Latest / The Seed Project / My NICU Journey: Embracing the Miracles Amidst the Challenges
Transcript
- 0:02Welcome to The Seed Project.
- 0:05It's a podcast that nourishes your heart, mind, and soul.
- 0:09I'm your host, Charlotte Edwards.
- 0:12I believe everyone plants a seed in each other, whether it's a seed of knowledge, inspiration, or impact.
- 0:19I created this podcast so we could have real conversations, create connections, and grow into the best versions of ourselves.
- 0:27Everyone has a story to tell, so let's share ours together to empower, heal, and grow.
- 0:32Laugh and learn.
- 0:34Grab a cup of coffee and let's start planting.
- 0:42Samson Q2U Microphone-5: Hi, everyone.
- 0:43Samson Q2U Microphone-5: Thanks for joining me today.
- 0:45Samson Q2U Microphone-5: I'm going to switch it up a little bit and do a solo episode.
- 0:49Samson Q2U Microphone-5: This Friday is world prematurity awareness day.
- 0:53Samson Q2U Microphone-5: I thought it would be fitting for me to share my story.
- 0:57Samson Q2U Microphone-5: Of having a 25 week old son.
- 1:00Samson Q2U Microphone-5: And how that journey led me to become an NICU nurse.
- 1:05Samson Q2U Microphone-5: This podcast is all about connection and community.
- 1:08Samson Q2U Microphone-5: And I'm sharing my story.
- 1:10Samson Q2U Microphone-5: For all the mamas that I've taken care of and the ones that I continue to take care of in the NICU.
- 1:15Samson Q2U Microphone-5: So you will not feel alone in your journey
- 1:18Samson Q2U Microphone-6: february 17th, 2007.
- 1:22Samson Q2U Microphone-6: It's a day that changed the complete trajectory of my life.
- 1:26Samson Q2U Microphone-6: I remember the day.
- 1:28Samson Q2U Microphone-6: Crystal clear.
- 1:30Samson Q2U Microphone-6: It was a Saturday.
- 1:32Samson Q2U Microphone-6: Sunny, bright blue skies coolness in the air.
- 1:35Samson Q2U Microphone-6: I had just gone shopping.
- 1:38Samson Q2U Microphone-6: To buy my first maternity clothes.
- 1:41Samson Q2U Microphone-6: I was all excited and nervous to be a new mom.
- 1:45Samson Q2U Microphone-6: And thrilled at the thought of my growing stomach and be able to finally.
- 1:51Samson Q2U Microphone-6: Fit into maternity clothes.
- 1:54Samson Q2U Microphone-6: My husband and I were going out to dinner.
- 1:57Samson Q2U Microphone-6: With my parents for my mother's birthday.
- 2:00Samson Q2U Microphone-6: And my will you're at dinner.
- 2:02Samson Q2U Microphone-6: I had this intense, sharp pain.
- 2:06Samson Q2U Microphone-6: And my stomach.
- 2:09Samson Q2U Microphone-6: At first, I just thought it was heartburn all my friends were telling me they ate.
- 2:13Samson Q2U Microphone-6: Tom is like candy.
- 2:15Samson Q2U Microphone-6: Because their heartburn was so bad when they were pregnant.
- 2:19Samson Q2U Microphone-6: The pain didn't subside.
- 2:21Samson Q2U Microphone-6: And I was at tears at the table.
- 2:23Samson Q2U Microphone-6: My husband and I decided to leave.
- 2:26Samson Q2U Microphone-6: On the way home, we called my OB, who suggested I take some Mylanta.
- 2:33Samson Q2U Microphone-6: I got home, got some Mylanta and ended up throwing.
- 2:37Samson Q2U Microphone-6: It all up.
- 2:38Samson Q2U Microphone-6: And it is such a blessing that this happened.
- 2:41Samson Q2U Microphone-6: Around 7:00 PM.
- 2:45Samson Q2U Microphone-6: I feel that God was watching over me because if it had been around 10 or 11 o'clock that night.
- 2:51Samson Q2U Microphone-6: I would have easily said, I'll just sleep it off and see how I feel in the morning.
- 2:56Samson Q2U Microphone-6: And I would have never made it through the night.
- 3:01Samson Q2U Microphone-6: My husband rushed me to the emergency room.
- 3:05Samson Q2U Microphone-6: And I remember the nurse taking files of blood for my lab work.
- 3:10Samson Q2U Microphone-6: Hooking me up to a fetal monitor.
- 3:14Samson Q2U Microphone-6: The doctor came in and I could see the concern all over his face.
