Latest / Authentic Living / Managing the Emotional Journey of Long-term Care for Families with Deborah Bakti
Transcript
- 0:01Welcome to authentic living with Roxanne, a place where we have as conversations about
- 0:08things that really matter in our lives.
- 0:11And now here's your host, Roxanne Derhodge.
- 0:36Hi, everyone.
- 0:36It's, Roxanne Door Hutch.
- 0:37Thanks again for tuning in for authentic living with Roxanne.
- 0:41Today, I have a special, guest and she has some been someone.
- 0:46We initially got, in introduced each other by a common colleague, Deborah Bacti.
- 0:52So Deborah, thanks for coming in, hanging out with us again today.
- 0:56Oh, it's my pleasure, Ron.
- 0:58So Deborah and I, cross paths, and we've, been involved in, projects together over the years
- 1:05just kind of knowing what each other's doing.
- 1:07And, her expertise is, you know, I think it's, oh, there's always been a need.
- 1:12I, I would say that most of us today I know with my parents, they're both, elderly, kind of
- 1:19thinking about, you know, the senior care and and all the things that you kind of have to
- 1:24maneuver and and kind of manage as your parents gets older.
- 1:27And this is something that Deborah's been, doing for quite a while.
- 1:31Deborah, I'm gonna I'm just reading a little bit about Deborah's background.
- 1:34There's gonna be a full kind of bio.
- 1:37She's the owner of Think breakthrough, big breakthrough inc.
- 1:40It's a consulting and training company that's helped senior care organizations build
- 1:44stronger, healthier relationships, with their resident families.
- 1:48She's the author of 2 books, recipe for empathy, 6 strategies, to transform your
- 1:54families into fans, in senior care.
- 1:57And her newest book, which she has already sold 4000 copies, I should tell you, managing the
- 2:03emotional journey of long term care for family.
- 2:05She's been a senior care executive, for about 11 years.
- 2:10And at that point, she had firsthand kind of experience, having had her husband.
- 2:18And at the time, I met Deborah.
- 2:20I know she was caring for her husband.
- 2:22Her mom and dad all became, residents of senior care building.
- 2:26So not only is it her specialty, but she's had to experience that as a, a family member, and
- 2:33she's also a certified corporate coach and positive psychology practitioner.
- 2:38So thank you again.
- 2:39So Deborah, I'm gonna ask you, and I, I don't know that I know this.
- 2:44What made you want to become involved in in senior care way back when you got to, kind of
- 2:51the corporate setting?
- 2:53Well, it it was like a lot of people happened in their careers.
- 2:56It it wasn't planned.
- 2:58I was working in the staffing industry at the time, and I was approached and headhunted to
- 3:04join this organization and lead their home care division.
- 3:07There were some correlations in the staffing services model.
- 3:11And so that was way back in 2006.
- 3:16And, so it was all it was all new for me.
- 3:19I didn't even know what home care was.
- 3:21I'd never had a need for home care.
- 3:23Didn't know anybody who had home care.
- 3:25And I knew about long term care nursing homes, and that was about the extent of it.
- 3:30So, you know, very quickly learned and and had was in a leadership role.
- 3:36And then it was 2008 when my husband started having these weird symptoms and became ill, And
- 3:43it was an 18 month journey to get a diagnosis of what was a really rare disease that only
- 3:49four hundred people in the world had at the time.
- 3:52And so I then we became customers of home care, adult daycare, and with the unfortunate
- 4:00progression of the disease, he needed to be placed into long term care in 2011, and he
- 4:06lived in a home for 4 years before he passed away in 2015.
- 4:12And as you mentioned, I also had an experience with both my dad and my mom.
- 4:16My dad lived in long term care for 6 months.
- 4:19And then my mom went into retirement living, independent living, and then we needed to
- 4:24transition her assisted living and she passed away in 2019.
- 4:28So it was quite we experienced three times over of living and breathing as a family member of a
- 4:35resident in seeing in the in the senior's care system.
- 4:39Do you so my my I'm just curious about this.
- 4:43Right?
- 4:43So, obviously, your husband was younger and or parents are all getting older.
- 4:47But when you put someone younger in versus your older family members, what did you experience?
- 4:55Were there differences or were there certain themes that you would say?
- 4:59That you experience the same of of putting in them in a facility?
- 5:05Well, I think it's different based on the relation relationship.
- 5:07And you're right.
- 5:08He was younger and about 10 to 12% of residents in a long term care home are under the age of
- 5:15sixty five.
