Latest / The Dr Louise Newson Podcast / 07 - It’s Probably Nothing: unpacking the pitfalls of women’s healthcare with Naga Munchetty
Transcript
- 0:03Today on the podcast, I'm very excited and privileged to have
- 0:07with me, not a Munchetty, who is a presenter, journalist and
- 0:11actually really inspirational to allow others to think and move
- 0:17forward in lots of conversations.
- 0:19So I've obviously been very enamoured with your work for
- 0:23many years, but I was super excited when you asked if I
- 0:26could be involved in your book that has just come out called
- 0:29It's Probably Nothing, but It absolutely isn't Nothing, which
- 0:34we're going to talk about today. So thank you so much for joining
- 0:38me. Oh, well, look, thank you,
- 0:41Louise. I'm, I'm really proud of this
- 0:44book. And one of the reasons I'm
- 0:46really proud of this book is because I got brilliant people
- 0:49to be part of it. You know, I had more than 100
- 0:52contributors and I was determined that I was going to
- 0:55talk to people with real life experiences, but back all of
- 0:59those up with experts from their fields.
- 1:01And so when you said yes to talk to me, I was ever so grateful.
- 1:04So thank you. Oh, thank you.
- 1:06And do you know what? I don't think 10 years ago I
- 1:10could, well, I couldn't have done a podcast.
- 1:12I couldn't have had these conversations because I didn't
- 1:14know the suffering that was going on.
- 1:17And as a doctor, obviously, I work a lot with lots of people.
- 1:21But when you're AGP, which I was for 25 years, you're actually in
- 1:26your own consulting room doing the best that you want to do for
- 1:29your patients, but you think everyone else has a similar
- 1:33experience. And it's not until you yourself
- 1:37become a patient or maybe a family member or like I've done
- 1:42now, expose myself to lots of people through different
- 1:45platforms, especially social media, that I realise that
- 1:48people don't all have the same experience.
- 1:51And then sometimes I think maybe I'm quite skewed in who I see in
- 1:55my clinic. But your, your book just opens
- 1:59really talking not just about your experience, not a, but
- 2:03about lots of other women's experiences.
- 2:06And one of the things that really comes through to me is
- 2:09that people often aren't listened to.
- 2:11I don't know whether what you think about that.
- 2:14Yeah, I mean, I was always determined that this book, even
- 2:19though the launchpad from it was my own experiences and having
- 2:23spoken about my own experiences on Five Live radio where
- 2:29obviously I I have a show. And that's that in itself is
- 2:35really difficult because it's difficult on so many levels.
- 2:39Firstly, it's difficult because I want to be seen as a
- 2:43professional. I'm a journalist and a
- 2:45broadcaster. I don't want to be seen as
- 2:47someone who has problems with my reproductive health or, you
- 2:51know, gynaecological problems. I don't want to be seen as the
- 2:56story because my job is to ask questions.
- 2:58By the way, this is very weird being on the other side.
- 3:02I never enjoy that. But the job is to get the story
- 3:06out from the person you are talking to and to inform the
- 3:09audience. So you never want to be the
- 3:10story because you have to be impartial.
- 3:12You have to be away from it so you can ask questions that are
- 3:16comfortable and allow someone to tell their story, but also be
- 3:20able to challenge someone. So if you're involved, that
- 3:22makes it very difficult. So that was difficult in itself.
- 3:27But when I did first talk about it was my coil fitting that I
- 3:30first talked about on radio and the number of women and men that
- 3:35got in touch who'd experienced the same thing.
- 3:38It just made me think you're not.
- 3:40You're not always me. Look what happened to me.
- 3:43Because it wasn't about that. Because Caitlin Moran had
- 3:45written about it as well, a brilliant journalist, but it
- 3:51made me realise and then with my adenomyosis, which took 32 years
- 3:54to diagnose and even then it wasn't a a clear diagnosis.
- 3:59Of course I started realising just how many times we are
- 4:03dismissed, left undiagnosed, told it's normal, told to suck
- 4:09up pain and that whole idea that women because apparently we're
- 4:15made for childbirth, then pain should be a natural default.
