Latest / Adventures in Adversity: an inspirational podcast / Ep. 78: What if we could face death, not fear it? 1:1 with Death Doula & Writer Niki DiGaetano
Transcript
- 0:00Welcome back episode 78. My mind is blown.
- 0:05I'm so happy that I get to sit down yet again with another
- 0:09guest. If you have never heard of this
- 0:12podcast and you're tuning in, welcome.
- 0:14Thank you so much If you are returning, thank you so much.
- 0:18Thank you to both of you, all our listeners.
- 0:22This is episode 78 of Adventures and adversity.
- 0:25This podcast is a podcast where we are lucky enough to feature
- 0:30real people who tell true stories about how they have
- 0:35overcome or are currently overcoming adversity in their
- 0:39own life. And I always say there's many,
- 0:41many forms of adversity. And I think there's probably no
- 0:45human or animal that is immune to adversity in life.
- 0:50So I'm gonna stop babbling and I would love to introduce my next
- 0:55guest, Nikki. And I'm gonna Nikki, I'm gonna
- 0:59tell. I'm gonna let you pronounce your
- 1:01last name 'cause I didn't want to say it wrong.
- 1:04Yeah, my name is Nikki Digitano. It's a really hard last name to.
- 1:07It's a great last name, though. It's Digitano.
- 1:10It's very, it rolls off the tongue.
- 1:12I just don't want to mess it up. Thank you so much for being
- 1:15here. Thank you for having me.
- 1:17I'm excited, Bree. Yeah, and so for those of you
- 1:20who don't know, I'm sure some of you listening do know Nikki,
- 1:24'cause I know that you've got fans and friends and family out
- 1:27there. You are Nikki.
- 1:30You are a death doula. By passion.
- 1:33Unfortunately it's not my full time day job, but it's what I do
- 1:38when I can do it, and it's work that keeps my soul alive.
- 1:43Wow, that's incredible. And and this is the part where I
- 1:46just want to I'm going to read off just some stuff about you
- 1:50and like what you do. So people get a little bit of a
- 1:53glimpse into you at right before we talk about your story.
- 1:56So in your Instagram, which will be in the show notes here, you
- 2:00offer grief support, you're a death doula, you're a writer,
- 2:05you're a backpacker. And I love your Instagram handle
- 2:09that numbered days dot doula. And I think we got connected if
- 2:15I'm via well, obviously via Instagram, right?
- 2:19But was it? Was it a few weeks ago that we
- 2:21connected? Yeah, I think, I guess you must
- 2:24have run an Instagram ad recently, 'cause I saw your
- 2:26podcast and I said Adventures in Adversity.
- 2:28What a title. Let's click on that and see what
- 2:29that is. Thank you.
- 2:31Ads are working. I was like, you know what, I
- 2:34gotta, I gotta, I gotta go fishing and see if this whole
- 2:36thing is working. And I was like.
- 2:37Instagram ads are great. Thank you, God.
- 2:40OK, so we connected via something on Instagram and I
- 2:44remember when I saw that either you had something, there was
- 2:48some interaction and then I was like, oh, 'cause I every time
- 2:52I'm like, oh, who's who, who's listening to my like I'm like
- 2:55every time. And it said numbered days.
- 3:00It was numbered days, numbered days dot doula.
- 3:03And I was like, honestly, I remember thinking, OK, I'm
- 3:07following her immediately and I have to talk to her.
- 3:12I just, I, I'm so I have so much respect for people who do what
- 3:19you do and for so many reasons. But before I get into just like
- 3:24throwing compliments and all that stuff, why don't you
- 3:27explain to people what, what you mean by that?
- 3:31And then we'll kind of just rewind and go into your story
- 3:35and, and go with the flow. What is a death doula?
- 3:38Yeah, so a death doula is A, and here's the formal definition, is
- 3:42a non medical trained companion who assists people at the end of
- 3:47life and they can assist at all stages of the end of life
- 3:50process. So it could be after someone
- 3:52dies, in which case there's grief support.
- 3:54It can be while someone's dying, it can be before someone dies,
- 3:57in the weeks before they're like holding their hand, they're
- 3:59sitting bedside, kind of the things you imagine a Hospice
- 4:02volunteer or Hospice chaplain doing.
- 4:05And then death doulas can also assist way before the end of
- 4:07life. So like someone my age or
- 4:09someone your age can hire a death doula to talk about fears
- 4:12around death, to plan out your funeral, to get your affairs in
- 4:16order. I love that phrase because
- 4:18everybody says it, but no one actually knows what the hell it
- 4:20means. And it's like, more importantly,
- 4:22nobody ever actually does it. So people say now people say
- 4:26they don't want to be a burden at the end of life.
- 4:28People say they don't want this, they don't want that.
- 4:30Just shoot me, take me outside. Well, one of the ways we quote,
- 4:34UN quote, aren't a burden if we have to use that horrific
- 4:37language is we get the affairs in order.
- 4:41We make these preparations so that people in the aftermath of
- 4:44your death aren't shattered by grief and trying to figure out
- 4:47what kind of funeral you wanted. It's already outlined.
- 4:50And so duos can help with that. Duos can help with the grief at
- 4:52the end. So they're just a very holistic
- 4:54companion at the end of life. And then just a caveat.
- 4:58I said non medical and that's because duos aren't Hospice
- 5:01nurses so they will never give medications.
- 5:04They'll never prescribe, they'll never diagnose.
- 5:07That's outside of the realm of what a death doula does.
- 5:10But short of that, we do a lot of things.
- 5:13Amazing, amazing. Hold on one second.
- 5:15My son just walked in one one second.
- 5:18I'm so sorry. Right in, right in.
- 5:19Hold on back. Sorry.
- 5:30It just says, you know, recording, right?
- 5:35Yeah, that's all right. OK.
- 5:39I'm so sorry. I I I told you, Yeah.
- 5:42No screw UPS. Like you said.
- 5:44You're right, no screw ups as I'm like frustrated.
- 5:46OK, so why don't why don't we just do that again?
- 5:51That part because I feel like I feel like I didn't give your
- 5:54your attention. I'm so sorry.
- 5:56Totally here. OK, so you had said, I had said
- 5:59like, what is a death doula? And I'm going to just make you
- 6:01say it again. I'm so sorry.
- 6:02Totally. OK.
- 6:03Yeah. So a death doula is the formal
- 6:05definition, is a non medical companion who is trained to help
- 6:09people at all different phases of the end of life process,
- 6:12whether that's before someone dies and that could be weeks
- 6:15before, days before, years before that could be during the
- 6:19death, that could be after the death, in which case the
- 6:21supportive death doula provides can be grief and managing that
- 6:24process. And like the after care
- 6:26preparations for the body. I also went down a whole long
- 6:30earlier. I was going down this whole long
- 6:32rabbit hole about death. Death tool is helping people
- 6:36getting their affairs in order because everybody talks about
- 6:39quote UN quote, being a burden at the end of life.
- 6:42And the way that we address that partly is to plan your funeral,
- 6:48document your wishes, document these medical wishes so that
- 6:52when your loved ones are shattered by grief and their
- 6:54emotions are all over the place, this stuff has already been
- 6:57outlined and they can be a little bit more comforted
- 6:59knowing that they did things according to our wishes.
- 7:03And then I think I was also saying that death doulas are non
- 7:06medical. And that just means that we are
- 7:08not Hospice nurses. So we do not give medications,
- 7:12we do not prescribe, we do not diagnose, we do not treat.
- 7:16Short of that, we do a lot of things.
- 7:18Lot of things it's in and I was reading a bit about it
- 7:22beforehand and and the only reason I have a a tiny window
- 7:26into this is one of my previous guests Ben, he wrote a musical
- 7:31called life review, the Hospice musical and he's a former
- 7:37Hospice chaplain. He's just hilarious turned
- 7:43music. He wants to be on Broadway and
- 7:45he's just a great guy. And so got a little insight into
- 7:49the whole team that and, and I guess it obviously depends on
- 7:53the person, the situation. Maybe they don't have people
- 7:57with them. Maybe they have a whole team of
- 7:59people at all. I I mean, you must, there's so
- 8:02many questions I have, but again, I'm getting, I think I'm
- 8:05just so intrigued. And so like I, I, I don't know
- 8:09if you get this a lot where people are just like, wow, like
- 8:12because it's such a, it's a, it's a the one guarantee in
- 8:16life, right? We are all going to pass on and
- 8:21I feel like it's one of those things that everybody's very
- 8:24scared of a lot of people, right?
- 8:27And when you said getting your fares in order, it actually
- 8:30makes perfect sense to do that stuff ahead of time because it's
- 8:35like that will ease the pain of, you know, that's one less thing
- 8:39they have to worry about. Right.
- 8:40It's a lot harder to do that when you're literally in the
- 8:43process of dying. It's a lot harder to do that
- 8:45when you're dead and you're and you're people are having to deal
- 8:48with this after you're dead. So yeah.
- 8:49It's it's yeah. OK, so let me ask you this,
- 8:53Nikki, and we'll go into your day-to-day of what you do.
- 8:57Was this something being a death doula?
- 9:00At what point in life did this cross your mind for the first
- 9:04time? This is kind of why it resonated
- 9:08with your podcast title is because I think I came to it
- 9:11through adversity. So the short answer is I came to
- 9:15death do a work in 2019 slowly. I was a Hospice volunteer first
- 9:21for about 9 months right before COVID hit.
- 9:25And what was happening is I had just graduated with my
- 9:30bachelor's degree in unrelated fields to advertising,
- 9:33marketing. That's my day job, still is.
- 9:36I've had that job for like 8 years now.
- 9:38I've been in this industry and I, I got like one year in, I got
- 9:42hired right out of college. It was like the dream situation
- 9:45for a fresh graduate being told the economy sucks and life is
- 9:47terrible and if you get a job, everything's great.
- 9:49And I did that. I did the job, everything was
- 9:50great until a year later and it wasn't.
- 9:53And I realized that, Oh my gosh, I just started becoming obsessed
- 9:56with this imagery of like running on this hamster wheel
- 10:00every day doing this exact same thing until I died.
- 10:03And I was like, I mean, then it's like conveyor belt that
- 10:06takes me to my casket. I'm just still going to be doing
- 10:08this thing. And I don't like it.
- 10:09And it's fine. I don't hate design.
- 10:12I don't hate advertising. But I've started to feel that it
- 10:15was very hollow and empty and just the idea of mass
- 10:18consumerism didn't feed my soul. It fed my belly.
- 10:23It fed, it paid the bills and it's a needed field for that
- 10:27because it supports me and I'm good at it.
- 10:29But I started to become very, very dissatisfied.
- 10:32I started careening back towards a lot of mental health struggles
- 10:36that I had wrestled with for a lot of my life.
- 10:41And it was starting to be back in that territory of like, let's
- 10:44kill myself. I don't, I wasn't actively
- 10:46suicidal at that point, but I had been there.
- 10:48And I can feel myself being like, if I don't figure
- 10:50something out, this is going to get bad really fast.
- 10:53And yeah, so I just started wildly searching for like self
- 10:59help articles and podcasts and books and I, I texted a friend
- 11:03who happened to just be like a similar person to me.
- 11:06Like we were both searching souls and that very unsatisfied
- 11:09the status quo. And I'm like, how's how's
- 11:11graphic design going for you, bud?
- 11:12We, we were like college classmates.
- 11:14And I'm like, I'm having a bit of a time here.
- 11:16And his response was, you know what?
- 11:19My dad actually is a recruiter for this Hospice location near
- 11:22you. He's a little off kilter.
- 11:24Like, I know Hospice is kind of a weird thing, but if you're
- 11:26looking to volunteer or just get your get do something different,
- 11:29I could hook you up with my dad and that is kind of how I got
- 11:33involved in Hospice care. One conversation, but it's it's
- 11:37like AI thank you for first of all, thank you for sharing that.
