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Broken Not Broke | The Eye Believe Podcast · The Eye Believe Podcast

• 0:03
  hey everyone
• 0:03
  welcome back to the Eye Believe Podcast
• 0:05
  today we have Adrian Franco with us
• 0:08
  welcome Adrian
• 0:09
  thank you so much Megan
• 0:11
  I'm very happy to be here
• 0:13
  well we're excited to have you
• 0:14
  we're gonna talk today about his organization
• 0:18
  called Broken Not Broke
• 0:19
  tell us a little bit about what your organization is
• 0:22
  and what you do
• 0:24
  Broken Not Broke
• 0:25
  is an initiative of the Guarini Institute
• 0:28
  at Kean University and this initiative specifically
• 0:32
  focuses on connecting families
• 0:35
  impacted by childhood cancer
• 0:37
  with resources specifically financial assistance
• 0:40
  we use a website that feeds
• 0:44
  from a database of more than 500 organizations
• 0:47
  in United States in all 50 states and Puerto Rico
• 0:50
  that support families impacted by childhood cancer
• 0:53
  that's amazing
• 0:55
  so let's talk a little bit about your story
• 0:58
  what led you to find this calling in life
• 1:02
  well
• 1:03
  I would say it's a product of two different elements
• 1:06
  on one hand is a personal experience
• 1:08
  and on another hand is just a career
• 1:12
  interested in topics related to financial education
• 1:16
  let me start with a personal story
• 1:18
  in 2022
• 1:21
  my three year old was diagnosed with Ewing sarcoma
• 1:23
  a rare cancer of the bones
• 1:25
  and from there like many
• 1:27
  many parent or any other caregiver will tell you
• 1:30
  a tsunami hits the family
• 1:32
  and you have to adjust many things
• 1:34
  to make sure you focus on the treatment of your child
• 1:37
  so it has been years
• 1:39
  I estimate more than 2,000 hours in the hospital
• 1:43
  of everything from chemotherapy to radiation
• 1:46
  to surgeries emergency rooms etcetera uh
• 1:50
  I'm very happy uh
• 1:52
  to share that he is stable right now
• 1:54
  under monitoring but doing well
• 1:57
  but during all those hours at the hospital
• 2:00
  I had the opportunity to observe the
• 2:04
  the ecosystem of childhood cancer
• 2:05
  and when I talk ecosystem
• 2:07
  I say it very respectfully
• 2:08
  in terms of other families
• 2:11
  caregivers patients
• 2:13
  social workers nurses
• 2:15
  child life specialist and everyone who is working um
• 2:20
  for the treatment and survivor of patients
• 2:24
  within that I noticed something very specific
• 2:27
  and that was the financial impact of a diagnosis
• 2:31
  treatment and then actually during the
• 2:34
  the years after treatment
• 2:36
  I was very interested again
• 2:37
  because I had a career
• 2:39
  long term interest in personal education eh
• 2:43
  related to finance financial literacy
• 2:46
  and how that affects economic mobility
• 2:49
  so putting all those together
• 2:51
  it turns out that you know
• 2:52
  the impact of uh
• 2:54
  of a diagnosis in cancer for any patient
• 2:56
  but specifically when it's a case of a
• 2:59
  of a children the pediatric cases
• 3:02
  is not only short term when it's very acute
• 3:06
  it lingers for years sometimes decades
• 3:10
  and I think there is a lot of very good research
• 3:14
  and programs working on the short term impact
• 3:18
  many financial assistance programs from foundations
• 3:21
  from public sources
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  eh but there's not a lot of information
• 3:26
  of the long term consequences
• 3:28
  what I will call
• 3:28
  the economic mobility consequences of this shock
• 3:33
  those two elements came together for me to say well
• 3:37
  what's the best way to support families
• 3:41
  and support social workers looking for these resources
• 3:45
  how that's how broken or broke was born
• 3:48
  that's amazing I'm so glad to hear that
• 3:50
  your son is doing well right now
• 3:52
  how old is he he's 7 years old right now
• 3:55
  oh thank you
• 3:55
  that's amazing good
• 3:57
  well we're very happy to hear that
• 3:58
  and what a great way to honor him and celebrate him
• 4:03
  to do something that you're helping so many families
• 4:06
  this is really amazing and I think that
• 4:09
  like you said everything is so overwhelming
• 4:11
  you're overwhelmed
• 4:12
  with a million different pieces of it
• 4:14
  this is just one piece of it
• 4:15
  so to be able to help somebody with probably
• 4:18
  you know one of the things that I think
• 4:20
  is the hardest to figure out is
• 4:22
  how do you pay for this and where are the resources
• 4:25
  and there are so many that are not known