- 4:20And it was seeping into the language of medicine and women's
- 4:25treatment and I'm mad about it. I'm mad.
- 4:29If I'm being honest, I'm angry about it.
- 4:31So, yeah. And so you should be really.
- 4:34I mean, my oldest, oldest daughter's actually 22.
- 4:37And when I had her, it was an emergency section and I was ill
- 4:41after I had sepsis and I remember going to the consultant
- 4:46saying, look, I'm just really don't feel right.
- 4:48I'm in so much pain. I keep getting these horrendous
- 4:50sweats. I can't think straight.
- 4:51I really don't think I'm well, he said.
- 4:53Louise, you're, you're quite middle class, you're quite posh
- 4:55and you've had a section and this is how people feel after a
- 4:59section. And like, I've never had a
- 5:01Caesarea section before. I didn't know what to expect.
- 5:05And I'd never really expected a doctor to talk to me quite like
- 5:08that because I would never waste anyone's time.
- 5:11I would only go if I was ill. I wasn't getting better.
- 5:14She was six week old. I'd had three different types of
- 5:16antibiotics. I hobbled in to see him.
- 5:19And in retrospect, I know I look really ill.
- 5:21My husband, who's a doctor was really worried about me.
- 5:24And you're, you're right. I think as women, we're expected
- 5:27to just carry on and so much is normalized.
- 5:31And I think it's, it's awful. Not just that it took 32 years
- 5:36for you to have this diagnosis, but like how many consultations,
- 5:40how, how much time you know, how it's sort of that's what's
- 5:46really sad that people are desperate.
- 5:50And then they almost gaslit and they think, well, maybe I'm not
- 5:53that bad. Maybe I should just carry on.
- 5:55Maybe I'm making a first. Maybe I'm wasting that doctor's
- 5:58time. I don't know if you had any of
- 6:00those feelings in any of your consultations over 32 years.
- 6:05All of those and much more. And what's interesting is I was
- 6:09diagnosed after 32 years of very, very heavy and painful
- 6:15periods, but only because I had bled constantly for nearly a
- 6:25month. And it was because of that that
- 6:28I was referred to a gynaecologist.
- 6:31I'd, the only other time I'd seen a gynaecologist was when I,
- 6:35and actually he was, he was a surgeon because was to perform
- 6:39my sterilisation. So the only time I was ever
- 6:42referred and had a a transvaginal scan was because
- 6:47I'd been bleeding for so long, abnormally up until then, every
- 6:52appointment I'd had with the doctor and I'd say my periods
- 6:56are really heavy, they're really painful.
- 7:00Yeah, that's normal. We'll pop you on the
- 7:02contraceptive pill, try the coil depo, Provera.
- 7:08And so the whole time I was never diagnosed because no one
- 7:11looked for it. No one ever seemed to care about
- 7:15what was causing it. No one asked me, how are these?
- 7:17What do you mean you've got heavy periods?
- 7:20Tell me about them. And if they had, they'd know I
- 7:23was passing out for the first 48 hours.
- 7:26I was throwing up. I was flooding.
- 7:29I was even though I work shifts, I was setting an alarm every
- 7:32three hours. I was sleeping on a towel, a
- 7:34period towel and a tampon and setting an alarm to change those
- 7:39because I knew I'd flood them through after three hours for
- 7:43the first 48 hours and I'd be in pain, I'd have cramps, I would
- 7:48still be going to work. No one asked me, how does this
- 7:51impact your life? Which I don't understand isn't
- 7:53why the first thing a patient is asked when they come in saying
- 7:58they're I'll, well, how's it affecting your life?
- 8:00How's it stopping you being the best you can be?
- 8:03Because if anyone had, then they'd have bothered to try to
- 8:06diagnose me maybe, but no one did.
- 8:09They just tried to mask these symptoms.
- 8:14It's quite something, isn't it? I, I realised like I'm not from
- 8:17a medical background, so no one in my family has ever been a
- 8:19doctor before. And so I always see and I still
- 8:23do today. Being a doctor is a real
- 8:25privilege, It's a real honour. But I did a lot of hospital
- 8:28medicine and it was very much treat Mrs. Blogs in bed three
- 8:33with asthma, treat Mr. Smith in bed 5 who's had a heart attack.
