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Father Pleads for Life-Saving Drug for Son | Cork News
A Cork father is desperately fighting for his son Paudie’s life as he battles Friedrich’s ataxia, a rare and devastating disease that claimed his younger brother Rory last year. The life-saving drug Skyclarys, approved in the U.S. and Europe, remains out of reach in Ireland due to HSE delays, sparking outrage as Paudie’s condition worsens. With treatment costing nearly 280,000 euros and no clear timeline, the family is now exploring costly overseas options and crowdfunding to save his life — while pleading with a system they say is prioritizing cost over compassion. Listen in comfort:Get a…
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