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Activists Around the World: Luciana Viegas · Stuff Mom Never Told You

• 0:05
  Speaker 1: Hey, this is Anny and smitha welcome to stuff. When
• 0:08
  Speaker 1: I ever told your prediction of I heard you.
• 0:18
  Speaker 2: And welcome back to another episode of Activists around the World,
• 0:22
  Speaker 2: and today we are celebrating the works of Luciana Vegas
• 0:26
  Speaker 2: from Brazil. Vegas' story is a bit similar to our
• 0:30
  Speaker 2: last Activist around the World why Johnson was. I was like,
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  Speaker 2: wait what because she is also a mother of a
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  Speaker 2: non verbal autistic child, and because of this she became
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  Speaker 2: a fierce advocate for the black disabled people in her
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  Speaker 2: community of Brazil. So I love that these stories are
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  Speaker 2: like a little more closely related, because it's true that
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  Speaker 2: the fact that we need this on a broader scale
• 0:54
  Speaker 2: is kind of what we're talking about and how it
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  Speaker 2: looks like from community to community.
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  Speaker 3: And I love that aspect.
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  Speaker 2: Described as a quote black autistic activist, pedagogue, mother of
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  Speaker 2: an autistic child, and this is in Mydiversitability dot com article.
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  Speaker 2: Vegas used her skills and passion to co found Vidas
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  Speaker 2: Negroes comb Defaciensia importam or in English, Black Disabled Lives
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  Speaker 2: Matter Brazil and it's also known as VNDI based on
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  Speaker 2: their words. So I'm going to try to refer to
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  Speaker 2: it as V and di I. However, because I have
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  Speaker 2: all the articles translated, it's going to say BDLM. So
• 1:30
  Speaker 2: if you hear me inter change that is because I
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  Speaker 2: read it off and I'm trying to say V and
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  Speaker 2: di I just with that there. So this was created
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  Speaker 2: in twenty twenty. V and di I was created to
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  Speaker 2: quote highlight the intersection between racism and ableism in Brazil
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  Speaker 2: and highlight the rights of black and other marginalized people
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  Speaker 2: with disabilities in the country. And that's back to that
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  Speaker 2: my diversitability dot com article from their site vedas negroes
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  Speaker 2: coomb Defacinia dot org. They write, we are an anti
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  Speaker 2: racist and anti ablest movement for black lives. The movement,
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  Speaker 2: they say is our work takes place through social media
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  Speaker 2: focusing on awareness, education and support, and through collective actions
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  Speaker 2: via public demonstrations and events, always engaging with existing intersections
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  Speaker 2: with other social movements. We value the inclusion of people
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  Speaker 2: with disabilities, their families and caregivers, and the promotion of
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  Speaker 2: human dignity, advocating for neurodiversity and quality of life, understanding
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  Speaker 2: disability as a part of human diversity as ensured by
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  Speaker 2: the International Convention on the Rights of persons with disabilities
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  Speaker 2: and the Universal Declaration of Human Rights, and I love
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  Speaker 2: that this is a part of that diversity and the
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  Speaker 2: way we should be looking at it. So on their
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  Speaker 2: side and continues with their manifests, which we're not going
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  Speaker 2: to quote the entire thing because it's a pretty long bit.
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  Speaker 2: Here's a snippet of it. Our struggle and mobilizations are
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  Speaker 2: driven by a social model that allows Black people with
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  Speaker 2: disabilities respect and human dignity through public policy protecting the
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  Speaker 2: disabled population as guaranteed by the Convention on the Rights
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  Speaker 2: of Persons with Disabilities. We fight against the denial of
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  Speaker 2: our existence by a social structure that is ablest and racist,
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  Speaker 2: which can be evidenced in the reduced number of studies
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  Speaker 2: and research, the lack of access to academic spaces, and
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  Speaker 2: actions that exclude us from public policies of inclusion, accessibility,
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  Speaker 2: and discussions with civil society. With our effective participation, this
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  Speaker 2: prevents access to accurate diagnosis and necessary individualized support, as
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  Speaker 2: well as the fight against institutional violence against people with disabilities,
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  Speaker 2: especially Black people with disabilities. Our work is based on
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  Speaker 2: supporting people with disabilities, their families and caregivers in their
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  Speaker 2: fight for justice yeah, So this manifest is beautiful, So
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  Speaker 2: if you have time, should definitely go to their site
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  Speaker 2: and read it in full because there's a lot that
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  Speaker 2: they are saying.
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  Speaker 3: That obviously we're not covering here.
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  Speaker 2: And yes, this organization does exactly all these things, and
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  Speaker 2: they are working on a political level to fight for
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  Speaker 2: equality and equity for all citizens. So back to their site,
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  Speaker 2: they write this. Part of V and d I's work
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  Speaker 2: involves political advocacy at various levels, both nationally and internationally.