• 4:29
  and easy to find
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  so if someone is in the early parts of this
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  or I guess
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  any part of it where they're looking for financial aid
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  what do you recommend they do how do they start
• 4:44
  so in most of the cases
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  the social workers play a critical role
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  they are the ones in the hospital
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  who are in direct contact with the families
• 4:54
  and trying to find these resources
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  from external sources
• 4:59
  conversation with social workers
• 5:01
  I hear that they are like detectives
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  they are constantly looking for these resources
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  and one of them even told me
• 5:08
  that 70% of her time was dedicating
• 5:11
  looking for financial assistance for families
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  now a common misconception
• 5:16
  is that this will go to the families
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  that are either under the poverty line
• 5:20
  the lower income families
• 5:21
  that is not correct
• 5:23
  the financial impact of childhood cancer
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  happens to every single family
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  regardless of income and wealth and assets
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  therefore there is need to support families
• 5:34
  of all levels of income and economic mobility
• 5:41
  you know going back to
• 5:42
  to your question what do you do
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  well first of all
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  the shock is so
• 5:47
  so large in terms of your expenses going very
• 5:50
  very high
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  everything from medical expenses out of pocket
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  uh premiums will increase and deductibles
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  and then other aspects
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  like transportation cost to a treatment center
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  that can go from a commute in the subway
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  in a large city
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  to having to take a flight from a rural area
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  to a treatment center
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  we're talking about parking cost
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  housing cost we're talking about food
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  that changes completely childcare
• 6:22
  one of the most important ones
• 6:24
  because you need to find childcare
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  not only for the patient
• 6:27
  but siblings if that's the case of the family
• 6:31
  so with all these you suddenly are
• 6:33
  you know overwhelmed with the emotions of
• 6:36
  of a treatment for cancer
• 6:38
  but also the financial eh
• 6:41
  changes eh
• 6:42
  in in your family
• 6:44
  what do you do well
• 6:46
  there is a lot of resources out there
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  and that was one of the first things I discovered
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  I said well
• 6:53
  I keep hearing stories of evictions
• 6:56
  bankruptcies small business
• 6:58
  you know that have to close and jobs being lost
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  why is that is that there's not enough money
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  well there's always room for more money
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  but the reality is that the
• 7:10
  there is so many organizations out there
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  as I said you know
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  500 of non profit organizations
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  that sometimes it's difficult to find them
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  so I thought well
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  maybe
• 7:21