- 11:43I always appreciate when a guest is vulnerable with like having
- 11:48had mental health stuff myself and I just, I really appreciate
- 11:52the vulnerability because I know you just saying that right now
- 11:56makes somebody out there feel heard.
- 11:59Like, OK, Like it's just a lot of us, not all of us have the
- 12:05human condition where sometimes you hit a point in life where
- 12:10adversity where you just those thoughts come and you and I just
- 12:14appreciate that you're being so candid about that.
- 12:18I'm a pretty candid person. You're going to find out pretty
- 12:20crazy. I think it's.
- 12:21Wonderful, I'm it's wonderful. It's great and and being that
- 12:25like that despair, right has LED you somewhere.
- 12:29I love how you said feed, feeding your belly, feeding your
- 12:33soul. Both are needed, right?
- 12:37You need your belly fed, but they're not the same.
- 12:41Not always. Yeah, like, I'm, I'm fine to do
- 12:44this work, but I also realize, like, and I've been chugging
- 12:47along in this industry just fine.
- 12:48My soul is good now because I figured out that I could do
- 12:50both. And I could nurture my inner
- 12:53world and I could also nurture the physicality and speak to the
- 12:55financial need of, you know, stability and safety.
- 12:59And it was possible to do both, but it took me a long time to
- 13:01figure that out. Yeah, so take me through and
- 13:05take me through. So you said yes, and kudos to
- 13:08your friend for what a beautiful suggestion.
- 13:12Like, yeah, that's it. Not only did it change your
- 13:15life, but like, that's a really he he it was it was a guy,
- 13:20right? He said he must be and and his
- 13:22dad must be cool people. Yeah, they they are you.
- 13:25Know what I mean? Like if you're working in a
- 13:28Hospice, I think you have some empathy and you're you've done a
- 13:31little soul searching. I would, I would think.
- 13:34Yeah. So you say yes to that.
- 13:36Did you really have any idea what you were saying yes to?
- 13:38Like volunteering like you kind of did?
- 13:40Right. I kind of did.
- 13:41My grandmother went through the Hospice process, so I kind of
- 13:45know what that entailed. I've been in nursing homes
- 13:50before a lot as a kid. I'd play like flute with my
- 13:53brothers. We had like a little band going
- 13:55and we'd go to visit the the elder care facilities and just
- 13:58hang out. So I knew what the conditions
- 13:59were like in there. I knew the Hospice wasn't always
- 14:01done in nursing homes. It was also done in people's
- 14:04actual homes. And right around the time that I
- 14:08started volunteering, that's kind of when I discovered Death
- 14:10Dual was and that was by accident.
- 14:13So I had been doing a lot of that reading online for self
- 14:15help articles and I think the algorithm started giving me just
- 14:19more of that. And once I dived into Hospice, I
- 14:23stopped searching for like self help articles and I stopped
- 14:25started looking for things like end of life jobs, Hospice jobs,
- 14:28end of life careers, like what, what, what, what is all of that.
- 14:32And through that process, I eventually came upon a death to
- 14:34a training through the University of Vermont held
- 14:38online. And I'm like, oh, I don't know
- 14:40what this is, but this sounds really cool.
- 14:42I read about it and I'm like, I'm, I'm in.
- 14:44It seems like he was very much complimentary to the Hospice
- 14:46work that I was doing. And a lot of death duo trainings
- 14:50very strongly suggest that you all, actually, some of them
- 14:53require that you get some Hospice volunteering before you,
- 14:55you know, hang your shingle and say I'm a duel now.
- 14:58So I thought it just kind of made sense.
- 15:01So you OK, So tell me what? Tell me what that experience, I
- 15:07mean for someone out there who might not know what, what is a
- 15:12Hospice setting typically like? And I actually, I have been in
- 15:18that Hospice setting as a visitor twice, once when I was
- 15:21very young. And but I don't I, I would like
- 15:24to understand a bit more too when you say Hospice.
- 15:28Yeah. So Hospice is like, it's like a
- 15:30mode of care. It's setting is kind of an
- 15:32interesting word, but it's like a type of care that you receive
- 15:35when a doctor tells you you have six months or less to live.
- 15:39And that care, again, like I was saying, can be offered in a
- 15:41hospital. It can be offered in a nursing
- 15:43home. So if you have like a grandma
- 15:45who's old and she's in a nursing home and she has dementia or
- 15:47whatever, it can be offered in the home.
- 15:49So if it's maybe grandma is is like sick and dying at home, or
- 15:53maybe maybe more tragically, there's like a person who's
- 15:55younger who's receiving care at home and they could receive the
- 15:58Hospice care there. And Hospice care is usually
- 16:00comprised of a Hospice nurse, a Hospice chaplain, a Hospice
- 16:05social worker and Hospice volunteers.
- 16:07And those four groups kind of make up the compendium of care.
- 16:11And it's usually some, it's usually it's some.
- 16:13So let me actually back up. For example, Hospice care,
- 16:16unlike the typical medical landscape, aims to provide
- 16:20comfort at the end of life. We're kind of accepting the fact
- 16:24that we're not going to do any more of those quote UN quote,
- 16:25heroic measures to save somebody.
- 16:28Not that cure, not that treatment and managing of a
- 16:31disease can't still be had because you can't.
- 16:33I've seen patients take like medications and stuff, but like
- 16:37invasive surgeries wouldn't be a thing in Hospice as much or
- 16:40invasive like tons of tons of chemo, for example.
- 16:43It's more of like here's pain management.
- 16:45You're not really feeling great. Instead of telling you you can't
- 16:48have this pain drug because you have to get ready for your
- 16:50surgery or whatever, you can actually have this pain Med and
- 16:53you can feel a lot better and you can be more present with
- 16:54your loved ones and you can feel like human again for a while.
- 16:59And so they, they'll have like a nurse that comes in every day or
- 17:03every couple days. It's not all, it depends on kind
- 17:05of the person, the patient. I believe we'll have a social
- 17:08worker come in like, again, it's kind of somewhere schedule like
- 17:10every couple days, once a week, whatever the schedule is.
- 17:13Same with the chaplain and the volunteers.
- 17:15And so as a Hospice patient, you're entitled to all of this
- 17:18and Medicare pays for it. It's like something that you get
- 17:20the government mostly does something right for a change.
- 17:23They. Interesting.
- 17:27So Yep, that makes sense. And I'm kind of picturing now my
- 17:31other guest Ben, like he would be on that team as like a
- 17:34Hospice chaplain and then OK. And then Yep, the visitors,
- 17:40'cause I remember I have a core memory of visiting a, a friend's
- 17:44mom and just being like, oh, what is this place?
- 17:47I think I was 15. And I'm like, oh, this isn't a
- 17:50hospital, but it's OK. This is like, and I think that
- 17:54was my first glimpse into OK, they're take like taking care of
- 17:59you as you transition out of life and it's such AI mean.
- 18:06I know death is very hard and tragic in a lot of ways,
- 18:10obviously, but it for me, it's the reason why I wanted to talk
- 18:15to you is because I think what you do is literally bringing in
- 18:19like light and love and comfort into the, a situation that is
- 18:25like, there's no worse adversity for me.
- 18:29You're dying, right, Even though it's your time and or maybe it's
- 18:34not your, it's, it's, I can't think of a tougher situation is
- 18:38what I'm trying to say that that you're assisting with.
- 18:43So I, it's, I commend you for that and I'll say it a few
- 18:49times. So.
- 18:53You mentioned something earlier that I actually want to veer off
- 18:54course and discuss. You said like in the very
- 18:57beginning of Recall your, you said like, oh, wow.
- 18:58I just keep like rambling or I keep saying like, oh, wow.
- 19:01Or do you get that all like, oh, wow.
- 19:02And when you said that, I thought to myself, yeah, people
- 19:04are kind of surprised by this work.
- 19:06And it's kind of interesting to me that they are because like
- 19:09then you also said, but death is the one guarantee, right?
- 19:13So if people are amazed by this work that I do, and yet we also
- 19:16know that it's the one guarantee.
- 19:17So like, why are we amazed when you're talking to a death doula?
- 19:19You know what I mean? It's totally because it's like
- 19:23we, you know what it is? I wonder, and I'm sure you have
- 19:25a few things to say about this. It's almost like we know it's
- 19:30guaranteed, but we we just don't really want to face it.
- 19:35That's why. And I saw one of your reels or
- 19:36even I think something just, or maybe we talked about it where
- 19:40you're like, I think we talked about it before we hit record
- 19:43it. Part of what you do is like help
- 19:45people get their affairs in order.
- 19:47And some people are like, it's like, why are we doing that?
- 19:50We're alive. Why are you being so dark?
- 19:52You know, like we're not dead here.
- 19:54Why are we planning? And it's like, but you will be
- 19:57for sure. That's the only thing we know in
- 20:00taxes, death and taxes. In taxes.
- 20:02Seriously. And you have an accountant, so
- 20:03why not have a death doula? Or you know what I'm saying.
- 20:06Yeah, I get that a lot. Like, people look at me and they
- 20:08say that I'm very young, and they joke and they tease and
- 20:12they giggle and they laugh and they say, Oh my gosh, are you
- 20:14planning to die soon? You're so morbid.
- 20:16And I'm like, no, but I know many people who are my age or
- 20:21younger who are dead through accidents, through violence,
- 20:24through suicide, through tragedy.
- 20:27And there are also old people who are dead.
- 20:29We're all gonna die. And it might not be as expected
- 20:32as grandma passing away in her sleep, which is what we all hope
- 20:35for, but not always what we get. And so like, if I die tomorrow,
- 20:39I I'm like naughty and I don't have my, my own.
- 20:42I'm working on my getting my own documents.
- 20:43I'm I'm like halfway done but. Because a lot of people, other
- 20:46people's in order, which is really.
- 20:48Nice for sure. And but it's like if I die, like
- 20:51my fiance doesn't know how to get into the bank account, like
- 20:54the passwords aren't documented, things like that.
- 20:55Like you wouldn't know where the power bill necessarily is.
- 20:59So it's like getting stuff like that just kind of documented and
- 21:04written down and like here's what I want done with this.
- 21:06Here's what I want you to do with that.
- 21:07Here's this, here's that, here's my wishes, here's all the
- 21:09logistical things that you need to function as a human after I
- 21:12died, because I handle some of these things on my own.
- 21:14So, you know, just, yeah, that was just kind of going off the
- 21:17route and speaking. But it's extremely practical and
- 21:21I think people don't want to look at death a lot.
- 21:26Maybe I mean, maybe I could be wrong and everyone listening
- 21:29could be like you're wrong. But I know I didn't want to look
- 21:32at death until very till till life and I just my whole I
- 21:39didn't I didn't want to accept the death.
- 21:41I was always afraid of it. Then I hit death.
- 21:44You know, adversity should hit the fan and you kind of start to
- 21:51look at everything. Once you once you hit a rock
- 21:54bottom, you're like, well, that was the worst.
- 21:57Let's face reality. Yeah.
- 22:00If I can face that, I can face reality.
- 22:03So and, and also the the one the other piece about this death
- 22:06conversation of like, yeah, it's uncomfortable and it's also
- 22:08practical to talk about it and uncomfortable and death is also
- 22:12very life affirming in the fact that it kind of sharpens the
- 22:15clarity and focus into like what matters Because like to, to make
- 22:19that woo woo like statement sound a little more relevant.
- 22:22I'll bring my fiance back into this.
- 22:24When he walks out the door, he he doesn't, he's not working
- 22:26right now. But when he walked out the door
- 22:27to his construction job, I would think to myself, what if he
- 22:30never came home? Like what if he had an accident
- 22:32on the job site? Do I want the last words to say
- 22:35to him to be some kind of nitpicky thing about the
- 22:36dishwasher? Maybe I'll just give him a hug
- 22:39and a kiss and say I love you and told him very, very tightly.
- 22:42And not that this would mitigate any grief if he died, but at
- 22:46least I wouldn't be kicking myself in the face saying, holy
- 22:49crap, the last thing you said to him was a nasty comment about
- 22:52the dishwasher. Do I still make nasty comments
- 22:54about the dishwasher? Absolutely.