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  Speaker 2: The movement participates in numerous initiatives for the rights of
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  Speaker 2: black people and people with disabilities, including coordinating and setting
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  Speaker 2: the agenda for the issues of the racialization of these bodies.
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  Speaker 2: So they have done a lot of political things and
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  Speaker 2: Vegas has used her voice to do this with V
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  Speaker 2: and di I. In twenty twenty one, Vegas spoke at
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  Speaker 2: the Supreme Federal Court of Brazil for disability rights movement
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  Speaker 2: against segregated education in Brazil that had been proposed as law,
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  Speaker 2: and with her information and her voice, the court suspended
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  Speaker 2: that judgment, so that did not happen.
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  Speaker 3: We'd love to see it.
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  Speaker 2: And she, with other organizations, was able to collect data
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  Speaker 2: about black people with disabilities in Brazil and present it
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  Speaker 2: to the United Nations Committee on the Elimination of Racial
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  Speaker 2: Discrimination or CERD. In a twenty three five article written
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  Speaker 2: about her works for Ford Foundation dot org, she tells them,
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  Speaker 2: when I created Black Disabled Life Matter or VNDI I
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  Speaker 2: knew the problem to address was not about autism. It
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  Speaker 2: was not about neurodivergent people or neurodivergent black people, said Vegas.
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  Speaker 2: The problem was that our systems were inadequate in recognizing
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  Speaker 2: the intersectionality between racism and ableism, which is something we
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  Speaker 2: talked about often. And she also talked about her experience
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  Speaker 2: in gathering the data for the CERD. She said, we
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  Speaker 2: are the first organization to collect data about black people
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  Speaker 2: with disabilities in Brazil. Before this, our government only had
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  Speaker 2: disaggregated data. There was data about black people in Brazil
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  Speaker 2: and separate data on people with disabilities, but none about
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  Speaker 2: how many.
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  Speaker 3: Black disabled people there are.
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  Speaker 2: In conjunction with partners including Minority Rights and the University
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  Speaker 2: of York, we built this research and then put it
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  Speaker 2: in accessible language for all people to understand. Now, with
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  Speaker 2: this growing awareness of the community, others are asking how
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  Speaker 2: they can join in this work and build more support
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  Speaker 2: for black disabled people. That and we've talked about how
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  Speaker 2: oftentimes a lot of the data is incomplete and it's
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  Speaker 2: taken organizations and people like her to get that complete
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  Speaker 2: look in this research, because I cannot believe we're not
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  Speaker 2: even talking about this, like we're tiving to talk about
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  Speaker 2: stuff like this in twenty twenty five as of that
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  Speaker 2: article states and from nicia Preta dot com, here's what
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  Speaker 2: they write about the objective of the research and data.
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  Speaker 2: The overall objective is to propose a comprehensive measure to
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  Speaker 2: protect the rights of marginalized people with disabilities who suffer
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  Speaker 2: intersectional discrimination in Brazil. The movement believes that the intersection
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  Speaker 2: between the forms of oppression of racism and ableism has
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  Speaker 2: been recognized through social justice movements that aim to build
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  Speaker 2: an anti racist, anti ablest, and inclusive society for all. Thus,
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  Speaker 2: this project highlights the systemic racism experienced by black and
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  Speaker 2: mixed race Brazilians with disabilities, neurodiverse individuals and their families
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  Speaker 2: at both the international and national levels.
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  Speaker 3: Man, that's such amazing work.
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  Speaker 2: And you could actually go to their site and see
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  Speaker 2: that report and it's complete, and yeah, her work is
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  Speaker 2: only expanding. She and the organization is working with different
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  Speaker 2: organizations around the world, including in Thailand and Nepaulit and
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  Speaker 2: of course Latin America. And back to that same Ford
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  Speaker 2: Foundation article, she says this about her goals and hopes
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  Speaker 2: with the organization and her work. Despite the international growth
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  Speaker 2: and impact of BDLM or V and di I Vegas,
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  Speaker 2: ultimate goal has remained the same since its inception. I
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  Speaker 2: created V and di I for my son, she said,
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  Speaker 2: So if we can help create a better world one
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  Speaker 2: whether there is greater support for an understanding of the
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  Speaker 2: lives and the stories of black people with disabilities, that's.
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  Speaker 3: Good enough for me.
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  Speaker 2: Oh sometimes I feel like the bar is so low
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  Speaker 2: just for equality. Come on, But we love to see
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  Speaker 2: this amazing type of work and we're so excited to
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  Speaker 2: see what she and the V and Di I continue
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  Speaker 2: to do.
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  Speaker 1: Yes, absolutely well listeners. As always, if you have any
• 7:56
  Speaker 1: thoughts about this, if you have any suggestions for people
• 7:59
  Speaker 1: or organization we should spotlight, please let us know. You
• 8:03
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• 8:06
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• 8:10
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• 8:13
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• 8:17
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• 8:20
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• 8:22
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