- 5:16So as you can imagine, the majority are older and probably more closer in their eighties.
- 5:22So it was certainly a surreal experience to be someone as young.
- 5:27I mean, my peer group of women were thirty years older than me, And they also typically
- 5:34were retired.
- 5:35Their kids had grown where I was working full time, and I had 2 kids living at home that I
- 5:40was in essence single parenting.
- 5:43And I think there's probably there's also similarities for anyone who needs to make the
- 5:48decision more of the often than not is making the decision for your parents or an aunt or
- 5:53uncle.
- 5:54But for anyone, the family experience going through making the decision is filled with all
- 6:00sorts of emotional angst.
- 6:03Right?
- 6:03There's the guilt.
- 6:05There's some grief, there's anxiety, there's fear.
- 6:08And going through the last year with COVID has only made it worse because of all of the
- 6:13negative media that's being written about institutional living.
- 6:18And then also too, some families feel relief.
- 6:21They have been white knuckling at caregiving at home.
- 6:24As my mom did with my dad until he needed to go into long term care.
- 6:28And then you feel guilty about feeling relieved.
- 6:31Right?
- 6:31And and the other thing on top of it is most people don't really understand how senior's
- 6:36care works.
- 6:37They don't know what they don't know.
- 6:39Other than what they've read about.
- 6:41So, you know, I think every person's journey is unique, and me to write this second book now
- 6:48what?
- 6:48Managing the emotional journey of long term care for families because it doesn't tend to
- 6:53get a lot of attention as to how the family is feeling.
- 6:57A lot of energy and attention is put on the resident as it should.
- 7:02This is a big life change for them.
- 7:04But I think what's underestimated is the life change that families go through.
- 7:07And you, as a therapist, may see people coming in to speak to you that are grappling with that
- 7:13and to subsidiary agree for the uncertainty and the change in their in their life
- 7:18relationships.
- 7:18And sometimes they have other people judging them, like, why couldn't you keep taking care
- 7:24of them at home?
- 7:24How how dare you put them into an old folks home as it used to be referred to?
- 7:30Right?
- 7:30And and it's it's just it's not that cut and dried.
- 7:35So tell me about some of the psychological implications of or the stages that families
- 7:41might go through.
- 7:42Like, I have, I think of a a client that I had, at the beginning of COVID and, a bit oh, she
- 7:49was a bit older.
- 7:50Her and her husband kinda had their predefined lives you know, she wanna, you know, they would
- 7:55do things together.
- 7:56He did stuff with his friends and she, you know, would have some trips and, you know, so
- 8:00it was kinda pretty really they had a pretty good life.
- 8:02And then dementia set in, at which point, she was trying to be supportive and probably manage
- 8:10a lot more things than she should have.
- 8:12And what started to happen is the dementia start to get worse.
- 8:15And then and then she's still trying to manage.
- 8:18And I'm like, okay.
- 8:18Well, no.
- 8:19We need to I said to her, we need to get you connected.
- 8:22Because, you know, what's gonna happen is she would leave him at times thinking he's okay,
- 8:26and then he'd go for a walk and forget things and, And it was very it was very overwhelming,
- 8:31but she felt a bit of when they she started into the system.
- 8:35She kind of got diverted in a way that put her into up, one way street, and then she was at
- 8:41the beginning again until she started to talk to me, and then I started to talk to her to get
- 8:45her connected you know, through the system to kind of get the geriatric assessment of all
- 8:50those things.
- 8:50So sometimes you're this lack of knowledge a lot, would you say that a lot of families,
- 8:56members live with it?
- 8:57Because they think, oh, well, maybe there's there's there's not the options of the they
- 9:00don't know the, kind of the triage models or the spaces that they need to explore.
- 9:06For sure.
- 9:07That's one of the aspects.
- 9:08It we already have a complex health care system to navigate.
- 9:12And the seniors care spectrum of it, that's through the Lynn in Ontario.
- 9:16That's the local health integration network.
- 9:19A lot of people don't know that they even exist and they don't know where to start.
- 9:23And that first visit with the doctor, your family doctor, and they say, know, you really
- 9:28need to be thinking about this, that immediate denial can kick in.
- 9:32And I experienced it myself.
- 9:34It's hard for us to see the progression or, wishful thinking that is not going to continue
- 9:40to get worse.
- 9:42In in my book, I talk about basically, it's like the sun the 7 a's is a framework that I
- 9:48that I created based on my experience and it is to help families recognize that within these, 7
- 9:57stages and it may not be linear It usually starts with just being aware.