- 22:56I do. I'm not perfect.
- 22:57But does just having that awareness make it so that I
- 23:00maybe do that just a little bit less?
- 23:01I think it does. So A. 100% it's the contract
- 23:06like it's seeing the the dark times in life and and looking at
- 23:12death and being aware of it when it makes the life more lively,
- 23:17more sharp, more it's it it provides a a great contrast.
- 23:23I think so. OK, so, and I'm gonna jump
- 23:28around here. So you your first, your first
- 23:32kind of entry into that world was through the Hospice
- 23:36volunteering after you were sort of disillusioned, like, and I
- 23:39totally understand that feeling of you don't want to be on the
- 23:43hamster wheel, right? Like you want to be.
- 23:45If you were to look at your life, you want to see this like
- 23:48person enjoying life and like going up down all around and
- 23:52falling, getting up versus I'd rather have it be messy in my
- 23:56own right. Like like at least you know it
- 24:00more alive, right. So you have that moment of
- 24:02realization, take me through like those first few experiences
- 24:08volunteering, if you can remember any, any experiences in
- 24:12that volunteer situation that come to mind for you.
- 24:16Yeah, I'd say so. I shadowed for a while and I
- 24:20don't know, I feel like there's some interesting commentary
- 24:22nowadays about the training that Hospice volunteers receive.
- 24:24It's not very standardized, so some programs will have really
- 24:27good training, some won't. I'd say mine was somewhere in
- 24:30the middle. Basically it was like, follow
- 24:32the chaplain for a day, follow the nurse, follow the social
- 24:34worker. Good luck, you're on your own
- 24:37now. Go visit people and it's fine.
- 24:39It's not like I'm expected to do much.
- 24:40I'm just supposed to sit there and chill.
- 24:44And so I followed around those three people.
- 24:48The chaplain was the last person I shouted and she introduced me
- 24:51to my first Hospice client. And it was a really sweet, sweet
- 24:56woman. And she actually did so well.
- 24:59I think I visited her for a few months and she did so well on
- 25:02Hospice that they discharged her, they kicked her off because
- 25:04she didn't die in six months. And that's actually kind of a,
- 25:07sometimes that's the thing that'll happen with Hospice
- 25:10care. They get, they almost start
- 25:11getting better because they're receiving like pain management,
- 25:14they're having their spiritual needs attended to, they're
- 25:16having their emotional needs attended to by just
- 25:18companionship with volunteers and the chaplain and the social
- 25:20worker. And that often it correlates
- 25:23with positive outcomes for Hospice.
- 25:24And so sometimes you'll see people get discharged.
- 25:27And that happened to her. She was super sweet.
- 25:29And then happened to another woman that I spoke with.
- 25:32And I loved that other woman so much that after she was
- 25:34discharged, I told my volunteer supervisor, I'm like, bro, I
- 25:38don't care. I'm going to keep visiting her.
- 25:39She doesn't. She's not in a nursing home.
- 25:42So there's no like, weird badges that I have to show.
- 25:43She lives in her house. So I can just, I can go.
- 25:46You told me I couldn't. You banned me from seeing the
- 25:48other woman after she was discharged because it's a very
- 25:50painful conversation to have with this old lady.
- 25:53And it was like a weird volunteer thing.
- 25:55And he's like, yeah, I'm sorry. I shouldn't have banned you from
- 25:57that. You can go go visit the other
- 25:59woman on your own time. Just don't log your hours.
- 26:02And she eventually did pass and that was very sad because I, I,
- 26:08I didn't know she, she got discharged with something she
- 26:10was doing so well that I was like, Oh my gosh, I forgot, I
- 26:12almost forgot for a minute that she was dying.
- 26:15So that was a lesson of like, you love people and they still,
- 26:18they tell you not to fall on all the patients, but it happens
- 26:20anyway. There were a handful of people
- 26:25that I visited that were later on in the dying process.
- 26:28And so they, they were non verbal, they were actively dying
- 26:32is what they call it. So they're, you know, within
- 26:34hours or days of death. That's just a natural thing.
- 26:36Humans just kind of get a little, we've kind of turned
- 26:39inward and we get sleepy and we get comatose and we don't talk.
- 26:42And that is when, in my opinion, you can still offer presents.
- 26:46And that is what I did. I just kind of sat quietly and
- 26:48read a book or hung out. But in my opinion, like I looked
- 26:53at Hospice and I loved what I did.
- 26:55And I also looked at Hospice and I saw that the workers were so
- 26:59overrun. And I saw that some of these
- 27:01clients were entering Hospice like way too late because
- 27:03everybody's afraid of Hospice, everybody's afraid of death.
- 27:06And so they, they, they show up to Hospice care like 2 days
- 27:08before they die. And then they don't get those
- 27:10like socio spiritual emotional benefits from like being able to
- 27:14talk to the chaplain and the volunteers and, but not because
- 27:18they're actively within days of death.
- 27:22And I looked at all that and I said to myself, I, I do want to
- 27:25keep doing this. And also, I'm in this death dual
- 27:28training and I'm learning the death duos can help way beyond
- 27:32just the bedside moments. They have that spectrum of care
- 27:36that comes far before death and far after death.
- 27:39And I was really attracted to both of those pieces.
- 27:42So yeah, that sounds like yeah, to to have an experience and
- 27:48then actually see gaps and then have that moment where you're
- 27:52like, wait, I can potentially fill those and like help people.
- 27:57That's really cool. And I, I was doing a little bit
- 28:01of research just about general about the process of dying and
- 28:04you mentioned that there are just a little bit of background,
- 28:07there are phases of dying and was it three or five phases?
- 28:12Is it like there's like active or it depends on the patient?
- 28:15Right. It kind of depends on the
- 28:16patient, at least in the at least what I was trained in or
- 28:19what I'm aware of. They just call it active dying.
- 28:22Sometimes the word is transitioning and that is it's
- 28:25hard to even put a time for Monica.
- 28:26It's different for every person. I've seen it take, I've seen it
- 28:29take like 2 weeks. Like after the person gets, he
- 28:32stops eating, they stop drinking, they fall comatose and
- 28:35they, they can linger for like a couple weeks.
- 28:37Normally it's not that long. Normally it's a couple days.
- 28:41And that's just the body's process of like the organs are
- 28:43shutting down. Everything's kind of, you know,
- 28:45coming offline. You you mentioned stages, almost
- 28:49wonderful thinking of stages of grief, which is a different,
- 28:51right? Yeah, and we can we can get into
- 28:53the grief part. So.
- 28:55OK, so you, I think it's interesting too.
- 28:59I literally never knew that people could potentially come
- 29:02out of Hospice. That is something new and
- 29:05amazing. That's really good to know.
- 29:09I want to get into, like I said, there's it's it's such an area
- 29:13where I think there's so many questions around death, right?
- 29:18The death within itself when you are sitting with a patient, can
- 29:25you kind of talk me through what is going through your mind and
- 29:31like what, what are you thinking about when you first are?
- 29:36Maybe, maybe we can start from like when you first are
- 29:38introduced to a patient that you know you're going to be with as
- 29:41a death doula, What it what goes through your mind?
- 29:44What's the process? So I'll, I'll back up here and
- 29:48explain my scope and the careers, my practice.
- 29:51And so right now while I do, while I am open to working with
- 29:55people who are dying. So that will be like the bedside
- 29:57care, like what you're saying. I haven't done that as a doula.
- 30:00I have done it in Hospice, but no one's actually hired me for
- 30:03that as a doula for a couple different reasons.
- 30:05And I'll explain why. Part of it's because I'm an
- 30:08advertised, part of it's because I had this really long gap
- 30:11between training and actually practicing part during which I
- 30:15went hiking for three months. And then also.
- 30:18Probably discovering life's. Yeah, there's a lot of in
- 30:22between that we haven't quite touched yet, but I'll, I'll
- 30:25answer your question in the sense of or sorry.
- 30:29So my scope is I mostly work with people who are grieving and
- 30:33I also work a lot of people who are writing their stories of
- 30:36their loved ones who are either already dead or they're still
- 30:40alive, but they're declining. They're probably on the way out
- 30:43and they're just trying to document the life stories.
- 30:45That's called legacy work. So that's primarily the two
- 30:47things I work in, but I definitely do want to work in
- 30:51the planning parts in the in the bedside care parts.
- 30:55It's just been difficult with like my job and everything else.
- 30:59But to go back to what you're saying and I'll just think about
- 31:02it from the Hospice point of view, you just kind of want to
- 31:07offer presents like it depends on where they are.
- 31:10But I'm going to guess if you were saying that they're like
- 31:11actively dying, they're not going to be able to really
- 31:13respond. However, the science says that
- 31:17hearing is one of the last things to go.
- 31:19So there is a chance that even if they cannot speak and they're
- 31:24not and their eyes are shut and they're not looking at you or
- 31:26blinking or anything, there is a chance they could hear you.
- 31:30So you could choose to maybe either speak softly, you could
- 31:33choose to read if if you if you know that this is something that
- 31:35they like because they've written it down or they said it,
- 31:38or that's your loved one. Like maybe they love reading
- 31:40like a particular book from the Bible.
- 31:43Maybe they love poetry. Maybe they like this particular
- 31:45song a lot. Maybe they've requested that you
- 31:48play this particular movie and just like listen to it in the
- 31:50background. Or if you don't know these
- 31:52things and like as a Hospice volunteer, I would go into these
- 31:54rooms not knowing anything about these people And I would just
- 31:57err on the side of, hi, my name is Nikki.
- 32:00I'm a Hospice volunteer. And this is kind of kind of kind
- 32:03of weird, but I'm here to just spend some time with you.
- 32:06If that's if that's OK. I'm going to sit here for a few
- 32:09minutes and they can't really say yes or no, but you, you, you
- 32:15do assume that if they're the kind of person who doesn't want
- 32:18that, that they've requested privacy before they've become
- 32:22and then like, and then at that point, like the Hospice nurse
- 32:24would tell you, hey, don't, don't go in there.
- 32:26They don't. They don't want anybody in
- 32:27there. Got it, got it.
- 32:29Which is helpful to have to know if the plan ahead of time,
- 32:32right, for sure you can just follow.
- 32:34That's such a beautiful. I actually, as you were
- 32:36explaining that or telling that story, I was imagining you
- 32:40walking in and like, whether they, whether they can hear you
- 32:46or not, and I'm sure a lot of the times they can.
- 32:49What a, it's incredible for someone to do that for somebody.
- 32:55Do you know what I mean? In their final hours And like it
- 32:58just, it's a, it's just a really great reminder of like presence
- 33:04is sometimes just enough like someone next to you, someone I
- 33:09just, it's just a really, I think it's so needed in in
- 33:13today's world, like just to sit with somebody, be like, I don't
- 33:16know you, but we're both human and I'm going to be dying one
- 33:20day. And so I'm going to sit with you
- 33:22and make this experience as as best as possible.
- 33:27And hopefully someone will do that for me.
- 33:29Yeah. And, and like, that's one reason
- 33:31I really again, like gravitate towards the dual work and like
- 33:33even end of life care work. That was before the person felt
- 33:37comatose and like was actively kind.
- 33:39Because then I would know if they had documented it or if I
- 33:42was the one who knew them personally.
- 33:44Like, oh, here's what I can do when they're actively dying.
- 33:47I'm not just sitting there perch like an awkward little, like
- 33:48it's not always awkward. It's I'm trivializing a little
- 33:51bit, but it's, it's nice to have that knowledge of like this is
- 33:55definitely what would bring them comfort.
- 33:57Because for me, I I've thought about my own death.
- 34:00I'm like, if I am dying and I'm still aware that I'm dying, but
- 34:03I want to be able to hear stuff. I want to listen to like the
- 34:05Lord of the Rings soundtrack. I love those.
- 34:07The film score is gorgeous. And now it come from me and
- 34:11inspire me. So yeah.