- 3:17Samson Q2U Microphone-6: I knew this wasn't a case of bad heartburn.
- 3:21Samson Q2U Microphone-6: He quickly informed my husband and I, that I needed to have.
- 3:25Samson Q2U Microphone-6: A stat C-section to save my life and the babies.
- 3:30Samson Q2U Microphone-6: Both of us were somewhat bewildered and in shock and didn't even really know what to say.
- 3:35Samson Q2U Microphone-6: I quickly took off my jewelry and remember.
- 3:40Samson Q2U Microphone-6: Saying goodbye to my husband and getting wheel back to the O R.
- 3:44Samson Q2U Microphone-6: We didn't even have time to process what was going on.
- 3:48Samson Q2U Microphone-6: The next thing I remember.
- 3:49Samson Q2U Microphone-6: Is waking up in recovery.
- 3:52Samson Q2U Microphone-6: After having my C-section.
- 3:54Samson Q2U Microphone-6: And my husband by my side.
- 3:56Samson Q2U Microphone-9: He told me that we had a son and that he weighed.
- 3:59Samson Q2U Microphone-9: One pound 11 ounces.
- 4:02Samson Q2U Microphone-9: He was stable, but they were going to have to transport him to our children's hospital, where there was a NICU.
- 4:07Samson Q2U Microphone-9: At that time, I didn't even really know what a NICU was.
- 4:11Samson Q2U Microphone-9: They were going to wheel him by.
- 4:13Samson Q2U Microphone-9: in the transport isolet before they left.
- 4:18Samson Q2U Microphone-9: And I remember them bringing in, the isolet and trying to sit up and telling my husband that I couldn't see my vision was all blurry.
- 4:29Samson Q2U Microphone-9: I remember lifting up my arm and it was covered in blood.
- 4:32Samson Q2U Microphone-9: I was oozing out blood from my incision.
- 4:35Samson Q2U Microphone-9: Then everything started.
- 4:37Samson Q2U Microphone-9: Going off all the alarm started going haywire.
- 4:39Samson Q2U Microphone-9: Everything was beeping.
- 4:42Samson Q2U Microphone-9: They quickly wheeled my son out of the room.
- 4:46Samson Q2U Microphone-9: And transferred him down to MUFC.
- 4:48Samson Q2U Microphone-9: I remember the nurses trying to get my blood pressure and hearing the doctor say, Take it again, take it again because they were not getting a good read of my blood pressure.
- 4:58Samson Q2U Microphone-9: I was bleeding out in the last thing I remember.
- 5:01Samson Q2U Microphone-9: Was it laying five pound sandbags across me to stop the bleeding before i was rushed back to the or
- 5:08Samson Q2U Microphone-6: I had been in a medically induced coma.
- 5:11Samson Q2U Microphone-6: For two days.
- 5:13Samson Q2U Microphone-6: I'd woken up on my 30th birthday.
- 5:18Samson Q2U Microphone-6: I had HELLP syndrome.
- 5:20Samson Q2U Microphone-6: Help is an acronym for homolysis elevated liver enzymes and low platelet count.
- 5:27Samson Q2U Microphone-6: Essentially.
- 5:28Samson Q2U Microphone-6: Your body starts to shut down.
- 5:30Samson Q2U Microphone-6: And the only way to save your life is to deliver the baby.
- 5:35Samson Q2U Microphone-6: I just remember feeling.
- 5:38Samson Q2U Microphone-6: Claustrophobic from my arms being tied down.
- 5:41Samson Q2U Microphone-6: The tube in my throat.
- 5:43Samson Q2U Microphone-6: And I had no idea what was going on.
- 5:46Samson Q2U Microphone-6: Over the next couple of days.
- 5:48Samson Q2U Microphone-6: I was able to recover.
- 5:51Samson Q2U Microphone-6: And get the ventilator tube.
- 5:53Samson Q2U Microphone-6: Removed.
- 5:55Samson Q2U Microphone: I remember.
- 5:56Samson Q2U Microphone: My husband showing me a Polaroid.
- 5:59Samson Q2U Microphone: This is pre iPhone days.
- 6:01Samson Q2U Microphone: I'm showing me a Polaroid.
- 6:03Samson Q2U Microphone: Picture.
- 6:04Samson Q2U Microphone: Of my baby.
- 6:06Samson Q2U Microphone: Before he got transported.
- 6:08Samson Q2U Microphone: To MUFC.
- 6:09Samson Q2U Microphone: I remember him telling me There is a wonderful nurse named Kinsey.