  the best way to really bring something to the table
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  is to connect the dots and that means
• 7:27
  creating a database that people can access
• 7:30
  in a very simple way with no
• 7:34
  you know no registration
• 7:36
  no need to to
• 7:38
  to give your your personal information nothing
• 7:41
  just go to our website BrokenNotBroke.org
• 7:45
  say what type of cancer your child has
• 7:48
  what type of assistance you need
• 7:50
  and very important which state you are residing
• 7:54
  and we'll give you a list of organizations that you
• 7:57
  or your social worker can contact
• 7:59
  that's amazing I love that
• 8:00
  you're bringing all of these resources together
• 8:03
  in a way that people can find them easily
• 8:04
  without having to scour the entire internet
• 8:06
  I may think this is a huge
• 8:08
  huge resource for people
• 8:10
  so as you were founding the organization
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  what was your next step
• 8:15
  well we always saw ourselves as as
• 8:17
  as a way to connect the dots
• 8:19
  connect the resources with the people that need it
• 8:21
  and in this case is families
• 8:23
  but also social workers and other people
• 8:25
  within the ecosystem of childhood cancer
• 8:28
  after we create that database
• 8:29
  and we start sending it to foundations
• 8:31
  to social workers to families
• 8:32
  to hospitals you know
• 8:34
  we realize that one key issue is that besides
• 8:37
  you know just looking at the name of the organization
• 8:41
  that you might be familiar with
• 8:43
  like big organizations like the Ronald McDonald Houses
• 8:47
  um or not
• 8:48
  because they are very small and very specific
• 8:51
  it's important to put a face
• 8:53
  it's important to put a a
• 8:54
  a human behind that organizations
• 8:58
  so for families will be able to feel the
• 9:02
  the support the empathy in it
• 9:04
  so I wanted to interview
• 9:06
  the leaders of these organizations
• 9:08
  so they can tell us you know
• 9:10
  first hand their story
• 9:12
  why are they doing this
• 9:14
  and the programs that they share
• 9:16
  and the programs that they have for these families
• 9:20
  so the Broken Not Broke Interview
• 9:22
  a podcast started in 2025 to talk to the leaders
• 9:28
  organizations I'm talking about CEOs
• 9:30
  executive directors sometimes our founders
• 9:33
  sometimes our board members
• 9:35
  and they also tell us you know
• 9:37
  specifically what they do for families
• 9:41
  I like to ask them about their programs
• 9:43
  I like to ask them about you know
• 9:45
  the financial assistant they offer any guidance
• 9:49
  advice that they can give
• 9:51
  but also about you know
• 9:53
  many systemic changes or policy changes
• 9:56
  that they believe is worth to advocate for
• 9:59
  and all this information I think
• 10:02
  it's important for for families to
• 10:04
  to hear because first
• 10:06
  you learn and the more that you learn about an illness
• 10:09
  like cancer the more that you
• 10:11
  you can use these resources and advocate for your child
• 10:17
  but second that
• 10:18
  you know you just see someone telling you the story and
• 10:20
  and realize that you know
• 10:21
  these people are there to support these very
• 10:24
  very difficult times
• 10:26
  so we started interviewing people and um
• 10:29
  has been you know
• 10:30
  a pretty successful uh
• 10:32
  we were very happy to interview uh
• 10:35
  A Cure In Sight obviously
• 10:37
  and uh
• 10:37
  we
• 10:37
  we love so many things we learn from the organization
• 10:40
  the the innovation that they bring to the table
• 10:43
  all things are are elements that bring hope to families
• 10:47
  that are in very challenging times
• 10:50
  that's fantastic
• 10:51
  that's a lot of the reason our podcast was started
• 10:53
  as well was just to educate and get it out there
• 10:57
  and it's really an amazing tool to be able to do
• 11:00
  you know times have changed so much now
• 11:03
  you know before you
• 11:04
  if you didn't have a million dollars
• 11:06
  you couldn't be on TV
• 11:07
  and so now being able to have these podcast platforms
• 11:09
  it's such a huge resource that we can utilize
• 11:13
  what platforms are you guys on
• 11:16
  well you can find us in YouTube and Spotify
• 11:19
  and we also have you know
• 11:20
  we in the socials
• 11:21
  you can obviously click you know Instagram Facebook
• 11:25
  LinkedIn eh and
• 11:27
  and go there but you can hear us in Spotify
• 11:30
  you can watch us in YouTube
• 11:32
  perfect I love that
• 11:33
