Beginners Guide to Rare Disease - Anecdotes For Those Early Days of Diagnosis with Daniel DeFabio
Daniel DeFabio and I are having a parent-to-parent discussion and bringing you guidance if you are a newly diagnosed family. We'll give you insight into our journeys, things that helped us along the way and ways we learned to cope and find hope. If you're a beginner and new in the club no one wants to be in, start here- this episode is for you.
EPISODE HIGHLIGHTS
On diagnosis day, what are the important things to notice and what life lines should be sought out right away?
Realize that no matter how bad the diagnosis is, you're going to live it and live through it and there's no way of…
The skinny
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