- 44:49Speaker 3: regret not being more proactive. And it's very difficult as
- 44:54Speaker 3: a young person to want to be so proactive and
- 44:58Speaker 3: want to seek out all these opinions. It takes a
- 45:00Speaker 3: lot on top of really challenging diagnosis, but it is
- 45:03Speaker 3: I think one of the most critical things as well.
- 45:06Speaker 1: Thanks for sharing that. Have you met anybody that you
- 45:08Speaker 1: feel really connected to.
- 45:10Speaker 3: Other cancer patients, especially younger ones like people my age.
- 45:15Speaker 3: It's honestly crazy to meet them and to talk about
- 45:18Speaker 3: the experiences because they're so eerily similar. It's honestly a
- 45:22Speaker 3: breath of fresh air because it's like, you know what
- 45:23Speaker 3: I'm going through, Like you know the exact feelings that
- 45:26Speaker 3: I'm having. You know the anxiety of will my hair
- 45:29Speaker 3: fall out? Will I be able to have children one day?
- 45:32Speaker 3: Like you know every worry that I've had. Yeah, So
- 45:34Speaker 3: that's been like honestly, such an amazing source of connection
- 45:39Speaker 3: for me.
- 45:52Speaker 1: So you mentioned earlier that sharing can be cathartic for you.
- 45:55Speaker 1: Part of your story that no one expected was that
- 45:59Speaker 1: there would be people that out in your story. So
- 46:01Speaker 1: you caught the attention of a very strange corner of
- 46:04Speaker 1: the Internet where people gathered in Reddit forums to try
- 46:07Speaker 1: and prove that you did not have cancer. Just for
- 46:10Speaker 1: the record, you do and you did have cancer. But
- 46:13Speaker 1: how did you become aware of this?
- 46:15Speaker 3: Yeah, So I was actually with my brother. I had
- 46:17Speaker 3: gone home, I think for Christmas, for the holidays, and
- 46:21Speaker 3: he offhand mentioned, oh, that Reddit page, and I thought
- 46:25Speaker 3: he was joking because I had only heard of Reddit
- 46:27Speaker 3: pages in the context.
- 46:28Speaker 2: Of like celebrities.
- 46:30Speaker 3: So I was like, what possibly could people be having
- 46:33Speaker 3: to say about me? All I do is post, you know,
- 46:36Speaker 3: because of me going to chemo and talking about like
- 46:38Speaker 3: the struggles that I'm experiencing. So I was kind of
- 46:41Speaker 3: in shock when you first said that, and I think
- 46:43Speaker 3: he didn't know that it would have such an impact.
- 46:45Speaker 2: On me at the time. But then I of course
- 46:47Speaker 2: went and looked.
- 46:48Speaker 3: At it right away, because even though I think all
- 46:50Speaker 3: of us would rather not see bad things about ourselves online.
- 46:54Speaker 3: We're all curious, and so I went on pretty much
- 46:58Speaker 3: right away and saw that people were saying that I
- 47:00Speaker 3: was faking it because I still had hair, because I
- 47:03Speaker 3: was still going out and hanging out with my friends,
- 47:06Speaker 3: because I was still exercising, and I was in complete shock,
- 47:10Speaker 3: and I honestly felt like I had to prove myself.
- 47:14Speaker 3: I was like, I have to prove that I have cancer,
- 47:16Speaker 3: which sounds so silly that you would ever have to prove.
- 47:19Speaker 2: That to people online. But when you do post online.
- 47:22Speaker 3: I think you are subject to criticism, unfortunately, and a
- 47:27Speaker 3: lot more than you would otherwise be if you were
- 47:29Speaker 3: just going through it normally.
- 47:30Speaker 1: So you got a doctor's note, and then the New
- 47:33Speaker 1: York Times did a piece on you about the whole situation.
- 47:37Speaker 1: How did you feel when the piece came out?
- 47:39Speaker 3: I honestly felt like a little bit of a weight
- 47:42Speaker 3: had been lifted off my shoulders because I felt like
- 47:45Speaker 3: I had been thinking about for so long, how do
- 47:47Speaker 3: I prove that I'm going through this. I already show
- 47:50Speaker 3: that I'm going to chemo every week. I already show
- 47:52Speaker 3: myself with like the infusion actively going in. I was like,
- 47:55Speaker 3: how can I possibly change people's minds who clearly just
- 47:59Speaker 3: don't want their minds to be changed.