- 10:02You have to have that awareness that this is an issue.
- 10:07It's a challenge.
- 10:08There are resources out there.
- 10:09So there's there's the awareness from a knowledge standpoint, but also an emotional
- 10:14standpoint.
- 10:15And then is progressing into that area of being able to acknowledge.
- 10:21And that's facing the reality and not that magical thinking that we can have that I can
- 10:28continue to take care of them.
- 10:30I can, you know, this is going to get better.
- 10:32Right?
- 10:33And and then getting into that area of being able to adapt, and this is ideally when someone
- 10:39has finally been able to make the decision, How do you adapt to that new role of being a family
- 10:44member in a long term care or seniors care community?
- 10:48And how do you adapt to your schedule?
- 10:51And some of the things that you talked about when you're used to having someone with you
- 10:55there as a partner every day but also as a caregiver giving up the control of the
- 11:01caregiving.
- 11:03Absolutely.
- 11:03Because that, you know, if I'm, you know, at the point where I'm, you know, carrying in.
- 11:08I know my sisters and my family, my with my mom.
- 11:11She's in a seniors building.
- 11:12She's not in a long term term care building.
- 11:16You know, so we we're involved with her a lot and, you know, you kinda you kinda think you
- 11:20know what what is sometimes right for them as you realize, oh, no.
- 11:25Yeah.
- 11:26And sometimes, you know, parents can kinda get their way through their children, which
- 11:30sometimes is not the best for what's recommended for them.
- 11:34That's the thing.
- 11:35I I I'm gonna use the word a bit manipulative at times because they think, oh, I don't wanna
- 11:39do this.
- 11:40So I'll just tell my kids this.
- 11:42And my mom's done that with us before, and then we're all starting to talk.
- 11:45And then we're like, oh, okay.
- 11:47And then we talked to the nurse manager who's giving us a different story.
- 11:50So I I think not knowing the system, I could see, you know, would be something that family
- 11:57members could benefit just having, like you said, the knowledge of what the system can and
- 12:02can't help with, what you're giving up, and what you have to compensate with, like, know
- 12:07that you've let up that care and, you know, leave it up to the the experts that know it,
- 12:13but some most of us aren't so good with, giving up some of that control.
- 12:18Well, and you probably see people who've got that natural gene of caregiving.
- 12:23Sometimes it can be a control issue.
- 12:26Nobody can do it better than I.
- 12:28And sometimes it can be that martyr, and I speak from experience.
- 12:33But, you know, sometimes I felt like was be I was playing the martyr role with all of the
- 12:38heavy lifting I needed to do with taking care of my husband and to allow other people also
- 12:44understand they're not going to do things perfectly and they're not going to do things
- 12:49the way that you would and they're living in a community setting.
- 12:52And I think that's where it becomes really important in how the families and the care
- 12:58teams are able to have an expectations discussion and dispel some of the
- 13:02misconceptions that they have.
- 13:04A lot of families think that their loved ones going to get 1 on 1 20 fourseven care.
- 13:10And it's that's just not how it works.
- 13:14And so, you know, there's some there's some learning with that, and that's where I think
- 13:18it's when a family is not feeling emotionally, capable of that change in their life and their
- 13:27lifestyle, it can really create a lot of friction for the people who work in seniors
- 13:32care, and it also affects the resident.
- 13:35Mean, I think when when they look out when a person becomes a resident in a senior's care
- 13:40home, it's the resident who adopts to their new routine first, typically.
- 13:45And then the staff, they adjust.
- 13:46It's a new resident, lots of new learning for them, but it can take the family 2, 3 months,
- 13:51even longer, to get to that place of being able to adopt and accept, right, and to be able to
- 13:58actually appreciate their new role and fiddle too well.
- 14:03Yeah.
- 14:03So you talked a little bit about, admission anxiety, and I think we're stepping into this.
- 14:10Just just tell us what that is and, like, an example of maybe a scenario that that is kind
- 14:18of atypical.
- 14:19I know every family is gonna be different.
- 14:21So what is admission anxiety I
- 14:25I would say most families.
- 14:27I've not met a family, and I've met a lot of them that haven't felt that anxiety.
- 14:32They're coming into a building that they know that they're going to be leaving that building
- 14:36without their loved one, and they just don't know what to expect.
- 14:40It's overwhelming.
- 14:42The sounds, the activity, different people, and admission day can be very busy.
