Rare Together, Watch Together - Film Selections from The Disorder Channel in Partnership with Global Genes
Rare Together Watch Together - Film Selections from The Disorder Channel in Partnership with Global Genes
Dan DeFabio and Bo Bigelow founded The Rare Disease Film Festival and have just created The Disorder Channel, accessible through Amazon Fire and Roku. Their work is connecting patients and families, raising awareness and inspiring a lot of conversations.
Global Genes is having a virtual 10 day summit, September 15th - 25th, 2020. On September 16th, 17th and 18th, they're holding a watch party with Dan and Bo. This event is free for patients and advocates, so check it out!
EPISODE…
The skinny
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