- 6:13Samson Q2U Microphone: Taking care of my baby and that I could call her anytime.
- 6:17Samson Q2U Microphone: Hmm.
- 6:18Samson Q2U Microphone: The kid choked up as I even say this.
- 6:22Samson Q2U Microphone: Even after all this time.
- 6:25Samson Q2U Microphone: But I remember calling Kinsey.
- 6:28Samson Q2U Microphone: From my hospital bed.
- 6:31Samson Q2U Microphone: And talking to her.
- 6:35Samson Q2U Microphone: And she was so kind.
- 6:42Samson Q2U Microphone: And relieve my stress and anxiety and told me that she would take great care of him until.
- 6:48Samson Q2U Microphone: I could get there to see him.
- 6:54Samson Q2U Microphone: Wow.
- 6:57Samson Q2U Microphone: Oh, gosh, I'm a 17 years later and it still comes up.
- 7:01Samson Q2U Microphone: I just remember her kindness in, I was so blessed to have someone.
- 7:07Samson Q2U Microphone: Take the time to talk to me, give me updates and be genuinely concerned.
- 7:13Samson Q2U Microphone: Of how I was doing and I felt reassured.
- 7:17Samson Q2U Microphone: That my baby was in good hands.
- 7:20Samson Q2U Microphone: It had been several days and he didn't even have a name yet.
- 7:25Samson Q2U Microphone: Because my husband and I had talked about a name, but.
- 7:29Samson Q2U Microphone: We thought we had time.
- 7:30Samson Q2U Microphone: We hadn't agreed upon one.
- 7:32Samson Q2U Microphone: And so finally, as I came to.
- 7:36Samson Q2U Microphone: We picked a name.
- 7:39Samson Q2U Microphone: And we named him.
- 7:41Samson Q2U Microphone: Adam Lagree Edwards.
- 7:43Samson Q2U Microphone: After my husband who was so heroic, going back and forth between two different hospitals, two different ICU.
- 7:51Samson Q2U Microphone: Truly not knowing if either one of us were going to survive.
- 7:57Samson Q2U Microphone-10: And then Lagree after my mom's family and my grandparents I was extremely close to.
- 8:03Samson Q2U Microphone-10: And so there Lagree laid in his isolet and the NICU and I in my hospital bed in the ICU at St.
- 8:10Samson Q2U Microphone-10: Francis.
- 8:11Samson Q2U Microphone-10: Several days would go by and I was able to get my strength back.
- 8:15Samson Q2U Microphone-10: To be able to get discharged.
- 8:18Samson Q2U Microphone-11: I was actually.
- 8:20Samson Q2U Microphone-11: Nervous to go see him for the first time.
- 8:23Samson Q2U Microphone-11: I mean excited, but definitely nervous.
- 8:26Samson Q2U Microphone-11: I had.
- 8:27Samson Q2U Microphone-11: No idea.
- 8:29Samson Q2U Microphone-11: What to anticipate.
- 8:32Samson Q2U Microphone-11: Never even seen a picture of what a NICU was, let alone walk through the doors of a NICU.
- 8:38Samson Q2U Microphone-11: bEing wheeled down this really long hallway and entering the NICU for the first time.
- 8:44Samson Q2U Microphone-11: And going through these different rows of babies with all this equipment.
- 8:49Samson Q2U Microphone-11: And I had no idea what it was.
- 8:53Samson Q2U Microphone-11: And then I remember getting wheeled up to his bed space.
- 8:57Samson Q2U Microphone-11: To see him for the first time.
- 8:59Samson Q2U Microphone-11: It'd been almost 10 days.
- 9:01Samson Q2U Microphone-12: I was just amazed by how tiny he was.
- 9:06Samson Q2U Microphone-12: He had all these IVs and wires and.
- 9:12Samson Q2U Microphone-12: Uh, breathing too.
- 9:14Samson Q2U Microphone-12: And at that time he was under phototherapy.
- 9:17Samson Q2U Microphone-12: He had blue lights on him and then these little.
- 9:22Samson Q2U Microphone-12: Goggles like sunglasses to protect his eyes.
- 9:25Samson Q2U Microphone-12: It was just really.
- 9:27Samson Q2U Microphone-12: Overwhelming.
- 9:30Samson Q2U Microphone-12: But then I was able to open up.
- 9:33Samson Q2U Microphone-12: It's a little porthole is isolet and put my finger in his hand.
- 9:38Samson Q2U Microphone-12: And new.