- 14:47And I know for me and for a lot of other families, it can feel transactional.
- 14:51The home is already busy and they're squeezing this admission in, and there's lots of
- 14:55paperwork and all of that to cover.
- 14:58So It's as they're going through that and then as they're leaving and walking to their car,
- 15:03driving home, that's when the tears start.
- 15:06That's when the Have I done the right thing and the guilt can set in?
- 15:12On the other side of the equation is the staff who can feel admission anxiety.
- 15:18And I was able to get a better understanding in when I was doing consulting on-site that the
- 15:24morning of a new resident and family coming in, the staff are trying to learn everything they
- 15:30can based on a file that's being sent to them.
- 15:33And as you can appreciate Roxanne, the the file only says so much, and some of the information
- 15:38is not correct or it's out of date.
- 15:40And there also tends to be this worry about I wonder what the family's going to be like.
- 15:45Are they gonna be nice?
- 15:47Are they gonna be pleasant?
- 15:48How are they emotionally feeling about this?
- 15:51And every home has had the challenge of having passion.
- 15:57It's called them passionate family.
- 15:59In my book, I talk about family flavors, and I I I there's there's jalapeno families, right,
- 16:04or there's families.
- 16:05I'm hoe that's probably been my family, Deborah.
- 16:08You're putting it down and it's getting a little bit hot and spicy.
- 16:10Right.
- 16:11And they can have jalapeno moments.
- 16:12And so sometimes the staff are almost racing themselves, and they're thinking, oh, know,
- 16:17that's gonna be a difficult family.
- 16:19And so this labeling starts to happen.
- 16:22And I really don't believe that families come in to be difficult.
- 16:26They're scared.
- 16:26They're afraid.
- 16:27They don't know what they don't know.
- 16:29And then they get handled in this admission process.
- 16:34And then they leave and and sometimes they feel like they haven't really been seen or
- 16:39understood.
- 16:41Right?
- 16:41Because the the staff are and, frankly, so focusing on getting the resident settled is a
- 16:46big change for them.
- 16:47So I find it to share with families that the the care team are also feeling this admission
- 16:53anxiety.
- 16:54It's actually a way to be able to connect with a shared experience just for different reasons,
- 17:00and how can we be focusing on alleviating that anxiety with each other by focusing on that
- 17:07making a connection as human beings on a probably one of the hardest days of that
- 17:13family's life And it's a day that they will remember.
- 17:17They may not remember the details.
- 17:18It can be a bit of a blur, but they will remember how they felt.
- 17:22And for the staff, it's It's it's another day of a busy day.
- 17:27And so I try to help them understand why it's so important to be present and intentional and
- 17:33can passionate and curious with that family, to to bringing bringing them.
- 17:38It's it's no different than onboarding.
- 17:40An employee in your organization, you wanna be be mindful and, and compassionate in that.
- 17:49And it's your family member, right, that you, you know, it's that connection, that love.
- 17:54So you're trying to let go and you know, that they have the skills, but I wonder, is there a
- 18:00bridge that happens?
- 18:01Is there like a preadmission kind of group or any kind of connection with the staff, with the
- 18:08family members, or is it that on admission day that when, things happen.
- 18:13It can vary.
- 18:14Like, sometimes you you if you're if you are on the wait list, And, I mean, there's about 30,
- 18:21over 30,000 people that are on the wait list in Ontario right now to get into long term care.
- 18:27You'll get a phone call saying a bed is available and that you've got a very short
- 18:32period of time to decide whether you want to accept it.
- 18:35And every situation's different.
- 18:37Sometimes you may get the phone call from the Lynn.
- 18:39So there's an initial phone conversation with a very short window that you have to make the
- 18:43decision.
- 18:45And it it can feel it can feel rushed.
- 18:49And and I think that's where it There's so much opportunity to be what I say is to be more
- 18:55relational versus transactional at that point in time.
- 18:59Particularly when the family is feeling so vulnerable and are looking for someone to take
- 19:05the lead and be their guide.
- 19:07Even if they don't realize that that's what they need and want.
- 19:11That that makes so much sense.
- 19:12So, you know, obviously, like you said, the the anxiety is at a different level for different
- 19:18people.
- 19:20And of course, when we're fearful, what we do, we try to protect, right?
- 19:24So you know, so what, what, what mode does the family go into kind of, I would say, like, it's
- 19:29almost like an imprint of a signature with a family, right?
- 19:32How do you really kind of, react under pressure?
