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Friedreich’s Ataxia Drug Delay | Cork News
A Cork father pleads for urgent action as his son Paudie, one of just 200 people in Ireland with Friedreich’s ataxia, desperately needs a life-saving drug—Skyclarys, already approved in the US and Europe but not yet available here. The HSE has delayed its decision, citing need for more research, while the Taoiseach calls for faster progress from Biogen and urges respect for the scientific process. With the drug costing nearly 280,000 euro annually, and the family haunted by the recent loss of their younger son Rory, time is running out for Paudie and others facing this devastating…
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