Undiagnosed For 27 Years With CTX | Hollisa Rosengrant
In this episode of My Hero 360, Kerri Fitzgerald speaks with Hollisa Rosengrant in honor of CTX Awareness Day on September 17 about her experience living with the rare genetic lipid storage disorder. After noticing a bump on her knuckle at 27, a biopsy revealed that she had been living undiagnosed with CTX her entire life. Hollisa now serves on the board of the CTX Alliance where she advocates for continued education, awareness, and research surrounding rare disease care. This episode shines a light on all that the CTX Alliance is working toward to improve outcomes and opportunities for the…
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