- 8:37So it was all like labels, conditions.
- 8:39And then I went into general practice later on really, and I
- 8:43had the most amazing trainer who said to me, Louise, you're going
- 8:45to be a really bad doctor. And I said, what do you mean?
- 8:48She said you're not going to be a good GP because you won't
- 8:50listen. It will be about getting that
- 8:52diagnosis and finally that diagnosis and then talking out
- 8:55the treatment. He said in this year that I
- 8:57train you, I'm going to make you involve the patient, ask the
- 9:01questions to the patient, ask them what made them come today,
- 9:05Why are they thinking about it? What do they think's going on?
- 9:09And it really opens up my mind to a way that I still consult
- 9:13now, because there might be 100 different people with
- 9:17adenomyosis, but every single person's going to have a
- 9:20different experience and a different impact.
- 9:22So you don't want to be labeled as Mrs. Smith with whatever you
- 9:28want. You've got this condition, but
- 9:30actually, how is it affecting you?
- 9:32How is it impacting not just you, but your work, your
- 9:35colleagues, your people at home, your circumstances?
- 9:37What are you worried about? Because sometimes people might
- 9:41be have something very trivial, but they're worried they've got
- 9:44cancer. And for me just to say, actually
- 9:47it's very unlikely it's cancer. We'll do a scan then.
- 9:50They're so reassured. It doesn't actually matter what
- 9:52the diagnosis is, you just see what I mean and I do.
- 9:55I think being involved as a patient really early on and like
- 9:59you absolutely say the doctor, the clinician, understanding the
- 10:03impact is really, really important.
- 10:07And that I feel really sad that people aren't given that vehicle
- 10:12to actually explain the impact. Because I know myself when I go
- 10:17to see a doctor, I'm quite nervous.
- 10:19I don't want to waste their time.
- 10:20I'll answer their questions, but I won't volunteer more
- 10:23information. And I understand more and more
- 10:26the time constraints. People are tired, people are
- 10:29busy. So you're not going to be
- 10:31explaining to the doctor how you fled through the sheets if they
- 10:34don't ask. But then as a doctor, you can't
- 10:36build up that picture of what's the impact of that condition in
- 10:40that person and the urgency not just of making a diagnosis, but
- 10:44treatment options as well. Yeah, and I think, I mean, every
- 10:50doctor I've spoken to for this book has given that advice.
- 10:54You know, go in knowing what you want to say.
- 10:56Talk about the impact of your life.
- 10:59There are doctors, GPS in there who say if I have to listen, I
- 11:03have to ask about the impact on life, but I don't.
- 11:05That definitely didn't happen to me.
- 11:08And I was dismissed for so many and so many times.
- 11:12I remember I talked about this, I had thrush and I had AGP who I
- 11:19saw at least twice who basically told me I was unhygienic, too
- 11:26sexually active and kept saying just, well, just here, here's
- 11:31the, here's the pessary. And I'd been repeatedly saying
- 11:35this isn't working. And it was only because I saw
- 11:38AGP because he wasn't available. And she said, oh, you can take a
- 11:42tablet. And it went within two days.
- 11:44And now I know I can then go to the pharmacy.
- 11:47And I've been to pharmacists to have said, oh, no, Are you sure
- 11:50this is what it is? And I'm like, I know what this
- 11:52is because I know my body and I've had this before and I've,
- 11:56I've been gate, they've been gatekeepers at the pharmacy.
- 12:00And so I've gone to a different pharmacy where a woman has
- 12:02listened to me and says, OK, fine, ask all the right
- 12:06questions, but then gives me, gives me the tablet.
- 12:09I just, I felt and both occasions.
- 12:12And this is nothing against male GPS.
- 12:14I've spoken to male GPS in this book who are brilliant, who who
- 12:17listen, but I think women I write in the book.