- 48:01Speaker 2: They have this really strong belief.
- 48:03Speaker 3: So once there was the definitive someone else had seen
- 48:07Speaker 3: me go to chemo, had gone with me, had talked
- 48:09Speaker 3: to my doctor, and had proven that yes, she does
- 48:14Speaker 3: have cancer, that was kind of like a sigh of relief.
- 48:17Speaker 1: This is one of the strangest stories. It must have
- 48:19Speaker 1: felt so bizarre.
- 48:21Speaker 3: It was so weird to live through on top of
- 48:23Speaker 3: also going to chemo. Yeah, because I was already like,
- 48:27Speaker 3: this is such a mental challenge to go through every
- 48:30Speaker 3: day just having cancer, but then add another layer on
- 48:34Speaker 3: top of having to try to prove that you have
- 48:36Speaker 3: cancer or to question that everything you're posting. When you're
- 48:40Speaker 3: sad and you're posting you crying, people are saying that
- 48:43Speaker 3: it's fake. When you're happy, people are saying that it's
- 48:45Speaker 3: too positive and it's toxic positivity. It's like, how can
- 48:49Speaker 3: I just show up as myself and not be criticized
- 48:52Speaker 3: or judged for it.
- 48:53Speaker 2: It's so difficult.
- 48:54Speaker 1: Well, it's really bizarre to feel like you have to
- 48:57Speaker 1: perform for the internet when what you're dealing with is
- 48:59Speaker 1: so isolating to begin with.
- 49:01Speaker 3: Yeah, and I do feel now that the New York
- 49:03Speaker 3: Times article has happened, honestly, like it could be so
- 49:06Speaker 3: much more of myself again, Like I'm not questioning everything
- 49:09Speaker 3: I'd post. It's just me and I'm not like, oh,
- 49:11Speaker 3: is someone gonna criticize me for this or.
- 49:13Speaker 1: Judging for this? You know good. At the same time,
- 49:16Speaker 1: You've also seen like huge beauty come from the internet.
- 49:20Speaker 1: I think people have posted so many messages of support,
- 49:24Speaker 1: donated money for you and your mom. I see a
- 49:27Speaker 1: lot of messages of love. What do you think it
- 49:30Speaker 1: is about your story that resonates with people so deeply?
- 49:34Speaker 3: I think it We briefly touched on this before, but
- 49:37Speaker 3: I think that showing all sides of what I'm going
- 49:41Speaker 3: through has been a very relatable experience for people, because
- 49:45Speaker 3: you do so often on social media see only the
- 49:48Speaker 3: best sides of things and only the positive and only
- 49:51Speaker 3: the highlights.
- 49:52Speaker 2: But that's not what I'm going through. It's not the.
- 49:55Speaker 3: Highlights, it's everything. It's the good and the bad. And
- 49:57Speaker 3: I always say that you can't have the good without
- 49:59Speaker 3: the bad, and have the bad without the good, And
- 50:01Speaker 3: so I think that people see that I'm going through
- 50:05Speaker 3: something challenging and I am struggling, and everyone has had
- 50:08Speaker 3: something that they've gone through.
- 50:10Speaker 1: What do you think somebody like me who's watching your
- 50:12Speaker 1: experience on the internet doesn't actually understand.
- 50:15Speaker 3: Probably how challenging it is on a daily basis. It's
- 50:19Speaker 3: not something that I can clock in and clock out of.
- 50:22Speaker 3: And I feel like people online sometimes you watch and
- 50:26Speaker 3: you see such a small segment of their life, and
- 50:29Speaker 3: you think that you can understand.
- 50:31Speaker 2: But I just don't think unless you.
- 50:32Speaker 3: Go through this yourself, you can possibly understand how physically
- 50:36Speaker 3: and mentally challenging and draining it is on a daily
- 50:39Speaker 3: basis to think about and to just have to deal with.
- 50:42Speaker 3: I think that unless you go through it, it's really
- 50:45Speaker 3: hard to understand.