- 9:40Samson Q2U Microphone-12: That we were on this journey together
- 9:43Samson Q2U Microphone-11: I was able to visit for several hours that day.
- 9:46Samson Q2U Microphone-11: I was still in a lot of pain with nice staples.
- 9:50Samson Q2U Microphone-11: For my C-section and multiple surgeries.
- 9:54Samson Q2U Microphone-11: And the first day it was definitely not.
- 9:56Samson Q2U Microphone-11: When I would call a peaceful visit, he had test after test.
- 9:59Samson Q2U Microphone-11: He had.
- 10:01Samson Q2U Microphone-11: X-rays.
- 10:02Samson Q2U Microphone-11: Echocardiograms ultrasounds.
- 10:05Samson Q2U Microphone-11: I just remember when I was leaving, my head was swimming of all these new terms and words and.
- 10:12Samson Q2U Microphone-11: Just.
- 10:14Samson Q2U Microphone-11: Feeling very.
- 10:17Samson Q2U Microphone-11: Overwhelmed.
- 10:18Samson Q2U Microphone-11: I get, I know I've said that multiple times, but that was just my, My feeling of, oh my gosh.
- 10:24Samson Q2U Microphone-11: How is he going to survive?
- 10:27Samson Q2U Microphone-11: It was extremely heartbreaking.
- 10:29Samson Q2U Microphone-11: To leave him.
- 10:32Samson Q2U Microphone-11: Uh, finally got to visit him for the first time.
- 10:36Samson Q2U Microphone-11: And then after a couple hours, had to be willed away to leave.
- 10:43Samson Q2U Microphone-11: And I just had to put my trust.
- 10:45Samson Q2U Microphone-11: I trust in the nurses.
- 10:47Samson Q2U Microphone-11: And the doctors and my faith that.
- 10:51Samson Q2U Microphone-11: He would be okay.
- 10:54Samson Q2U Microphone-11: And they would take good care of him
- 10:57Samson Q2U Microphone-2: I think a hard part of the journey.
- 11:00Samson Q2U Microphone-2: Is grief.
- 11:02Samson Q2U Microphone-2: Most people just think of grief as.
- 11:07Samson Q2U Microphone-2: Someone dying.
- 11:09Samson Q2U Microphone-2: But grief.
- 11:10Samson Q2U Microphone-2: Is the loss of anything.
- 11:12Samson Q2U Microphone-2: Grief is the loss of a dream.
- 11:14Samson Q2U Microphone-2: The loss of.
- 11:16Samson Q2U Microphone-2: The plan's grief is a loss of, anything that you had held?
- 11:21Samson Q2U Microphone-2: Important in your heart.
- 11:25Samson Q2U Microphone-2: And say for me, it was.
- 11:29Samson Q2U Microphone-2: The grief I didn't get to have a full pregnancy.
- 11:32Samson Q2U Microphone-2: Grief I didn't get a chance to feel my baby move inside my stomach.
- 11:38Samson Q2U Microphone-2: I wanted to be awaken in the middle of the night and feel him move I wanted, To where the maternity clothes I wanted to have the experience of.
- 11:51Samson Q2U Microphone-2: Oh my God.
- 11:51Samson Q2U Microphone-2: I think it's time to go to the hospital.
- 11:54Samson Q2U Microphone-2: The baby's coming.
- 11:57Samson Q2U Microphone-2: So.
- 11:59Samson Q2U Microphone-2: I think that that's the hard part.
- 12:01Samson Q2U Microphone-2: About the NICU as well, it's mixed emotions.
- 12:04Samson Q2U Microphone-2: You're so blessed in you are grateful.
- 12:07Samson Q2U Microphone-2: Your baby is alive.
- 12:10Samson Q2U Microphone-2: And.
- 12:12Samson Q2U Microphone-2: You feel guilty?
- 12:15Samson Q2U Microphone-2: By having grief by, grieving the loss of the dream.
- 12:20Samson Q2U Microphone-2: Grieving the loss of the experience grieving the loss of the pregnancy.
- 12:25Samson Q2U Microphone-2: Grieving the loss of the delivery.
- 12:29Samson Q2U Microphone-2: And I think that that needs to be validated because.
- 12:33Samson Q2U Microphone-2: The NICU experience is such a roller coaster ride.
- 12:38Samson Q2U Microphone-2: With so many highs and so many lows it's a mixture of emotions that are swirling around her, still a postpartum mom with all your hormone levels up and down.
- 12:50Samson Q2U Microphone-2: You are an anxious, nervous mom, because.
- 12:54Samson Q2U Microphone-2: Your baby's on life support.