- 19:36Some families are like they all line up and they get things done.
- 19:40Other, you know, some people are emotive, some people are disconnecting, you know, as a family
- 19:44therapist, you know, obviously, I've seen every of that.
- 19:48But of course, this is a significant life, shift, right?
- 19:52It's a huge change knowing that it's not gonna come back the same way.
- 19:56So it's adjustments to kinda like, you know, it's, it's, not unlike what you said,
- 20:01organizationally, if it's change management, how you're getting as much, prepped as
- 20:06possible.
- 20:06And we know the reality oftentimes isn't doesn't fit, right, like to what the you know,
- 20:11what's happening on the boots on the ground is different from what to perceive it and bridging
- 20:16that gap just to help, like you said, not just just the residents, but the family members, and
- 20:22you have all your staffing as well, and they have lives as well.
- 20:25So you have a lot of things going on in that system all at
- 20:30I used to joke about how when I would go to visit Thai, it was like visiting this village.
- 20:35And all of these people that were coming and going, you had like you say, you've had the
- 20:40staff.
- 20:40They've got their own dynamics happening.
- 20:42Some staff like each other, some don't.
- 20:44And the more you're there with the family, the more you you kinda get the inside scoop.
- 20:48And you've got management, and you've got all the different departments, the laundry,
- 20:52housekeeping, maintenance, and then you've got other family members.
- 20:55And so it it's this little town that operates and you've got the different residents and
- 21:00their personalities and some residents love each other and some don't.
- 21:04Right?
- 21:05And, and and when you talk about families and being a family therapist, you would get those
- 21:11family dynamics and dysfunction.
- 21:14Yes.
- 21:14And you can have a family that's submitting a loved 1 and 2 of the sisters.
- 21:191 has been the the driver.
- 21:21She's the power of attorney.
- 21:23And the other sisters in denial.
- 21:25And so then you've got their their own dysfunction, but how that comes into the home
- 21:30and how they're relating to the staff.
- 21:32And that family, in fighting that can happen that they bring in it.
- 21:37Right?
- 21:37And the drama that happens.
- 21:40The family drama that's happening and that and the the, like you said, what's the flavor of
- 21:44the family?
- 21:45People are going coming in with fear.
- 21:48And you're thinking, okay.
- 21:49All my nursing skills are gonna come into play now.
- 21:52I'm gonna be compassionate and kind, but I'm gonna hold that boundary that says you have to
- 21:57be respectful, obviously.
- 21:58So it's there's a lot of things I would think at that play.
- 22:02When I worked with addictions on different environment, but similar in a lot of ways.
- 22:06It's, you know, the families that would come in, and we would have to educate them about,
- 22:11you know, kind of boundaries and, you know, what can and cannot be done and all those
- 22:16things.
- 22:16And you're right.
- 22:17We would get every iteration of every possibility of who was coping how and
- 22:22everything that could bear out.
- 22:23We would do family groups.
- 22:24That's why I was asking, but, of course, Ours was, you know, it was a known admission date,
- 22:29but what your point sometimes, if there's 30,000 people waiting for a bed, I would think
- 22:34that you get a call and you're making a decision within, you know, maybe less than a
- 22:39week and you're everything has to go.
- 22:41Yeah.
- 22:42It's 24 hours.
- 22:44Yes.
- 22:44It could be it could be any time.
- 22:47Right.
- 22:47And and I I love how you said, like, it it really is about how someone is coping.
- 22:54And so when we're quick to say they're being difficult, is it that they're being difficult,
- 22:59or are they struggling and they're having a hard time coping?
- 23:03And sometimes it is, that making eye contact and just saying, like, when when I do my
- 23:09training and I talk about how challenging that admission day was when I left high there.
- 23:15And if somebody at the home had called me that night just to check-in and say, Ties doing
- 23:20great, but we wanna know that must have been a really hard day for you.
- 23:25We could see that you were struggling with it.
- 23:27How are you feeling?
- 23:29Yeah.
- 23:30That making an emotional connection, I would have felt seen and heard.
- 23:35And and now I've got clients who are implementing that as that reach out and the
- 23:40difference that they're seeing is remarkable because we're being human and relational.
- 23:47Absolutely.
- 23:48And, and, you know, with all the work that I do, whether it's as a psychotherapist or when I
- 23:52was in trauma or addictions or just even consulting with teams.
- 23:57That's the main thing.
- 23:58Right?