- 34:13And like a Hosta sponsor wouldn't know that unless they
- 34:17know. Exactly.
- 34:18Yeah, it's a beautiful. Honestly, I'm going to think
- 34:24when we are done talking, there's going to be so many
- 34:26things I'm thinking about, but logistically I'm going to be
- 34:28like, huh, I can write that down pretty quick.
- 34:31Like I, I kind of know I just have never really written it
- 34:34down, you know? Yeah.
- 34:36So thank you for reminding of that.
- 34:39And so it's it's a presence. And then when you were in the in
- 34:43Hospice and when you're working with people now too, just
- 34:47documenting all of that, how do you find like when you were in
- 34:51the Hospice specifically, you probably you met people, family
- 34:57members, friends of the person in all kinds of emotional
- 35:01states, right? Or was it?
- 35:03Was it? Honestly, I feel like I do that
- 35:05more now in my dual work in in my Hospice volunteer work.
- 35:08If I saw a family member in there, I often wouldn't go in
- 35:11the room because I'm like, I don't want to disturb their
- 35:14time. I don't remember if I was ever
- 35:16taught that. I might have been explicitly,
- 35:18but I also might just felt like, you know, I don't, I'm, I'm not
- 35:21their daughter. I'm not going to impose myself
- 35:24into their sacred time. So I would you should just be
- 35:27like, all right, I'll tell my volunteer supervisor, hey, I'm
- 35:29not doing this shift because the daughter or the family members
- 35:32there. So I left.
- 35:33Yeah, and you read energy and you probably are like, I'm sure
- 35:36you're like whether they're telling you or not.
- 35:39But have you encountered like now when the work you're doing,
- 35:43'cause you're people are, you know, writing memoirs, all that
- 35:46stuff, right. Like their their story.
- 35:49How do you see? I guess my, my, I'll be a little
- 35:52more clear with my question. What kinds of emotions do you
- 35:57see around death? Like if you've got a sense like
- 36:03how, how are people looking at death these days based on you,
- 36:05what you've experienced? Depends on the person, depends
- 36:10on the environment and what you ask.
- 36:11If you go ask a death duel on Instagram, you'll get some
- 36:14really hippie, progressive, beautiful answers, very holistic
- 36:19answers. If you go ask just the regular
- 36:20Joe on the street, it might be a little more difficult of like,
- 36:24kind of like what you were saying earlier, like, oh, I kind
- 36:26of just don't want to talk about this or this is really scary or
- 36:29this is just yucky. For clients who come to me to
- 36:34work on memoirs for their loved ones or just like they're not
- 36:37always memoirs. Sometimes they're smaller.
- 36:38They're like photo books. If the client can't, isn't
- 36:41capable of interviewing, which I've had that happen before,
- 36:44they come in like so members are very happy to work with me to
- 36:49document the story, to give their loved one voice.
- 36:51There's also often a lot heaviness.
- 36:54I, I did, I was very privileged to witness it like a
- 36:59transformation like within this family of a couple different
- 37:01siblings when they hired me to tell one of their parents
- 37:04stories and just being able to talk to them because I actually
- 37:08didn't interview the dying person because that person at
- 37:10that point was beyond interviewing.
- 37:12But I interviewed the siblings and I interviewed the spouse and
- 37:14I interviewed like the sibling of the person who was dying.
- 37:17And they told me after, like, this was good for us to do this,
- 37:21just to like, relive all these happy, happy memories of my
- 37:24parent or of a parent and remember that that this person
- 37:27is more than the person that they're, that they are now like
- 37:30this shell who is slowly diminishing and shutting down.
- 37:34And they they were hardened to remember that this person was
- 37:37once a vivacious, full of life, incredible caretaker, provider,
- 37:42nurturer. I remember thinking, like, that
- 37:45was really cool just to see that they came to me and, like, a lot
- 37:48of angst and stress and feeling like that person's voice wasn't
- 37:51honored. And then in the end of it, they
- 37:52were like, yeah, it was really healing for us just to be able
- 37:54to talk about these stories. That is that is cool, that feeds
- 37:59your soul when you're like, you were a part of not only creating
- 38:05the story that lives on forever, right?
- 38:07But I think it was just beautiful by the way that you're
- 38:10like as a writer, like so much respect for that.
- 38:12And then just to help a family, like through not only a death,
- 38:19but like, families are complicated, you know?
- 38:22Like. I don't care who you are, sorry
- 38:25if you if you say your family's not complicated.
- 38:27I'm like, how close are you if you're not a come on now.
- 38:31Yeah. And my, my family, we're all,
- 38:33I'm like crazy, but I, I just think it's because because the
- 38:39aspect like you, you handle obviously in the moment as a
- 38:43death doula, you will be handling like the actual process
- 38:47and comforting of that person. But I love that there's so many
- 38:51facets to your work that you're like, I can also help you with
- 38:56writing the story of your loved one.
- 38:58I can also help and you also help people in the death doula
- 39:03death like that industry create websites, right?
- 39:07Like what's cool is because you know all the the areas of it.
- 39:12I, I just have my interest just happened to intersect in some
- 39:15very beneficial ways. I mean, like I said, I'm a
- 39:17graphic designer. That's my day job.
- 39:19And I found out, oh, it's I, I, I very much can speak with this
- 39:21demographic because I don't need to research on a death duo as I
- 39:24already know. I know how to position us on the
- 39:26website because I do it myself. I know what good design looks
- 39:29like because that's what I do. And then for the writing and the
- 39:32memoirs and the books, I just have always loved writing and
- 39:37I've just always been creative. And I feel like doulas are
- 39:40inherently pretty people who wear many hats.
- 39:45I, I'm not an exception. There's a lot of the doulas I
- 39:47know do a million things some of them do like massage.
- 39:50They incorporate that into their practice.
- 39:52They incorporate Reiki or any kind of like energy going into
- 39:55their practice. They incorporate like Swedish
- 39:57death cleaning, like organizing the house after someone dies.
- 40:00And those are all things that I don't really do, but like I know
- 40:02I can list like fight for doulas who do all of those things.
- 40:06In addition to the oh, in addition to the just oh, we sit
- 40:08there while they die kind of thing, there is so.
- 40:10Many yeah, see, This is why it's cool.
- 40:13Like this is a whole world. And by the way, you even
- 40:17mentioning those things now, I'm like there's so there's I didn't
- 40:21know there's like support for you, for people that are dying
- 40:25and the people that are grieving and like, you know, our society
- 40:29like be tough. And obviously now mental health
- 40:32conversation, everyone's reaching out more, but there's a
- 40:36whole aspect of the when someone is dying or when you're
- 40:41grieving, that's a whole nother world, you know?
- 40:46And resources exist, but they're not they're not pushed upon us
- 40:50or spoken about as highly as other resources.
- 40:52And it's great that other resources are highlighted in our
- 40:54world. But I, I wish that there were,
- 40:56there was more care given to people who are grieving, who are
- 41:00grieving traumatic loss, who are grieving just regular like pet
- 41:03death, who are grieving the fact that grandma died just grief or
- 41:07death or any of it. And those resources, they exist,
- 41:09but they're like under a rock and you have to know how to find
- 41:11them. And it's hard.
- 41:12You don't know what you don't know.
- 41:14It's really interesting that you said pet death because and she
- 41:18will love that. I'm giving her a shout out.
- 41:20She's I'm interviewing a guest that is now following you since
- 41:24I posted. I posted a story about you and
- 41:28I'm connecting this. You'll be like, why are you?
- 41:29I'm going to bring it back in one second.
- 41:32The pet death reminded me of her because unfortunately she just
- 41:34lost her dog a few days ago and he's like cute is it?
- 41:38I'm interviewing her Friday because she has gone through
- 41:42some narcissistic stuff and all that.
- 41:44And then her and I was just looking at her stories like of
- 41:48her dog and you know, I love my dog and I'm like tearing up at
- 41:51the coffee shop and I'm like, I'm like, and then I saw she was
- 41:56following you and I thought to myself, I'm so glad she's
- 41:59following her because she's grieving.
- 42:01She's grieving this beautiful dog that has been her buddy
- 42:03through a lot of stuff. And then I thought about my.
- 42:08I think so because she I'm just like, thank you for bringing
- 42:11attention to like, I know I just took a pivot from people to to
- 42:15pets, but pets are a huge source of grief for people when you
- 42:20lose a pet. Mm hmm.
- 42:22They become. There's a lot of science in the
- 42:24grief world about like attachment figures.
- 42:27And so when parents die, everybody's like, oh, well, it's
- 42:29the, it's the natural state of the order that parents die.
- 42:32But then, and clients are going to be saying that and I'll
- 42:34remind them, excuse me. They're also a prime attachment
- 42:37figure that you've had for your entire life.
- 42:39And honestly, pets kind of not that they're our parents, but
- 42:42pets become that source of like an attachment figure in our
- 42:46brain cells, in our nervous system of like this little
- 42:50critter, this little soft fluffy love bug.
- 42:53I can hold on to him or her when I'm sad.
- 42:56And they like regulate me and they call me and they're part of
- 42:59my routines. Like I feed them, I walk them.
- 43:01And now all of a sudden, poof, they're gone.
- 43:03And if anyone thinks that's not a disregulating experience that
- 43:07brings up grief, then clearly they, they've never loved and
- 43:09lost a pet. I have, I still, I keep him, his
- 43:12little ashes on my shelf there. And I still can't read about the
- 43:15Rainbow Bridge without crying because I'm like my little cat.
- 43:17Oh, I know. I saw.
- 43:18When I saw she had posted a bunch of pictures and then that
- 43:21one I was like OK. OK.
- 43:23And my little guy's sitting right there and I, I have so
- 43:27attachment figure that is so interesting to me.
- 43:31So we all have attachment figures.
- 43:33Yeah, I'm not trying to say that pets are attachment figures.
- 43:35But I'm just trying to draw. It's mine.
- 43:39Yeah, well, I'm just like the the people have people are
- 43:42starting to agree that when parents die, like, yes, it's the
- 43:45natural order of life. And also it's still really
- 43:49friggin hard because of the fact that your brain has been wired
- 43:54to like look to them. I don't care if you're a grown
- 43:57up. I don't care if you're 50 years
- 43:58old when your mom dies, it's still a big deal.
- 44:01It's still a big deal to your body, to your nervous system, to
- 44:03your brain chemistry, to your to everything.
- 44:06And again, not the pets are that, but they can take up a
- 44:09similar role of like that attachment in your in your
- 44:12chemistry, in your body, in your cells.
- 44:14And so when they die, everybody minimizes always just a dog.
- 44:18And then that's when I, that's when I start talking about the
- 44:19grief Olympics, which is what happens when everybody's like,
- 44:24and this is kind of why I avoid grief groups.
- 44:26I, I'm sure that's something that some people love, but I, I
- 44:28personally prefer one-on-one care, but sometimes in grief
- 44:31groups, they can get away from productivity and it becomes the
- 44:35Greek Olympics where people are like, oh, well, your dog died.
- 44:39That's not as bad as my grandma dying.
- 44:40Oh, well, your grandma died. That's not as bad as my mom
- 44:42dying. Oh well, your mom died.
- 44:44That's not as bad as my child dying.
- 44:45And they just, it's just I people do that outside of grief
- 44:49support groups, that people do it to themselves.
- 44:51They invalidate their own stuff. And it's like, why don't we just
- 44:55say that everyone's grief is their grief.
- 44:57I'm not saying you go to someone who just had his child died by
- 44:59suicide and said that your pet is the same as that.
- 45:02I'm just saying that right now, in this moment for you, your
- 45:06grief of your pet is your grief of your pet.
- 45:08And you're allowed to feel sad about that.
- 45:11And you're allowed to cry your eyes out and feel horrible.
- 45:13Like there's no grief Olympics here.
- 45:15So. That's such a good term and I'm
- 45:18never going to forget that. Wow, it's not I can't.
- 45:21I can't claim credit. I've seen it in multiple places.