- 50:46Speaker 1: You seem so wise beyond your years, Sydney, and I
- 50:49Speaker 1: would imagine that there's some lessons from this journey that
- 50:54Speaker 1: people don't understand or wouldn't know until they got older.
- 50:57Speaker 1: How do you feel like you've changed the most in.
- 50:59Speaker 2: The last few years in so many ways?
- 51:02Speaker 3: I think that I've always had a lot of empathy
- 51:03Speaker 3: for other people, but I think one of the biggest
- 51:06Speaker 3: lessons I've learned is you never know what someone is
- 51:09Speaker 3: going through. Yeah, and I think that I'm a great
- 51:12Speaker 3: case in point for that because I'm actively in chemo
- 51:16Speaker 3: and still have my hair and don't look maybe like
- 51:20Speaker 3: the picture of someone who typically has cancer, and that
- 51:24Speaker 3: has allowed me as well to think about what other
- 51:27Speaker 3: people are going through that you might not be able
- 51:29Speaker 3: to see, whether it be something mentally or something that
- 51:31Speaker 3: they're dealing with themselves or their family, Like, you never
- 51:34Speaker 3: know the kind of day that someone is having, So
- 51:36Speaker 3: to lead with compassion and lead with empathy, I think
- 51:39Speaker 3: is one of the most important things that I've taken
- 51:41Speaker 3: from this experience.
- 51:43Speaker 1: Yeah, do you feel pressure to live every day to
- 51:46Speaker 1: its fullest?
- 51:47Speaker 2: Yes? And no.
- 51:49Speaker 3: I kind of feel like I do want to live
- 51:51Speaker 3: as much as possible. But I also feel like it
- 51:54Speaker 3: changed my focus to kind of enjoy that rest time
- 51:58Speaker 3: and enjoy the time where I'm just like sitting with
- 52:00Speaker 3: friends watching TV like that has kind of become The
- 52:03Speaker 3: most important thing is those small moments. So it's not
- 52:06Speaker 3: necessarily taking big trips or going skydiving or whatever, but
- 52:10Speaker 3: also just those times when you're just sitting with your
- 52:12Speaker 3: family or your friends and just enjoying life.
- 52:14Speaker 1: I have a list of things that every year I
- 52:17Speaker 1: put together that I want to do. Do you have
- 52:19Speaker 1: a list of things you're wanting to do or is
- 52:21Speaker 1: it important to throw those out the window.
- 52:23Speaker 3: I think I have thrown them out the window. I
- 52:25Speaker 3: think it's important to take it for me day by day.
- 52:28Speaker 3: That's also one of the biggest lessons is to not
- 52:30Speaker 3: think too far ahead and to just enjoy like right here.
- 52:35Speaker 3: And so for me, it's like I can try to
- 52:37Speaker 3: plan these trips, but my plans will probably be changed.
- 52:39Speaker 3: I had a trip planned to Austria that I canceled
- 52:42Speaker 3: because I had my second surgery. So it's really hard
- 52:44Speaker 3: to have these big lists or accomplishments that I want
- 52:49Speaker 3: to have because I don't know what's going to happen
- 52:51Speaker 3: and things are constantly changing. So I think that being
- 52:53Speaker 3: right here is honestly the most important thing for me.
- 52:56Speaker 1: You've become a voice and an advocate in this space too.
- 52:58Speaker 1: You mentioned that you spoke at a conference. Yeah, how
- 53:01Speaker 1: has this experience in your diagnosis changed your career and
- 53:06Speaker 1: your influencing.
- 53:08Speaker 3: I mean, I never envisioned myself to be speaking in
- 53:11Speaker 3: front of other people. I always got so nervous giving
- 53:14Speaker 3: presentations in class, and like, I have so much anxiety
- 53:17Speaker 3: around public speaking normally, but knowing that like I can
- 53:22Speaker 3: help people by speaking about things and like by advocating
- 53:25Speaker 3: has been so cool for me, Like I never thought
- 53:28Speaker 3: that I would be an advocate. And as far as
- 53:31Speaker 3: just like my career in trajectory, I've always had the
- 53:34Speaker 3: same career from being diagnosed to now. But I think
- 53:37Speaker 3: having something that I'm really passionate about has been so
- 53:41Speaker 3: cool as well, because it doesn't feel.