- 12:55Samson Q2U Microphone-2: You don't know what each day's going to bring as you go into the NICU.
- 13:00Samson Q2U Microphone-2: And then you're also sad.
- 13:02Samson Q2U Microphone-2: You're angry.
- 13:03Samson Q2U Microphone-2: You're hurt.
- 13:04Samson Q2U Microphone-2: You're grieving the loss of.
- 13:07Samson Q2U Microphone-2: What could have been, what should have been, what you thought you wanted it to be.
- 13:11Samson Q2U Microphone-2: And It's a hard journey.
- 13:13Samson Q2U Microphone-2: And it's not something that just goes away quickly.
- 13:18Samson Q2U Microphone-2: Even when you are what I used to call the outside world.
- 13:22Samson Q2U Microphone-2: Then it gets its own little bubble.
- 13:25Samson Q2U Microphone-2: The outside world.
- 13:26Samson Q2U Microphone-2: You know, So many of your friends and family.
- 13:30Samson Q2U Microphone-2: Have stories and experiences of pregnancy or your friends are having healthy babies.
- 13:37Samson Q2U Microphone-2: You relive it relive it constantly.
- 13:39Samson Q2U Microphone-2: And it's definitely a tug between feeling blessed that your baby's alive, but then.
- 13:47Samson Q2U Microphone-2: Grieving the loss.
- 13:49Samson Q2U Microphone-2: And having time in space.
- 13:52Samson Q2U Microphone-2: That it's okay.
- 13:55Samson Q2U Microphone-2: To be sad that it didn't work out.
- 13:57Samson Q2U Microphone-2: The way that you had hoped.
- 13:59Samson Q2U Microphone-18: As I was trying to deal with all of my emotions.
- 14:04Samson Q2U Microphone-18: I looked.
- 14:06Samson Q2U Microphone-18: For the positive things.
- 14:08Samson Q2U Microphone-18: I looked for the positive moments.
- 14:10Samson Q2U Microphone-18: And finally after several weeks i was able to hold him for the first time
- 14:15Samson Q2U Microphone-14: I remember having my hands over his little body.
- 14:20Samson Q2U Microphone-14: Um, my chest holding him skin to skin.
- 14:25Samson Q2U Microphone-14: Closing my eyes and trying to tune out all the alarms and beeps from the monitors.
- 14:31Samson Q2U Microphone-14: And just for a moment.
- 14:34Samson Q2U Microphone-14: I feel like a normal mother.
- 14:37Samson Q2U Microphone-14: Holding their newborn baby.
- 14:40Samson Q2U Microphone-14: It was surreal.
- 14:42Samson Q2U Microphone: My new normal.
- 14:44Samson Q2U Microphone: We get off the elevator.
- 14:47Samson Q2U Microphone: The eighth floor.
- 14:48Samson Q2U Microphone: I walked down a very long hallway.
- 14:52Samson Q2U Microphone: 110 steps with my stride.
- 14:55Samson Q2U Microphone: Have we count them one by one.
- 14:58Samson Q2U Microphone: Wondering what this day was going to bring.
- 15:02Samson Q2U Microphone: Was it gonna bring.
- 15:04Samson Q2U Microphone: milestone a setback.
- 15:06Samson Q2U Microphone: Anxiety.
- 15:08Samson Q2U Microphone: Fear.
- 15:10Samson Q2U Microphone: Joy.
- 15:11Samson Q2U Microphone: Can vividly hear the click.
- 15:13Samson Q2U Microphone: At these double doors, it would.
- 15:16Samson Q2U Microphone: You would enter the NICU.
- 15:18Samson Q2U Microphone: And walk back.
- 15:20Samson Q2U Microphone: And just wait to see what today would bring.
- 15:24Samson Q2U Microphone-14: I had to find.
- 15:26Samson Q2U Microphone-14: The joy.
- 15:27Samson Q2U Microphone-14: The joy and the hard.
- 15:29Samson Q2U Microphone-14: The joy and the sucky situation.
- 15:32Samson Q2U Microphone-14: The joy and the chaos.
- 15:34Samson Q2U Microphone-14: Even if it was for a moment, to hold him.
- 15:38Samson Q2U Microphone-14: To put my finger in his hand.
- 15:40Samson Q2U Microphone-14: Or to visit him.
- 15:42Samson Q2U Microphone-14: I had to try to find.
- 15:44Samson Q2U Microphone-14: A joyful moment.
- 15:45Samson Q2U Microphone-14: Each and every day.