  that's amazing so how long has your podcast been going
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  we started uh
• 11:39
  last year in 2025
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  at the beginning of the year
• 11:43
  fantastic that's awesome
• 11:45
  so like you said a Cure Insight was featured
• 11:48
  our founder and president
• 11:49
  melody was on um
• 11:51
  so thank you for having us on
• 11:52
  that was huge and we
• 11:54
  we love to collaborate so
• 11:55
  and we're happy to have you on
• 11:56
  and get your information out
• 11:57
  cause it's so important
• 12:00
  well thank you so much for the opportunity
• 12:02
  you know we we
• 12:03
  we try to connect the dots
• 12:05
  as I said I mean
• 12:06
  that's the way that we believe we can contribute
• 12:08
  and support families in this uh
• 12:11
  difficult times and the more than people know about us
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  the more people that go to the website or contact us
• 12:19
  we have a a contact form
• 12:21
  and as soon as they some
• 12:22
  someone sends a message
• 12:23
  I personally will respond to that message
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  some people ask specifics about foundations
• 12:29
  you know we
• 12:29
  we hear cases like you know
• 12:30
  I couldn't find this uh
• 12:32
  any organization in this state that support uh
• 12:35
  leukemia we found it for them
• 12:38
  and then we connect um
• 12:40
  some people just just wants
• 12:41
  you know someone to
• 12:43
  to know that their their story is tough
• 12:45
  and if there is resources for them
• 12:47
  we say we always can support with that
• 12:49
  so contact us and we'll we'll be there for you
• 12:53
  I think that's a huge piece to really highlight
• 12:56
  is that if they don't find it on your website
• 12:58
  they can just reach out to you
• 12:59
  that's huge so
• 13:00
  thank you for being so accessible and answering emails
• 13:03
  I mean I know that's a full time job in itself
• 13:05
  so that's a really big deal
• 13:08
  it is but as someone
• 13:10
  as a cancer dad who who had been there in
• 13:13
  in the hospital for many hours and many
• 13:15
  many nights many difficult nights
• 13:17
  I can tell you how important it is
• 13:19
  that someone can answer an email
• 13:20
  even if it's a a quick line saying
• 13:23
  there is a lot of people going through the same
• 13:25
  and together we can overcome this
• 13:29
  that's amazing
• 13:31
  so what is next on the horizon for Broken Not Broke
• 13:35
  so there's two things we wanna work on
• 13:38
  uh one
• 13:38
  is
• 13:39
  to continue building our financial literacy materials
• 13:42
  we have advice and and tips from eh
• 13:46
  both the organizations that we interview
• 13:48
  but also from families and and
• 13:51
  and others
• 13:52
  and we wanna put that together so people get
• 13:55
  a quick guide on you know
• 13:56
  what to expect when this financial shock comes
• 13:59
  and some advice about how to make sure that
• 14:03
  you know in this challenging times
• 14:05
  you can plan ahead save
• 14:08
  be conservative know about
• 14:10
  you know the deductions in taxes
• 14:12
  there is many complex issues to know about
• 14:14
  that could help to save money
• 14:16
  in this financial shock and especially
• 14:19
  not have the dire consequences on mobility
• 14:22
  in the long term
• 14:24
  and the second is we wanna go international
• 14:25
  you know our institute
• 14:27
  the Guarini Institute
• 14:28
  is also focused on international studies
• 14:32
  international education and we work with many
• 14:34
  many partners around the world
• 14:36
  from Mexico to Ireland to Israel
• 14:40
  and we wanna make sure that
• 14:42
  they have their own version of Broken Not Broke
• 14:45
  we're having a conversation with Australia
• 14:47
  where they have something similar
• 14:49
  that we are you know
• 14:50
  learning from each other how to work on that
• 14:53
  we have a a former student of mine
• 14:55
  who is now in Dominican Republic
• 14:57
  doing something similar and
• 14:59
  you know for us
• 15:00
  having the opportunity to help people around the world
• 15:03
  will be great
• 15:04
  who came up with your name
• 15:06
  did you come up with it
• 15:08
  uh The Broken Not Broke Interview
• 15:10
  and BrokenNotBroke.org
• 15:11
  yes I
• 15:12
  I did came with it
• 15:13
  it was uh
• 15:14
  basically my my
• 15:15
  my own experience saying like
• 15:17
  we are we
• 15:18
  we are heartbroken
• 15:20
  because that's what happens
• 15:21
  when you see your child go through this