- 12:21I went back to that second GP who'd accused me, they'd made a
- 12:25moral judgement on me and that had affected my treatment, my
- 12:29medical treatment. And I look back now and think
- 12:32how dare they. But I didn't realise it at the
- 12:34time because I was, my pain outweighed the humiliation of
- 12:37the first appointment. And it takes, as you say, it
- 12:39takes so much for us to book AGP appointment in the 1st place
- 12:43because we put things off in terms of we prioritise other
- 12:47people, other things, work, whatever in our lives.
- 12:51So, and I say this, that if someone get, if a woman is AGP,
- 12:56she and she's asking about it could have taken years for her
- 12:59to get to that point. It does not take half an hour of
- 13:02her not feeling well. So I'll ring up the GP because
- 13:05that's what I do. It takes days, weeks, months,
- 13:08even years before they ask for help and that's on us.
- 13:11That is bad. But.
- 13:13It should give practitioners an idea of Oh my goodness, I I can
- 13:19already. I already know this is serious
- 13:21to her because she's here. I totally agree and one of the
- 13:26things that I really worry about, and you said it earlier,
- 13:29is about how much is normalised. So then it makes it very
- 13:33difficult to know when do I go and see, seek medical help.
- 13:38So talking about heavy periods, Oh well you will have heavy
- 13:41periods. Oh, they will be painful.
- 13:43Well, why do we accept it and how has it become so normalised
- 13:49that people aren't receiving the right help, support and
- 13:53treatments as well? And I think that's really sad
- 13:55because, you know, we're both English speaking, we're both
- 13:59educated. I worry a lot about areas of
- 14:02deprivation for people that don't speak English, that can't
- 14:06advocate for themselves, that really can't put them #1 because
- 14:09they've got so much else going on.
- 14:11And let you say that the impetus this sort of time for them to go
- 14:16and see a doctor, it will be that much harder.
- 14:19So you often in certain areas and certain communities, you've
- 14:23just got one chance as a doctor, you know you'll never see them
- 14:26again. And for me, it's such a
- 14:28priority. If someone's coming for help
- 14:30from certain areas, I will think, right, this person's
- 14:33really suffering. But actually, if those people
- 14:35aren't listened to them, what happens or they get given the
- 14:38wrong treatment or treatment that doesn't help them.
- 14:41It's an absolute car crash because it not just impacts
- 14:44them, it's everyone around them as well, isn't it?
- 14:47Absolutely. I mean, I've spoken to doctors
- 14:50who do go to various communities and speak to, you know, for
- 14:54example, South Asian communities.
- 14:56It is not spoken about. Your periods are not spoken
- 14:59about, and menopause isn't spoken about.
- 15:01In some languages there isn't even a word for menopause.
- 15:04I know. So it's like and in some it's
- 15:08like. In in some languages it means
- 15:11the end or the withering or you know something.
- 15:16Ridiculous. That that is menopause anyway,
- 15:19so, so no wonder it's taboo in so many cultures because we know
- 15:24that I don't, I can't admit this.
- 15:25I can't say I'm no longer of use in society.
- 15:28You know, I'm the hack that goes and sits in the corner.
- 15:31We go back to the days of witches then, do you know what I
- 15:33mean? The normalisation.
- 15:36The normalisation makes me mad because for two reasons.
- 15:42One, I, I remember once being asked about my level of pain
- 15:49when I had my periods. And this is someone who was
- 15:52fainting, sweating through pain, screeching, wrapping, wrapping
- 15:57myself around the toilet, curled in a ball, often sleeping on the
- 16:00floor because I just thought if I'm uncomfortable sleeping, then
- 16:04I won't notice the pain as much, if that makes any sense.
- 16:09Yeah. And you're, you're digging nails
- 16:10into your, the palm of your hand.
- 16:12So you just, you divert the pain almost.
- 16:15And I remember saying once it was later on, oh, my pain's
- 16:19probably a six. That is not a six, right.
- 16:23But because I'd normalized my pain because I've been told it
- 16:27was normal. That's what I did.
- 16:28So. And the other thing is you're
- 16:30told at school, I think a lot goes back to education.
- 16:33I've spoken to some young girls in the book because you'll be
- 16:35aware, you know one girl who started her period before her
- 16:3910th birthday and she was at school having the lesson, the
- 16:44talk as it's known. And they were told, oh, it's
- 16:48just a teaspoon couple of teaspoons a day of of blood.