- 15:48Samson Q2U Microphone: All of my friends and family.
- 15:50Samson Q2U Microphone: We're so supportive.
- 15:52Samson Q2U Microphone: But it also was extremely hard.
- 15:55Samson Q2U Microphone: Life in the NICU has ups and downs.
- 15:58Samson Q2U Microphone: I was quickly learning that.
- 16:01Samson Q2U Microphone: This world.
- 16:02Samson Q2U Microphone: And the outside world or hard to maneuver.
- 16:05Samson Q2U Microphone: I was in a phase where all of my friends were either pregnant.
- 16:10Samson Q2U Microphone: Getting pregnant, having babies.
- 16:12Samson Q2U Microphone: And it was very difficult for me.
- 16:15Samson Q2U Microphone: To navigate both.
- 16:18Samson Q2U Microphone: I remember.
- 16:20Samson Q2U Microphone: Getting.
- 16:21Samson Q2U Microphone: A call from a friend.
- 16:23Samson Q2U Microphone: Talking about her baby and how she wanted A girl in, And I just remember thinking in my head.
- 16:29Samson Q2U Microphone: Just be blessed that you have a healthy baby.
- 16:32Samson Q2U Microphone: And I.
- 16:34Samson Q2U Microphone: I was generally happy for her, but I realized quickly what a blessing, a healthy baby is.
- 16:41Samson Q2U Microphone: What a blessing to be able to give birth with no complications.
- 16:47Samson Q2U Microphone: I started isolating myself.
- 16:49Samson Q2U Microphone: From.
- 16:51Samson Q2U Microphone: Essentially the outside world.
- 16:53Samson Q2U Microphone: It was very hard for me.
- 16:55Samson Q2U Microphone: Too.
- 16:58Samson Q2U Microphone: Maintain.
- 17:01Samson Q2U Microphone: Conversations.
- 17:01Samson Q2U Microphone: I was emotionally and physically exhausted.
- 17:05Samson Q2U Microphone: It was hard to talk about just normal things.
- 17:07Samson Q2U Microphone: When.
- 17:09Samson Q2U Microphone: I felt like I was hanging on by a thread.
- 17:11Samson Q2U Microphone: agrees NICU stay.
- 17:14Samson Q2U Microphone: Was eventful.
- 17:16Samson Q2U Microphone: He, he battled a lot with infection.
- 17:19Samson Q2U Microphone: I'll never forget one time.
- 17:21Samson Q2U Microphone: And the nurse has called me.
- 17:23Samson Q2U Microphone: And said I needed to come in.
- 17:25Samson Q2U Microphone: Typically I'm already, there, but the one morning I was taking my time.
- 17:31Samson Q2U Microphone: I got a call to come in.
- 17:33Samson Q2U Microphone: That he was sick.
- 17:34Samson Q2U Microphone: Did he had pneumonia?
- 17:37Samson Q2U Microphone: I remember rushing there.
- 17:40Samson Q2U Microphone: Looking at him.
- 17:41Samson Q2U Microphone: And he was this.
- 17:43Samson Q2U Microphone: Dusky color gray.
- 17:46Samson Q2U Microphone: I didn't think he was going to survive.
- 17:48Samson Q2U Microphone-15: I was sad, scared, and my heart was breaking.
- 17:54Samson Q2U Microphone-15: He battled with infection multiple times.
- 17:57Samson Q2U Microphone-15: He had pneumonia twice.
- 18:00Samson Q2U Microphone-15: Bloodstream infections, UTI eyes, the poor kid.
- 18:04Samson Q2U Microphone-15: Got everything.
- 18:06Samson Q2U Microphone-15: He was on.
- 18:07Samson Q2U Microphone-15: A ventilator or some type of ventilator.
- 18:10Samson Q2U Microphone-15: He went through.
- 18:12Samson Q2U Microphone-15: All of the types from a high frequency, Conventional oscillator, some sort of mechanical ventilation for 75 days.
- 18:23Samson Q2U Microphone-15: And I will never forget the 75th day.
- 18:27Samson Q2U Microphone-15: When we got to take the tube out.
- 18:29Samson Q2U Microphone-15: Actually see his face without any tape on it.
- 18:35Samson Q2U Microphone-15: It was a sigh of relief.
- 18:37Samson Q2U Microphone-15: It was such a hurdle.
- 18:40Samson Q2U Microphone-15: That we had overcome.
- 18:43Samson Q2U Microphone-15: A major milestone
- 18:45Samson Q2U Microphone: look are you spent.