- 45:24I get a great Olympics. You're not like just feel the
- 45:28feeling because it's, it's real, because it's valid.
- 45:31Like it's just, yeah. You love the little critter,
- 45:35therefore it's valid. When you're in, the critter dies
- 45:37and you're really talking about it.
- 45:39We're human. We're human.
- 45:42Wow. OK, so you've got that's so
- 45:45interesting and cool that you've got that multifaceted aspect
- 45:50where you're doing design, you're you're helping out with
- 45:53like writing the the stories, you're counseling, you're
- 45:59supporting, you're helping people get their their ducks in
- 46:04a row. They're and tell me a little bit
- 46:07again, I'm jumping all over. Welcome to my brain.
- 46:10If somebody's listening and they're like, wait, I, I don't
- 46:13know if I'm ready to face Seth yet, but I do want to know what
- 46:16more of that get your ducks in a row thing.
- 46:18If I ever thought to do it, what would I have to do?
- 46:23Yeah, there's places where you can do that.
- 46:26You could go at fivewishes.org.com.
- 46:30You can check, I can check the link and give it to you.
- 46:33That's a pretty good resource. It's pretty thorough.
- 46:34It's like a little packet of things and it's the five wishes.
- 46:37The fact I can't remember what they exactly are, which is bad,
- 46:40but they're like, I wish to be like this.
- 46:43I wish I can't. I'll have to double check this.
- 46:45Cover all your bases. Yeah.
- 46:47And it's basically basically what it does is it outlines like
- 46:49preferences for medical care, like I wish to be free of pain
- 46:52or something like that, or I wish my medical preferences to
- 46:53look like this. And so there's a couple legal
- 46:56documents that you fill out in there of like, I don't know if
- 47:00you know what an advanced care directive is, but that's OK.
- 47:02Yeah, so that's part of it. There's it'll say like I'm
- 47:08trying to think about this. It can get really granular of
- 47:11like when when people are here's the people I want to visit me
- 47:14when I'm dying. Here's people who I maybe don't
- 47:16want to visit me when I'm dying. When you're visiting, here's
- 47:18what I'd like you to do. Maybe don't have your cell
- 47:20phones on or maybe don't take a phone call in the room.
- 47:23Or maybe like you can share happy memory if I can't talk or
- 47:27maybe leave politics at the door, you know, like little
- 47:31nitty Gritty's like that. And then more broadly, you could
- 47:34plan like a funeral. That's part of the end of life
- 47:36care planning process. I want to be cremated.
- 47:39I wanna be buried. I wanna explore green burial.
- 47:42Like, options that are not the typical.
- 47:46Yeah, try to think what else is there?
- 47:49Yeah, It can get pretty much as detailed as you want.
- 47:51Like, again, you can be like, here's the kind of soundtrack I
- 47:54wanna listen to. Here's the kind of music you
- 47:56should play when, like my mother has said that when I die, you're
- 48:00not allowed to wear black. You all got to wear yellow or
- 48:02something bright and you can carry flowers and no one's
- 48:04allowed to be sad. And I told her I'm like, well,
- 48:07OK, that's not. That's a very unreasonable.
- 48:09Request. I'm going to be messed up but I
- 48:12will do my best to wear pretty colors even though I'll be like
- 48:14deliriously sobbing the entire time but like things like that.
- 48:18And she hasn't really documented that, but I'm trying to poke her
- 48:21like, hey, we should probably maybe write these down because
- 48:23I'm not going to remember it when you're dead, so.
- 48:26She's like, honey, I know you'll take care of me.
- 48:28You're like, but you still got to write it down.
- 48:29Mom, I need. You.
- 48:30Yeah. And like they and they've also
- 48:34verbally told me things about like their finances and their
- 48:37assets and where they want that to go.
- 48:38And I've told her point blank. I've said do not tell me that.
- 48:41Put that in a will you need to go talk to someone because I'm
- 48:44not going to remember when that happens.
- 48:46I also don't want to be on the hook when that happens.
- 48:48Like my word against my dead mother's words.
- 48:51This seems to be documented. She's like, yeah, yeah, yeah,
- 48:52I'll do it. So yeah, for sure.
- 48:55It's so it's the, if you want to go as, hey, I just want the,
- 48:58the, the five bases covered. You can do a go check that out
- 49:03or you could get as detailed as you want.
- 49:05But I think the the take away for me of what you're saying is,
- 49:09is if you're somebody who's a planner, even if you're not, or
- 49:14if you're somebody who would like to make it easier on the
- 49:17people around you should anything happen And when
- 49:20something happens, not should when it does, why not plan that?
- 49:25If you're planning all your vacations and you're planning
- 49:27your stocks and your, your meals and your getaways, why not just
- 49:33plan one more thing real quick? You only have to do it once.
- 49:36For sure. And then like a quick caveat, I
- 49:39don't know if I mentioned it yet, but dualists are not
- 49:40attorneys. So for things like, for things
- 49:43like the will, like a state that would be like go hire an estate
- 49:46attorney. But what the tools would do is
- 49:48they could facilitate like, hey, you should probably go hire an
- 49:50estate attorney. They're the ones who tell you
- 49:52there's connections of like if you want me to research someone
- 49:55near you, I can do that. It's up to you to go to the
- 49:57appointment. But like we're the ones who tell
- 50:00you, oh, this is what needs to happen next.
- 50:01And it's like a step by step chart as opposed to we don't
- 50:03always do all of it. There are certain things like
- 50:06I'm saying like the medical and the legal, they're out of our
- 50:07realm, but we can be like, here's what you need to go do.
- 50:11It's a checklist. Well, and it's like, I, I've had
- 50:14two kids and the first time I heard the word doula was about
- 50:1710 years ago. Maybe maybe I'd heard it, but I
- 50:19didn't really know what it was. And then when I was pregnant
- 50:22with my son doing classes and stuff, they're like, oh, you can
- 50:25get a doula. And I'm like, oh, what's a
- 50:28doula? And then like, oh, you, that's
- 50:31really cool. Like someone to be there,
- 50:33they're not medical, they're not legal, but they're going to your
- 50:37baby coach, your baby, your, I'm sure I'm saying all the wrong
- 50:41things, but it's makes sense that why not have support when
- 50:47you're having the baby and then why not have support when you're
- 50:51grieving or when we know we're all going to go through that.
- 50:57Like that's my biggest qualm is that we have birth doulas and
- 51:00people do know about them. Not, not, not as much as I would
- 51:03think, but people we have birth doulas, but we don't have death
- 51:07doulas. And if we do sometimes work,
- 51:08sometimes they're like end of life doulas.
- 51:10And I'm like, no, no, no, no. We don't call birth doulas
- 51:12beginning of life doulas. We call them birth doulas.
- 51:15I am a death doula. Yeah, different strokes,
- 51:18different folks. Some people have their reasons.
- 51:19I'm not here to judge, but I feel very strongly about that.
- 51:22Yeah. Myself anyway the.
- 51:24Two most important, well, not maybe not most important, but
- 51:28the the entry point to life and the exit or the transition,
- 51:32whatever, whatever you want to call that, that just so
- 51:38important. And I know after this
- 51:40conversation too, like I'm not going to think about things the
- 51:43same way. I'm already like, I'm already
- 51:45like this is this happens every week.
- 51:47I'm like, I have to change a lot of things.
- 51:49Like I just I learned so much from every guest.
- 51:52So we've talked a bit about what you do.
- 51:56And again, if anyone listening would is intrigued and would
- 51:59like to know more than we can cover because we can't cover
- 52:02everything you do in one episode.
- 52:04But please check the show notes because there's all kinds of
- 52:08information and I've loved watching your reels too.
- 52:11And just you answer questions. You kind of talk through like
- 52:16misconceptions or things where I'm like, oh, you really give
- 52:20people insight into things surrounding death, grief, how
- 52:27society views it, how to cope. You just like open the door for
- 52:31conversation about this really scary topic for a lot of people
- 52:37that paralyzing for a lot of people, right?
- 52:41What are your, and again, I know as a death doula, you respect
- 52:45everybody's thoughts on death, I'm sure.
- 52:46And like what whatever their beliefs are spiritually like,
- 52:50how would you describe your view of life and death?
- 52:53Like how do you look at life? How do you look at that like?
- 52:57And again, there's no I hope that's not too invasive of a
- 53:01question. I look at it with curiosity and
- 53:04with a sense of it's OK to not know because I just won't know.
- 53:08I I am Christian. I'm also questioning things and
- 53:19I think I've come to the conclusion that I don't have to
- 53:22know all I have to do it all I'm called to do.
- 53:25As someone who like loves Jesus and tries to be a Christian
- 53:29who's not, one of the horrible ones is I think I'm called to
- 53:34not know the answers to all these things and not necessarily
- 53:36know what happens to me after I die.
- 53:37But I just am called to love people and serve as best as I
- 53:41possibly can. I definitely, this is kind of
- 53:45off track, but I definitely love that phrase.
- 53:47The serenity prayer. What was it?
- 53:49Give me the courage to change what I can.
- 53:52The wisdom or the gosh, I've messed it up, it's OK, except,
- 53:57yeah, it's right. It's trying to accept the things
- 53:59I can't change and the wisdom to know the difference exactly,
- 54:03totally. I do resonate with that a lot.
- 54:05Yeah, And you know, I too, I, I was raised Catholic and again,
- 54:09like I've had people of all faiths on this podcast and I
- 54:13love that. I love, you know, I myself was
- 54:17raised Catholic and then just kind of like traditional, kind
- 54:21of like, you know, East Coast and then we went to church, but
- 54:23it was very cultural kind of. And I would always look at Jesus
- 54:27with like this big thing and being awe, but not really
- 54:30connecting. Like and then I've gone through
- 54:33a big, big spiritual transformation where I've had
- 54:37some amazing experiences. But I love hearing about
- 54:40everybody's views because we all like, I think we're all like,
- 54:46wake up at some point in your life and we're like, wow, I'm
- 54:48here like today, like, what is all this like, what are we doing
- 54:53right? Like, And I personally feel a
- 54:56connection in the last year to Jesus and such.
- 55:01Curiosity though, like that is such the word where I'm like,
- 55:05I'm just beginning to get to know this guy Jesus and like
- 55:09just curiosity about what other people think, what they've
- 55:13experienced, curiosity about the Bible, curiosity about different
- 55:17religions. Like so it sounds like, yeah, I
- 55:21mean you, it's not something that death obviously is is on
- 55:27your mind and and you're helping people through it.
- 55:31But I always just like to kind of get to know how people view
- 55:35it because the truth is we all, we all have to have that faith
- 55:39of some sort, right? I think there's faith in
- 55:43something. Maybe it's faith in not knowing,
- 55:44faith in in connections with humans, like whatever that is
- 55:49for you, you know. Oh.
- 55:50Yeah, I definitely describe myself as a person of faith for
- 55:52sure. It's just sometimes that
- 55:54definition shifts. Sometimes the definition doesn't
- 55:56mean what maybe a, you know, an an evangelical Baptist who's
- 56:00very entrenched you might think it means, and that's fine.
- 56:02That's not that's not necessary. There's to know it's mine to
- 56:05carry and mine to hold. And I I one of the biggest digs
- 56:09against Christianity or faith in general is when when people
- 56:13fixate on the people bypass the whole death conversation because
- 56:17they're like, oh, well, heaven's a thing.
- 56:19And OK, you know, I'm not going to debate whether or not it's a
- 56:24thing, but people will be like, it's fine.
- 56:27This, this, this sucks. And then there's heaven or like,
- 56:29it's fine. I don't know.
- 56:31Like they'll just use it as a way to avoid the stickier
- 56:33conversations around death, around impermanence, around
- 56:37being a good person and living your life here now.
- 56:40Because it's like, oh, I got a life better that's coming up.
- 56:42And I'm like, OK, and you're also here.
- 56:46What are you going to do with that?
- 56:47I don't know if I think you're missing the point of what Jesus
- 56:50and God and all of them said. If you're just looking to get
- 56:53out, get out of earth and go to heaven, and I'm like, you're
- 56:57kind of missing the point. But that's just my thoughts.