• 15:24
  but we need to do everything we can
• 15:26
  to stop being financially broke
• 15:29
  I think that's an amazing name
• 15:30
  so kudos to you for coming up with it
• 15:33
  that's really very clever and very meaningful
• 15:36
  I love it
• 15:37
  thank you
• 15:39
  absolutely
• 15:40
  Adrian before we wrap up
• 15:41
  are there any other topics
• 15:43
  that we wanna talk a little bit more about
• 15:46
  well Megan
• 15:46
  I would say that it's important to
• 15:48
  to understand the concept of financial toxicity
• 15:52
  and this is a relatively new concept
• 15:54
  that was coined by researchers to define the
• 15:58
  the impact that cancer has on the finances of patients
• 16:04
  and their families
• 16:06
  I think it's well known
• 16:07
  that any chronic illness will bring
• 16:09
  a financial shock
• 16:11
  but toxicity is an interesting concept
• 16:14
  because just like it happens in
• 16:16
  in treatments for cancer
• 16:18
  the toxicity will have an immediate um
• 16:22
  eh impact in the symptoms of of
• 16:26
  of the patient but then it might linger
• 16:29
  it might take a long time to
• 16:30
  to have other sources of impacts
• 16:32
  and we hear cases all the time about the
• 16:35
  the toxicity of of chemotherapy and
• 16:38
  and radiation
• 16:40
  in finances in personal finances is the same
• 16:44
  you have the immediate shock
• 16:46
  but then down the road you might see other ones
• 16:49
  one example is life insurance
• 16:51
  you know you
• 16:52
  you hear all the time well
• 16:53
  what happen after you go through a treatment for cancer
• 16:58
  you might be very successful
• 17:00
  we have a lot more survivors today thanks to
• 17:02
  to great innovations but after a few years
• 17:07
  you might not be eligible for life insurance
• 17:10
  and we're talking about five years free of cancer
• 17:13
  will make sense
• 17:14
  because you have very similar chances that other people
• 17:18
  to um
• 17:19
  to to have a
• 17:20
  an illness or or die
• 17:22
  nevertheless
• 17:23
  it's a lot more difficult to find life insurance
• 17:26
  for many patients for any survivors
• 17:29
  the same happens with health insurance
• 17:31
  the premiums might go up eventually
• 17:34
  and then there is other costs
• 17:36
  that are not directly related
• 17:39
  but still impacting the family
• 17:41
  one that I keep telling people is going to college
• 17:45
  many families have to use any savings or college funds
• 17:49
  not only for the patient but for the whole um eh
• 17:53
  children for their siblings to pay for treatments for
• 17:57
  to pay for the immediate financial impact
• 17:59
  that means that down the road 5
• 18:01
  10 years from now you might not have the money
• 18:03
  to support your children's education
• 18:06
  all this uh
• 18:07
  is is
• 18:08
  is is problematic and
• 18:10
  and we are advocating for more people to know about it
• 18:13
  so we can ask for resources
• 18:14
  there's more scholarships
• 18:16
  not enough but more scholarships for survivors
• 18:19
  and
• 18:19
  this is the type of information that we need to share
• 18:22
  you know if you are in that situation
• 18:23
  if um
• 18:24
  your siblings in that situation
• 18:26
  let's look for those organizations that can help
• 18:28
  because
• 18:29
  the toxicity should not only be at the beginning
• 18:33
  it will be in the long term
• 18:35
  let's make sure we stop that
• 18:38
  wow and that is really like the ripple effect
• 18:41
  ramifications that you just don't think about initially
• 18:44
  but it it really does affect everything
• 18:47
  it's true because at the beginning
• 18:48
  you are surviving
• 18:50
  I call it surviving the day
• 18:52
  you know you are day by day trying to make sure um
• 18:55
  your child goes through these treatments
• 18:58
  and you try to give everything you can
• 19:00
  to make their lives easier
• 19:02
  or not as bad let me say
• 19:05
  especially when you are in in
• 19:06
  in the hospital
• 19:08
  but then you have to think in the
• 19:10
  down the road what's gonna happen a few years from now
• 19:12
  because obviously you want your child to survive
• 19:14
  and when you have a survivor
• 19:16
  it's the best feeling but
• 19:19
  you still have to think about
• 19:20
  what happened to the whole family
• 19:22
  and finances is is a key aspect of it
• 19:27
  absolutely
• 19:29
  tell us are
• 19:30
  do you have any like
• 19:32
  success stories that are extra meaningful
• 19:35
  has anybody sent you a letter that just
• 19:37
  really stuck with you
• 19:38
  that you would want to tell us about
• 19:41
