A Rare Collection - Five Advocacy Aces Share Their Conference Commandments

Once Upon A Gene · Oct 5, 2023 · 39m

ONCE UPON A GENE - EPISODE 201

A Rare Collection - Five Advocacy Aces Share Their Conference Commandments

EPISODE HIGHLIGHTS

Melissa Hioco, STXBP1

DO:

Offer a family hospitality room where parents can see the broadcast and stay involved in the conference.

Provide sibling spaces and make them feel special.

Spend the extra money to provide a buffet dinner and a kid's buffet with kid-friendly food.

Ask for discounts on everything.

Find a local AV company who will work within your budget.

Create sponsorship tiers and ask for sponsorship.

Provided one-on-one genetic counseling to families at no…