- 57:00I just find it's a bit. It can get a little bit
- 57:03interesting. At that point, yeah, that's a
- 57:05great point. And why not?
- 57:07Like if you do believe that you're going to go to heaven,
- 57:11why not make the the road there is beautiful as possible and as
- 57:16painless as possible, Not only for you, but I think just had a
- 57:21realization. If you are making plans and and
- 57:24they know everyone around you knows what your plans are, they
- 57:27can maybe exhale a little bit knowing that, hey, I know this
- 57:31is awful, but her plans are definitely being like, I'm
- 57:35seeing them unfold and this is right on track.
- 57:38At least we have that. A lot of grief that I see with
- 57:41clients after, you know, someone's died, like a good
- 57:44amount of it is guilt and shame that has nothing to do with the
- 57:46death. But it's it's like, oh, well,
- 57:48this didn't happen the way like what what if, Like what if this
- 57:51wasn't what they wanted or I did this wrong or I don't know if I
- 57:54did this right. And it's just like the second
- 57:56guessing and the swirling around of brains that happens is not,
- 57:59not that that's going to be completely ameliorated if people
- 58:02document their wishes, but it could be reduced a little bit.
- 58:06I've seen. Why not one less 1 less thing,
- 58:12right to have to, to grieve or or have shame about whatever
- 58:17that whatever that feelings might be.
- 58:20Gosh, I, I mean again, it, it's I'm just really glad that I
- 58:26already even. I think the more we talk about
- 58:29it too, like the more you talk about something.
- 58:32And on this podcast, I'm not one to shy away from topics that are
- 58:36not, you know, in the daily vocabulary.
- 58:39I think in fact, I welcome that even more because I think if
- 58:44people are avoiding talking about it, there's there's a
- 58:47resistance and a fear that obviously needs to be addressed.
- 58:52You can still feel fear and talk about it as a doula.
- 58:56People are often like, Oh well you've got all your death shit
- 58:58figured out, you've got all your grief shit figured out.
- 59:00No, I cry a lot because of grief or I'm scared because of death.
- 59:06And I'm still trying to face those things in the ways that I
- 59:09face them. And I, I feel like my education
- 59:12and my training gives me a bit more of a heads up on how to do
- 59:15it. But I still don't know the
- 59:17answers. And I'm still human and the
- 59:18feelings are still there and I'm still sad.
- 59:20So yeah, for sure. Talk to me about.
- 59:24That's such a good point because it's like just because you have
- 59:28studied and you have been in situations around death and you
- 59:33talk about it to people does not mean that you're immune to the
- 59:37anxiety around it that comes or the, you know, those feelings.
- 59:41Talk to me about grief. Like I know there's many stages
- 59:47of grief. I'm just going to let you talk
- 59:50to me about grief and how you think about grief.
- 59:55You feel grief when you've loved a lot.
- 59:58Obviously that goes to that saying.
- 1:00:00It's almost impossible to avoid grief, I think because of that
- 1:00:03fact, whether it's pets or seasons of life that you're
- 1:00:07grieving or old identities that have died.
- 1:00:09I've grieved those things. I've grieved people who have
- 1:00:12died. I there's also anticipatory
- 1:00:14grief, which is when you know that someone is going to die.
- 1:00:18Usually it's like an old, an older parent who's declining and
- 1:00:21you're getting ready, Oh, this is it.
- 1:00:22Maybe a year. Then this isn't going to last I
- 1:00:27feel like. I am steeped in that kind of
- 1:00:29constantly just anticipatory grief with my loved ones who I
- 1:00:33know are older. And it can get very difficult,
- 1:00:39especially when I talk to clients who poke at that thing
- 1:00:41because they are wrestling with something similar or because
- 1:00:44they're talking about like parent death.
- 1:00:47And I'm like, this feels like how I'm going to I don't want to
- 1:00:51cry in my client session. I'll just do that afterwards.
- 1:00:55So yeah, it's a very broad question with, I guess a very
- 1:00:58broad answer. I mean, I've grieved the fact
- 1:00:59that I'm adopted. Like I'm Chinese and my last
- 1:01:03name, my Italian last name that's hard to pronounce is my
- 1:01:05dad's, who's a good old Italian boy from Jersey.
- 1:01:09And my mother is a southern gulf in Florida.
- 1:01:11And they couldn't have kids and they adopted back when China had
- 1:01:15the one child policy 30 years ago.
- 1:01:19And so sometimes I, the other day I was sad because I'm like,
- 1:01:21I'm never going to have the same face as my mother.
- 1:01:24I won't get the gift of getting older and seeing her smile on my
- 1:01:30face. So when she dies, I won't be
- 1:01:32able to like my friends will have that.
- 1:01:35My fiance will have that with his family.
- 1:01:37And that it's like little things that people don't even think
- 1:01:39about because they're just used to looking like their parent.
- 1:01:43And they complain that, oh, my mom, I have my mom's buck teeth
- 1:01:45or have my mom's stupid fat thighs or something nasty about
- 1:01:48themselves. And I'm like, it's kind of a
- 1:01:51gift. I don't have that.
- 1:01:52And I'm kind of sad about it. You know, there's like little
- 1:01:56things like that come up again, like anticipatory grief, just
- 1:02:01random things. And you just kind of sit with it
- 1:02:03and go with it. There's really no way to
- 1:02:05sometimes you're just like, yeah, I'm having a griefy day.
- 1:02:08It's not debilitating me. I, I haven't lost someone that
- 1:02:13it's not like I lost my partner. I walked with my grandfather
- 1:02:16through his death. I saw him pass.
- 1:02:18That was very sad. I feel like, I feel like I've
- 1:02:20had a lot of grief that stems from regret actually.
- 1:02:24Again, the older I've gotten, the more I miss him and the more
- 1:02:28I wish that I wasn't a bratty teenager when he died and I was
- 1:02:31and he was here now so I can tell him about the work that I'm
- 1:02:33doing cuz he'd be so into it. I'm so I grieve him and I feel
- 1:02:37like that grief has gotten sharper as I've gotten older and
- 1:02:39further away from his death. It's like the 10 year
- 1:02:41anniversary was this year or last year and instead of it
- 1:02:46fading or forgetting, it's gotten worse.
- 1:02:49And it's like, you know what, that's just how it is.
- 1:02:50It's it's not something I'm upset about, it just is.
- 1:02:55And if I have to cry about it, I'll cry about it.
- 1:02:57And I do. And I cry about a bunch of
- 1:03:00random griefy things. Does that answer your question?
- 1:03:05Very long thank. You no, and I know it was a very
- 1:03:08broad question, but I again want to thank you.
- 1:03:11I always thank my guests when thank you for sharing the fact
- 1:03:15that you're adopted. I've, I've had, I have a now a
- 1:03:20beautiful connection to the adoptee community because I've
- 1:03:26had, let's see, Julie Brumley, Wilson Munsterman, Jim Serrano,
- 1:03:32and I'm missing. Oh, let's see, gosh, if I'm
- 1:03:39missing, I've had at least three adoptees on the podcast and I
- 1:03:46just, I have learned so much about what what someone who has
- 1:03:53adopted goes through and grieves just from hearing their stories.
- 1:03:58And so you, you talked about your Italian dad and I think it
- 1:04:04must be that that is adversity even regardless that that's
- 1:04:11something that's very challenging.
- 1:04:14And, and I, I actually, I wasn't aware of that.
- 1:04:19And so thank you for sharing that.
- 1:04:20I appreciate you sharing that. Yeah.
- 1:04:24Speaking of adversity, I feel like we still haven't talked
- 1:04:25about one of the main adversity reasons that I like that kind of
- 1:04:31true. And so like that the hike that
- 1:04:33kind of is connected to this death work in a weird way.
- 1:04:35I don't know if we even got into that yet.
- 1:04:37No, please, let's Well, no, I just there, we're going to like
- 1:04:42every one of my guests, like we're going to have a Part 2 and
- 1:04:44a Part 3 because you're going to have to come back, but talk to
- 1:04:47me. OK, So like you, oh gosh, so
- 1:04:50talk to me. You're a hiker as well.
- 1:04:53And so I'm I feel like that's a spiritual, a spiritual passion.
- 1:04:59Most hikers it was. One of the reasons that I didn't
- 1:05:01get the experience as a doula back in 2019, what part of it
- 1:05:05was because from 2019 to 2022, I just was crippled by imposter
- 1:05:11syndrome and I didn't feel like I could practice.
- 1:05:15So I just didn't. I read a lot of books.
- 1:05:18I did the trainings, and it was great.
- 1:05:19And I had all this knowledge, but I wasn't sure what to do
- 1:05:21with it. And I had quit Hospice
- 1:05:23volunteering at the time. And I was living in Baltimore
- 1:05:25with a guy who wasn't the best. And at some point he was like,
- 1:05:33hey, I need a break. This is kind of random, but get
- 1:05:36out. We're we're, we're going to take
- 1:05:38some time. And I'm like, oh, I mean, I knew
- 1:05:41we had some issues. I knew we fought a lot, but why
- 1:05:43didn't you dump me when we were fighting and not like when
- 1:05:45actually things are pretty OK. And during that break I was
- 1:05:49like, well, I'm homeless for a month.
- 1:05:51This sucks. But you know, if I'm going to be
- 1:05:55homeless, I might as well be homeless in the woods.
- 1:05:57So I'm going to go to the Appalachian Trail, which is
- 1:05:59something I wanted to do since I was a kid.
- 1:06:02I grew up next to it in in Pennsylvania of Jersey border.
- 1:06:06And so I'm like, I'm just going to go be homeless in the woods.
- 1:06:08That sounds like way more fun than being homeless in the
- 1:06:10office, being homeless on my brother's couch.
- 1:06:13I didn't want to go to my parents because I felt like
- 1:06:17ashamed of all that. It was just a big dumpster fire.
- 1:06:20And I said, the woods, that's where I'm going.
- 1:06:24And I figured I actually just got a break in my job where I we
- 1:06:28had hired someone else who was able to take over my duties
- 1:06:30while I was away. And I said, hey, listen, boss,
- 1:06:33I'm going to leave for three months.
- 1:06:34The Appalachian Trail takes six months.
- 1:06:36So I'm not going to try to do the whole thing, but I'm going
- 1:06:38to do half. See ya.
- 1:06:40Hopefully I'll have a job. Right.
- 1:06:41And he's like, yeah, you'll have a job.
- 1:06:43Just come back in three months. So I figured I would go from
- 1:06:47West Virginia to Maine, which is 900 miles.
- 1:06:51Oh, no, wait, no, that's West Virginia to the end of the
- 1:06:54Appalachian Trail. In the middle of Maine is 1100
- 1:06:57miles. I ended up not doing the full
- 1:06:59thing. I did 900 miles.
- 1:07:00I quit a little bit earlier than I planned, but it was enough.
- 1:07:05It was enough for me to honestly gain a lot of courage and to
- 1:07:09gain the strength and the guts, frankly, to 1 leave my
- 1:07:14relationship. And I found out he was cheating
- 1:07:17on me the whole time anyway. And to move across the country,
- 1:07:21because I decided that once I was in the mountains, I couldn't
- 1:07:23go back to Baltimore and see all the cement.
- 1:07:26I wanted to go be somewhere with big mountains, which is why I'm
- 1:07:28now in Salt Lake City, UT. And three, it actually gave me
- 1:07:32the courage to practice as a doula.
- 1:07:34I didn't practice until I got off the trail.
- 1:07:36Then I finally realized I can do hard stuff.
- 1:07:39I survived all these things. I walked from West Virginia to
- 1:07:42Maine. I think I can be a death doula.
- 1:07:44I have all the training. I just have to start.
- 1:07:46I just have to begin. I have to volunteer, do this for
- 1:07:48free for a while or something. And that's the truncated version
- 1:07:52of it. But yeah, it was it was the best
- 1:07:54summer of my life. That's so badass, actually great
- 1:08:01idea. Why not?