- 53:43Speaker 2: Like a job or anything.
- 53:44Speaker 3: It's just something that I show up and I talk
- 53:46Speaker 3: to people on the internet and can relate to people
- 53:49Speaker 3: and in turn in helping so many people and they're
- 53:52Speaker 3: helping me. So it's taken quite an unexpected turn, but
- 53:56Speaker 3: in the best way possible.
- 53:58Speaker 1: I like hearing that thank you. Okay, I'm gonna ask
- 54:01Speaker 1: you something, and I hope that it doesn't come off
- 54:04Speaker 1: the wrong way. If it does, you can punch me
- 54:06Speaker 1: in the face or tell me say pass. But if
- 54:08Speaker 1: today and hopefully you wouldn't be spending your last day
- 54:11Speaker 1: on earth with me, But if today were your last
- 54:14Speaker 1: day on earth, Yeah, what would you want to tell people?
- 54:17Speaker 1: What would you want people to know?
- 54:19Speaker 3: I've actually thought about this before, Like if I were
- 54:21Speaker 3: to make one more video. What would I say, and
- 54:24Speaker 3: it was my last video, I think I would just
- 54:27Speaker 3: remind people what I've said to you already is to
- 54:31Speaker 3: treat people with kindness like that is literally the biggest
- 54:34Speaker 3: thing that I could tell anyone, especially dealing with the
- 54:37Speaker 3: Reddit stuff. It's like, just treat people with compassion and
- 54:40Speaker 3: thee and treat people the way that you want to
- 54:41Speaker 3: be treated. It sounds so cliche and it's such a
- 54:44Speaker 3: common saying, but I feel like we never know what
- 54:46Speaker 3: someone is going through, and if you could spread like
- 54:49Speaker 3: a little bit of kindness, a little bit of positivity
- 54:51Speaker 3: goes such a.
- 54:52Speaker 2: Long way for someone else, and it could make their day.
- 54:55Speaker 2: They're weak. That's the thing that I would always tell people.
- 54:58Speaker 1: That's really beautiful, And I think cliche are in our
- 55:00Speaker 1: culture for a reason.
- 55:01Speaker 2: That's true, that's true.
- 55:03Speaker 1: I'm going to do some rapid fire. Okay, something you're
- 55:08Speaker 1: avoiding that's on your to do.
- 55:09Speaker 3: List, rescheduling my therapy because I love her, but she
- 55:15Speaker 3: also makes me think way too hard sometimes.
- 55:17Speaker 1: Yes, I understand that a core memory you reflect on the.
- 55:21Speaker 3: Most, probably the day that I found out that I
- 55:24Speaker 3: had cancer. I think I'll always just think about picking
- 55:27Speaker 3: up that report for the first time, and seeing the
- 55:29Speaker 3: words cancer or carcinoma, I think I will always be
- 55:33Speaker 3: such a strong memory in my mind.
- 55:35Speaker 1: If you could choose where your taxes go, where would
- 55:38Speaker 1: you allocate them?
- 55:39Speaker 3: I think, going through what I've gone through, I would
- 55:41Speaker 3: say cancer research, especially with cancer research and NIH being defunded.
- 55:47Speaker 3: I've also seen so many other cancer patients not be
- 55:50Speaker 3: able to get life saving treatment because it's way too
- 55:53Speaker 3: expensive or their insurance won't cover it.
- 55:56Speaker 1: So that's right, an iconic piece of clothing you love to.
- 56:00Speaker 3: So I already have kind of my door with the
- 56:02Speaker 3: shoes on right now. So I think I would like
- 56:04Speaker 3: to wear her red slippers because I feel like it'd
- 56:06Speaker 3: be a little magical.
- 56:07Speaker 1: A book that changed your life, something you think everybody
- 56:10Speaker 1: should read.
- 56:11Speaker 2: I really liked The Midnight Library.