  um one of the example that I found very interesting was
• 19:45
  um
• 19:46
  a person who contacted us
• 19:48
  you know via the
• 19:49
  our website and as I said
• 19:51
  you just can go to the contact form
• 19:52
  and we'll immediately respond
• 19:54
  and this was a a gentleman eh
• 19:58
  living in in New Jersey
• 20:01
  who you know
• 20:02
  was overwhelmed in and because of the of
• 20:06
  of cancer
• 20:07
  and didn't know exactly how to pay for the bills or eh
• 20:12
  what to do in that situation
• 20:14
  he knew uh
• 20:15
  he needed immediate treatment
• 20:16
  but he knew also the expenses that were coming
• 20:20
  and just felt overwhelmed
• 20:22
  and you know we
• 20:23
  we contacted back and say
• 20:25
  well first of all
• 20:27
  there is a a process here
• 20:30
  and there is organizations that can support you
• 20:33
  and there you can also talk to the hospital
• 20:34
  and make sure you understand the
• 20:36
  the cost that will be part of this treatment
• 20:40
  but number one the most important thing is
• 20:42
  do not stop treatments because of that
• 20:44
  you know
• 20:45
  because any delaying treatments in cancer might be uh
• 20:51
  the difference
• 20:52
  so we want people to know that
• 20:55
  regardless of how overwhelming is
• 20:57
  when you hear any of the costs related to treatments
• 21:01
  to prescriptions to adjustments in life
• 21:05
  you have to go ahead and and start the treatment
• 21:08
  there will be ways to find resources
• 21:11
  and that is a key issue
• 21:13
  that we felt it was important for this person to
• 21:17
  to know and he followed that
• 21:20
  he talked to his social worker and eventually sent a
• 21:23
  a very nice email saying that
• 21:27
  you know that
• 21:27
  that allow him to feel more empowered
• 21:30
  to go through this very difficult process
• 21:33
  I imagine a lot of people coming in
• 21:35
  don't even know social workers are a piece of this
• 21:38
  would you say so
• 21:40
  absolutely and I have to say
• 21:42
  uh
• 21:43
  my
• 21:43
  the respect I have for social workers after these years
• 21:47
  have increased exponentially
• 21:49
  they are such a key a variable in this equation
• 21:55
  I
• 21:56
  I feel they should be paid way more than they are paid
• 21:59
  recognized way more than they are recognized
• 22:02
  because they have to go to this very difficult cases
• 22:07
  and find the resources at the same time they they
• 22:11
  they bring all the elements uh
• 22:15
  there is bureaucracy involved
• 22:16
  there is paperwork involved
• 22:17
  there is applications involved
• 22:19
  there is the knowledge of how law keeps changing
• 22:23
  it is a very difficult task and
• 22:26
  and it unfortunately
• 22:28
  we don't have enough because that's part of the issue
• 22:31
  it's very similar to the problem we have
• 22:32
  with guidance counselors in high schools
• 22:34
  they they are
• 22:35
  they are key for for the future of
• 22:37
  of higher education but we just don't have enough
• 22:40
  and in a large high school um
• 22:42
  students don't get enough time just
• 22:44
  it's just impossible
• 22:45
  and the same happens with social workers
• 22:48
  I I try to communicate with them often
• 22:51
  I have a database that I send the
• 22:54
  the information we get the updates for the database
• 22:57
  or the interview to them
• 22:58
  and ask them to share it with their
• 23:01
  with their clients with their families
• 23:03
  and every time we I talk to them
• 23:05
  I feel that um
• 23:07
  they are the ones who are
• 23:09
  are are keeping this together
• 23:12
  absolutely and even the social workers
• 23:17
  I'm sure you're a huge resource for them
• 23:20
  to be able to come and look at your network and
• 23:22
  and I'm
• 23:23
  I would imagine that that helps their job a little bit
• 23:27
  too right
• 23:28
  that's what we're trying to do
• 23:29
  you know I I
• 23:30
  I thought when I designed this website
• 23:33
  I thought about you know
• 23:34
  two particular audiences
• 23:36
  one is that parent caregiver who is
• 23:40
  at 2:00am in the morning in a hospital bed uh
• 23:44
  or in a hospital chair going through these very
• 23:47
  very rough treatments and
• 23:49
  and at the same time thinking
• 23:50
  how are we gonna pay the the utility bill
• 23:53
  I wanted that website and we have a
• 23:56
  a very user friendly a version for smartphones
• 24:01
  I wanted them to
• 24:02
  to know that there is resources for them
• 24:04
  but the other audience was a social worker that
• 24:07
  as I mentioned might spend 70% of their time
• 24:09