- 1:08:02If you're like, why not just do this now?
- 1:08:05And literally what a great place to clear your mind, right,
- 1:08:10right. And it's and it's funny you
- 1:08:13mentioned what sounds like it was a not a great relationship
- 1:08:18as far as like ultimately, right.
- 1:08:20Like did you have any realizations when you were out
- 1:08:25there hiking? Any moments when you were like.
- 1:08:28No, I was a big fat dumbass and I didn't and I was very clingy
- 1:08:32to him the whole time. And like honestly, the app was
- 1:08:35char, but I think it's really remote.
- 1:08:36But you do have cell service for a lot of it.
- 1:08:38But then we hit Vermont and that's actually a pretty rugged
- 1:08:41state. I didn't know it was going to be
- 1:08:42so empty. There's nothing in Vermont and
- 1:08:44the cell signal just evaporated. And not being able to call my
- 1:08:47partner at the time, like freaked me out.
- 1:08:48And I almost, I was like so close to just quitting and being
- 1:08:51like, I'm going home. I hate this.
- 1:08:52I miss my partner. It actually, I didn't realize
- 1:08:55things were bad until I came home from the trail and he was
- 1:08:58acting kind of weird and kind of controlling.
- 1:09:00And I thought, oh, maybe this is just my fault because I'm just
- 1:09:02used to being in the woods for three months.
- 1:09:04No one told me what to do. I get to decide when they sleep.
- 1:09:07I get to decide when to pee in the woods.
- 1:09:09Like no one is controlling anything.
- 1:09:11I didn't have a job at that time.
- 1:09:13And now I'm back and I can't handle deadlines.
- 1:09:14I can't handle my partner asking for reasonable things.
- 1:09:17But he wasn't asking for reasonable things.
- 1:09:19He was just getting weird. And I realized it was because he
- 1:09:21was dating another woman while he was dating me and neither of
- 1:09:24us knew each other, like knew about each other.
- 1:09:26So that's kind of why he was getting squirrelly.
- 1:09:28I'm like, Oh my gosh, once I found that out it made so much
- 1:09:31sense. I'm not just crazy.
- 1:09:33So no, unfortunately. I wish.
- 1:09:36I wish I knew on trail that this was a bad idea, but I had to
- 1:09:40come home and figure it out. No, the hindsight, right?
- 1:09:43The hindsight is 2020. I can definitely relate to that.
- 1:09:47Yeah, I'm now engaged to a guy I've met on the trail though,
- 1:09:50so. So that was the best decision
- 1:09:55ever. It was Yeah, we we've been
- 1:09:57dating for three years now and we're going to get married in
- 1:10:002028. We're planning a wedding.
- 1:10:03So when you were on the trail, were you just like, did he like
- 1:10:06how did, was there a moment? How did you was it like hey need
- 1:10:11some water or like. No, he, he, he showed up.
- 1:10:17He showed up on the day that I, I, I hit 300 miles.
- 1:10:22So I was pretty seasoned. I was pretty strong at that
- 1:10:24point. And here comes this dude who had
- 1:10:26never really hiked. He was kind of out of shape.
- 1:10:29He hiked 20 miles on his first day with a pack that was like 60
- 1:10:31lbs, which is way too heavy. And he was not doing well.
- 1:10:38I was still with my partner. Technically.
- 1:10:40We were like, oh, OK, well, you're going to go on this hike
- 1:10:42and we'll come back and fix it. So I, I told this guy on the
- 1:10:45trail, I'm like, you know, you're really cool.
- 1:10:48No, it's just not. I kind of like you a little bit,
- 1:10:51but no. And we didn't do anything about
- 1:10:56that until we, until I came back and figured out I tried with the
- 1:10:59ex. And then I'm like, yeah, this
- 1:11:03there's something wrong here and I'm done.
- 1:11:05And then I'm like, oh, hey, I'm free.
- 1:11:07You want to. Hey.
- 1:11:09You want to get married one day? She's like, yes, yes, I.
- 1:11:12Do pretty much. That is awesome.
- 1:11:15I mean, that's poetic. That is beautiful.
- 1:11:18I got very lucky. Oh, that is cool.
- 1:11:22Well, from the way your face is and you're smiling right now, it
- 1:11:25it looks like he is bringing you some good energy, which is what
- 1:11:31you need and deserve in life, right?
- 1:11:34Like sometimes I say that I wouldn't be a doula without the
- 1:11:37trail and without him, because I with him, I found a safe place
- 1:11:40to try and to mess up because dual work is kind of scary.
- 1:11:45You know, like you're, you're, you're holding people's hearts
- 1:11:47in your hands and if you fuck up, you feel really bad.
- 1:11:50And, and I had a few bad experiences even in death dual
- 1:11:54work. And I was so scared to try and
- 1:11:56with him and just again, like this at the trail kind of helped
- 1:11:59me get ballsier. I'm like, yeah, I, I could have
- 1:12:03done this without that or him. And I'm like, thank you.
- 1:12:07So. It's, it's amazing to have
- 1:12:09somebody like I feel the same way with my husband that like
- 1:12:13I'll come out after this and he'll be like, how'd it go?
- 1:12:15And I'm like, great, He's like cool, you know, and then he's
- 1:12:17like doing something else or I'll be like, Hey, I'm, I'm
- 1:12:19recording. He's like, all right, cool, see
- 1:12:21ya. Or like guys, you know, and I'm
- 1:12:23like, cool it. It's nice to have that this
- 1:12:28place where you can exhale. A drama free support, especially
- 1:12:31after a bad relationship. It's like we both get that one.
- 1:12:38That is very true. Gosh, so cleared your head in
- 1:12:43the mountains and then kind of changed your life.
- 1:12:47And what I love is that what you said reminded me, like anyone
- 1:12:52who wants to start something like that conversation you had
- 1:12:55with yourself where you're like, listen, you just hiked.
- 1:12:58You just did all this. You kind of just like kept it
- 1:13:01real with yourself where you're like, you just got to do this
- 1:13:03and then you do this and then you do this.
- 1:13:05Like you break it down. This is what you're gonna have
- 1:13:07to do for a while and then this. And it's like you kind of just
- 1:13:11attack it. You know what you're like.
- 1:13:13If this is what I want, go get it right.
- 1:13:15The trail really helped me with that because I, I like a lot of
- 1:13:20the source and mental health stuff and just my biggest
- 1:13:23struggle in life, I think was the fact that I would always be
- 1:13:26the person who tried to live for tomorrow and tomorrow's plans.
- 1:13:30And I never ever could figure out how to just sink into the
- 1:13:32moment. Every week.
- 1:13:34It was like, oh, next Friday I could see my friends.
- 1:13:36Oh, in a month I'll be done with college.
- 1:13:39In a year, I'll be done with college.
- 1:13:41Don't do this, don't be happy. Don't oh, wait, you have to get
- 1:13:45a job first. Like don't, like I, I did not
- 1:13:48understand how to do a thing in the future and also not just
- 1:13:53completely obsessively go towards the thing.
- 1:13:56But then I figured out like when I was hiking, because that's a
- 1:13:58huge thing about hiking. I knew that this is the end
- 1:14:02goal. And there was a time in Vermont
- 1:14:04when I was hiking where I was like, Oh my gosh, obsessed with
- 1:14:06the goal. And I was so upset and furious
- 1:14:08and like having a hard time because I was going back from
- 1:14:11the stupid patterns that I had off trail and I brought them
- 1:14:15into the woods with me. I brought society's rules into
- 1:14:19the woods with me. And I realized, wait a second,
- 1:14:22if I just chill out. And the second I chilled out,
- 1:14:25man, the rest of my hike was amazing.
- 1:14:28It was like, wow, I know that I'm going towards the end.
- 1:14:30I know that it's coming, which is very similar to death work
- 1:14:33when you think of it. But I was able to be like, Oh my
- 1:14:36gosh, I'm so happy in these mountains.
- 1:14:38This is a really hard day today, but wow, it's so pretty and Oh
- 1:14:40my gosh, it's so awesome and this and that and this.
- 1:14:43And I got better at that when I, when I like, I took that lesson
- 1:14:47with me when I got off the trail.
- 1:14:49I'm like, OK, well, you can become a duo and you can choose
- 1:14:52to obsess about this again, or you can slowly purposefully chip
- 1:14:58away at these tasks like you were saying.
- 1:15:00But also you can't tie yourself forth into this.
- 1:15:03You can't, you can't only live when you become a death duo like
- 1:15:08and you're practicing death duo. You have to enjoy the process
- 1:15:11along the way or else you're just going to never live.
- 1:15:14You'll just be in the future and then you'll die and then you
- 1:15:17never, you just live for tomorrow, tomorrow, tomorrow
- 1:15:21moves. That's the whole point.
- 1:15:22It's called tomorrow for a reason.
- 1:15:24So yeah, when you said like attacking the stuff like that
- 1:15:26just reminded me of, Oh yeah, this is what I learned.
- 1:15:30It is it is so like you, you know, the end point, like it's a
- 1:15:36really good metaphor because I think whether you're trying to
- 1:15:40become something, whatever you're doing and like even with
- 1:15:43this podcast too, you know, like you, I have these goals in mind
- 1:15:48too. And then I'm like Bree, but like
- 1:15:51you're, you're, you're this is the beautiful part.
- 1:15:54Like, and you know, you, you even no matter what you're
- 1:15:58doing, you get or you're like, OK, well, must do.
- 1:16:01And you're like, yes, that's a great goal.
- 1:16:04But like every step and everything towards that goal is
- 1:16:07like, that's good too. It's really good.
- 1:16:10You're going to have realizations on the way to the
- 1:16:13thing, whatever The thing is. But like, what is the thing?
- 1:16:16Because when that thing's done, there's another thing.
- 1:16:18Yeah, right. It's it's the road leading
- 1:16:21there. Yeah, Who are you becoming when
- 1:16:23you're walking towards the thing that you're trying to get?
- 1:16:25That's that's what I took from it.
- 1:16:28That's what the that's what the hike taught me.
- 1:16:30That's what I think life has taught me.
- 1:16:31That's what I think death work is teaching me.
- 1:16:32And it's just helped me like be better at slowing down.
- 1:16:36And also the depression has never come back because I think,
- 1:16:39I think it was really connected to that problem I had of just
- 1:16:41always looking for tomorrow. And then when tomorrow came and
- 1:16:43it wasn't what I thought, I was just so upset and I just didn't
- 1:16:48know how to be happy. And so depression's like, hey,
- 1:16:51life sucks, you want to die? So yeah.
- 1:16:55Yeah, and and it's chasing a moment instead of or chasing
- 1:17:00some, some goal, right. But like, if you don't ground
- 1:17:04yourself in the moment, like you end up getting very depressed,
- 1:17:10you're either living back or forward, right?
- 1:17:13Like. It's it's so easy.
- 1:17:14I feel like everyone talks about like, oh, hustle culture sucks,
- 1:17:17Don't hustle. That's so bad.
- 1:17:19But but but then they also say things like, oh, well, you can
- 1:17:21just drift along and float around and everything's fine.
- 1:17:24Like, no, it's not. If you, if you just fool around
- 1:17:26with no goals, that kind of sucks.
- 1:17:27If you just obsessively pursue your goals, that also kind of
- 1:17:30sucks. So where's, where's the middle
- 1:17:33and all of that? Yeah.
- 1:17:36It's, it's like that balance, the quest for balance, right,
- 1:17:40the quest for balance in life. And then hopefully having like
- 1:17:45being prepared for and not dreading or fearing getting to a
- 1:17:50place where you can manage your fears around death like.
- 1:17:54But and they're all connected, right?
- 1:17:55So like 11 phrase that I love. I don't know if you studied, you
- 1:17:58mentioned religions and stuff, but Buddhism, they have this
- 1:18:01phrase. Yeah.
- 1:18:02Impermanence. Have you heard of that one?