- 23:58It's about, regardless of what you're going through is, can I experience you, you know,
- 24:03like the thing, the thought that I can, I just can stop things and say, how's it really going
- 24:09for you?
- 24:10Ready drops that veil.
- 24:12Right?
- 24:12Cause we all get into that stress signature and that, that dance that we do.
- 24:16And then when somebody notices that, you know, you may be a high functioner, but you could
- 24:21tell that you're, you're, you're just doing your thing.
- 24:24And somebody says, how are you really doing that?
- 24:26Shows you that human to human Wow, that it's difficult.
- 24:30I'm not really sure what you're experiencing, but I, I'm gonna think that it's probably a
- 24:34little bit of a tough time for you.
- 24:37And I think, you know, in whatever role you're in to be able to have that skill and to be
- 24:42aware within yourself, what you're experiencing, in that capacity, that's, that's
- 24:47just opens up, you know, such huge doors for people to connect.
- 24:55So let's, let's talk a little bit about, if there's families listening or even, you know,
- 25:04leadership, right, that are listening.
- 25:06We've gone through, you know, the this time period.
- 25:09We to find the adjectives to to describe what, most people have gone through.
- 25:14Now we're thinking about admission in, but we know how many people have lost family members
- 25:20in long term care homes for people that are families that are listening that unfortunately
- 25:26are at the point where they have to make this decision right now, or even for senior leaders
- 25:31listening, what, what kind of things should people be thinking about in this time, about an
- 25:39admission?
- 25:41Is it referring with it being post COVID and if somebody has a need now to be on the way.
- 25:47I don't just generally, like, I mean, before, I'm sure there was anxieties, but now in this
- 25:51time, I'm gonna assume there's some heightened things that people might be experiencing.
- 25:57Yeah.
- 25:57I mean, I think if if someone is thinking about is this the right time?
- 26:03I mean, I would recommend that you are talking to your family physician or any specialists
- 26:07that are involved in, and let's just use the example of it's a of your parents care.
- 26:13And and I think it's also to try to take an, an objective viewpoint as to what's actually
- 26:23occurring that would prompt the need for additional level of care Whether that's moving
- 26:28into retirement or assisted living or memory care or long term care.
- 26:34Because they're typically, when I talk to families, they can look back and in hindsight.
- 26:40They saw the warning signs, but either they were, and I'll speak for myself.
- 26:44My mom was starting to have some memory issues, not necessarily taking her medication properly.
- 26:50And parents can be sneaky when they're trying to cover Right?
- 26:54So they're they're, they're deficits.
- 26:58Yes.
- 26:58We're busy in our work and life and things and everything else.
- 27:02No.
- 27:02I can look back and recognize that I wasn't being as present and paying attention or asking
- 27:08better questions.
- 27:09Without making her feel wrong or bad or anything like that.
- 27:17Of voices or to be able to see for yourself.
- 27:20And then it's doing the due diligence and research of the homes that are in your area, I
- 27:25think right now they're still doing virtual visits, but if you're able to speak to the
- 27:29social worker or administrator or director of care in the home, because it's important that
- 27:35you are able to learn what you can, in Ontario reaching out to your local health your your
- 27:41Lynn, to to be able to speak to a case manager to see.
- 27:46They there's criteria that's involved.
- 27:49Right?
- 27:49So I think there's that knowledge, Pete, and then being able to understand from an emotional
- 27:54standpoint, how do you feel about this potential necessary next step in your parents
- 28:01aging journey.
- 28:03And how will you be able to lean into that versus feeling the resistance?
- 28:08If you're feeling some of the guilt or maybe some of the grief because of things that are
- 28:12changing in your family relationship.
- 28:15I highly recommend reaching out to a therapist.
- 28:18Like, there are people that you can talk to.
- 28:21If I didn't have the support of therapy while my husband was going through it.
- 28:27She was in she enabled me to think differently about the reality of our situation and what
- 28:34doing everything perfectly all the time always.
- 28:39Right?
- 28:40Right.
- 28:41And I would think that in in this time, and and I wanna talk a little bit about the pandemic
- 28:46and all the losses.
- 28:48Right?
- 28:48I would say that probably, and I'm assuming that, or you're the one that's the expert here
- 28:52that some families may be just scared, even if they know that maybe it's time to make that
- 28:58decision because of all the losses that we've had in the long term care facilities, what,
- 29:04what advice do you have for them?
- 29:06You know, like, they may be holding back a lot because, you know, you know, all you hear,
- 29:12unfortunately, are all the horror stories.
