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Kansas Adds Rare Newborn Screening | Topeka News

Kansas is rolling out a groundbreaking newborn screening test starting June 29, 2026, to detect GAMT deficiency—a rare genetic disorder that can severely impact brain development if left untreated. This new addition brings Kansas’s total screened conditions to 38, emphasizing the state’s commitment to catching rare but serious conditions early. Without enough creatine, babies face risks like developmental delays, seizures, and intellectual disabilities, but early intervention can dramatically improve outcomes. It’s a powerful step toward giving every child the best possible start in life…

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