- 1:18:03Yes. Everything you love you will
- 1:18:06lose. Everything you want you.
- 1:18:09Will lose, right? And that's a really depressing
- 1:18:12phrase. But one day I woke up and I'm
- 1:18:14like, oh, my gosh, The other half of that phrase, it's
- 1:18:17everything you love, you will lose.
- 1:18:19So what will you do right now? And that has helped unlock a lot
- 1:18:23of, like, the connection between death, work and life, work and
- 1:18:25like, living because, like, again, bringing it back to like,
- 1:18:28my fiance, he's going to die one day.
- 1:18:30Hopefully not anytime soon. Please God, no, But like what
- 1:18:34can I do right now to make the most of my time with him?
- 1:18:37And not saying like we're in a season of my 4.
- 1:18:39He's really busy. He just went back to school, so
- 1:18:40I don't see him that much. But when I do see him, can I
- 1:18:43choose to intentionally bring myself into the present with him
- 1:18:46instead of having my phone in my hand or thinking about the To Do
- 1:18:50List? Like no, I allocate my To Do
- 1:18:52List over here. And then when I'm here with him,
- 1:18:54I'm here with him. And that's like that
- 1:18:58impermanence piece. And also what will you do about
- 1:19:00it now piece? Yeah.
- 1:19:02It's that's rather empowering when you think of it.
- 1:19:04It's the acknowledgement and acceptance of that.
- 1:19:06But then you, you have a choice to like, actually make that
- 1:19:13moment something that you won't like, regret when it is actually
- 1:19:18gone, right? I'll still, I'll still, you
- 1:19:21know, your brains still do that. Like I've talked to clients
- 1:19:23who've had deaths of loved ones who have been quote UN quote,
- 1:19:26perfect deaths. They've been gentle.
- 1:19:27They've been lovely. And they still have regrets
- 1:19:29because the brain is still like, Oh my gosh, if I could have just
- 1:19:32controlled this one little piece.
- 1:19:33So I'm under no illusions that just because I have this high
- 1:19:35flute and philosophy that's going to make any of this any
- 1:19:37easier, it's still going to suck.
- 1:19:39When my fiance dies, when my mom dies, it's going to suck.
- 1:19:41Nothing I do is going to make that any better.
- 1:19:43And yet, can I still choose purposefully to try to make most
- 1:19:49of my time knowing that it's not going to really help when I'm
- 1:19:53deep in grief? But.
- 1:19:55You know that is like. It's nothing you do is going to
- 1:20:02like lessen, maybe lessen the pain, but it's like I like how
- 1:20:08you're highlighting that that the the way to it is feeling it.
- 1:20:14You got to feel it. You got to feel it.
- 1:20:16You can prepare. You can get the ducks in a row
- 1:20:19and then when it comes time, even even for a death doula,
- 1:20:23death is hard, even if you know everything about death and
- 1:20:28you're a human. For humans, that's hard, yeah.
- 1:20:31Human. Yes, for humans.
- 1:20:34But there are different ways we could think of it that can be
- 1:20:38different perspectives. It doesn't necessarily make it
- 1:20:40less hard, but it invites a different conversation to the
- 1:20:44mix Besides, oh, it's just hard. It's just hard and.
- 1:20:48Yes. And even if like, even if you,
- 1:20:52you know, have lived a lovely life and like you said that
- 1:20:56you're, you're most likely an important attachment figure for
- 1:20:59somebody, whether you believe it about yourself or not, right?
- 1:21:03Like I think all of us hold a place for somebody that we might
- 1:21:07not even like, feel worthy of, but like they're going to miss
- 1:21:10us when we're gone. And it's like, really beautiful
- 1:21:15to know that there are death doulas and there are grief,
- 1:21:19grief support, and there are people who will help you write
- 1:21:23someone's story. Like, that's so cool that like,
- 1:21:28death is getting death should get the same attention that life
- 1:21:31gets, you know? Yeah, especially since
- 1:21:34especially since to me, and the longer I study it, to me,
- 1:21:37they're very intertwined. To me, I think studying death
- 1:21:40helps me live better in my life. And I wish that that part, if
- 1:21:44nothing else, was highlighted about death.
- 1:21:46But. Studying, yeah, it doesn't make
- 1:21:49you like, like it. The more you learn about it,
- 1:21:52probably the sweeter things taste and the more beautiful the
- 1:21:56sunset might be at times when you're like, huh, this is
- 1:21:59impermanent, this is impermanent, This is passing at
- 1:22:03some point. Yeah.
- 1:22:06Nikki, I could talk to you forever.
- 1:22:08I'm looking up here. We're at an hour and 22 minutes.
- 1:22:11You're. As a.
- 1:22:12Rock start. No, it's a I guess there's and
- 1:22:16there's even there's so much more I don't wanna.
- 1:22:18We've barely scratched the surface.
- 1:22:21But the good news is is that anyone hearing this around the
- 1:22:24world, 'cause we are global, maybe anyone hearing this can
- 1:22:29reach out to. You can look at your Instagram,
- 1:22:32the links in the show notes, how they can contact you website for
- 1:22:37the variety of really, really necessary and just I think it's
- 1:22:45incredible the services you offer because it's such a taboo
- 1:22:49topic. I think it's really brave and
- 1:22:52and and oh, go on, go on Bubba, this.
- 1:22:56I need a studio. I'm doggy but.
- 1:22:58Like, I swear, I'm like, I'm like, it's gonna be fine at
- 1:23:012:00. And then I'm like, there is a
- 1:23:03circus going on outside. It's fine.
- 1:23:11OK. Where was I?
- 1:23:12Sorry, I got totally distracted. I just, I just think it's very
- 1:23:15necessary and very admirable that you are accompanying people
- 1:23:20in a very difficult time. And I just think this episode, I
- 1:23:24think is going to put a ton of light on the support that is
- 1:23:28available for people. Yeah, there is support.
- 1:23:32It's just hard to just hard to find it.
- 1:23:34Hard to find now. I'm going to let you have the
- 1:23:37mic for the last minute here. Is there anything else in
- 1:23:41between my, you know, sporadic questioning, anything that you'd
- 1:23:45like to kind of leave the audience with before we we sign
- 1:23:49off here? I.
- 1:23:51Think these last two minutes have been really illuminating
- 1:23:54and just highlight at least on the piece that I most like to
- 1:23:58focus on, which is that aspect of, you know, death is hard and
- 1:24:03grief is hard. And no one is saying no one's
- 1:24:05minimizing those things. No one is toxic positivity, and
- 1:24:08those things we're just trying to say, or I'm just trying to
- 1:24:12say my whole shindig, is that we can hold space for that
- 1:24:16horrible, painful, difficult reality.
- 1:24:18And we can also welcome in the reality that because our lives
- 1:24:22are impermanent, because we die, because our loved ones die,
- 1:24:24because there is tragedy and it sucks, there is also a way to
- 1:24:31sweeten life and to sink deeply into the texture of life because
- 1:24:35you know it's not going to be here forever.
- 1:24:38You know your loved ones aren't going to be here forever.
- 1:24:40So go give somebody a hug. I think I don't know if you saw
- 1:24:43my Instagram real Bri I the the one about call your mom I.
- 1:24:47Saw that today. Call your.
- 1:24:48Mom Yeah. So everybody should go listen to
- 1:24:50that song. That was my comfort song for the
- 1:24:51entirety of last year. And I called my mom a few times
- 1:24:55and I texted her and I wrote her letters and I, you know, not
- 1:25:00getting down the rabbit hole of difficult relationships, but
- 1:25:02when able, we should say those things.
- 1:25:05Now I think that's a big lesson the death has taught me as well
- 1:25:09is just say them now because you don't know.
- 1:25:11I've talked to clients who they've received one phone call
- 1:25:15and that's it. Like their person is dead.
- 1:25:17And it was unexpected. It was an accident.
- 1:25:19It was violence. It was something something that
- 1:25:22they did not think, you know, I'll see you tomorrow.
- 1:25:25No, they won't see him tomorrow because they're gone.
- 1:25:27And it's a pretty frightening reality.
- 1:25:31It's one that can certainly induce anxiety, which it does in
- 1:25:34me occasionally. I've had to sit with that too.
- 1:25:38And so it's like, well, are we going to let it paralyze us into
- 1:25:40inaction and anxiety or are we going to let it make us do
- 1:25:44something with it while still being a little anxious?
- 1:25:47Because I'm still a little anxious of my fiance not coming
- 1:25:50home. So, you know, things like that.
- 1:25:52Because we love him. Yeah, and you never know, it's
- 1:25:55like, it could be everyone's like when I went on the
- 1:25:57Appalachian trailer. But it's like, oh, are you going
- 1:25:59to bring a gun? What about bears?
- 1:26:00Are you going to die? And I'm like thinking to myself,
- 1:26:02statistically, it's so much more likely to be to be killed
- 1:26:05driving to the grocery store 5 minutes away from my house and
- 1:26:08walking 900 miles to Maine because that's I, I, I drive
- 1:26:12through intersections and see some pretty horrific accidents
- 1:26:15and I'm like, oh, someone died. There's an ambulance there.
- 1:26:17There's a, there's a, there's a stretcher there.
- 1:26:18Someone probably is dead. Oh boy, that could have been me
- 1:26:21if I came here 5 minutes earlier.
- 1:26:22So just notice in those reminders and not letting them
- 1:26:26paralyze you but instead wondering where is the
- 1:26:28invitation in this? I love that.
- 1:26:31Where is the invitation in this well?
- 1:26:34The answer is probably going to be different for everybody, by
- 1:26:36the way. It might not look the same for
- 1:26:37you As for me or, you know, just depending on your circumstances,
- 1:26:39that's OK. Well, I Speaking of invitation,
- 1:26:43I invite all of you listeners to check out Nikki's page, check
- 1:26:49out the services she has to offer.
- 1:26:51If you're grieving anybody, right?
- 1:26:54Any, all grief, if, if you're griefing is I'm going to think
- 1:26:58of you. If, if today you're just grief,
- 1:27:00grief is griefing, then that is valid.
- 1:27:03And people like Nikki can, can help you through that.
- 1:27:07So you might, you might be getting a knock on your door
- 1:27:11from me actually to just plan some stuff.
- 1:27:14I mean, this is I'm just going to look at life differently now.
- 1:27:19We should get on zoom and talk in a non podcast form and just
- 1:27:21chat and see if we could like work together or like just chat.
- 1:27:25This has been really fun. I see.
- 1:27:27I think it's gonna be, I see some collaborations.
- 1:27:31My little brain, my hyper disorganized brain is like you
- 1:27:37could do so many. Things we should talk about
- 1:27:38podcast SEO at some point that's something that I know like for
- 1:27:41like marketing and that's the way to get your podcast like
- 1:27:43those goals you're talking about so we could we could chat about
- 1:27:45that too. I.
- 1:27:47Think you're going to be getting a message from me on that one,
- 1:27:49that's for sure. All right, well, with that, I am
- 1:27:53going to gratefully close episode 78 again.
- 1:27:59Nikki, thank you so much. I am so grateful to God, to
- 1:28:04everything, all the Instagram powers that somehow connected
- 1:28:07us. And you have such a calm energy
- 1:28:13about you that I just, I feel very at ease talking to you.
- 1:28:18And I think, not that I know anything about anything, but I
- 1:28:22can see why you're doing what you're doing because of just
- 1:28:25your whole, your whole energy. It's just a beautiful thing.
- 1:28:30So thank you. Yeah, This has been great,
- 1:28:32Brian. It's been so fun.
- 1:28:33I love talking about this stuff. And you're such a, like,
- 1:28:36vivacious, lively host with such good questions.
- 1:28:39Yeah, this is great. Hey, I'm learning I got some
- 1:28:42imposter syndrome up in here so thank you for that one.
- 1:28:45Oh gosh, no, no I wouldn't. We all struggle, right?
- 1:28:51All right, guys. Well, I am.
- 1:28:52I'm signing us off here and thank you so much for being
- 1:28:55here. Until next time.