- 16:53And you're it's a bit, it can be a bit uncomfortable, but it
- 16:57lasts a few days and it's fine. You'll just, you'll use period
- 16:59products and you'll be fine. When she put her hand up to say
- 17:04no, because no, I, I've really have, she was basically told to
- 17:09shut up by the teacher because they didn't want to scare the
- 17:11other girls. And I'm no one saying you have
- 17:15to scare children, boys and girls, by the way, boys and
- 17:19girls need to know about menstruation because boys, how
- 17:22many times have you been, you know, you had a boyfriend or a
- 17:26partner who's, Oh my goodness, what's happening to you?
- 17:28Because they don't, they're not told about what's, what's going
- 17:31on. And you explain to them, but
- 17:34boys and girls need to be educated.
- 17:36But also this our whole idea is just because a girl menstruates,
- 17:39therefore she's in puberty and able to get pregnant, that a
- 17:43girl's going to run out and get pregnant.
- 17:46Now, if you're, if you're more worried about the girl getting
- 17:48pregnant than having healthy periods and having a healthy
- 17:51life and great career, somethings skew here, isn't it?
- 17:54This societal, this message is Askew.
- 17:57And that is the problem as well when it comes to normalising,
- 18:00you know, pain, bleeding, heavy bleeding in that sense.
- 18:06I totally agree, because also quite a few of treatments are
- 18:10contraceptives, as you know. But actually for many years
- 18:14people don't think about what contraceptives are and what they
- 18:17do to the body and how different they are to natural hormones.
- 18:22And they can increase inflammation.
- 18:23So people with adenomyosis or endometriosis, often actually
- 18:29giving synthetic hormones can make things worse.
- 18:31They might stop periods. But as you say, women shouldn't
- 18:36be defined as about their periods.
- 18:38You know, It's what's going on in their body and that's what's
- 18:41really important. And I think almost some doctors
- 18:45and I used to do it was the way I was trained by gynecologists.
- 18:48It's almost a marker of success. This woman isn't having a
- 18:50period, therefore she'll be fine.
- 18:52Well, no, she can still have hormonal changes.
- 18:55She can still have pain, she can still have mental health issues
- 18:59due to the hormones that have been given because they're
- 19:02synthetic. But that's sort of not looked at
- 19:05in the in the same way almost, which I is.
- 19:08Again, it's focusing on the woman as somebody that has a
- 19:12womb, which we're more than that, aren't we?
- 19:16We are more than wombs on legs, I say that.
- 19:19We are, yeah. And, and you know that, that
- 19:24your book is amazing because it goes through different areas and
- 19:28you know, there's quotes throughout.
- 19:29But actually, as, as I said to you before we went on out, I
- 19:33started reading it in the bath and I carried on, had a very
- 19:36long bath. But the, it's amazing the, the
- 19:39sort of sadness and the pattern. They're really sad that these
- 19:41are real women. It's 2025 and these are people
- 19:45with real lives and they're really struggling.
- 19:49And I I just don't know why it hasn't got any better.
- 19:53Everyone who took part who who I interviewed once, what happened
- 19:59to them not to happen to someone else?
- 20:01Indeed. That's why that, that and, and
- 20:04every interview was at least an hour.
- 20:07And we've had more than a 100 contributors.
- 20:10And you know, some of them, some of the people I spoke to, not
- 20:13all have chosen to use their real names because it's still
- 20:16very painful. And they, they would say it's
- 20:21almost like a therapy session because they hadn't said things
- 20:23out loud when it comes to their trauma.
- 20:27And it is trauma, some of it. And I found that really
- 20:32heartbreaking. And I would step away from
- 20:34interviews in tears sometimes because they people are just
- 20:39being treated so badly or, or and, and by not being treated,
- 20:44that is treating them badly. I'm not talking about something
- 20:48being spoken too badly. I'm talking about being left in
- 20:52this state. The those stories are also
- 20:59massively cut down. So they're no more than usually
- 21:02a page, a page and a half, you know, because after speaking to
- 21:06these people for an hour, you can only get so much in.