- 29:15We don't hear all the kind things that are being done in these long term care facilities.
- 29:21What would you say to them, Deborah?
- 29:23If they're really that petrified that they're not taking step even if it may be a necessary
- 29:28step at this point.
- 29:30I do think it goes back to having a connection with those local communities and asking those
- 29:34questions I think that what we've seen over the last year, I've not been in the home, so I'm
- 29:39not on the front line directly, but from what I'm also hearing and reading, is that they, you
- 29:46know, the the the progress that they've made with vaccinations and that how that's being
- 29:50prioritized, there was so much that just wasn't happening initially.
- 29:56And now we're a year into it and whether it be the infection control and the protocol and the
- 30:01PPE they have and new processes and procedures and whatnot.
- 30:07You know, all of those things would be important to research if if my parents were
- 30:11alive today and I was facing that, that's exactly what I would be doing and having those
- 30:16conversations, or if there's someone that I know that has a loved one that living in a
- 30:20seniors care environment.
- 30:22I mean, there are some residents who have probably done better living in a community
- 30:27setting because and I can think of my my sister-in-law who has her dad living in
- 30:33retirement.
- 30:35And she is convinced that he he has thrived in that community setting even with some of the
- 30:41restrictions that they've had because before, he was living completely on his own.
- 30:46Right.
- 30:46You have the right dietary support and physical activities and mental stimulation.
- 30:52So it really I comes down to assessing your personal situation, where do you see the need
- 30:59and the gaps that are currently in existence?
- 31:01And I think families also have to look at what impact it's having on their physical and
- 31:09emotional health in that caregiving role.
- 31:12Because it is not sustainable, in my opinion, in the long run, with a white knuckling
- 31:18strategy, and course, it depends on the level of care and the intensity of care that you
- 31:24have.
- 31:24And maybe you can continue to get home care to support or when adult day care programs are up
- 31:31and running again.
- 31:33It's it's not an easy decision at the best of times.
- 31:37So for employers listening, right, because a lot of people are, you know, the sandwich
- 31:42generation, I think a lot of us entered it as soon as we probably did, like, our mid-40s,
- 31:46right?
- 31:46We were carrying income some capacity.
- 31:49And we know your population is aging.
- 31:52Like you said, there's 30,000 people waiting for care.
- 31:55So and we're going through the fear of the pandemic.
- 31:58Everybody's in a mess.
- 32:00You know, people are trying to catch your breath, and people have had losses and not
- 32:04being able to see family members and all those things.
- 32:06So from a from a leadership perspective, what kind of things should HR and leaders be
- 32:11considering with people that are maybe having family members in long term care to just kind
- 32:17of, I'm thinking about, you know, we're gonna probably at some point start to integrated
- 32:22reopened, what kind of things should environments be thinking about, putting in
- 32:26place or addressing for people that might be, you know, like you said, caring for 1 or 2, or
- 32:32then 3 family members, or maybe they've lost people, you know, through this time, and
- 32:37they're, they're going back to work.
- 32:39Mhmm.
- 32:40Yeah.
- 32:41And and some organizations I've talked to, they really tapped into their EAP or the EFAP
- 32:46program, the employee assistance program, And I think that they have really geared themselves
- 32:51to look at what resources can we provide, contact I know someone will even provide a list
- 32:58of homes in the area.
- 33:00And I think there's also focus on on grief and PTSD support.
- 33:06It's as you talked about whether it whether it was some financial loss, health loss, all of
- 33:13those impacts that they're recognizing that employee health and well-being is is no longer
- 33:19a nice to have.
- 33:20It's a must have.
- 33:22In order to be able to provide that support.
- 33:25And, that that sounds to me like it's probably one of the easiest ways if an organization does
- 33:33have an EAP program.
- 33:35And if they don't, then ideally whomever in their HR to and that typically would be
- 33:40providing those types under the umbrella of employee benefits is where can they be
- 33:45connecting with the local resources to be able to direct employees in that direction.
- 33:51Absolutely.
- 33:52And I know, that was one of my corporate consulting roles as I was an executive of the
- 33:57APs.
- 33:58And I, you know, I started the APs back in 1994.
- 34:02And, back then, it was a nice to have.
- 34:05Right?
- 34:05It was kinda like a the companies that, you know, it was kinda the rage and they start to
- 34:10wreck nice they needed to do it, but a lot of companies at that time, or even, you know, into
- 34:16the 2000s, early 2000s, they would buy the EAP and was kind of be, oh, we have that badge that
- 34:22says we have it.