- 56:13Speaker 3: I read it before I was diagnosed, and it made
- 56:16Speaker 3: me have such a different perspective on what ifs. Like
- 56:20Speaker 3: I'm a big burnt toast theory person, and so it
- 56:23Speaker 3: kind of shows you that maybe the alternatives or like
- 56:27Speaker 3: lives that you think would be so amazing actually wouldn't
- 56:30Speaker 3: be so amazing for you.
- 56:31Speaker 2: Like your life is perfect for you the way.
- 56:33Speaker 1: It is that's really beautiful something that every woman should
- 56:36Speaker 1: try once.
- 56:37Speaker 3: I think therapy, I think I would say that for
- 56:39Speaker 3: any person, not just women. But there's a book the
- 56:42Speaker 3: body keeps the Score, and I think women especially have
- 56:45Speaker 3: a lot of trauma ingrained that maybe they aren't even
- 56:49Speaker 3: consciously knowledgeable of. So I think that going to therapy
- 56:53Speaker 3: and also being single, because I think being single is
- 56:56Speaker 3: just so important.
- 56:56Speaker 2: You learn so much about yourself.
- 56:57Speaker 3: I've learned so much about myself over the past years,
- 57:00Speaker 3: and I think it's just good practice to go on
- 57:02Speaker 3: solo dates and to like know that you're the most
- 57:05Speaker 3: important person in your life and someone else is just
- 57:08Speaker 3: adding on to that. They're not making you a whole person,
- 57:10Speaker 3: because your whole on your own.
- 57:12Speaker 1: You really understand that at a much younger age than
- 57:15Speaker 1: most people. The smartest decision you've ever made.
- 57:18Speaker 3: Believing in myself in so many ways, because I never
- 57:21Speaker 3: thought I would get into Dartmouth and I believed in
- 57:24Speaker 3: myself and I did it. I never thought I would
- 57:26Speaker 3: be a model and I ended up trying it and
- 57:28Speaker 3: I did it. I never thought I would get my
- 57:29Speaker 3: yoga certification and I did it. So I think just
- 57:32Speaker 3: knowing that you can do almost anything that you set
- 57:36Speaker 3: your mind to, and having confidence that's been really important
- 57:39Speaker 3: for me.
- 57:40Speaker 1: Yeah, I have the question everything card gave and please, okay,
- 57:43Speaker 1: pick whichever card. It's sort of like taro, like whichever
- 57:45Speaker 1: one you feel connected to. Okay, it's weird people usually
- 57:49Speaker 1: pick the card that's meant for them.
- 57:50Speaker 3: Really, Yeah, what compliment do you hear the most? Which
- 57:54Speaker 3: means the most to you? And which one makes you
- 57:56Speaker 3: the most uncomfortable? That's actually a really good question. I
- 58:00Speaker 3: think the one that makes me most uncomfortable or that
- 58:03Speaker 3: I don't know how to react to, is when people
- 58:05Speaker 3: say you look so healthy, just because I know it's
- 58:08Speaker 3: meant to be a compliment, but it's also like you
- 58:10Speaker 3: don't know what's going on beneath the surface. And I
- 58:13Speaker 3: think the compliment that means the most to me is
- 58:17Speaker 3: probably that I've inspired someone, just because it's crazy to
- 58:22Speaker 3: me that I am inspiring people just by being vulnerable
- 58:24Speaker 3: and sharing online. So it always means so much when
- 58:28Speaker 3: people like stop me in the street or comment that
- 58:30Speaker 3: I love that.
- 58:30Speaker 1: Thank you. I feel like you've given millions of people
- 58:34Speaker 1: inspiration but also courage to face their lives with more hope.
- 58:39Speaker 1: And I want to thank you for all that you
- 58:41Speaker 1: share and who you are, because you show up as
- 58:44Speaker 1: you every single day, good, bad, ugly heart, all of it,
- 58:47Speaker 1: and you're a special person. Sidney.
- 58:50Speaker 2: Thank you.
- 58:50Speaker 3: I really appreciate that, and thank you for having me
- 58:52Speaker 3: and letting me share a little bit more about.
- 58:54Speaker 2: My story and myself.
- 59:00Speaker 1: Okay, you know what time it is. Today's a good day,
- 59:03Speaker 1: to have a good day. I'll see you next week.