- 21:09And I after every story there is a professional who offers advice
- 21:15in terms of how to fight your corner and talks about what
- 21:21treatments are available. There's no advice as in you
- 21:24should be doing this if you have these symptoms, but there is
- 21:27advice in terms of how to stand up for yourself.
- 21:30And this is the theme throughout it that these people who are
- 21:35every person I spoke to is brilliant, but they either were
- 21:41too I'll too tired, too worn down to fight and didn't have
- 21:47that backup, which is what I hope this book will be will do.
- 21:51It's so important. I mean, I, I found them sad to
- 21:55read because as a healthcare professional, I found it really
- 21:59sad thinking these women have been let down by my colleagues.
- 22:03You know, it's not the fact that they are sad stories making me
- 22:06feel sad. It was the fact that I feel
- 22:09really disappointed actually. And I think in medicine we don't
- 22:14always know the answers. We can't always make diagnosis
- 22:17that we can't know everything about everything, but what we
- 22:20can do is definitely listen and try and understand and we can
- 22:25give options to people. And I've always sort of done it
- 22:28in that if this treatment doesn't work, then that we could
- 22:32try this or maybe we'd give you this investigation or I'll refer
- 22:35you to this person. So it's part of sort of safety
- 22:39netting, but it's also enabling patients to know they can come
- 22:42back and it's not the end of the road if something doesn't
- 22:46improve. Because like you say, if it's
- 22:48taken a long time to come to that consultation and then I
- 22:52give you a treatment and you feel no better, then it doesn't
- 22:55matter how kind I am in the consultation.
- 22:57If you don't feel better, it's irrelevant.
- 22:59But if you know that that doctor said, well, actually she did say
- 23:03if this treatment doesn't work, there's something else we can
- 23:05do, it's opening that door again for you.
- 23:08And I feel these poor women haven't had that as options.
- 23:11And I think what's also really different now, So what it was
- 23:15when I qualified, when we didn't have the Internet, was that
- 23:18women learn so much more quickly than they did.
- 23:22You don't have to learn anything from your doctor anymore.
- 23:24You can learn from other people's experiences.
- 23:27You can learn, you know, you've got access to the same
- 23:31information as I have really now about diseases.
- 23:34But the big thing that I think echoes through this whole book
- 23:38is about being an advocate for yourself, being really prepared
- 23:43for that consultation. And I think that's crucially
- 23:47important. In my mind, that's the sort of
- 23:50biggest take home that you come away from this book thinking,
- 23:54yes, actually, I'm not doing this alone.
- 23:57I'm really going to get the most out of that consultation because
- 24:01it's my body, it's my life, it's my future.
- 24:04And that's really important, isn't it?
- 24:07Yeah, I mean, I've had to advocate for friends and family
- 24:11when in all different situations, not had to, but I've
- 24:16offered to because sometimes it's not that someone doesn't
- 24:20have the language, it's just they're so upset by how I'll
- 24:24they are that when they get into that consultation, they can't
- 24:28think because they're either so relieved they're being looked at
- 24:34or they're going through some treatment that they can't think
- 24:37about the details. So I've often SAT with friends
- 24:40or family and said, right, what do you want out of this?
- 24:42What questions do we need to ask?
- 24:45And I've sat there and just made sure those questions are asked
- 24:48and sat, you know, by the side of someone and made sure the
- 24:51questions are asked. And I'm thinking of one
- 24:54particular friend when she was going through treatment who just
- 24:59got so upset because there was a history of cancer in her family,
- 25:03which is what she was scared of the but she would be in tears, a
- 25:08brilliantly strong woman, articulate, feisty, brilliant,
- 25:13but be in tears. So I would sit there and leave
- 25:15her to cry and say, right, what about this and ask, you know,
- 25:18the practitioner, what about this?
- 25:19What about this? So that when we left, we could
- 25:23go back, have a coffee and go and make sure that everything
- 25:26was understood. Now this is if someone who is,
- 25:29who is educated, does you say educated, capable, articulate,
- 25:33you can feel overwhelmed like that.