  looking for financial assistance
• 24:11
  what they told me is that they
• 24:13
  they have all these very long directories
• 24:15
  or lists that they have compiled over over the years
• 24:19
  they share it with each other
• 24:21
  there is an association
• 24:22
  of pediatric oncology social workers
• 24:24
  where there's also more information
• 24:26
  but the reality is that
• 24:27
  when you have so many organizations in this ecosystem
• 24:31
  um you
• 24:33
  it's very difficult to update the information
• 24:35
  you know
• 24:35
  you might get links that are not working anymore
• 24:38
  you might get organizations
• 24:39
  that don't have the money to support anymore
• 24:41
  organizations that change their guidelines
• 24:44
  and you have to start from zero
• 24:46
  so my commitment when we created Broken Not Broke
• 24:49
  was to update the whole database once a year
• 24:52
  to make sure that that information is up to date
• 24:57
  that's amazing I love that you're so mindful of that
• 25:01
  because it is true and
• 25:02
  there's probably new organizations
• 25:04
  popping up constantly as well
• 25:06
  that is correct that happens a lot
• 25:09
  yeah wow
• 25:11
  I love this I love everything you're doing
• 25:13
  I think you're doing it all in an amazing way
• 25:15
  you're helping so many people
• 25:17
  the patients the social workers
• 25:19
  the organizations to be found
• 25:20
  you're really out there
• 25:21
  being a champion for all of them
• 25:23
  and I think it's amazing
• 25:25
  thank you Megan
• 25:26
  I must say that you know something
• 25:28
  that we were not considered at the beginning
• 25:29
  and turned out to be one of the uh
• 25:31
  outcomes of this product or uses of this product
• 25:35
  is a people who want to donate to these organizations
• 25:38
  because they can you know
• 25:40
  they can also
• 25:41
  filter the information through the website
• 25:43
  and find the organizations
• 25:44
  that they feel comfortable donating to
• 25:46
  you know you
• 25:47
  you hear the the
• 25:48
  the large organizations childhood cancer
• 25:50
  you know Saint Jude
• 25:51
  obviously or
• 25:52
  or Alex's Lemonade but there is very small organizations
• 25:56
  that focus on a particular county
• 25:59
  on a particular type of cancer
• 26:01
  on a particular type of financial assistance that you
• 26:05
  as a family who wants to to help um
• 26:07
  the cause
• 26:08
  can find through our website and also donate to them
• 26:13
  I love it it's all amazing
• 26:15
  and you're doing such wonderful work
• 26:17
  and I just wanna thank you from A Cure In Sight
• 26:20
  for all the work you're doing for cancer patients
• 26:23
  so just thanks for being here
• 26:25
  thank you for your time
• 26:26
  and thank you for everything you're doing
• 26:29
  thank you Megan
• 26:29
  I appreciate the invitation to
• 26:31
  to this this
• 26:33
  this podcast I have to praise A Cure In Sight
• 26:35
  one of my favorite organizations
• 26:37
  I have to praise your podcast
• 26:39
  is bringing a lot of education to
• 26:41
  to patients and their families
• 26:42
  so thank you for the work you do too
• 26:45
  well thank you
• 26:45
  we appreciate you
• 26:47
  please visit us at BrokenNotBroke.org
• 26:49
  or just Google us in a YouTube
• 26:52
  The Broken Not Broke Interview
• 26:55
  fantastic alright everybody
• 26:57
  please go follow Adrian follow Broken
• 26:59
  Not Broke and
• 27:00
  we are so excited
• 27:01
  to be able to bring this information to you
• 27:03
  hopefully this has been very helpful
• 27:05
  please share this with somebody that you know
• 27:07
  who might benefit from this episode
• 27:09
  and
• 27:09
  I'd also like to give a huge thank you to our sponsors
• 27:12
  none of this works without the sponsors
• 27:14
  so go check out their websites as well
• 27:16
  and check out ACureInSight.org
• 27:18
  we have a lot of great resources on the website
• 27:20
  we have 5 KS coming up
• 27:22
  we have our Swing For Sight coming up this spring
• 27:26
  the patient meeting in the fall
• 27:28
  is going to be in Dallas
• 27:29
  so there's a lot of great events going on
• 27:31
  as well as our Tuesday night zoom groups
• 27:33
  where you can connect with some other patients
• 27:36
  and check out the Facebook groups
• 27:37
  there's a lot of great resources
• 27:39
  and that's all we want right Adrian
• 27:40
  we just want to help you guys
• 27:42
  so check us out
• 27:42
  let us help you connect people to resources
• 27:46
  haha that's right
• 27:47
  you heard it from us alright
• 27:49
  we'll see you all next week
• 27:51
  thank you