A Rare Collection - Batten Down the Hatches
ONCE UPON A GENE - EPISODE 156
A Rare Collection - Batten Down the Hatches
There's power in storytelling- for the listener and the storyteller. A Rare Collection is a monthly series featuring people from the rare disease community, sharing a story with a common theme.
EPISODE HIGHLIGHTS
My best friend- Kelly Vandewerker
Prior to 2015, I lived a life unaffected by rare disease. When Effie became pregnant, I hosted her baby shower and couldn't wait for her baby to be born. I had a three year old and one year old at the time and imagined them being best friends, going to summer camp together…
The skinny
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