- 18:47Samson Q2U Microphone: 118 days in the NICU.
- 18:49Samson Q2U Microphone: 118.
- 18:51Samson Q2U Microphone: Long days.
- 18:54Samson Q2U Microphone: I'll never forget when I got the call.
- 18:57Samson Q2U Microphone: I was on the interstate.
- 18:58Samson Q2U Microphone: I was running up to get a couple extra baby things.
- 19:01Samson Q2U Microphone: I got a call from the nurse practitioner.
- 19:04Samson Q2U Microphone: Asking if I wanted to take my baby home today.
- 19:09Samson Q2U Microphone: Tears just hit my steering wheel.
- 19:13Samson Q2U Microphone: And I turned around as quickly as possible and called my husband.
- 19:16Samson Q2U Microphone: And utter disbelief that today was the day.
- 19:20Samson Q2U Microphone: We were going to be able to take him home.
- 19:22Samson Q2U Microphone: We took him home.
- 19:25Samson Q2U Microphone: Not the way that every baby would want to be taking him.
- 19:28Samson Q2U Microphone: We had to go home.
- 19:30Samson Q2U Microphone: And a car bed, which is a flat car seat because we failed our upright.
- 19:34Samson Q2U Microphone: We had to go home on oxygen and a monitor.
- 19:37Samson Q2U Microphone: Equipment.
- 19:39Samson Q2U Microphone: That would be tethered to him.
- 19:41Samson Q2U Microphone: For a little bit longer.
- 19:43Samson Q2U Microphone: But at least we were going home.
- 19:45Samson Q2U Microphone: Certainly don't warn you about life after NICU.
- 19:49Samson Q2U Microphone: I was ready just for peace.
- 19:53Samson Q2U Microphone: To be home with family.
- 19:55Samson Q2U Microphone: To enjoy my baby.
- 19:58Samson Q2U Microphone: Yeah, they quickly became a revolving door of appointments and therapist Every week, there'd be multiple people coming to the house, a nutritionist to weigh him.
- 20:09Samson Q2U Microphone: Uh, physical therapist, occupational therapist.
- 20:13Samson Q2U Microphone: And then we had all of our specialty follows up, follow up.
- 20:17Samson Q2U Microphone: The pulmonologist.
- 20:19Samson Q2U Microphone: The GI doctor developmental clinic.
- 20:23Samson Q2U Microphone: And round and round, we went.
- 20:25Samson Q2U Microphone: And it wasn't an easy transition home.
- 20:28Samson Q2U Microphone: He quickly.
- 20:30Samson Q2U Microphone: He wasn't gaining weight.
- 20:33Samson Q2U Microphone: Even though I would try feeding him.
- 20:36Samson Q2U Microphone: Feeding is something that we struggled with in the hospital.
- 20:40Samson Q2U Microphone: And then when we got home, he would just fatigue.
- 20:44Samson Q2U Microphone: You get tired and not eat enough.
- 20:47Samson Q2U Microphone: And I just remember crying over him as I would feed him.
- 20:51Samson Q2U Microphone: Tears falling on top of him.
- 20:53Samson Q2U Microphone: Please eat, please eat.
- 20:56Samson Q2U Microphone: Are we going to have to get back to the hospital?
- 20:59Samson Q2U Microphone: Safer.
- 21:01Samson Q2U Microphone: Um, a six more months of this.
- 21:04Samson Q2U Microphone: Up down and sideways.
- 21:07Samson Q2U Microphone: We endured.
- 21:09Samson Q2U Microphone: Not to say that they weren't plenty of joyful moments.
- 21:12Samson Q2U Microphone: There were moments of being with family.
- 21:14Samson Q2U Microphone: There were walks in the stroller, playing with my dogs.
- 21:18Samson Q2U Microphone: But there's still this cloud overhanging that we weren't home free.
- 21:25Samson Q2U Microphone: It really wasn't until Thanksgiving he finally started to turn a corner and.
- 21:30Samson Q2U Microphone: I was gaining good weight and started thriving
- 21:33Samson Q2U Microphone-16: finaLly.
- 21:36Samson Q2U Microphone-16: This.
- 21:37Samson Q2U Microphone-16: NICU journey.
- 21:39Samson Q2U Microphone-16: Had come to an end.
- 21:42Samson Q2U Microphone-16: We were offered oxygen offer monitor.
- 21:46Samson Q2U Microphone-16: We were gaining good weight.
- 21:48Samson Q2U Microphone-16: And it was like a cloud finally.
- 21:51Samson Q2U Microphone-16: Lifted.
