Rare Epilepsy Network with Ilene Penn Miller and Christina Sanlnocencio
ONCE UPON A GENE - EPISODE 223
Rare Epilepsy Network with Ilene Penn Miller and Christina Sanlnocencio
Ilene Miller and Christina SanInocencio are advocates doing groundbreaking work at the Rare Epilepsy Network (REN), a volunteer network of epilepsy organizations banding together, sharing research efforts, and improving the lives of rare epilepsy patients and families. They're here to share about the inception and mission of REN and the resources available through membership.
EPISODE HIGHLIGHTS
What gap did establishing REN fill?
REN was born out of the need for smaller organizations to have…
The skinny
The skinny isn't ready yet — notes appear once the transcript is processed.