Anecdotes From a Rare Disease Dad of an Adult Son with NR4A2 with Joe Henry

Once Upon A Gene · Jul 20, 2023 · 35m

ONCE UPON A GENE - EPISODE 195

Anecdotes From a Rare Disease Dad of an Adult Son with NR4A2 with Joe Henry

Joe Henry is a rad dadvocate of an adult son with NR4A2 and he's been around the block a time or two, here to share reflections and stories from his journey, spreading hope to all the parents who feel hopelessness.

EPISODE HIGHLIGHTS

Can you share about your son and diagnosis journey?

My wife and I had some fertility issues and finally had our son Franklin. When he wasn't meeting any of his milestones, we started down the diagnostic path, seeing a neurologist, getting an MRI and limited…