- 25:34I agree with you. What you said earlier that those
- 25:36in marginalised communities who are vulnerable, who don't have
- 25:41that help. And by the way, there are
- 25:42advocacy groups available as well.
- 25:44If you haven't got friends or family who can help, you can
- 25:47look up advocacy groups as well peer groups to help you Then
- 25:52what hope do they have? Yeah, it's, it's really
- 25:57difficult. I, I know many years ago I, I
- 26:01had pancreatitis. I was really ill and I still
- 26:03have problems afterwards and went back and forth to a
- 26:05specialist clinic. It was really, really very good
- 26:09doctor, but I wasn't getting better.
- 26:11And the last consultation I actually cried because I was
- 26:14feeling so awful. And he examined me and he looked
- 26:17at me and said, Louise, I think you just need some
- 26:19antidepressants. And I was really the first time
- 26:23I was so shocked because I knew I wasn't, I was low, was low in
- 26:26my mood because I was feeling awful.
- 26:28And I then actually my husband said, this is ridiculous.
- 26:30I'm going to get you to see someone else.
- 26:32And I think you need your gallbladder taken out.
- 26:34And then I felt fine and it was obviously all related to my
- 26:37gallbladder. But if I hadn't have had the
- 26:40strength of my husband, if I hadn't, like this was about 10
- 26:45years ago, I would still be, you know, what would I have been?
- 26:48I would be taking antidepressants inappropriately,
- 26:51still be ill. And I think the other thing is
- 26:53it's really important that people listening know that you
- 26:56can get a second, third opinion. You know, none of us has doctors
- 26:59mind if someone sees somebody else.
- 27:02And I think that is important, isn't it, that that people can
- 27:06see someone else. They don't have to go back to
- 27:08the same doctor. I think those people have this
- 27:11fear of offending their doctor, don't they?
- 27:14I mean, you go in and into a surgery and you're asking them
- 27:18to help. You know, you've only got 10
- 27:20minutes unless you've booked a double appointment.
- 27:22And that's something else you can do if you know that there
- 27:25are multiple conditions or you really need some time to explain
- 27:27what's going on. But you really don't want to
- 27:31offend your doctor. I mean, I remember apologising
- 27:33to AGP, who wasn't offended by the way, because I was taking
- 27:37notes because I felt, oh, do they think I'm keeping a record
- 27:41of what they're saying and I'm going to use it again.
- 27:43You know, how does the mind work?
- 27:47I think, you know, we are intimidated or in awe of
- 27:51doctors, but ultimately we have to think that we have the right
- 27:56to feel better. And their job and their will is
- 27:59to want to heal us. They've gone into this to make
- 28:01people feel better and it is, you know, they're puzzle solvers
- 28:05as well, which is part of the joy of, of that job as well.
- 28:08So there is a satisfaction when they can help someone and solve
- 28:11the puzzle. So it's, but it's, it should be
- 28:13a partnership. It is not going there, you know,
- 28:17and expect them to just tell you what's wrong for them to
- 28:21immediately fix you, because it doesn't work like that either.
- 28:24No. And I think that is crucially
- 28:25important, actually setting the scene for the consultation even
- 28:29at the beginning saying I've come because I'm having really
- 28:33painful heavy periods and I would really like to talk to you
- 28:37about a treatment that is going to improve the quality of my
- 28:40life or I want to talk to you about the next test that I need
- 28:43to have to try and get the diagnosis or whatever.
- 28:46So you're framing that consultation from the start.
- 28:49And I think it's really important for that patient to be
- 28:53as empowered as as possible to actually anybody who can make
- 28:58some notes, bring some more information is really important.
- 29:02And they're not wasting people's time.
- 29:04And if a doctor feels threatened, then they're
- 29:07probably because they're out of their comfort zone and maybe
- 29:09they're not the right person to be seen.
- 29:11But at the end, I think it's also really important to almost
- 29:15summarize. So from this consultation, what
- 29:18I understand is you're giving me X treatment for Y symptom and if
- 29:22it doesn't help, I can do zed. So you've got that really clear
- 29:26because it is a partnership. You know, I feel as a doctor,
- 29:30I'm actually the patients advocate, I'm there to help them
- 29:34with the right, you know, I've got that knowledge and
- 29:36experience, but every consultation I do is different,
- 29:40even if the person had exactly the same disease, because it's
- 29:44the way that, like you said at the beginning, it's the way it
- 29:46affects them, but also what they want out of it as well.
