The Importance of Newborn Screening in Every State with ALD Alliance Founder Elisa Seeger
ONCE UPON A GENE - EPISODE 111
The Importance of Newborn Screening in Every State with ALD Alliance Founder Elisa Seeger
Elisa Seeger lost her son Aidan as a result of Adrenoleukodystrophy (ALD) disease. As she was sitting next to his hospital bed researching this awful disease, she learned of a newborn screening test for ALD which wasn't being utilized. Since Aidan has passed away, Elisa has been determined to ensure the ALD newborn screening test is used in every state. Thanks to her advocacy, New York and 24 other states are now testing. Now her efforts extend beyond ALD and she's working…
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