Severe Autism, Caregiving, and the System That Fails Families with National Council on Severe Autism's, Jackie Kancir.

Inchstones with Sarah | Autism Advocacy & Caregiver Stories · Mar 17, 2026 · 32m · transcript

Autism parenting at the severe and profound end of the spectrum often reveals a reality that systems are not built to support. In this conversation, Autism Mom Sarah Kernion speaks with Jackie Kancir, Executive Director of the National Council on Severe Autism (NCSA), about the growing gap between what families need and what existing structures provide.

Drawing from both personal experience and national advocacy work, Jackie outlines how caregiving for children with severe and nonspeaking autism places sustained pressure on families—emotionally, financially, and physically. The conversation…