- 29:50Because some people, it might be the vomiting that they're
- 29:52getting is far more significant than the pain.
- 29:55And if I only focus on the pain, then I haven't done the right
- 29:57consultation, you know. So I think that's, well, I know
- 30:01it's so important and that's something that really I think
- 30:04echoes through your book a lot. It gives you this fire in the
- 30:09belly, whether it's out of sympathy for some of these
- 30:12people or anger, it doesn't actually matter what I think it
- 30:15will do. And I'm really intrigued to see
- 30:18how the comments and and the reviews go with this book
- 30:22because I think it's going to give people permission to maybe
- 30:25be slightly different in their consultations.
- 30:28I really hope so. I really hope so.
- 30:31I, I, I gave a talk yesterday and a woman came up to me and
- 30:36she said I've got to go back to my doctor.
- 30:40I've had treatment for this and it's just not working.
- 30:43And I just thought, Oh well, I'm 60 now, so not really much you
- 30:47can do for me. She said, I'm going back, I'm
- 30:49going to go and book an appointment.
- 30:51And if this book it's just gets one person back to being healthy
- 30:57and it's society is tough enough.
- 31:00It is hard enough to be to try to be the best who you are.
- 31:04Again, with all the systems in society at this moment in time,
- 31:08our health is something there is a system, there is the there is
- 31:11the NHS designed so that we are we all have the right to be
- 31:15healthy, to be as healthy as we can and be the best we can and
- 31:18then contribute to society. If this book just gets one
- 31:21person saying no, I know how to get the the best out of my GP
- 31:27appointment. I know how to get the best out
- 31:29of my condition and understand my condition.
- 31:34I know how to advocate for myself and I'm I'm going to go
- 31:37back or I'm going to do this. Great, great.
- 31:42Brilliant. Well, I think it actually will
- 31:44be more than one person that does that from your book.
- 31:48So but I'm so grateful for your time because I know how busy you
- 31:51are. But before we end, I just like 3
- 31:54take home tips. So three things that you really
- 32:00would love to but make a difference to people's lives
- 32:04going forward. Three things that you think
- 32:06people could do that's going to improve that 60 year old, that
- 32:1010 year old, whoever you know, in the in the best, shortest way
- 32:15almost. Embrace puberty, talk about it
- 32:19with young people and don't see it as just now you can get
- 32:24pregnant for girls. See it for what it is and
- 32:30embolden girls to understand their bodies at a young age and
- 32:34not fear periods. Talk to each other.
- 32:40Open up the conversation. We're great talking about mental
- 32:43health. We're not great about talking
- 32:45about our physical health, particularly gynaecological
- 32:49problems. Talk about the pain you might
- 32:51have because more often than not other people have experienced it
- 32:55or know someone who has. But we're not talking about it
- 32:58enough. We're not normalising that
- 32:59conversation and know that if you go to AGP and you feel
- 33:05you're not being heard, feel free to say I don't think you're
- 33:10hearing me. If you become what's called a
- 33:13heart sync patient when AGP is feels they've gone round in
- 33:16circles and their hearts is sinking when they see you ask
- 33:19for a referral. As you've said, GPS don't mind
- 33:23if you get a referral. You're still not heard and you
- 33:25can't you see another GP If you're still not heard, Change
- 33:28practices. You are entitled to do that.
- 33:31Don't give up. Very good advice, lots of
- 33:34information, lots to think about and hopefully lots to really
- 33:38empower people going forwards. And I'm so grateful for your
- 33:41coming on today and good luck with everything with the book as
- 33:44well. So thank you.
- 33:45Louise, thank you so much and thank you for your wise words in
- 33:48the book as well. I'm sure people will take those
- 33:51away and that will help their lives be better too.
- 33:53Thank you. Take care.
- 33:55Thank you. Subscribe to my newsletter for
- 34:00exclusive insights and updates on new episodes.