- 21:52Samson Q2U Microphone-16: Over us.
- 21:54Samson Q2U Microphone-16: It was.
- 21:55Samson Q2U Microphone-16: Beautiful.
- 21:56Samson Q2U Microphone-16: It was a blessing.
- 21:57Samson Q2U Microphone-16: It was.
- 21:58Samson Q2U Microphone-16: Quite a joyous event.
- 22:01Samson Q2U Microphone-16: After this experience, I.
- 22:04Samson Q2U Microphone-16: I started to go back to the NICU.
- 22:10Samson Q2U Microphone-16: And volunteer.
- 22:12Samson Q2U Microphone-16: I created a.
- 22:15Samson Q2U Microphone-16: Parent partner program for the NICU.
- 22:18Samson Q2U Microphone-16: I knew that these families needed.
- 22:22Samson Q2U Microphone-16: Support from some wedding.
- 22:24Samson Q2U Microphone-16: He'd been there.
- 22:26Samson Q2U Microphone-16: I think the biggest struggle, why I was in the NICU.
- 22:29Samson Q2U Microphone-16: What's the lack of connection.
- 22:32Samson Q2U Microphone-16: With other parents moms or families that were going through Similar struggles.
- 22:40Samson Q2U Microphone-16: I wanted to figure out a way to help somebody.
- 22:43Samson Q2U Microphone-16: Go through that journey.
- 22:46Samson Q2U Microphone-16: So on the GRI was about.
- 22:49Samson Q2U Microphone-16: I think 18 months old.
- 22:52Samson Q2U Microphone-16: I call the nurse manager in the NICU.
- 22:56Samson Q2U Microphone-16: And went and talked to her to see if I could start volunteering and, created this parent to parent.
- 23:02Samson Q2U Microphone-16: Support group.
- 23:05Samson Q2U Microphone-16: I would go there.
- 23:07Samson Q2U Microphone-16: Weekly multiple times a week and was able to round, on the NICU and offer support to families.
- 23:15Samson Q2U Microphone-16: That we're going through the same struggles that I had just gone through.
- 23:20Samson Q2U Microphone-16: I'll never forget.
- 23:21Samson Q2U Microphone-16: One day I was there volunteering.
- 23:22Samson Q2U Microphone-16: I got a message from the nurse manager to come into our office.
- 23:26Samson Q2U Microphone-16: I was a little surprised, hoping that I hadn't done anything wrong.
- 23:31Samson Q2U Microphone-16: Had a conversation with her.
- 23:34Samson Q2U Microphone-16: She was say genuine uplifting and encouraged me to go back to nursing school.
- 23:42Samson Q2U Microphone-16: To become a NICU nurse.
- 23:43Samson Q2U Microphone-16: And.
- 23:45Samson Q2U Microphone-16: Be able to take care of these babies and families.
- 23:50Samson Q2U Microphone-16: And so.
- 23:52Samson Q2U Microphone-16: The grease first day of preschool was my first day of nursing school.
- 23:57Samson Q2U Microphone-16: After nursing school, I was able to work in the same NICU that took such great care of my son.
- 24:02Samson Q2U Microphone-16: It's been over 10 years now.
- 24:05Samson Q2U Microphone-16: That I've been working in the NICU.
- 24:08Samson Q2U Microphone-16: And it's been such a blessing.
- 24:11Samson Q2U Microphone-16: I do remember when I got discharged.
- 24:14Samson Q2U Microphone-16: Praying and thinking.
- 24:17Samson Q2U Microphone-16: That there's some purpose to this, that God has a plan and.
- 24:23Samson Q2U Microphone-16: He had a plan for me.
- 24:25Samson Q2U Microphone-16: I didn't know it at the time.
- 24:27Samson Q2U Microphone-16: There are plenty of times that I was.
- 24:30Samson Q2U Microphone-16: Um, my niece scared.
- 24:33Samson Q2U Microphone-16: But then there were plenty of joyous moments of milestones experiences and people I got to meet as hard as the struggle.
- 24:43Samson Q2U Microphone-16: I believe that there was purpose.
- 24:47Samson Q2U Microphone-16: And.
- 24:48Samson Q2U Microphone-16: I am so blessed.
- 24:50Samson Q2U Microphone-16: To be able to care for.
- 24:52Samson Q2U Microphone-16: These babies and families.
- 24:54Samson Q2U Microphone-16: And help them on their NICU journey.
- 24:58Charlotte: I appreciate you spending this time with me until next time, keep sowing the seeds of love in your life and those around you.