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Ireland Hesitates on Life-Saving Drug | Cork News
Ireland faces a heartbreaking dilemma as it hesitates to fund a life-changing drug for Friedreich’s ataxia, a rare disease affecting 200 people — despite eleven European nations already approving it. The HSE’s drug group has recommended against funding Skyclarys, citing cost concerns around €280,000 per patient annually, while families and politicians like TD John McGuinness and Sinn Féin’s Mary Lou McDonald argue this is an investment in human lives, not just healthcare expenses. With the final decision looming on August 25th, patients and their loved ones are pleading for urgent action —…
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