- 34:23And I think you're right now.
- 34:25Well, I don't think we have We can't negotiate that now, always because, you need to keep
- 34:30people connected, secure, psychologically safe, reintegrating back into work, all those things,
- 34:37right?
- 34:38And we're going back and where people are wanting to go back to employers that they feel
- 34:43safe and secure with that are, you know, living their brand and all those things.
- 34:48We wanna We wanna deal with people that are really true to their integrity of what what
- 34:54business they're running.
- 34:55So I think it's It's, you're right.
- 34:57It's not a nice to have anymore.
- 34:59It's a must have.
- 35:00If you want to keep people, you know, at work and, productive and present, all those things.
- 35:06And the EAP, I think, is, definitely, I'm sure, you know, there's been an escalation obviously
- 35:11in usage.
- 35:12I'm gonna be interested to kind of see, I'm sure that that's increased and need need so.
- 35:18Right?
- 35:18They need to use it so that they could stay healthy and productive at work.
- 35:22Well, and I imagine someone that's got their kids and there was an article I saw last week
- 35:27about parents suffering from kind of support their kids at home and online learning and
- 35:33imagine that.
- 35:33And then you thought whether they're living with you or close by, you've got aging parents
- 35:38and trying to deal with that.
- 35:40It's, a tremendous amount of pressure and burden while maintaining your own job and
- 35:45trying to keep things working in that area.
- 35:49I know for sure.
- 35:50So the book, tell us a bit about it.
- 35:53Where, you know, I'm gonna, I'm gonna assume that people will probably wanna reach out, you
- 35:58know, to consult with you or if organizations are listening that have that need or people
- 36:03that would want you to, you know, speak on the book.
- 36:07Where could they reach you and where can they get the book?
- 36:10Yeah.
- 36:10Best go to my website, which is deborahbakti.com.
- 36:15And I have a page for where people can purchase, either book the recipe for empathy
- 36:20are now what managing the emotional journey of long term care.
- 36:24And, yeah, I'm working directly with homes that are purchasing the book to be able to give to
- 36:30new families, but if families want to be able to buy it directly from you, they just come to
- 36:34my website.
- 36:35And, or you know what?
- 36:36Roxanne, maybe we we give a few copies away to your listeners.
- 36:40Okay.
- 36:41Well, you tell me and, Then what we'll do is, if if you're gonna do that, when people, let me
- 36:48know, they can sign up through the podcast, and then they can let me know, and then not well
- 36:52coordinated with you.
- 36:53That's so generous.
- 36:54That's amazing.
- 36:55I'm sure there's a couple people out there that would benefit immediately.
- 36:59We'll set something up for when you when the podcast launches of how people can get it.
- 37:03Awesome.
- 37:04Well, thank you for your time, Deborah.
- 37:06So what have I learned?
- 37:07I've learned that, and I think the part that I think organizationally makes sense is that,
- 37:15there's concurrent experiences happening with the family and with the with the with the,
- 37:21nursing care but also with the family and also with the patients.
- 37:26So we need to recognize or kind of think where is individually each part of the system at, at
- 37:32that point.
- 37:34And think about yourself if you're in, if you're in that space and you're having an aging
- 37:38parent or having to make that decision tap into what you're where are you at?
- 37:44What is your family's members?
- 37:45What is the kind of the decension or lack of dissension in the, the family, like Deborah
- 37:51said, investigate what's out there, you know, call your local, health health integrated
- 37:57network or Lynne and begin that process and just start to kind of educate yourself and
- 38:03think what would what is it that we're looking for?
- 38:06What are what is the true need and what stage of grief am I individually and collectively
- 38:13what stage of group are my family members in and then start from that space.
- 38:18That being said, it's not an easy, it's not an easy thing to go through for anyone.
- 38:22But again, what's important is offering the best care possible for your, for your loved
- 38:27ones, even though it may not be you, it's gonna be the right people.
- 38:31So thank you for tuning in.
- 38:33Deborah, thanks a lot again, and we'll talk to everyone soon.
- 38:37Thanks for tuning in to authentic living with Roxanne.
- 38:40Create the space for positive healthy change.
- 38:44Roxanne is a keynote speaker, psychotherapist, and coach to work with Roxanne, visit
- 38:50roxannederhaj.com/blueprint.
- 38:54We'll see you next time.
- 38:56An authentic living with Roxanne.